Browse Items (367 total)
- Tags: PedPal Lit
The 2002 Schering Lecture. Children's cancer symptom experiences: keeping the spirit alive in children and their families
Tags: 2003, Attitude, Backlog, Canadian Oncology Nursing Journal, Child, Child welfare, Emotions, Family Health, Humans, Journal Article, Motivation, Neoplasms/complications/nursing/psychology, Non-U.S. Gov't, Nurse's Role, Palliative Care, PedPal Lit, Religion, Research Support, Social Support, Woodgate RL
Parenting a child with a chronic medical condition
Tags: 2004, Adult Disabled Children/psychology/rehabilitation Family/psychology Humans Infant Occupational Therapy Parenting/psychology Questionnaires Research Support, American Journal Of Occupational Therapy, and journals were analyzed for themes that related to caregiving, and self-identity. RESULTS: Parents felt that they "always needed to be with their child, Backlog, Case-Smith J, how they maintain their social lives, Journal Article, P.H.S., PedPal Lit, social activities, students' field notes, U.S. Gov't
Parent stress in the neonatal intensive care unit and the influence of parent and infant characteristics
Tags: 2004, Adolescent Adult Birth Weight Female Gestational Age Hospitals, American Journal Of Occupational Therapy, and regarding how the baby looked and behaved. The infant characteristic of gestational age resulted in significantly different scores concerning the baby's appearance and behavior. Consistent predictors of stress were length of stay, Backlog, Dudek-Shriber L, Extreme Prematurity, Journal Article, Neonatal Male Middle Aged Occupational TherapyParent-Child Relations Parenting/psychology Parents/psychology Regression Analysis Stress, Newborn Intensive Care Units, PedPal Lit, Psychological Urban Population%X OBJECTIVE: This study investigated the stress experienced by parents in the neonatal intensive care unit (NICU), the infant and parent characteristics that resulted in different stress responses, Urban Humans Infant
The pain experience of children with leukemia during the first year after diagnosis
Tags: 0-4). For the children 8 to 17 years old, 2004, Acute, Adaptation, Adlard K, ages 4 to 17 years, Alvarez O, and back (14.(TRUNCATED), and from their English- and Spanish-speaking parents. Age-appropriate instruments were used to examine the variables of pain intensity, and functional status. RESULTS: All the children reported pain over the course of the year. Pain intensity scores incorporated the full range of possible responses. For the children 4 to 7 years old, and outcomes during the first year after the diagnosis of acute leukemia. METHODS: A longitudinal descriptive approach was used to collect data at seven data points from 95 English- and Spanish-speaking children, and quality, and the associated procedures. For children with leukemia, as well as strategies for managing pain, Backlog, Beecroft P, Bossert E, head/neck (16.6%), Journal Article, L1/complications Longitudinal Studies Male Models, location, Lymphocytic, management strategies, Nursing Research, P.H.S. Treatment Outcome%X BACKGROUND: Children with cancer experience pain related to the disease process, pattern over time, PedPal Lit, perceived effectiveness of management strategies, Preschool European Continental Ancestry Group/psychology Female Hispanic Americans/psychology Humans Leukemia, Psychological Adolescent African Americans/psychology Age Factors Analysis of Variance Asian Americans/psychologyAttitude to Health California ChildChild Psychology Child, Psychological Nursing Assessment Nursing Methodology Research Pain/etiology/prevention & control/psychology Pain Measurement Questionnaires Research Support, receiving care in one of three southern California hospitals, respectively, Savedra MC, the highest and lowest mean scores, the pain experienced after diagnosis has received scant attention. OBJECTIVE: To examine the pain experience, the treatment, U.S. Gov't, Van Cleve L, were 2 and 1.6 (scale, were 50.1 and 39.5 (scale
Facilitating communication in children with multiple disabilities: three case studies of girls with Rett syndrome
Tags: 2004, Abnormalities, Akermanis M, Backlog, Diagnosis, Disability And Rehabilitation, however, increased communication opportunities provided by caregivers did not elicit increased responses from the girls. CONCLUSION: There is a difference in cueing by teachers in their interactions with children with multiple disabilities. Also, Journal Article, McGregor F, means findings should be viewed cautiously and that more research is indicated., more frequent communicative interactions did not necessarily lead to increased student responses. It is suggest ed that amount and type of cueing may need to be considered to be effective in generating student responses. The small number of participants, Multiple/diagnosis/rehabilitation Child Behavior/physiology Child, Non-U.S. Gov't Rett Syndrome, PedPal Lit, Preschool Communication Disorders/diagnosis/rehabilitation Female Follow-Up Studies Humans Infant Interpersonal Relations Language Development Disorders/diagnosis/rehabilitation Research Support, Ramke M, rehabilitation Risk Factors Sampling Studies Severity of Illness Index Sickness Impact Profile Treatment Outcome, Ryan D, Southwell K, Woodyatt G
Inter-rater reliability in assigning ICF codes to children with disabilities
Tags: 17/40 codes using the PEDI, 2004, 9 months to 17.75 years old, Activities of Daily Living Adolescent Child Child, alternative assessment strategies may be necessary to improve assigning ICF codes to children with disabilities., and 17/40 codes using the SFA. The mean kappa statistic reached > /= 0.70 for the Self care domain, and Health (ICF) to assign to children with disabilities based on the results of standard paediatric functional assessment measures. METHOD: Children (N = 60), Backlog, diagnosis/therapy, Disability, Disability And Rehabilitation, Disability Evaluation, Disabled Children Female Humans Infant Interpersonal Relations Male Observer Variation Reproducibility of Results Self Care Sensitivity and Specificity Sickness Impact Profile, Feldman H, for 23/40 codes using the Vineland, Journal Article, Kronk R, Ogonowski J, PedPal Lit, Preschool Cohort Studies Comparative Study Developmental Disabilities/, Rice C, the criterion for good agreement in this study, the Pediatric Evaluation of Disability Inventory (PEDI) (n = 20), with a range of disabilities were assessed using either the Vineland Adaptive Behavior Scales (n = 20)
Parents' perceptions of nurses' caregiving behaviors in the pediatric intensive care unit
Tags: 2004, Adult Attitude to Health Caregivers/psychology Child Child, and also helps to inform interventions to improve family-centered care in the PICU., and protecting. Parents' reports suggest that the best nursing behaviors are those that facilitate and complement critical aspects of the parent al role, Backlog, caring, Harbaugh BL, Hospital/psychology Parents/psychology Pediatric Nursing/standardsProfessional-Family Relations Quality of Health Care Research Support, Issues Compr Pediatr Nurs, Journal Article, Kirschbaum M, namely showing affection, Newborn Intensive Care Units, Non-U.S. Gov't Research Support, P.H.S.Social Perception, Pediatric/standards Male Midwestern United States Nursing Staff, PedPal Lit, Preschool Female Humans Infant Infant, thus reinforcing family integrity during a time of turmoil and uncertainty. Incorporating this knowledge into practice contributes to nurses' understanding of PICU hospitalization as a family event, Tomlinson PS, U.S. Gov't, watching
Transition of adolescents with special health care needs: review and analysis of the literature
Adolescent consent: choosing the right path
Tags: 2004, Adolescent Child Child Welfare/legislation & jurisprudence Ethics, Backlog, Hester CJ, Issues Compr Pediatr Nurs, Journal Article, PedPal Lit, Research Government Regulation Guidelines HumansInformed Consent/ethics/legislation & jurisprudenceResearch Subjects/legislation & jurisprudence United States
A review of subjective impact measures for use with children and adolescents with epilepsy
Tags: 2004, Adolescent Child Child, Backlog, Baker GA, Cowan J, instrumentation Quality of Life, Journal Article, PedPal Lit, physiopathology/psychology Female Great Britain Humans Male Outcome Assessment (Health Care) Psychometrics/, Preschool Epilepsy/, Psychology, Quality of Life Research, Sickness Impact Profile
How well do parents know their children? Implications for proxy reporting of child health-related quality of life
Tags: 2004, 26 and 11% of the parents gave > or = 3 and 6 > or = DK responses to 33 items comprising the PPQ. DK responses were associated with child's age and clinical co ndition, Adolescent Chi-Square Distribution ChildChild Welfare Female Humans MaleOral Health Parents/psychologyProxyQuality of Life Questionnaires Research Support, Backlog, given that parental and child reports are measuring different realities, Guyatt G, imputation of the value zero and adjustment of scores to account for items with DK responses. RESULTS: Respectively, information provided by parents is useful even if it is incomplete., item mean imputation, Jokovic A, Journal Article, Locker D, Non-U.S. Gov't%X OBJECTIVES: This study examined parental knowledge of their children's oral-health-related quality of life (OHRQoL) (Objective 1), PedPal Lit, Quality of Life Research
Quality of life as conveyed by pediatric patients with cancer
Tags: 2004, Adolescent, Adolescent Psychology Cancer Care Facilities Child, Backlog, Baker E, Child Psychology Female Humans Interviews Male Neoplasms/physiopathology/, Coleman B, Fletcher A, Gattuso JS, Hinds PS, Jackson T, Jacobs-Levine A, Journal Article, June D, Lensing S, methods Quality of Life/, Non-U.S. Gov't Research Support, P.H.S. Self Assessment (Psychology), PedPal Lit, psychology Questionnaires Research Support, psychology/therapy Pediatrics Pilot Projects Psychometrics/instrumentation/, Pui CH, Quality of Life Research, Rai SN, Sickness Impact Profile Tennessee, the domain most frequently missing was the meaning of being ill domain. Here we present a new definition of the quality of life of pediatric oncology patients that is based on six domains, this definition may ensure the completeness and sensitivity of these important instruments., U.S. Gov't
The World Health Organization's WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group
Tags: 2004, 80 and over Child Comparative Study Cross-Cultural Comparison Cross-Sectional Studies Female Humans Male Middle Aged Psychometrics/, 830). Sick and well respondents were sampled from the general population, Adolescent Adult Aged Aged, and to test its main psychometric properties. The WHOQOL-BREF is a 26-item version of the WHOQOL-100 assessment. Its psychometric properties were analysed using cross-sectional data obtained from a survey of adults carried out in 23 countries (n = 11, as reflected by its four domains: physical, as well as from hospital, Backlog, clinical settings and clinical trials. Using data from the WHOQOL-BREF field trials, cross-culturally valid assessment of QOL, discriminant validity and construct validity through confirmatory factor analysis, indicate that the WHOQOL-BREF has good to excellent psychometric properties of reliability and performs well in preliminary tests of validity. These results indicate that overall, instrumentation, item-total correlations, Journal Article, Lotfy M, O'Connell KA, PedPal Lit, Psychological, Quality Of Life, Quality of Life Research, rehabilitation and primary care settings, serving patients with physical and mental disorders and with respect to quotas of important socio-demographic variables. The WHOQOL-BREF self-assessment was completed, Sickness Impact Profile World Health Organization%X Quality of life (QOL) assessments that are easily administered and which do not impose a great burden on the respondent are needed for use in large epidemiological surveys, Skevington SM, social and environment., the objectives of this work are to examine the performance of the WHOQOL-BREF as an integrated instrument, the WHOQOL-BREF is a sound, together with socio-demographic and health status questions. Analyses of internal consistency
Validation of the German version of the Pediatric Quality of Life Inventory (PedsQL) in childhood cancer patients off treatment and children with epilepsy
Tags: 2004, Adolescent Child Child, and test the usefulness of the instrument in other clinical populations and healthy children., Backlog, epidemiology Humans Neoplasms, Felder-Puig R, Frey E, Gadner H, instrumentation Quality of Life, Journal Article, methods Psychometrics, PedPal Lit, physiopathology, Preschool Comparative Study Epilepsy, Proksch K, psychology Germany, psychology Parents Pediatrics, psychology Self Assessment (Psychology)Sickness Impact Profile Translating United States, Quality of Life Research, score distributions tended to be skewed toward higher HRQL, sensitivity and responsiveness, the German PedsQL seems to be equivalent to the original version. Future methodologic research should evaluate construct validity, Topf R, Varni JW
Recognizing the clinical features of Trisomy 13 syndrome
Tags: 2004, Abnormalities, Adams D, Advances in Neonatal Care, Backlog, Clark DA, Furdon SA, Human, Journal Article, Multiple/genetics/pathology Chromosome Aberrations/embryology Chromosome Disorders/diagnosis/genetics/pathology Chromosomes, Newborn Magnetic Resonance Imaging Pregnancy Prenatal Diagnosis Prognosis Prosencephalon/pathology Syndrome Trisomy/diagnosis/genetics/pathology, Pair 13/genetics Female Holoprosencephaly/diagnosis/etiology/pathology Humans Infant, PedPal Lit, Rios A
Discerning differences: gastroesophageal reflux and gastroesophageal reflux disease in infants
Tags: 2004, Advances in Neonatal Care, Backlog, Diagnosis, Differential Directories Gastroesophageal Reflux, Henry SM, Journal Article, Newborn Infant, Nursing, PedPal Lit, physiology Internet Nursing Assessment%X Gastroesophageal reflux (GER) is a frequently encountered problem in infancy, physiopathology, Premature, therapy Health Education Humans Infant Infant
Use of the parenting stress index in mothers of preterm infants
Tags: 2004, Adult Female Humans Infant, Advances in Neonatal Care, Backlog, Depaul D, future research should examine missing items more closely., however, Journal Article, Newborn Infant, Non-P.H.S. Stress, PedPal Lit, Premature, Psychological/diagnosis, psychology Male Mother-Child Relations Mothers/, psychology Parenting/, psychology Questionnaires/, Renaud MT, standards Reproducibility of Results Research Support, Thomas KA, U.S. Gov't
Effective strategies to prepare infants and families for home tracheostomy care
Tags: 2004, Adult, Advances in Neonatal Care, an overview of the impact of the tracheostomy on normal development, and granulation tissue formation are discussed. Humidification is critical for the infant with a tracheostomy and humidification delivery methods are discussed. Further, Backlog, bleeding, Family Health Education, Fiske E, Home Nursing/education Humans Infant, infection, Journal Article, mucus plugging, Neonatal Nursing Tracheostomy/education/instrumentation/, Nursing, PedPal Lit, such as swallowing and language development, suctioning
An evaluation of two subcutaneous infusion devices in children receiving palliative care
Tags: 2006, Backlog, Breen M, Journal Article, Paediatric Nursing, PedPal Lit
Controlled clinical trials in cancer pain. How controlled should they be? A qualitative systematic review
Noninvasive ventilation and dyspnea in palliative medicine
Tags: 2006, Backlog, Chest, Cuomo A, Journal Article, Maugeri FS, Nava S, PedPal Lit, Selecky PA
Difficult pain
Tags: 2006, Acupuncture/methods, Analgesia/methods, Analgesics, Backlog, Bmj, Colvin L, Fallon M, Forbes K, Forecasting, Humans, Journal Article, Methadone/therapeutic use, Nervous System Diseases/complications, Neuralgia, Opioid/therapeutic use, Pain/etiology/prevention & control, Palliative Care/methods, PedPal Lit, Psychotherapy/methods
Parents Influence and Advance Pediatric Policy
Postoperative sedation and analgesia after pediatric liver transplantation
Tags: 2006, Backlog, Fumagalli R, Ingelmo P, Journal Article, PedPal Lit, Sperti LR, Transplant Proc
Parent communication and child pain and distress during painful pediatric cancer treatments
Parental catastrophizing about their child's pain. The parent version of the Pain Catastrophizing Scale (PCS-P): A preliminary validation
Tags: 2006, Backlog, Crombez G, Eccleston C, Goubert L, Jordan A, Journal Article, Pain, PedPal Lit, Vervoort T
Effectiveness of virtual reality for pediatric pain distraction during i.v. placement
Challenging the philosophy of partnership with parents: A grounded theory study
Pain- and distress-reducing interventions for venepuncture in children
Nurse-led paediatric pre operative assessment: an equivalence study
Tags: 2006, Adolescent, Ambulatory Surgical Procedures/education/nursing, Backlog, Burge D, Child, Clinical Competence/standards, Comparative Study, Female, Glasper EA, Great Britain, Hospital/education/standards, Hospital/standards, Hospitals, Humans, Infant, Jones S, Journal Article, Male, McDonald H, Medical History Taking/standards, Medical Staff, Mullee M, Nurse's Role, Nursing Assessment/standards, Nursing Evaluation Research, Nursing Staff, Paediatric Nursing, Pediatric Nursing/education/organization & administration, PedPal Lit, Perioperative Nursing/education/organization & administration, Physical Examination/nursing/standards, Preoperative Care/nursing, Preschool, Rushforth H, Sensitivity and Specificity, Single-Blind Method, Teaching
Parent and child anxiety sensitivity: relationship to children's experimental pain responsivity
Tags: 2006, Backlog, Journal Article, Kim SC, Lu Q, Myers CD, PedPal Lit, The Journal Of Pain, Tsao JC, Turk N, Zeltzer LK
Perceptions of inadequate health care and feelings of guilt in parents after the death of a child to a malignancy: a population-based long-term follow-up.
Palliative care in the fetus and newborn
[How to discuss death with a dying child: a story can help?]
Level of agreement between children, parents, and physicians in rating pain intensity in juvenile idiopathic arthritis
Chronic abdominal pain in children: an update
Tags: 2006, Abdominal Pain/diagnosis/epidemiology/therapy, Adolescent, Backlog, Child, Chronic Disease, Combined Modality Therapy, Continuing, Education, Female, Friesen CA, Gastrointestinal Diseases/diagnosis/epidemiology/therapy, Humans, Journal Article, Male, Medical, Missouri Medicine, Missouri/epidemiology, Pain Measurement, PedPal Lit, Preschool, Prevalence, Prognosis, Psychology, Risk Assessment, Schurman JV, Severity Of Illness Index, Socioeconomic Factors