1
40
3
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1049909108322294" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049909108322294</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The use of pediatric advance directives: a tool for palliative care physicians.
Publisher
An entity responsible for making the resource available
The American Journal Of Hospice & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Humans; United States; Personal Autonomy; decision making; DNAR; Palliative Care/es [Ethics]; Palliative Care/og [Organization & Administration]; Advance Care Planning/es [Ethics]; Right to Die/lj [Legislation & Jurisprudence]; Advance Care Planning/og [Organization & Administration]; Palliative Care/px [Psychology]; Child Advocacy; Pediatrics/og [Organization & Administration]; Child Advocacy/es [Ethics]; Child Advocacy/lj [Legislation & Jurisprudence]; Child Advocacy/px [Psychology]; Minors/lj [Legislation & Jurisprudence]; Minors/px [Psychology]; Parental Consent/es [Ethics]; Parental Consent/lj [Legislation & Jurisprudence]; Parental Consent/px [Psychology]; Patient Participation/lj [Legislation & Jurisprudence]; Patient Participation/px [Psychology]; Pediatrics/es [Ethics]; Right to Die/es [Ethics]
Creator
An entity primarily responsible for making the resource
Zinner SE
Description
An account of the resource
Although laws such as the Patient Self-Determination Act encourage individuals to address their end-of-life treatment preferences using advance directives, the wishes of children have traditionally been ignored or, perhaps even worse, overruled. Given that there is a substantial body of research indicating that children are capable of making mature decisions when faced with terminal illness, the author proposes granting minors, especially older minors, the right to participate in making end-of-life decisions. Children who complete advance directives benefit in multiple ways. Adopting this approach could benefit patients by demonstrating respect for patient autonomy and informing parents and providers that the minor may be ready to stop aggressive treatment.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1049909108322294" target="_blank" rel="noreferrer">10.1177/1049909108322294</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Advance Care Planning/es [Ethics]
Advance Care Planning/og [Organization & Administration]
Backlog
Child
Child Advocacy
Child Advocacy/es [Ethics]
Child Advocacy/lj [Legislation & Jurisprudence]
Child Advocacy/px [Psychology]
Decision Making
DNAR
Humans
Journal Article
Minors/lj [legislation & Jurisprudence]
Minors/px [Psychology]
Palliative Care/es [Ethics]
Palliative Care/og [Organization & Administration]
Palliative Care/px [psychology]
Parental Consent/es [Ethics]
Parental Consent/lj [Legislation & Jurisprudence]
Parental Consent/px [Psychology]
Patient Participation/lj [Legislation & Jurisprudence]
Patient Participation/px [Psychology]
Pediatrics/es [Ethics]
Pediatrics/og [Organization & Administration]
Personal Autonomy
Right to Die/es [Ethics]
Right to Die/lj [Legislation & Jurisprudence]
The American Journal of Hospice & Palliative Care
United States
Zinner SE
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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February 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2018 List
URL Address
<a href="http://doi.org/10.1007/s11916-004-0008-x" target="_blank" rel="noreferrer">http://doi.org/10.1007/s11916-004-0008-x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Integrating palliative care in pediatrics
Publisher
An entity responsible for making the resource available
Current Pain & Headache Reports
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Palliative Care; Pediatrics/og [Organization & Administration]; adolescent; Child; Delivery of Health Care; Humans; infant; Integrated/og [Organization & Administration]; Only Child; Palliative Care
Creator
An entity primarily responsible for making the resource
Weinstein SM; Walton O
Description
An account of the resource
An integrated palliative care plan with goals of therapy that change throughout a child's illness will reflect an individualized, child-centered, and family-centered approach to care. This care plan will act as a foundation to assist and guide all providers, from the primary pediatrician to the subspecialty surgeon, in providing interventions that will most benefit a child and add life to the child's years. [References: 19]
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s11916-004-0008-x" target="_blank" rel="noreferrer">10.1007/s11916-004-0008-x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2004
Adolescent
Child
Current Pain & Headache Reports
Delivery of Health Care
February 2018 List
Humans
Infant
Integrated/og [Organization & Administration]
Only Child
Palliative Care
Pediatrics/og [Organization & Administration]
Walton O
Weinstein SM
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2018 List
URL Address
<a href="http://doi.org/10.1007/s00431-012-1710-z" target="_blank" rel="noreferrer">http://doi.org/10.1007/s00431-012-1710-z</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Pediatric palliative care-when quality of life becomes the main focus of treatment
Publisher
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European Journal Of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Palliative Care; Pediatrics/og [Organization & Administration]; Quality of Life; bereavement; Chronic disease; Communication; decision making; Family Health; Humans; Palliative Care/og [Organization & Administration]; Patient-Centered Care; Spiritual therapies
Creator
An entity primarily responsible for making the resource
Bergstraesser E
Description
An account of the resource
Pediatric palliative care (PPC) focuses on children and adolescents with life-limiting diseases. It may be initiated at various points of the disease trajectory, if possible early enough to support living with the best possible quality of life despite a limited lifespan. From birth to adolescence, children with a broad spectrum of diseases may benefit from PPC. Since 50% of deaths in childhood occur within the first year of life, PPC is just as relevant to neonatology. Causes of death in the neonate and young infant are due to perinatal conditions such as preterm birth and congenital disorders and syndromes; in older children, external causes, such as traumatic injuries, outweigh disease-related causes of death. PPC may last from a few hours or days for neonates to many years for children with complex chronic conditions. For neonates, PPC often has the character of end-of-life (EOL) care followed by bereavement care for the family. For older children, PPC can clearly be differentiated from EOL care; its indications include progress or deterioration of disease, marked instability of the child's condition, increase in the need for technical or medical support, increase in suffering, or failure of treatment. If a child's need for palliative care is established, useless and potentially harmful treatments may be withheld and informed choices can be made about treatment, care, and the remaining life of the child. Conclusion This review aims to provide knowledge for clinicians who care for children and adolescents at risk of dying from their disease. PPC can improve the child's remaining lifetime by focusing on quality of life and goals that are defined by the child and his or her family.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s00431-012-1710-z" target="_blank" rel="noreferrer">10.1007/s00431-012-1710-z</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2013
Bereavement
Bergstraesser E
Chronic Disease
Communication
Decision Making
European Journal of Pediatrics
Family Health
Humans
January 2018 List
Palliative Care
Palliative Care/og [Organization & Administration]
Patient-centered Care
Pediatrics/og [Organization & Administration]
Quality Of Life
Spiritual therapies