1
40
7
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Title
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December 2021 List
Text
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December 2021 List
URL Address
<a href="http://doi.org/10.1111/jspn.12360" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/jspn.12360</a>
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Utilizing high-fidelity simulation to improve newly licensed pediatric intensive care unit nurses' experiences with end-of-life care
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Journal for Specialists in Pediatric Nursing
Date
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2021
Subject
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end-of-life; pediatric intensive care; high-fidelity simulation; new nurses
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Hillier MM; DeGrazia M; Mott S; Taylor M; Manning MJ; O'Brien M; Schenkel SR; Cole A; Hickey PA
Description
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PURPOSE: New pediatric intensive care unit (PICU) nurses face distinct challenges in transitioning from the protected world of academia to postlicensure clinical practice; one of their greatest challenges is how to support children and their caregivers at the end-of-life (EOL). The purpose of this quality improvement project was to create, implement, and assess the efficacy of a high-fidelity EOL simulation, utilizing the "Debriefing with Good Judgment" debriefing model. DESIGN AND METHODS: Participants were nurses with 4 years or less of PICU experience from a 404-bed quaternary care, free-standing children's hospital in the northeastern United States. Data were collected with the Simulation Effectiveness Tool-Modified (SET-M) and the PICU EOL Simulation Evaluation Survey. RESULTS: Twenty-four nurses participated; the majority (54%) were 25-29 years of age. The SET-M results indicate that the EOL simulation was beneficial to their learning and increased nurse confidence in delivering EOL care. Responding to the EOL Simulation Survey, participants rated high levels of confidence with tasks such as utilizing unit and hospital-based supports, self-care, ability to listen and support families, and medicating their patients at the EOL. PRACTICE IMPLICATIONS: This high-fidelity EOL simulation is a robust teaching tool that serves to support the unmet needs of the PICU nurses who care for dying children. Nurse participants had a unique opportunity to practice procedural and communication skills without risk for patient or family harm. Findings from this project can serve to guide curriculum changes at the undergraduate level as well as provide direction for new nurse orientation classes.
Identifier
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<a href="http://doi.org/10.1111/jspn.12360" target="_blank" rel="noreferrer noopener">10.1111/jspn.12360</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Cole A
December 2021 List
DeGrazia M
end-of-life
Hickey PA
high-fidelity simulation
Hillier MM
Journal for Specialists in Pediatric Nursing
Manning MJ
Mott S
new nurses
O'Brien M
Pediatric Intensive Care
Schenkel SR
Taylor M
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Dublin Core
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Title
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August 2021 List
Text
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August 2021 List
URL Address
<a href="http://doi.org/10.1111/nin.12437" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/nin.12437</a>
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Beyond technology, drips, and machines: Moral distress in PICU nurses caring for end-of-life patients
Publisher
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Nursing Inquiry
Date
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2021
Subject
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Canada; moral distress; pediatric intensive care; death and dying; end-of-life care
Creator
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Gagnon M; Kunyk D
Description
An account of the resource
Moral distress is an experience of profound moral compromise with deeply impactful and potentially long-term consequences to the individual. Critical care areas are fraught with ethical issues, and end-of-life care has been associated with numerous incidences of moral distress among nurses. One such area where the dichotomy of life and death seems to be at its sharpest is in the pediatric intensive care unit. The purpose of this study was to understand the moral distress experiences of pediatric intensive care nurses when caring for pediatric patients at the end of life. A secondary analysis was undertaken of seven transcripts from registered nurses across six Canadian pediatric intensive care units and produced three themes: under prioritization of child patient dignity, burden of insider knowledge, and environmental constraints on nursing roles and responsibilities. When caring for patients at the end of life, nurses experienced moral distress when a dignified death was not realized. Furthermore, despite interprofessional collaboration efforts in Canada, the concept of silo mentality persists and contributes to moral distress. Organizational involvement is needed to address moral distress in pediatric intensive care nurses both to achieve a dignified death for child patients and in addressing silo mentality.
Identifier
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<a href="http://doi.org/10.1111/nin.12437" target="_blank" rel="noreferrer noopener">10.1111/nin.12437</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
August 2021 List
Canada
Death and Dying
End-of-life Care
Gagnon M
Kunyk D
Moral Distress
Nursing Inquiry
Pediatric Intensive Care
-
Dublin Core
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Title
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September 2020 List
Text
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September 2020 List
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<a href="http://doi.org/10.1080/08854726.2019.1670538" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/08854726.2019.1670538</a>
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The fragile spirituality of parents whose children died in the pediatric intensive care unit
Publisher
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Journal of health care chaplaincy
Date
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2020
Subject
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end-of-life care; pediatric intensive care; spirituality
Creator
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Falkenburg J L; van Dijk M; Tibboel D; Ganzevoort R R
Description
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Spiritual care is recognized as a relevant dimension of health care. In the context of pediatric palliative end-of-life care, spirituality entails more than adhering to a spiritual worldview or religion. Interviews with parents whose critically ill child died in the pediatric intensive care unit revealed features of a spirituality that is fragmentary and full of contradictions. This type of spirituality, which we refer to as fragile, speaks of parents' connectedness with the deceased child and the hope of some kind of reuniting after one's own death. Acknowledging that fragments of spirituality can be part of parents' experiences in their child's end-of-life stage can be a meaningful contribution to compassionate care.
Identifier
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<a href="http://doi.org/10.1080/08854726.2019.1670538" target="_blank" rel="noreferrer noopener">10.1080/08854726.2019.1670538</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
End-of-life Care
Falkenburg J L
Ganzevoort R R
Journal of Health Care Chaplaincy
Pediatric Intensive Care
September 2020 List
Spirituality
Tibboel D
van Dijk M
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Dublin Core
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Title
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April 2018 List
Text
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Citation List Month
April 2018 List
URL Address
<a href="http://doi.org/10.3389/fped.2018.00003" target="_blank" rel="noreferrer noopener">http://doi.org/10.3389/fped.2018.00003</a>
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A Review of the Integrated Model of Care: An Opportunity to Respond to Extensive Palliative Care Needs in Pediatric Intensive Care Units in Under-Resourced Settings
Publisher
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Frontiers in Pediatrics
Date
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2018
Subject
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Humanities; pediatric intensive care; Child; Health Resources; Humans; Intensive Care Units; Only Child; Palliative Care; Pediatric; pediatric palliative care; child; consultative model; Humanism; integrated model of care; low-resource settings; pediatric critical care; Pediatric Palliative Screening Scale
Creator
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Grunauer M; Mikesell C
Description
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It is estimated that 6.3 million children who die annually need pediatric palliative care (PPC) and that only about 10% of them receive the attention they need because about 98% of them live in under-resourced settings where PPC is not accessible. The consultative model and the integrated model of care (IMOC) are the most common strategies used to make PPC available to critically ill children. In the consultative model, the pediatric intensive care unit (PICU) team, the patient, or their family must request a palliative care (PC) consultation with the external PC team for a PICU patient to be evaluated for special care needs. While the consultation model has historically been more popular, issues related to specialist availability, referral timing, staff's personal biases, misconceptions about PC, and other factors may impede excellent candidates from receiving the attention they need in a timely manner. Contrastingly, in the IMOC, family-centered care, PC tasks, and/or PC are a standard part of the treatment automatically available to all patients. In the IMOC, the PICU team is trained to complete critical and PC tasks as a part of normal daily operations. This review investigates the claim that the IMOC is the best model to meet extensive PPC needs in PICUs, especially in low-resource settings; based on an extensive review of the literature, we have identified five reasons why this model may be superior. The IMOC appears to: (1) improve the delivery of PPC and pediatric critical care, (2) allow clinicians to better respond to the care needs of patients and the epidemiological realities of their settings in ways that are consistent with evidence-based recommendations, (3) facilitate the universal delivery of care to all patients with special care needs, (4) maximize available resources, and (5) build local capacity; each of these areas should be further researched to develop a model of care that enables clinicians to provide pediatric patients with the highest attainable standard of health care. The IMOC lays out a pathway to provide the world's sickest, most vulnerable children with access to PPC, a human right to which they are entitled by international legal conventions.
Identifier
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<a href="http://doi.org/10.3389/fped.2018.00003" target="_blank" rel="noreferrer noopener">10.3389/fped.2018.00003</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
April 2018 List
Child
consultative model
Frontiers in Pediatrics
Grunauer M
Health Resources
Humanism
Humanities
Humans
integrated model of care
Intensive Care Units
low-resource settings
Mikesell C
Only Child
Palliative Care
Pediatric
Pediatric Critical Care
Pediatric Intensive Care
Pediatric Palliative Care
Pediatric Palliative Screening Scale
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Title
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Oncology
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Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2017.06.013" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2017.06.013</a>
Dublin Core
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Title
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Communication Challenges of Oncologists and Intensivists Caring for Pediatric Oncology Patients: A Qualitative Study
Publisher
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Journal Of Pain And Symptom Management
Date
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2017
Subject
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Communication Barriers; Goals Of Care; Interprofessional Communication; Pediatric Ethics; Pediatric Intensive Care; Pediatric Oncology
Creator
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Odeniyi F; Nathanson PG; Schall TE; Walter JK
Description
An account of the resource
CONTEXT: The families of oncology patients requiring intensive care often face increasing complexity in communication with their providers, particularly when patients are cared for by providers from different disciplines. OBJECTIVE: To describe experiences and challenges faced by pediatric oncologists and intensivists and how the oncologist-intensivist relationship impacts communication and initiation of goals of care discussions (GCDs). METHODS: We conducted semi-structured interviews with a convenience sample of ten physicians, including pediatric oncology and intensive care attendings and fellows. RESULTS: We identified key themes (3 barriers, 4 facilitators) to having GCDs with families of oncology patients who have received intensive care. Barriers included challenges to communication within teams because of hierarchy and between teams due to incomplete sharing of information and confusion about who should initiate GCDs; provider experiences of internal conflict about how to engage parents in decision making and about the "right thing to do" for patients; and lack of education and training in communication. Facilitators included team preparation for family meetings; skills for partnering with families; the presence of palliative care specialists; and informal education in communication and willingness for further training in communication. Notably, the education theme was identified as both a barrier and a resource. CONCLUSION: We identified barriers to communication with families both within and between teams and for individual physicians. Formal communication training and processes that standardize communication to ensure completeness and role delineation between clinical teams may improve oncologists' and intensivists' ability to initiate GCDs, thereby fulfilling their ethical obligations of decision support.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2017.06.013" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2017.06.013</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Communication Barriers
Goals Of Care
Interprofessional Communication
Journal of Pain and Symptom Management
Nathanson PG
Odeniyi F
Oncology 2017 List
Pediatric Ethics
Pediatric Intensive Care
Pediatric Oncology
Schall TE
Walter JK
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2017 List
Notes
<p>1557-8615<br />Hon, Kam Lun<br />Luk, Man Ping<br />Fung, Wing Ming<br />Li, Cho Ying<br />Yeung, Hiu Lee<br />Liu, Pui Kwun<br />Li, Shun<br />Tsang, Kathy Yin Ching<br />Li, Chi Kong<br />Chan, Paul Kay Sheung<br />Cheung, Kam Lau<br />Leung, Ting Fan<br />Koh, Pei Lin<br />Journal Article<br />United States<br />J Crit Care. 2017 Apr;38:57-61. doi: 10.1016/j.jcrc.2016.09.019. Epub 2016 Sep 30.</p>
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Title
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Mortality, length of stay, bloodstream and respiratory viral infections in a pediatric intensive care unit
Publisher
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Journal of Critical Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Length Of Stay; Asthma; Bacterial Coinfection; Child; Child Health Services; Child Preschool; Critical Care; Female; Hong Kong/epidemiology; Hospitalization; Humans; Infant; Intensive Care Units Pediatric; Leukemia; Logistic Models; Lymphoma; Male; Odds Ratio; Pediatric Intensive Care; Respiratory Tract Infections/complications/ Epidemiology/microbiology/mortality; Respiratory Virus; Retrospective Studies; Risk Factors; Sepsis/complications/ Epidemiology/microbiology/mortality; Survival Analysis
Creator
An entity primarily responsible for making the resource
Hon KL; Luk MP; Fung WM; Li CY; Yeung HL; Liu PK; Li S; Tsang KY; Li CK; Chan PK; Cheung KL; Leung TF; Koh PL
Description
An account of the resource
OBJECTIVES: We investigated whether diagnostic categories and presence of infections were associated with increased mortality or length of stay (LOS) in patients admitted to a pediatric intensive care unit (PICU). METHODS: A retrospective study of all PICU admissions between October 2002 and April 2016 was performed. Oncologic vs nononcologic, trauma/injuries vs nontraumatic, infectious (gram-positive, gram-negative, fungal bloodstream infections, common respiratory viruses) vs noninfectious diagnoses were evaluated for survival and LOS. RESULTS: Pediatric intensive care unit admissions (n = 2211) were associated with a mortality of 5.3%. Backward binary logistic regression showed that nonsurvival was associated with leukemia (odds ratio [OR], 4.81; 95% confidence interval [CI], 2.2-10.10; P < .0005), lymphoma (OR, 21.34; 95% CI, 3.89-117.16; P < .0005), carditis/myocarditis (OR, 7.91; 95% CI, 1.98-31.54; P = .003), encephalitis (OR, 6.93; 95% CI, 3.27-14.67; P < .0005), bloodstream infections with gram-positive organisms (OR, 5.32; 95% CI, 2.67-10.60; P < .0005), gram-negative organisms (OR, 8.23; 95% CI, 4.10-16.53; P < .0005), fungi (OR, 3.93; 95% CI, 1.07-14.42; P = .039), and pneumococcal disease (OR, 3.26; 95% CI, 1.21-8.75; P = .019). Stepwise linear regression revealed that LOS of survivors was associated with bloodstream gram-positive infection (B = 98.2; 95% CI, 75.7-120.7; P < .0005). CONCLUSIONS: Patients with diagnoses of leukemia, lymphoma, cardiomyopathy/myocarditits, encephalitis, and comorbidity of bloodstream infections and pneumococcal disease were significantly at risk of PICU mortality. Length of stay of survivors was associated with bloodstream gram-positive infection. The highest odds for death were among patients with leukemia/lymphoma and bloodstream coinfection. As early diagnosis of these childhood malignancies is desirable but not always possible, adequate and early antimicrobial coverage for gram-positive and gram-negative bacteria might be the only feasible option to reduce PICU mortality in these patients. In Hong Kong, a subtropical Asian city, none of the common respiratory viruses were associated with increased mortality or LOS in PICU.
Identifier
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10.1016/j.jcrc.2016.09.019
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Asthma
Bacterial Coinfection
Chan PK
Cheung KL
Child
Child Health Services
Child Preschool
Critical Care
Female
Fung WM
Hon KL
Hong Kong/epidemiology
Hospitalization
Humans
Infant
Intensive Care Units Pediatric
Journal of Critical Care
Koh PL
Length Of Stay
Leukemia
Leung TF
Li CK
Li CY
Li S
Liu PK
Logistic Models
Luk MP
Lymphoma
Male
November 2017 List
Odds Ratio
Pediatric Intensive Care
Respiratory Tract Infections/complications/ Epidemiology/microbiology/mortality
Respiratory Virus
Retrospective Studies
Risk Factors
Sepsis/complications/ Epidemiology/microbiology/mortality
Survival Analysis
Tsang KY
Yeung HL
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Text
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Citation List Month
November 2017 List
Notes
<p>1557-8240<br />Heneghan, Julia A<br />Pollack, Murray M<br />Journal Article<br />Review<br />United States<br />Pediatr Clin North Am. 2017 Oct;64(5):1147-1165. doi: 10.1016/j.pcl.2017.06.011.</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Morbidity: Changing the Outcome Paradigm for Pediatric Critical Care
Publisher
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Pediatric Clinics Of North America
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
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Critical Care; Functional Status; Morbidity; Outcomes; Outcomes Research; Pediatric Critical Care; Pediatric Intensive Care; Quality
Creator
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Heneghan JA; Pollack M
Description
An account of the resource
The focus of critical care has evolved from saving lives to preservation of function. Morbidity rates in pediatric critical care are approximately double mortality rates. Morbidity includes complications of disease and medical care. In pediatric critical care, functional status morbidity is an intermediate outcome in the progression toward death and is the result of the same factors associated with mortality, including physiologic profiles and case-mix factors. The Functional Status Scale developed by Collaborative Pediatric Critical Care Research Network is a validated, granular, age-independent measure of functional status that has proved valuable and practical even in large outcome studies.
Identifier
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10.1016/j.pcl.2017.06.011
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Critical Care
Functional Status
Heneghan JA
Morbidity
November 2017 List
Outcomes
Outcomes Research
Pediatric Clinics of North America
Pediatric Critical Care
Pediatric Intensive Care
Pollack M
Quality