1
40
2
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
April 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2019 List
URL Address
<a href="http://doi.org/10.1016/j.pec.2018.08.014" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1016/j.pec.2018.08.014</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Discussing death: Making end of life implicit or explicit in paediatric palliative care consultations
Publisher
An entity responsible for making the resource available
Patient Education & Counseling
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Creator
An entity primarily responsible for making the resource
Ekberg Stuart; Danby Susan; Rendle-Short J; Herbert A; Bradford NK; Yates P
Description
An account of the resource
Objective: To consider whether and how family members and clinicians discuss end of life during paediatric palliative care consultations.Methods: Nine naturally occurring paediatric palliative care consultations were video recorded and analysed using conversation analytic methods.Analysis: Focusing on three consultations in which end of life was treated as a certain outcome, analysis explored ways in which end of life was made either implicit or explicit within these consultations. Our analysis suggests that end of life was made explicit when: 1) ancillary to the current focus of discussion, 2) in relation to someone else's child, or 3) specifically relevant to the local context of the discussion. More commonly, in all other instances in the data, end of life was made implicit during discussions relating to this matter.Conclusion: This preliminary research indicates that the local context of a conversation can influence how end of life is mentioned and discussed.Practice Implications: Clinicians often are encouraged to promote honest and 'open' discussions about end of life. Our findings show that it is not necessary to explicitly mention end of life in order to discuss it.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.pec.2018.08.014" target="_blank" rel="noreferrer noopener">10.1016/j.pec.2018.08.014</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
April 2019 List
Bradford NK
Danby Susan
Ekberg Stuart
Herbert A
Patient Education & Counseling
Rendle-Short J
Yates P
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
April 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2019 List
URL Address
<a href="http://doi.org/10.1016/j.pec.2019.02.011" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1016/j.pec.2019.02.011</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Impact of specialized pediatric palliative care programs on communication and decision-making
Publisher
An entity responsible for making the resource available
Patient Education & Counseling
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Children; Communication; Pediatrics; Counseling; Palliative care; Decision-making; Specialized pediatric palliative care program
Creator
An entity primarily responsible for making the resource
Streuli JC; Widger K; Medeiros C; Zuniga-Villanueva G; Trenholm M
Description
An account of the resource
OBJECTIVE: To summarize and analyze the impact of specialized pediatric palliative care (SPPC) programs on communication and decision-making for children with life-threatening conditions. METHODS: Our search strategy covered MEDLINE, PsycINFO, Cochrane Central Register of Controlled Trials, Web of Science, CINAHL, Scopus, and Embase through September 2018. RESULTS: We reviewed 13 studies analyzing the impact of SPPC programs on communication and decision-making using a wide range of outcome indicators. Study quality was poor in 58% of included papers. SPPC programs improved communication and decision-making between families and healthcare professionals (HCPs), within and between families, and among HCPs. CONCLUSION: SPPC programs generally support and improve communication and decision-making for children with life-threatening conditions, their families and associated HCPs. Families referred to an SPPC program had more discussions with HCPs on a broad variety of topics. However, data on communication with children, siblings, and other family members was scarce and of poor quality. PRACTICE IMPLICATIONS: More research on SPPC program efficacy is needed from the perspective of the ill child, as well as about barriers to end-of-life discussions and the specific aspects of SPPC programs responsible for improving outcomes.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.pec.2019.02.011" target="_blank" rel="noreferrer noopener">10.1016/j.pec.2019.02.011</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
April 2019 List
Children
Communication
Counseling
Decision-making
Medeiros C
Palliative Care
Patient Education & Counseling
Pediatrics
Specialized pediatric palliative care program
Streuli JC
Trenholm M
Widger K
Zuniga-Villanueva G