Who are the children using hospice care?
Palliative Care/sn [Statistics & Numerical Data]; Male; Infant Newborn; Young Adult; Child; Humans; Professional-Family Relations; Palliative Care/mt [Methods]; Adolescent; Socioeconomic Factors; Female; Child Preschool; Infant; California; Nurse-Patient Relations; Hospice Care/sn [Statistics & Numerical Data]; Neuromuscular Diseases/nu [Nursing]; Pediatric Nursing/mt [Methods]; Pediatric Nursing/sn [Statistics & Numerical Data]; Health Services Needs and Demand/og [Organization & Administration]; Health Services Needs and Demand/sn [Statistics & Numerical Data]; Hospice Care/mt [Methods]
PURPOSE: The purpose was to examine the characteristics of children who use hospice care. DESIGN AND METHODS: Using the Andersen Model of Health Services Use, California Medicaid administrative databases were analyzed to describe the characteristics of 76 children in hospice. RESULTS: The predisposing, enabling, and need characteristics of children were identified. Children who used hospice were a diverse group with community resources that enabled them to access care while presenting with serious health needs. Children enrolled in hospice were more likely older (15-20 years of age), resided nearer a pediatric hospice, and had a serious health condition such as neuromuscular disease with multiple comorbidities. PRACTICE IMPLICATIONS: With this knowledge, pediatric nurses can improve their clinical practice by targeting conversations with families and children most in need of hospice care.
Lindley LC; Shaw SL
Journal for Specialists in Pediatric Nursing
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1111/jspn.12085" target="_blank" rel="noreferrer noopener">10.1111/jspn.12085</a>
Improvements In Communication And Relationship Building Are Essential
Communication; Nurse-patient Relations; Palliative Care/st [standards]; Pediatric Nursing/mt [methods]; Pediatric Nursing/st [standards]; Humans
Understanding research priorities in children's palliative care is important for nurses, following the phasing out of the Liverpool Care Pathway, which has led to a change in palliative and end of life care ( Department of Health (DH) 2014 ). Advances in technology that can keep children alive for a long time is another area over which there is much debate ( Longden and Mayer 2007 ).
Anonymous
Nursing Children And Young People
2016
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
10.7748/ncyp.28.4.13.s17