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Text
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URL Address
<a href="http://doi.org/10.1016/j.ejcnurse.2008.10.001" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.ejcnurse.2008.10.001</a>
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Title
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Implementation of transition programs can prevent another lost generation of patients with congenital heart disease
Publisher
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European Journal Of Cardiovascular Nursing
Date
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2008
Subject
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Child; Humans; Adult; Health Services Needs and Demand; Treatment Outcome; Program Development; Longevity; Morbidity; adolescent; Adolescent Transitions; Heart Defects; Continuity of Patient Care/organization & administration; Aftercare/organization & administration; Congenital/complications/epidemiology/prevention & control; Patient Education as Topic/organization & administration
Creator
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Moons P; Hilderson D; Van Deyk K
Description
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Congenital heart disease is the most frequently occurring birth defect. To date, more than 90% of the children born with a heart defect reach adulthood. Since many patients are prone to residua and sequelae, lifelong specialized care is required. However, studies indicate that about one-half to three-quarters of the patients are lost to follow-up when they have grown up. This has resulted in a virtual lost generation. Lapse of care is associated with significant morbidity. Therefore, implementation of strategies to prevent patients from failing to continue regular follow-up is critical. It is argued that transition programs that inform patients about the rationale for ongoing follow-up and that teach them how to navigate the medical system can avoid another lost generation.
2008
Identifier
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<a href="http://doi.org/10.1016/j.ejcnurse.2008.10.001" target="_blank" rel="noreferrer">10.1016/j.ejcnurse.2008.10.001</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adolescent
Adolescent Transitions
Adult
Aftercare/organization & administration
Backlog
Child
Congenital/complications/epidemiology/prevention & control
Continuity Of Patient Care/organization & Administration
European Journal Of Cardiovascular Nursing
Health Services Needs And Demand
Heart Defects
Hilderson D
Humans
Journal Article
Longevity
Moons P
Morbidity
Patient Education as Topic/organization & administration
Program Development
Treatment Outcome
Van Deyk K