2
40
61
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/hsw/24.1.57" target="_blank" rel="noreferrer">http://doi.org/10.1093/hsw/24.1.57</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Preparation for oncology settings: what hospice social workers say they need
Publisher
An entity responsible for making the resource available
Health & Social Work
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Humans; Attitude of Health Personnel; Cooperative Behavior; Health Services Research; Needs Assessment; Inservice Training; Florida; Professional Competence; patient care team; Neoplasms/nursing; Hospice Care/manpower/methods; Oncologic Nursing/education/manpower; Social Work/education
Creator
An entity primarily responsible for making the resource
Kovacs PJ; Bronstein LR
Description
An account of the resource
According to recent data, 78 percent of hospice social workers' direct practice hours are spent with patients and families diagnosed with terminal cancer. A national sample of 108 hospice social workers participated in an exploratory study investigating the influence of their formal academic training, informal on-the-job training, and related professional and personal experiences on their preparation for oncology social work. Findings suggest that social workers view both the generalist or core courses as well as the specialist and elective courses as important in preparing them for oncology social work. In addition, on-the-job training focusing on medical terminology, interdisciplinary, collaboration, death and dying and the integration of personal experiences are important for continuing growth and success in this work. Implications for social work practice, research, and formal and informal educational opportunities are discussed.
1999
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/hsw/24.1.57" target="_blank" rel="noreferrer">10.1093/hsw/24.1.57</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1999
Attitude Of Health Personnel
Backlog
Bronstein LR
Cooperative Behavior
Florida
Health & Social Work
Health Services Research
Hospice Care/manpower/methods
Humans
Inservice Training
Journal Article
Kovacs PJ
Needs Assessment
Neoplasms/nursing
Oncologic Nursing/education/manpower
Patient Care Team
Professional Competence
Social Work/education
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00003246-199309001-00053" target="_blank" rel="noreferrer">http://doi.org/10.1097/00003246-199309001-00053</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Communication between physician, patient, and family in the pediatric intensive care unit
Publisher
An entity responsible for making the resource available
Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1993
Subject
The topic of the resource
Child; Humans; Intensive Care Units; Grief; Physician-Patient Relations; Attitude of Health Personnel; Education; Professional-Family Relations; Communication; Physician's Role; Patient Satisfaction; Internal-External Control; Defense Mechanisms; Power (Psychology); Kinesics; Pediatric; Adaptation; Psychological; patient care team; Parents/education/psychology; ICU Decision Making; empathy; humanism; Medical/methods; Anxiety/prevention & control/psychology
Creator
An entity primarily responsible for making the resource
Todres ID
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00003246-199309001-00053" target="_blank" rel="noreferrer">10.1097/00003246-199309001-00053</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1993
1993
Adaptation
Anxiety/prevention & control/psychology
Attitude Of Health Personnel
Backlog
Child
Communication
Critical Care Medicine
Defense Mechanisms
Education
Empathy
Grief
Humanism
Humans
ICU Decision Making
Intensive Care Units
Internal-External Control
Journal Article
Kinesics
Medical/methods
Parents/education/psychology
Patient Care Team
Patient Satisfaction
Pediatric
Physician-patient Relations
Physician's Role
Power (psychology)
Professional-family Relations
Psychological
Todres ID
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00003246-200005000-00055" target="_blank" rel="noreferrer">http://doi.org/10.1097/00003246-200005000-00055</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Attitudes toward limitation of support in a pediatric intensive care unit
Publisher
An entity responsible for making the resource available
Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Child; Female; Humans; Male; Intensive Care Units; Medical Futility; Prospective Studies; Euthanasia; Ethics; Medical; quality of life; Pediatric; patient care team; Caregivers/psychology; ICU Decision Making; Resuscitation Orders/psychology; Passive/psychology; Life Support Care/psychology
Creator
An entity primarily responsible for making the resource
Keenan HT; Diekema DS; O'Rourke PP; Cummings P; Woodrum DE
Description
An account of the resource
OBJECTIVE: To prospectively determine opinions of members of a pediatric intensive care unit (PICU) team regarding the appropriateness of aggressive care. The types of support that caregivers sought to limit and their reasons for wanting these limits were collected over time. DESIGN: Prospective survey of caregiver opinions. SETTING: PICU in an academic tertiary care children's hospital. SUBJECTS: A total of 68 intensive care nurses, 11 physicians attending in the PICU, 10 critical care and anesthesia fellows, and 24 anesthesia and pediatric residents. INTERVENTIONS: None. MEASUREMENTS AND MAIN RESULTS: During a 6-month period, 503 patients were admitted to the PICU. Within this time period, 52.4% of all deaths were preceded by limitation of support, with 100% of noncardiac surgical deaths preceded by limitation of medical interventions. At least one caregiver wished to limit care for 63 of these patients (12.5%). When caregivers wished to limit support they most frequently wished to limit invasive modes of support such as cardiopulmonary resuscitation (94%) and hemodialysis (83%). The ethical rationales identified most often for wishing to limit support were burden vs. benefit (88%) and qualitative futility (83%). Preadmission quality of life was cited less frequently (50%). Caregivers were less likely to limit care on the basis of quality of life. Nurses and physicians in the PICU were very similar to each other in the types of support they thought should be limited and their ethical rationales. CONCLUSIONS: When making decisions about whether or not to limit care for a patient, caregivers were more likely to rely on the perceived benefit to the patient than preadmission quality of life.
2000
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00003246-200005000-00055" target="_blank" rel="noreferrer">10.1097/00003246-200005000-00055</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2000
Backlog
Caregivers/psychology
Child
Critical Care Medicine
Cummings P
Diekema DS
Ethics
Euthanasia
Female
Humans
ICU Decision Making
Intensive Care Units
Journal Article
Keenan HT
Life Support Care/psychology
Male
Medical
Medical Futility
O'Rourke PP
Passive/psychology
Patient Care Team
Pediatric
Prospective Studies
Quality Of Life
Resuscitation Orders/psychology
Woodrum DE
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00003246-200107000-00010" target="_blank" rel="noreferrer">http://doi.org/10.1097/00003246-200107000-00010</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Forgoing life-sustaining treatments: how the decision is made in French pediatric intensive care units
Publisher
An entity responsible for making the resource available
Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; infant; Male; Intensive Care Units; Prospective Studies; Professional-Family Relations; Life Support Care; Pediatric; adolescent; Preschool; Empirical Approach; Professional Patient Relationship; patient care team; Death and Euthanasia; decision making; infant; Practice Guidelines; Newborn; ICU Decision Making; France
Creator
An entity primarily responsible for making the resource
Devictor DJ; Nguyen DT; Groupe Francophone de Reanimationet d'Urgences Pediatriques
Description
An account of the resource
OBJECTIVES: The decision to forgo life support is frequently made in pediatric intensive care units (PICUs). A group of experts is currently preparing recommendations for guidelines concerning this decision-making process in France. We have performed a prospective study to help the experts. This study documents how children die in French PICUs and how the decision to limit life support is made. DESIGN: A multicenter, prospective, cross-sectional study. SETTING: Thirty-three multidisciplinary PICUs in university hospitals. PATIENTS: All consecutive deaths were recorded over a 4-month period. Children who died after a medical decision to forgo life-sustaining treatment were included in group 1 and children who died from other causes were included in group 1. MAIN RESULTS: A total of 264 consecutive children died, 40.1% from group 1 and 59.8% from group 2. Patients of both groups were primarily admitted for acute respiratory failure (group 1, 50.8%; group 2, 52.6%). Neurologic emergencies were more frequent in patients in group 1, whereas patients with cardiovascular failures were more frequent in group 2. When there was a question of whether to pursue life-sustaining treatment, the parents' opinions were recorded in 72.1% of cases. A specific meeting was called to make this decision in 80.1% of cases. This meeting involved the medical staff in all cases. Parents were aware of the meeting in 10.7% of cases. The conclusion of the meeting was reported to the parents in 18.7% of cases and documented in the patient's medical record in 16% of cases. Experts who were not members of the PICU staff were invited to give their opinion in 62.2% of cases. CONCLUSIONS: The decision to forgo life-sustaining treatment is frequently made for children dying in French PICUs. Guidelines must be available to help the medical staff reach this decision. Knowledge of the decision-making process in French PICUs provides the experts with information needed to elaborate such recommendations.
2001
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00003246-200107000-00010" target="_blank" rel="noreferrer">10.1097/00003246-200107000-00010</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Adolescent
Backlog
Child
Critical Care Medicine
Cross-sectional Studies
Death and Euthanasia
Decision Making
Devictor DJ
Empirical Approach
Female
France
Groupe Francophone de Reanimationet d'Urgences Pediatriques
Humans
ICU Decision Making
Infant
Intensive Care Units
Journal Article
Life Support Care
Male
Newborn
Nguyen DT
Patient Care Team
Pediatric
Practice Guidelines
Preschool
Professional Patient Relationship
Professional-family Relations
Prospective Studies
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1469-8749.1991.tb05110.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1469-8749.1991.tb05110.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Cornerstone care for families of children with life-threatening illness.
Publisher
An entity responsible for making the resource available
Developmental Medicine And Child Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
1991
Subject
The topic of the resource
Child; Humans; Grief; Professional-Family Relations; Longitudinal Studies; Sick Role; Continuity of Patient Care; Hospices; Adaptation; Psychological; patient care team; Family/psychology; social support; Terminal Care/psychology; Home Nursing/psychology; Brain Diseases/psychology/therapy; Neuromuscular Diseases/psychology/therapy; Public Assistance
Creator
An entity primarily responsible for making the resource
Woolley H; Stein A; Forrest GC; Baum JD
Description
An account of the resource
Forty-five families of children with life-threatening illnesses for up to 10 years were interviewed. The children required many medical disciplines, as well as social, educational and material provisions, and parents described the complex and often distressing job of obtaining that help. They were asked whether they regarded anyone as their co-ordinating cornerstone carer and which qualities of care they most valued. Over three-quarters identified one or more professionals as their cornerstone carer, the most common being paediatricians, domiciliary paediatric nurses and social workers. Nearly a quarter of the families reported not having a cornerstone carer. The ingredients of care especially valued by the parents are described. Families may be better helped and services more rationally used where a cornerstone carer gives support and helps to co-ordinate care in a way that leaves families still feeling in control of their own lives. The issue is raised as to whether patient need or cost/service limitation will be the primary determinant of the way this care is delivered in Britain.
1991
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1469-8749.1991.tb05110.x" target="_blank" rel="noreferrer">10.1111/j.1469-8749.1991.tb05110.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1991
Adaptation
Backlog
Baum JD
Brain Diseases/psychology/therapy
Child
Continuity Of Patient Care
Developmental Medicine and Child Neurology
Family/psychology
Forrest GC
Grief
Home Nursing/psychology
Hospices
Humans
Journal Article
Longitudinal Studies
Neuromuscular Diseases/psychology/therapy
Patient Care Team
Professional-family Relations
Psychological
Public Assistance
Sick Role
Social Support
Stein A
Terminal Care/psychology
Woolley H
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/adc.84.3.189" target="_blank" rel="noreferrer">http://doi.org/10.1136/adc.84.3.189</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Chronic musculoskeletal and other idiopathic pain syndromes
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Child; Female; Humans; Male; Attitude to Health; Parent-Child Relations; Risk Factors; adolescent; Syndrome; patient care team; Chronic disease; Cognitive Therapy; Musculoskeletal Diseases/complications/psychology/therapy; Pain/etiology/psychology/therapy
Creator
An entity primarily responsible for making the resource
Malleson PN; Connell H; Bennett SM; Eccleston C
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/adc.84.3.189" target="_blank" rel="noreferrer">10.1136/adc.84.3.189</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2001
2001
Adolescent
Archives of Disease in Childhood
Attitude To Health
Backlog
Bennett SM
Child
Chronic Disease
Cognitive Therapy
Connell H
Eccleston C
Female
Humans
Journal Article
Male
Malleson PN
Musculoskeletal Diseases/complications/psychology/therapy
Pain/etiology/psychology/therapy
Parent-child Relations
Patient Care Team
Risk Factors
Syndrome
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/104990919100800104" target="_blank" rel="noreferrer">http://doi.org/10.1177/104990919100800104</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Utilization review of hospice: an interdisciplinary team approach
Publisher
An entity responsible for making the resource available
American Journal Of Hospice & Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1991
Subject
The topic of the resource
Interdisciplinary Communication; Interprofessional Relations; Hospices; Utilization Review; patient care team; Nursing; Progressive Patient Care; Team
Creator
An entity primarily responsible for making the resource
Gill MA
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/104990919100800104" target="_blank" rel="noreferrer">10.1177/104990919100800104</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1991
1991
American Journal of Hospice & Palliative Medicine
Backlog
Gill MA
Hospices
Interdisciplinary Communication
Interprofessional Relations
Journal Article
Nursing
Patient Care Team
Progressive Patient Care
Team
Utilization Review
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.3109/08880019309029488" target="_blank" rel="noreferrer">http://doi.org/10.3109/08880019309029488</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Children with cancer talk about their own death with their families
Publisher
An entity responsible for making the resource available
Pediatric Hematology And Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
1993
Subject
The topic of the resource
Child; Female; Humans; Male; Parent-Child Relations; Attitude of Health Personnel; Questionnaires; Attitude to Death; Communication; Truth Disclosure; Child Psychology; Self Disclosure; Sibling Relations; Family Health; Preschool; Non-U.S. Gov't; Research Support; patient care team; Neoplasms/psychology
Creator
An entity primarily responsible for making the resource
Goldman A; Christie D
Description
An account of the resource
In this study we looked at children dying from progressive malignant diseases and their families, to see whether they discussed the child's impending death together. We also looked at what factors might influence this. We questioned staff in the oncology department about their attitude to an open approach in talking about death and their views of how often it occurred. Analysis of 31 children over 3 years old and their families showed that the approach of death was mutually acknowledged by six families (19%); seven (23%) children were felt to know but chose not to discuss death; in two (6%) families, discussion with the child was blocked; nine (29%) children died unaware, and in seven (23%) families, what the children felt was unknown. Staff members (22) all advocated an open, honest approach in talking to children about their death but varied widely and overestimated how often they believed discussion of the child's impending death occurred (range, 10%-80%; median, 45%).
1993
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3109/08880019309029488" target="_blank" rel="noreferrer">10.3109/08880019309029488</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1993
Attitude Of Health Personnel
Attitude To Death
Backlog
Child
Child Psychology
Christie D
Communication
Family Health
Female
Goldman A
Humans
Journal Article
Male
Neoplasms/psychology
Non-U.S. Gov't
Parent-child Relations
Patient Care Team
Pediatric Hematology And Oncology
Preschool
Questionnaires
Research Support
Self Disclosure
Sibling Relations
Truth Disclosure
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.7326/0003-4819-128-6-199803150-00007" target="_blank" rel="noreferrer">http://doi.org/10.7326/0003-4819-128-6-199803150-00007</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Building measurement and data collection into medical practice
Publisher
An entity responsible for making the resource available
Annals Of Internal Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1998
Subject
The topic of the resource
Humans; Data Collection; Physician's Role; Clinical Protocols; Outcome and Process Assessment (Health Care); patient care team; RDF Project; Diabetes Mellitus; Cost Control; Practice Management; Medical/standards; Blood Glucose Self-Monitoring; Type 2/therapy; Urinary Tract Infections/therapy
Creator
An entity primarily responsible for making the resource
Nelson EC; Splaine ME; Batalden PB; Plume SK
Description
An account of the resource
Clinicians can use data to improve daily clinical practice. This paper offers eight principles for using data to support improvement in busy clinical settings: 1) seek usefulness, not perfection, in the measurement; 2) use a balanced set of process, outcome, and cost measures; 3) keep measurement simple (think big, but start small); 4) use qualitative and quantitative data; 5) write down the operational definitions of measures; 6) measure small, representative samples; 7) build measurement into daily work; and 8) develop a measurement team. The following approaches to using data for improvement are recommended. First, begin with curiosity about outcomes or a need to improve results. Second, try to avoid knee-jerk, obstructive criticism of proposed measurements. Instead, propose solutions that are practical, goal-oriented, and good enough to start with. Third, gather baseline data on a small sample and check the findings. Fourth, try to change and improve the delivery process while gathering data. Fifth, plot results over time and analyze them by using a control chart or other graphical method. Sixth, refine your understanding of variation in processes and outcomes by dividing patients into clinically homogeneous subgroups (stratification) and analyzing the results separately for each subgroup. Finally, make further changes while measuring key outcomes over time. Measurement and improvement are intertwined; it is impossible to make improvements without measurement. Measuring and learning from each patient and using the information gleaned to test improvements can become part of daily medical practice in local settings.
1998
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.7326/0003-4819-128-6-199803150-00007" target="_blank" rel="noreferrer">10.7326/0003-4819-128-6-199803150-00007</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1998
Annals Of Internal Medicine
Backlog
Batalden PB
Blood Glucose Self-Monitoring
Clinical Protocols
Cost Control
Data Collection
Diabetes Mellitus
Humans
Journal Article
Medical/standards
Nelson EC
Outcome And Process Assessment (health Care)
Patient Care Team
Physician's Role
Plume SK
Practice Management
RDF Project
Splaine ME
Type 2/therapy
Urinary Tract Infections/therapy
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.7326/0003-4819-132-5-200003070-00012" target="_blank" rel="noreferrer">http://doi.org/10.7326/0003-4819-132-5-200003070-00012</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Responding to intractable terminal suffering: the role of terminal sedation and voluntary refusal of food and fluids.
Publisher
An entity responsible for making the resource available
Annals Of Internal Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Humans; Male; United States; Consensus; Treatment Refusal; Aged; Intention; Fluid Therapy; Morals; Food; Suicide; Non-U.S. Gov't; Professional Patient Relationship; Research Support; patient care team; Death and Euthanasia; Psychological; Stress; Ethics; Assisted; Hypnotics and Sedatives/administration & dosage; Double Effect; Palliative Care/legislation & jurisprudence/methods
Creator
An entity primarily responsible for making the resource
Quill TE; Byock IR; Panel ACP-ASIMEnd-of-Life Care Consensus
Description
An account of the resource
When provided by a skilled, multidisciplinary team, palliative care is highly effective at addressing the physical, psychological, social, and spiritual needs of dying patients and their families. However, some patients who have witnessed harsh death want reassurance that they can escape if their suffering becomes intolerable. In addition, a small percentage of terminally ill patients receiving comprehensive care reach a point at which their suffering becomes severe and unacceptable despite unrestrained palliative efforts; some of these patients request that death be hastened. This paper presents terminal sedation and voluntary refusal of hydration and nutrition as potential last resorts that can be used to address the needs of such patients. These two practices allow clinicians to address a much wider range of intractable end-of-life suffering than physician-assisted suicide (even if it were legal) and can also provide alternatives for patients, families, and clinicians who are morally opposed to physician-assisted suicide. This paper will define the two practices, distinguish them from more standard palliative care interventions and from physician-assisted suicide, illustrate them with a real clinical scenario, provide potential guidelines and practicalities, and explore their moral and legal status. Although medicine cannot sanitize dying or provide perfect answers for all challenging end-of-life clinical problems, terminal sedation and voluntary refusal of hydration and nutrition substantially increase patients' choices at this inherently challenging time.
2000
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.7326/0003-4819-132-5-200003070-00012" target="_blank" rel="noreferrer">10.7326/0003-4819-132-5-200003070-00012</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2000
Aged
Annals Of Internal Medicine
Assisted
Backlog
Byock IR
Consensus
Death and Euthanasia
Double Effect
Ethics
Fluid Therapy
Food
Humans
Hypnotics and Sedatives/administration & dosage
Intention
Journal Article
Male
Morals
Non-U.S. Gov't
Palliative Care/legislation & jurisprudence/methods
Panel ACP-ASIMEnd-of-Life Care Consensus
Patient Care Team
Professional Patient Relationship
Psychological
Quill TE
Research Support
Stress
Suicide
Treatment Refusal
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=8081551" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=8081551</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Communication with parents of children with cancer
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1994
Subject
The topic of the resource
Child; Female; Male; Grief; Adult; Parent-Child Relations; Follow-Up Studies; Defense Mechanisms; adolescent; Preschool; Adaptation; Psychological; patient care team; infant; Human; Professional-Family Relations; Neoplasms/psychology; Truth Disclosure; Interview; Communication; Leukemia/psychology; Parents/education/psychology
Creator
An entity primarily responsible for making the resource
Eden OB; Black I; MacKinlay GA; Emery AE
Description
An account of the resource
The purpose of this study was to assess the receptiveness of parents to information given about their child's life threatening illness. Three months after the child's diagnosis, an independent interviewer, using a structured questionnaire, interviewed the parents about what and how they had been told, and assessed the stage of parental coping reached at that time. All patients were treated at a regional paediatric oncology centre (RHSCE) and the interviews were conducted preferably in the family home (61%), or in a 'quiet' hospital room (39%). Twenty-five, unselected, consecutive patients with cancer and leukaemia diagnosed and treated at the RHSCE and their families were recruited into the study (1988-1989). One child died during the first three months and one single parent family refused co-operation. Eighteen of the 23 interviews conducted were with both parents, and five were with single parents (all maternal). All 23 sets of parents admitted deep shock and devastation on hearing the initial diagnosis, with 12 sets feeling that they had taken in little or none of the information given. A long interview was conducted a few days after the initial talk with the consultant. The parents of four children (17%) denied that the long interview had occurred whilst 10/19 who remembered it expressed specific lack of understanding of some or all details. All families remembered a large number (10-20) of subsequent talks with a wide range of staff, but 14/23 felt that some of the information was still confusing or conflicting, and 9/14 did not want to ask for further clarification, principally because they did not want to hear more bad news. The majority felt the child understood little of what was going on. At the study interview, most parents were assessed as still being very anxious about their child's illness, whilst two couples, one single mother and one father, were content with what and how they had been told about their child's illness and were in a state of emotional homeostasis. It is concluded that communication of bad news is a two-way process requiring skilled medical staff, but also a receptive audience. The emotional state of the parent determines his or her ability to hear and comprehend the information given. The results imply that repetition and clarification at consultation interviews is required until parents are emotionally able to hear, accept and comprehend complex news. Written material, taped interviews and simple videos can assist in this process.
1994
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1994
Adaptation
Adolescent
Adult
Backlog
Black I
Child
Communication
Defense Mechanisms
Eden OB
Emery AE
Female
Follow-up Studies
Grief
Human
Infant
Interview
Journal Article
Leukemia/psychology
MacKinlay GA
Male
Neoplasms/psychology
Palliative Medicine
Parent-child Relations
Parents/education/psychology
Patient Care Team
Preschool
Professional-family Relations
Psychological
Truth Disclosure
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=8885562" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=8885562</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Challenges in identifying children for palliative care
Publisher
An entity responsible for making the resource available
Journal Of Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
1996
Subject
The topic of the resource
Child; Attitude to Death; Pilot Projects; quality of life; patient care team; Caregivers/psychology; Human; Palliative Care; Attitude of Health Personnel; Patient Selection
Creator
An entity primarily responsible for making the resource
Davies B; Steele R
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1996
1996
Attitude Of Health Personnel
Attitude To Death
Backlog
Caregivers/psychology
Child
Davies B
Human
Journal Article
Journal Of Palliative Care
Palliative Care
Patient Care Team
Patient Selection
Pilot Projects
Quality Of Life
Steele R
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9924595" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9924595</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Do specialist palliative care teams improve outcomes for cancer patients? A systematic literature review
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1998
Subject
The topic of the resource
Patient Satisfaction; Psychology; quality of life; Non-U.S. Gov't; Human; Support; Developed Countries; Social; patient care team; Neoplasms/therapy; Outcome Assessment (Health Care); Palliative Care/economics/organization & administration/utilization
Creator
An entity primarily responsible for making the resource
Hearn J; Higginson IJ
Description
An account of the resource
The objective of the study was to determine whether teams providing specialist palliative care improve the health outcomes of patients with advanced cancer and their families or carers when compared to conventional services. The study involved a systematic literature review of published research. The source of the data included studies identified from a systematic search of computerized databases (Medline, psychINFO, CINAHL and BIDS to the end of 1996), hand-searching specialist palliative care journals, and studying bibliographies and reference lists. The inclusion criteria for articles were that the study considered the use of specialist palliative care teams caring for patients with advanced cancer. Articles were assessed and data extracted and synthesized, with studies graded according to design. A variety of outcomes were considered by the authors. These addressed aspects of symptom control, patient and family or carer satisfaction, health care utilization and cost, place of death, psychosocial indices and quality of life. Overall, 18 relevant studies were identified, including five randomized controlled trials. Improved outcomes were seen in the amount of time spent at home by patients, satisfaction by both patients and their carers, symptom control, a reduction in the number of inpatient hospital days, a reduction in overall cost, and the patients' likelihood of dying where they wished to for those receiving specialist care from a multiprofessional palliative care team. It was concluded that all evaluations were of services considered to be leading the field, or were pioneering training and treatments. However, when compared to conventional care, there is evidence that specialist teams in palliative care improve satisfaction and identify and deal with more patient and family needs. Moreover, multiprofessional approaches to palliative care reduce the overall cost of care by reducing the amount of time patients spend in acute hospital settings.
1998
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1998
Backlog
Developed Countries
Hearn J
Higginson IJ
Human
Journal Article
Neoplasms/therapy
Non-U.S. Gov't
Outcome Assessment (health Care)
Palliative Care/economics/organization & administration/utilization
Palliative Medicine
Patient Care Team
Patient Satisfaction
Psychology
Quality Of Life
Social
Support
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.suc.2011.01.004" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.suc.2011.01.004</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative care and pediatric surgery
Publisher
An entity responsible for making the resource available
The Surgical Clinics Of North America
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Humans; Palliative Care; Terminal Care; Physician-Patient Relations; Critical Illness; Prognosis; Professional-Family Relations; Tracheostomy; Resuscitation Orders; Gastrostomy; quality of life; patient care team; Intratracheal; Intubation; Pleurodesis
Creator
An entity primarily responsible for making the resource
Shelton J; Jackson GP
Description
An account of the resource
Pediatric surgeons can play an important role in offering procedures that may improve the quality of life for terminally ill children. As with all palliative interventions, surgical therapies should be evaluated in the context of explicitly defined treatment goals while weighing the risks and benefits of procedures in the context of a shortened life span. It is essential that pediatric surgeons become active members in the multidisciplinary team that provides palliative care.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.suc.2011.01.004" target="_blank" rel="noreferrer">10.1016/j.suc.2011.01.004</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Child
Critical Illness
Gastrostomy
Humans
Intratracheal
Intubation
Jackson GP
Journal Article
Palliative Care
Patient Care Team
Physician-patient Relations
Pleurodesis
Professional-family Relations
Prognosis
Quality Of Life
Resuscitation Orders
Shelton J
Terminal Care
The Surgical Clinics Of North America
Tracheostomy
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.3928/00904481-20110412-07" target="_blank" rel="noreferrer">http://doi.org/10.3928/00904481-20110412-07</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treating a child with a life-threatening condition
Publisher
An entity responsible for making the resource available
Pediatric Annals
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Humans; Male; Terminal Care; Physician's Role; Fatal Outcome; Leukemia; Preschool; patient care team; bereavement; infant; hospice care; B-Cell/therapy; MELAS Syndrome/therapy; Palliative Care/ethics/legislation & jurisprudence/organization & administration
Creator
An entity primarily responsible for making the resource
Klein SM; Saroyan JM
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3928/00904481-20110412-07" target="_blank" rel="noreferrer">10.3928/00904481-20110412-07</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
B-Cell/therapy
Backlog
Bereavement
Child
Fatal Outcome
Hospice Care
Humans
Infant
Journal Article
Klein SM
Leukemia
Male
MELAS Syndrome/therapy
Palliative Care/ethics/legislation & jurisprudence/organization & administration
Patient Care Team
Pediatric Annals
Physician's Role
Preschool
Saroyan JM
Terminal Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.4065/mcp.2010.0747" target="_blank" rel="noreferrer">http://doi.org/10.4065/mcp.2010.0747</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative medicine consultation for preparedness planning in patients receiving left ventricular assist devices as destination therapy.
Publisher
An entity responsible for making the resource available
Mayo Clinic Proceedings
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Female; Humans; Male; Family; Withholding Treatment; Aged; Middle Aged; Interdisciplinary Communication; Severity of Illness Index; patient care team; decision making; retrospective studies; advance care planning; DNAR; quality of life; DNAR Outcomes; referral and consultation; Advance Directives; Palliative Care/mt [Methods]; Heart Failure/th [Therapy]; Heart-Assist Devices; Left/th [Therapy]; Right/th [Therapy]; Ventricular Dysfunction
Creator
An entity primarily responsible for making the resource
Swetz K M; Freeman MR; AbouEzzeddine OF; Carter Kari A; Boilson BA; Ottenberg AL; Park Soon J; Mueller PS
Description
An account of the resource
OBJECTIVE: To assess the benefit of proactive palliative medicine consultation for delineation of goals of care and quality-of-life preferences before implantation of left ventricular assist devices as destination therapy (DT)., PATIENTS AND METHODS: We retrospectively reviewed the cases of patients who received DT between January 15, 2009, and January 1, 2010., RESULTS: Of 19 patients identified, 13 (68%) received proactive palliative medicine consultation. Median time of palliative medicine consultation was 1 day before DT implantation (range, 5 days before to 16 days after). Thirteen patients (68%) completed advance directives. The DT implantation team and families reported that preimplantation discussions and goals of care planning made postoperative care more clear and that adverse events were handled more effectively. Currently, palliative medicine involvement in patients receiving DT is viewed as routine by cardiac care specialists., CONCLUSION: Proactive palliative medicine consultation for patients being considered for or being treated with DT improves advance care planning and thus contributes to better overall care of these patients. Our experience highlights focused advance care planning, thorough exploration of goals of care, and expert symptom management and end-of-life care when appropriate.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.4065/mcp.2010.0747" target="_blank" rel="noreferrer">10.4065/mcp.2010.0747</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
AbouEzzeddine OF
Advance Care Planning
Advance Directives
Aged
Backlog
Boilson BA
Carter Kari A
Decision Making
DNAR
DNAR Outcomes
Family
Female
Freeman MR
Heart Failure/th [Therapy]
Heart-Assist Devices
Humans
Interdisciplinary Communication
Journal Article
Left/th [Therapy]
Male
Mayo Clinic Proceedings
Middle Aged
Mueller PS
Ottenberg AL
Palliative Care/mt [methods]
Park Soon J
Patient Care Team
Quality Of Life
Referral And Consultation
Retrospective Studies
Right/th [Therapy]
Severity Of Illness Index
Swetz K M
Ventricular Dysfunction
Withholding Treatment
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A Study Into The Educational Needs Of Children's Hospice Doctors: A Descriptive Quantitative And Qualitative Survey
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Clinical Competence/st [standards]; Education Medical Continuing/og [organization & Administration]; Inservice Training/og [organization & Administration]; Palliative Care/st [standards]; Pediatrics/ed [education]; Child; Communication; England; Hospice Care; Hospices; Humans; Only Child; Palliative Care; Patient Care Team; Surveys And Questionnaires
Creator
An entity primarily responsible for making the resource
Amery J; Lapwood S
Description
An account of the resource
OBJECTIVES: To identify and explore the educational needs of children's hospice doctors in England. DESIGN: A descriptive quantitative and qualitative survey. SETTING: Children's hospices in England. PARTICIPANTS: All children's hospice doctors (n =55) in England were approached, and 35 (65%) consented. INTERVENTIONS: A questionnaire designed to survey doctors' self-assessed educational competencies (confidence and perceived need for training) in subject areas derived from analysis of existing children's palliative care literature. Educational diaries used prospectively in practice to identify areas of unmet educational need. MAIN OUTCOME MEASURES: Self-perceived confidence and usefulness scores for each subject area. An analysis of support, education and training needs deriving from educational diaries and one-to-one interviews. RESULTS: Confidence and usefulness scores suggest that respondents would most value support, education and training in the management of emergencies, symptoms and physical disease. Educational diary analysis revealed that respondents would most value support, education and training in communication skills, team-working skills, and personal coping strategies. CONCLUSIONS: There is a disparity between educational needs as derived from self-rated competencies and from educational diary keeping; suggesting that children's hospice doctors may not be fully aware of their own educational, support and training needs. Self-rated competencies emphasise the value of education in craft or clinical skills; whereas personal diary keeping emphasises the value of education in intrapersonal and interpersonal skills such as communication, team-working and personal coping skills. The current curricula and educational resources need to acknowledge that interpersonal and intrapersonal competencies are as important as clinical competencies. While the study looks particularly at the educational needs of children's hospice doctors, readers may feel that the findings are of relevance to all specialities and disciplines.
Identifier
An unambiguous reference to the resource within a given context
10.1191/0269216304pm902oa
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2004
Amery J
Child
Clinical Competence/st [standards]
Communication
Education Medical Continuing/og [organization & Administration]
England
Hospice Care
Hospices
Humans
Inservice Training/og [organization & Administration]
Lapwood S
May 2017 List
Only Child
Palliative Care
Palliative Care/st [standards]
Palliative Medicine
Patient Care Team
Pediatrics/ed [education]
Surveys And Questionnaires
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Evidence For Implementation Strategies To Provide Palliative Care In The Neonatal Intensive Care Unit.
Publisher
An entity responsible for making the resource available
Advances In Neonatal Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Attitude Of Health Personnel; Clinical Protocols; Evidence-based Practice; Hospice And Palliative Care Nursing/education; Humans; Infant Newborn; Intensive Care Units Neonatal; Neonatal Nursing/education; Neonatal Nursing/methods; Palliative Care/methods; Patient Care Team
Creator
An entity primarily responsible for making the resource
Quinn M; Gephart S
Description
An account of the resource
BACKGROUND:
Palliative care is a holistic framework that is designed to improve quality of life by identifying and treating distressing symptoms of life-threatening or complex conditions. Neonatal palliative care (NPC) has potential benefits for parents, staff, and patients, yet evidence suggests that implementation and utilization of organized NPC services are low.
PURPOSE:
The purpose of this study is to answer the clinical question: In neonatal intensive care, what evidence can be used to guide implementation of palliative care protocols?
SEARCH STRATEGY:
A literature search was conducted using CINAHL (Cumulative Index of Nursing and Allied Health Literature), PubMed, and the Cochrane Library databases. Publications with a focus on neonates, neonatal intensive care unit, and implementation or evaluation of a palliative care protocol, team, or educational intervention were retained.
RESULTS:
The search yielded 17 articles that fit with the following themes: NPC protocols or teams (n = 8), healthcare team needs (n = 3), and barriers to implementation (n = 6). Approaches to NPC implementation were varied, and outcome data were inconsistently reported. Healthcare team members cited a need for education and consistent, ethical delivery of NPC. Common barriers were identified as lack of NPC education, poor communication, and lack of adequate resources such as staff and space.
IMPLICATIONS FOR PRACTICE AND RESEARCH:
Successful team approaches included standardized order sets to initiate NPC, NPC education for staff, and references to NPC guidelines or protocols. Barriers such as lack of interdisciplinary cooperation, lack of appropriate physical space, and lack of education should be addressed during program development. Further research priorities for NPC include seeking parent perceptions, shifting focus from mostly end-of-life to an integrated model, and collecting outcome data with rigor and consistency.
Identifier
An unambiguous reference to the resource within a given context
DOI: 10.1097/ANC.0000000000000354
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Advances in Neonatal Care
Attitude Of Health Personnel
Clinical Protocols
Evidence-based Practice
Gephart S
Hospice And Palliative Care Nursing/education
Humans
Infant Newborn
Intensive Care Units Neonatal
Neonatal Nursing/education
Neonatal Nursing/methods
October 2016 List
Palliative Care/methods
Patient Care Team
Quinn M
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
What Are Palliative Care Physicians For Adults Taught On Palliative Care For Children? Paediatric Aspects In Palliative Care Curricula For Adults.
Publisher
An entity responsible for making the resource available
Klinische Pädiatrie
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adult; Child; Curriculum; Education Medical Continuing; Germany; Humans; Neoplasms/psychology; Neoplasms/therapy; Palliative Care; Patient Care Team; Pediatrics/education
Creator
An entity primarily responsible for making the resource
Schiessl C; Gottschling S; Gronwald BM
Description
An account of the resource
BACKGROUND:
Children suffering from life limiting diseases are frequently cared for by adult palliative care teams due to missing paediatric structures in that field. However it is questionable whether palliative care curricula for physicians comprehensively cover issues of paediatric palliative care (PaedPC).
AIM:
To identify all PaedPC issues included in inter-professional or medical palliative care curricula (PCC) and to evaluate the breadth and quality of PaedPC issues covered in these curricula.
DESIGN:
Inter-professional or medical palliative care curricula (PCC) were identified by an extensive literature review in German and English using the search-engines Google as well as Medline, MedPilot and Pubmed.
RESULTS:
Worldwide 30 PCC were identified, with only 15 curricula mentioning any PaedPC issues. Of those 15 curricula, up to 22 PaedPC topics were highlighted in each. In 10 or more PaedPC following topics were highlighted: grief and bereavement in family, parents and siblings; communication with children; paediatric malignancies; pain management in PPC and pharmacology. In the majority of PCC curricula where PaedPC issues were identified the following topics were mentioned- grief and bereavement in the family, parents and siblings, communication with children, paediatric malignancies, paediatric pain management and pharmacology.
CONCLUSIONS:
The variability of inclusion of PaedPC issues and the lack of depth and standardisation of knowledge, skills and attitudes in PaedPC issues included in PCC curricula is not sufficient to guide adult palliative care physicians in their clinical work with children suffering from life limiting diseases.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adult
Child
Curriculum
Education Medical Continuing
Germany
Gottschling S
Gronwald BM
Humans
Klinische Pädiatrie
May 2016 List
Neoplasms/psychology
Neoplasms/therapy
Palliative Care
Patient Care Team
Pediatrics/education
Schiessl C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Neonatal Deaths: Prospective Exploration Of The Causes And Process Of End-of- Life Decisions.
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Asphyxia Neonatorum/mortality; Canada/epidemiology; Cause Of Death; Chromosome Aberrations; Clinical Decision-making; Congenital Abnormalities/mortality; Humans; Hypoxia-ischemia Brain/mortality; Infant Extremely Premature; Infant Newborn; Infant Premature; Intensive Care Units Neonatal; Intracranial Hemorrhages/mortality; Lung Diseases/mortality; Patient Care Team; Practice Patterns Physicians'/statistics & Numerical Data; Prospective Studies; Term Birth; Withholding Treatment/statistics & Numerical Data
Ethics; Mortality; Neonatology; Palliative Care
Creator
An entity primarily responsible for making the resource
Hellmann J; Knighton R; Lee SK; Shah P; Andrews W; Payot A
Description
An account of the resource
OBJECTIVE:
To determine the causes and process of death in neonates in Canada.
DESIGN:
Prospective observational study.
SETTING:
Nineteen tertiary level neonatal units in Canada.
PARTICIPANTS:
942 neonatal deaths (215 full-term and 727 preterm).
EXPOSURE AND OUTCOME:
Explored the causes and process of death using data on: (1) the rates of withdrawal of life-sustaining treatment (WLST); (2) the reasons for raising the issue of WLST; (3) the extent of consensus with parents; (4) the consensual decision-making process both with parents and the multidisciplinary team; (5) the elements of WLST; and (6) the age at death and time between WLST and actual death.
RESULTS:
The main reasons for deaths in preterm infants were extreme immaturity, intraventricular haemorrhage and pulmonary causes; in full-term infants asphyxia, chromosomal anomalies and syndromic malformations. In 84% of deaths there was discussion regarding WLST. WLST was agreed to by parents with relative ease in the majority of cases. Physicians mainly offered WLST for the purpose of avoiding pain and suffering in imminent death or survival with a predicted poor quality of life. Consensus with multidisciplinary team members was relatively easily obtained. There was marked variation between centres in offering WLST for severe neurological injury in preterm (10%-86%) and severe hypoxic-ischaemic encephalopathy in full-term infants (5%-100%).
CONCLUSIONS AND RELEVANCE:
In Canada, the majority of physicians offered WLST to avoid pain and suffering or survival with a poor quality of life. Variation between units in offering WLST for similar diagnoses requires further exploration.
Identifier
An unambiguous reference to the resource within a given context
DOI: 10.1136/archdischild-2015-308425
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Andrews W
Archives of Disease in Childhood
Asphyxia Neonatorum/mortality
Canada/epidemiology
Cause Of Death
Chromosome Aberrations
Clinical Decision-making
Congenital Abnormalities/mortality
Ethics
Hellmann J
Humans
Hypoxia-ischemia Brain/mortality
Infant Extremely Premature
Infant Newborn
Infant Premature
Intensive Care Units Neonatal
Intracranial Hemorrhages/mortality
Knighton R
Lee SK
Lung Diseases/mortality
March 2016 List
Mortality
Neonatology
Palliative Care
Patient Care Team
Payot A
Practice Patterns Physicians'/statistics & Numerical Data
Prospective Studies
Shah P
Term Birth
Withholding Treatment/statistics & Numerical Data
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2016 List
URL Address
<a href="https://doi.org/10.1136/bmj.i6385">https://doi.org/10.1136/bmj.i6385</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
End of Life Care for Infants, Children and Young People with Life Limiting Conditions: Summary of Nice Guidance
Publisher
An entity responsible for making the resource available
British Medical Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adolescent; Advance Care Planning; Child; Humans; Infant; Patient Care Team; Patient Participation; Practice Guidelines As Topic; State Medicine; Terminal Care; United Kingdom
Creator
An entity primarily responsible for making the resource
Villanueva G; Murphy; MS; Vickers D; Harrop E; Dworzynski K
Description
An account of the resource
Children and young people can have a wide range of life limiting conditions and may sometimes live with such conditions for many years. This guideline recommends that end of life care be managed as a long term process that begins at the time of diagnosis of a life limiting condition and entails planning for the future. Sometimes it may begin before the child’s birth. It is part of the overall care of the child or young person and runs in parallel with other active treatments for the underlying condition itself.1 Finally, it includes those aspects related to the care of the dying.
This guideline was commissioned with the aim to standardise end of life care for infants, children, and young people living with a life limiting condition, and thus promote equity and consistency. Important themes are to involve children and young people and their parents or carers in decisions about their care, facilitate their care in their preferred location (most likely home), and plan for day and night care.
This article summarises the most recent guidance from the recent National Institute for Health and Care Excellence (NICE) on the planning and management of end of life care in infants, children, and young people.2 For a visual summary, please see infographic.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://doi.org/10.1136/bmj.i6385">10.1136/bmj.i6385</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adolescent
Advance Care Planning
British Medical Journal
Child
December 2016 List
Dworzynski K
Harrop E
Humans
Infant
MS
Murphy
Patient Care Team
Patient Participation
Practice Guidelines As Topic
State Medicine
Terminal Care
United Kingdom
Vickers D
Villanueva G