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Dublin Core
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Title
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August 2021 List
Text
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Citation List Month
August 2021 List
URL Address
<a href="http://doi.org/10.1542/peds.2020-049403" target="_blank" rel="noreferrer noopener">http://doi.org/10.1542/peds.2020-049403</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Family Caregiver Partnerships in Palliative Care Research Design and Implementation
Publisher
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Pediatrics
Date
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2021
Subject
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pediatric; palliative care; Research Design; family caregivers; partnerships
Creator
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Weaver MS; Wiener L; Moon MM; Gordon B; Patterson KK; Hinds PS
Description
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* Abbreviations: IRB — : institutional review board PPC — : pediatric palliative care Patient- and family-centered care “is an innovative approach to the planning, delivery, and evaluation of health care that is grounded in a mutually beneficial partnership among patients, families, and providers that recognizes the importance of the family in the patient’s life.”1 Similarly, family partnerships in pediatric palliative care (PPC) research represent an innovative approach to the planning, delivery, and evaluation of research that is grounded in mutually beneficial relationships that recognize the importance of the family caregiver perspective. The goal of partnered research or study teams is to synthesize the unique perspectives of family caregivers, clinicians, regulatory representatives, and researchers to strengthen research design and implementation. This is accomplished by each unique stakeholder speaking from their own perspective, contributing what they know, and working together to integrate perspectives. The process of moving from just inviting family caregivers to be research subjects to actually engaging with family caregivers as … Address correspondence to Meaghann S. Weaver, MD, MPH, FAAP, Hand in Hand/Division of Pediatric Palliative Care, Children’s Hospital and Medical Center, 8200 Dodge St, Omaha, NE 68198. E-mail: meweaver{at}childrensomaha.org
Identifier
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<a href="http://doi.org/10.1542/peds.2020-049403" target="_blank" rel="noreferrer noopener">10.1542/peds.2020-049403</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
August 2021 List
Family Caregivers
Gordon B
Hinds PS
Moon MM
Palliative Care
partnerships
Patterson KK
Pediatric
Pediatrics
Research Design
Weaver MS
Wiener L