Adolescents in transition of adult care: why the concern?
Humans; United States; Adult; Needs Assessment; Self Care; adolescent; Adolescent Transitions; Health; Insurance; Heart Defects; Continuity of Patient Care/organization & administration; Adolescent Health Services/organization & administration; Congenital/nursing/rehabilitation/therapy; Patient Care Planning/organization & administration; Planning Techniques
This article has described issues associated with transition planning for youth with CHD. A number of approaches have been described to address the needs of this growing number of youth with CHD. Transition to adulthood has been and will continue to be a significant clinical concern as the adult survival rate increases. Health care professionals who are involved in transition planning will be focused on the health-related concerns of the transfer to an ACHD, insurability, and long-term CHD management, as well as issues related to employment, education, social relationships, and independent living. Successful transitioning is dependent on long-term planning,. youth-centered approaches, service coordination, and referral to adult agencies. As youth, families, adult survivors, and experts have discovered, long-term survival means more than the physical aspects of CHD.
2004
Betz CL
The Nursing Clinics Of North America
2004
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/j.cnur.2004.07.008" target="_blank" rel="noreferrer">10.1016/j.cnur.2004.07.008</a>
The ON TRAC model for transitional care of adolescents
Child; Humans; Critical Pathways; adolescent; Models; Adolescent Transitions; Continuity of Patient Care/organization & administration; Adolescent Health Services/organization & administration; Organizational; Patient Care Planning/organization & administration; Organ Transplantation/psychology
This article describes the framework and clinical pathway for ON TRAC (Taking Responsibility for Adolescent/Adult Care), a model of transition care for adolescents with chronic health conditions, as applied to pediatric transplant transition. This model was developed in 1998 at Children's and Women's Health Centre of British Columbia; it provides a multidisciplinary approach to developmentally appropriate transition planning and skill building. The model is youth focused and family centered, and includes stages of transition care on the basis of the developmental stages and capabilities of adolescents. Important considerations for healthcare providers, specific tools for use in clinical settings, and case studies illustrate the use of the ON TRAC model in a pediatric transplant clinic. The ultimate goal of transition in the ON TRAC model is for all adolescents to reach their attainable levels of independence, self-sufficiency, and self-worth while transferring safely and securely into adult healthcare services and adulthood.
2006
Paone MC; Wigle M; Saewyc E
Progress In Transplantation (aliso Viejo, Calif.)
2006
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1177/152692480601600403" target="_blank" rel="noreferrer">10.1177/152692480601600403</a>
Transition from pediatric to adult services: are we getting it right?
Humans; Pediatrics; Age Factors; Australia; adolescent; Models; Adolescent Transitions; Chronic disease; Continuity of Patient Care/organization & administration; Delivery of Health Care/organization & administration; Organizational; Patient Care Planning/organization & administration; Adolescent Medicine/organization & administration
PURPOSE OF REVIEW: The transition of healthcare from pediatric to adult settings has become more significant over the past 20 years as the survival of young people with chronic illness and disability has increased and healthcare delivery has become more complex. This review examines the evidence from recent studies and position statements to determine the current issues relating to transition. RECENT FINDINGS: Although there are many examples of excellent transition processes, these are mostly confined to individual clinics (often subspecialist), with little evidence of hospital-wide or regional planning. The notion of transition to adult healthcare has now spread from its roots in adolescent medicine to influence many subspecialty areas of practice. However, it remains largely confined to a pediatric paradigm and risks becoming disconnected from the principles and practice of adolescent medicine from which it emerged. SUMMARY: More systematic investment in regional clinical service planning is indicated, as is investment in more systematic approaches to training both pediatric and adult healthcare providers around the importance of transition to adult healthcare. Collaboration is urged in relationship to clinical service developments, training and research initiatives.
2008
Kennedy A; Sawyer S
Current Opinion In Pediatrics
2008
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1097/MOP.0b013e328305e128" target="_blank" rel="noreferrer">10.1097/MOP.0b013e328305e128</a>
When and Why Do Neonatal and Pediatric Critical Care Physicians Consult Palliative Care?
Care coordination;Communication;complex chronic conditions;critical care;Critical Care/organization & administration;family;Female;health care quality;Humans;Intensive Care Units;Interviews as Topic;Length of Stay;Male;Neonatal/organization & administration;Palliative care;Palliative Care/organization & administration;Patient Care Planning/organization & administration;Pediatric intensive care unit;Pediatric/organization & administration;Pediatricians/psychology;Professional Family Relations;Qualitative Research
BACKGROUND: Parents of children admitted to neonatal and pediatric intensive care units (ICUs) are at increased risk of experiencing acute and post-traumatic stress disorder. The integration of palliative care may improve child and family outcomes, yet there remains a lack of information about indicators for specialty-level palliative care involvement in this setting. OBJECTIVE: To describe neonatal and pediatric critical care physician perspectives on indicators for when and why to involve palliative care consultants. METHODS: Semistructured interviews were conducted with 22 attending physicians from neonatal, pediatric, and cardiothoracic ICUs in a single quaternary care pediatric hospital. Transcribed interviews were analyzed using content and thematic analyses. RESULTS: We identified 2 themes related to the indicators for involving palliative care consultants: (1) palliative care expertise including support and bridging communication and (2) organizational factors influencing communication including competing priorities and fragmentation of care. CONCLUSIONS: Palliative care was most beneficial for families at risk of experiencing communication problems that resulted from organizational factors, including those with long lengths of stay and medical complexity. The ability of palliative care consultants to bridge communication was limited by some of these same organizational factors. Physicians valued the involvement of palliative care consultants when they improved efficiency and promoted harmony. Given the increasing number of children with complex chronic conditions, it is important to support the capacity of ICU clinical teams to provide primary palliative care. We suggest comprehensive system changes and critical care physician training to include topics related to chronic illness and disability.
Richards CA;Starks H;O'Connor MR;Bourget E;Lindhorst T;Hays R;Doorenbos AZ
American Journal of Hospice and Palliative Care
2018
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1177/1049909117739853" target="_blank" rel="noreferrer noopener">10.1177/1049909117739853</a>