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Text
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Citation List Month
December 2016 List
Dublin Core
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Title
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Experiences In Palliative Home Care Of Infants With Life-limiting Conditions.
Publisher
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European Journal Of Pediatrics
Date
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2015
Subject
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Caregivers; Female; Germany; Home Care Services/statistics & Numerical Data; Hospitals Pediatric; Humans; Infant; Infant Mortality; Infant Newborn; Male; Palliative Care/statistics & Numerical Data; Patient Comfort/statistics & Numerical Data; Terminal Care/statistics & Numerical Data
Home Care; Infants; Life-limiting Conditions; Neonates; Palliative Care
Creator
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Kuhlen M; Höll J; Sabir H; Borkhardt A; Jansen G
Description
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Abstract
The aim of this study was to determine the distinct issues neonates/infants with life-limiting conditions and their families face during palliative home care and to enable physicians/caregivers to carefully address their needs. Data on home-based palliative care of all neonates and infants, who were being taken care of by our paediatric palliative care team between 2007 and 2014, was analysed. A total of 31 patients (pts) were analysed. The majority of patients (n = 17) were diagnosed with congenital malformations or chromosomal abnormalities. Twenty pts died, five of them in hospital. A high percentage of pts presented with swallowing incoordination (83.9%) and was fed either by nasogastric tube or percutaneous endoscopic gastrostomy. Of the pts, 71.0% were treated with analgesics, 45.2% were oxygen dependent, and 9.7% required mechanical ventilation. Highest mortality was seen in pts with perinatal complications (75%). In four (12.9%) pts, palliative home care could come to an end as their conditions substantially improved.
CONCLUSIONS:
Palliative treatment of neonates/very young infants with terminal conditions at home seems to be similar to that of older children and feasible in children even with unstable conditions. The spectrum of diagnoses, signs and symptoms varies from older children with swallowing incoordination and artificial nutrition being of particular importance.
Identifier
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DOI: 10.1007/s00431-015-2637-y
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2015
Borkhardt A
Caregivers
December 2016 List
European Journal of Pediatrics
Female
Germany
Höll J
Home Care
Home Care Services/statistics & Numerical Data
Hospitals Pediatric
Humans
Infant
Infant Mortality
Infant Newborn
Infants
Jansen G
Kuhlen M
Life-limiting Conditions
Male
Neonates
Palliative Care
Palliative Care/statistics & Numerical Data
Patient Comfort/statistics & Numerical Data
Sabir H
Terminal Care/statistics & Numerical Data