Browse Items (134 total)
- Tags: Parents/psychology
Evolution of parental stress and coping processes: a framework for critical care practice
Tags: 1995, Adaptation, Backlog, Child, Emergency Nursing, Hepworth JT, Hospitalized/psychology, Humans, Johnson BD, Journal Article, Journal of Pediatric Nursing, LaMontagne LL, Non-U.S. Gov't, Parent caregivers, Parents/psychology, Psychological, Psychological Theory, Psychological/psychology, Research Support, Stress
Experiences of families in which a child has a prolonged terminal illness: modifying factors.
Experiences with the end-of-life decision-making process in children with cancer, their parents, and healthcare professionals: A systematic review and meta-ethnography
Tags: 2023, 2023 SE3 - Oncology, Anthropology Cultural, Cancer, Child, Death, Decision Making, Decision-making, Delivery of Health Care, end-of-life, Hirata M, Humans, Journal of Pediatric Nursing, Kobayashi K, meta-ethnography, Neoplasms/therapy, Only Child, Parents/psychology, Pediatric, Qualitative Research
Exploring parents' environmental needs at the time of a child's death in the pediatric intensive care unit
Factors influencing family participation in a longitudinal study: comparison of pediatric and healthy samples.
Tags: 1997, Analysis of Variance, Backlog, Case-Control Studies, Chi-Square Distribution, Congenital/psychology, Cystic Fibrosis/psychology, Family Health, Goldberg S, Heart Defects, Humans, Infant, Janus M, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Parents/psychology, Patient Dropouts/statistics & numerical data, Patient Participation/statistics & numerical data, Regression Analysis, Research/statistics & numerical data, Severity Of Illness Index
Factors influencing parental readiness to let their child with cancer die
Tags: 2010, Adolescent, Adult, Attitude To Death, Backlog, Beishuizen A, Child, Female, Grief, Grypdonck MH, Humans, Infant, Journal Article, Kars MC, Male, Meijer-van den Bergh EM, Middle Aged, Neoplasms/psychology, Parent caregivers, Parent-child Relations, Parents/psychology, Pediatric Blood & Cancer, Preschool, Professional-family Relations, van Delden JJ
Factors Influencing The Uptake Of Neonatal Bereavement Support Services – Findings From Two Tertiary Neonatal Centres In The Uk
Research on perinatal bereavement services is limited. The aim of the study was to compare the uptake of bereavement support services between two tertiary neonatal units (NNU), and to investigate influencing factors.
Method
The medical…
Tags: 2016, Autopsy, Bereavement, Bereavement Follow Up, BMC Palliative Care, Charanjit Kaur, Death, England, Ethnicity, Female, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal, Jayanta Banerjee, June 2016 List, Male, Narendra Aladangady, Neonatal, Parents/psychology, Patient Acceptance Of Health Care/statistics & Numerical Data, Perinatal Care/utilization, Rahul Roy, Referral And Consultation/utilization, Social Support, Socio-economic, Socioeconomic Factors, Sridhar Ramaiah, Stillbirth/psychology
Families' Priorities In Life-limiting Illness: Improving Quality With Online Empowerment
Improving quality of life (QOL) is the central focus of palliative care support for children with life-limiting illness (LLI), but achieving this can be challenging.
INTERVENTION:
MyQuality is an online tool that enables families to choose…
Tags: 2016, Adolescent, Archives of Disease in Childhood, Beringer A, Child, Child Preschool, Disabled Children/psychology, Family, Female, Fletcher M, Harris N, Hospice, Humans, Infant, Internet, July 2016 List, Longitudinal Studies, Male, Outcome, Palliative Care, Parents, Parents/psychology, Power (psychology), Quality Of Life, Quality Of Life/psychology, Social Support, Surveys And Questionnaires, United Kingdom, Young Adult
Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study
Tags: 2008, Adolescent, Backlog, Cadell S, Canada, Catastrophic Illness, Child, Davies B, Derman S, Feasibility Studies, Female, Health Services Research/methods, Hospices, Hospitals, Humans, Infant, International Journal of Palliative Nursing, Journal Article, Male, NET CV, Parents/psychology, Patient Acceptance of Health Care, Pediatric, Pilot Projects, Preschool, Research Design, Respite Care, Siden H, Steele R, Straatman L
Family Conferences In The Neonatal Icu: Observation Of Communication Dynamics And Contributions.
OBJECTIVES:
Clinicians in the neonatal ICU must engage in clear and compassionate communication with families. Empirical, observational studies of neonatal ICU family conferences are needed to develop counseling best practices and to train…
Tags: 2016, Arnold RM, Boss RD, Communication, Critical Illness/psychology, December 2016 List, Decision Making, Donohue PK, Empathy, Female, Humans, Infant Newborn, Intensive Care Units Neonatal, Larson SM, Male, Parents/psychology, Pediatric Critical Care Medicine, Professional-family Relations, Qualitative Research, Roter DL, Terminal Care/psychology
Family function in families of children with Duchenne muscular dystrophy
Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan
Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings.
Tags: 1991, Backlog, Children's Health Care, Counseling, Diehl SF, Family Health, Female, Florida, Health Services Needs And Demand, Home Nursing/psychology, Humans, Interviews, Journal Article, Longitudinal Studies, Male, Moffitt KA, Parents/psychology, Patient Care Planning/standards, Respite Care, Self-Help Groups, Wade SM
Forgoing life-sustaining treatments in children: a comparison between Northern and Southern European pediatric intensive care units
Tags: 2004, Adolescent, Adult, Backlog, Child, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Europe, Euthanasia, Female, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Newborn, Nguyen DT, Organizational, Parents/psychology, Passive/psychology, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Prospective Studies
Gender differences in parenting a child with cancer
Tags: 1996, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Barbarin OA, Brown KA, Child, Female, Gender Identity, Humans, Journal Article, Male, Models, Neoplasms/psychology, Parent caregivers, Parent-child Relations, Parenting/psychology, Parents/psychology, Preschool, Psychological, Questionnaires, Social Work in Health Care, Socialization
Grandma's hands: parental perceptions of the importance of grandparents as secondary caregivers in families of children with disabilities
Tags: 2001, Adult, Aged, Attitude To Health, Backlog, Caregivers/psychology, Child, Disabled Children/psychology, Family Relations, Florida, Green SE, Home Nursing/manpower/psychology, Humans, Intergenerational Relations, International Journal Of Aging & Human Development, Journal Article, Middle Aged, Parent caregivers, Parent-child Relations, Parents/psychology, Preschool, Questionnaires, Social Support, Socioeconomic Factors
Grieving the death of a child
Tags: 2006, Backlog, Bmj, Child, Death, Grief, Humans, Journal Article, Parents/psychology, PedPal Lit, Raphael B
Health status of bereaved parents
Tags: 1996, Adolescent, Adult, Backlog, Bereavement, Birenbaum LK, Case-Control Studies, Child, Death, Female, Health Status, Humans, Infant, Journal Article, Longitudinal Studies, Male, Neoplasms/psychology, Nursing Research, Parent caregivers, Parents/psychology, Phillips DS, Preschool, Questionnaires, Stewart BJ, Time Factors
Helping a child to live whilst dying
Tags: 1980, Attitude Of Health Personnel, Attitude To Death, Backlog, Brachial Plexus, Case Report, Chapman JA, Child, Child Psychology, Female, Goodall J, Grief, Hospital Units/standards, Hospitalized/psychology, Human, Journal Article, Lancet, Neoplasm Metastasis, Pain/drug Therapy, Palliative Care/psychology, Parents/psychology, Sarcoma/drug therapy/radiotherapy, Terminal Care/psychology
Home management of the dying NICU patient
Tags: 2003, Attitude Of Health Personnel, Backlog, Caregivers/standards, Craig F, Female, Goldman A, Holistic Health, Home Nursing, Humans, Infant, Intensive Care, Journal Article, Male, Neonatal/standards, Newborn, Palliative Care/organization & Administration, Parents/psychology, Patient Care Team/standards, Professional-family Relations, Seminars In Neonatology
Hospital care for parents after perinatal death
Tags: 2007, Adaptation, Adult, Autopsy, Backlog, Bereavement, Choice Behavior, Dalton VK, Female, Fetal Death, Funeral Rites, Gold KJ, Hospitalization, Humans, Infant, Infant Mortality, Journal Article, Male, Newborn, Obstetrics And Gynecology, Parent-child Relations, Parents/psychology, Patient Care Team, Photography, Pregnancy, Pregnancy Trimester, Psychological, Schwenk TL, Second, Stillbirth/psychology, Third
Hospitalization for mental illness among parents after the death of a child.
Tags: 2005, Adult, Backlog, Bereavement, Child, Comparative Study, Death, Female, Follow-up Studies, Hospitalization/statistics & numerical data, Hospitals, Humans, Infant, Journal Article, Laursen TM, Li J, Life Change Events, Longitudinal Studies, Male, Mental Disorders/epidemiology, Middle Aged, Mood Disorders/epidemiology, Mortensen PB, Non-U.S. Gov't, Olsen J, Parents/psychology, Precht DH, Preschool, Psychiatric, Registries, Regression Analysis, Research Support, Risk, Schizophrenia/epidemiology, Sex Factors, Substance-Related Disorders/epidemiology, The New England Journal Of Medicine
Impact of caring for a child with cancer on parents' health-related quality of life
Tags: 2008, Adolescent, Backlog, Canada, Caregivers/psychology, Child, Dix D, Female, Health Status, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Klaassen R, Klassen AF, Male, Neoplasms/nursing, O'Donnell ME, Parents/psychology, Preschool, Pritchard S, Quality Of Life, Questionnaires, Scott A, Sung L, Yanofsky R
Impact of research participation on parents of seriously ill children.
Tags: 2014, Adolescent, Adult, Andrews GS, Biomedical Research, Cadell S, Charting the territory, Child, Child Health Services, Child Preschool, Feichtinger L, Female, Humans, Infant, Infant Newborn, Journal of Palliative Medicine, Male, Middle Aged, Palliative Care, Parents/psychology, Severity Of Illness Index, Siden H, Smit QT, Steele R, Surveys And Questionnaires, Young Adult
Improving the quality of end-of-life care in the pediatric intensive care unit: parents' priorities and recommendations
Tags: 2006, Adolescent, Backlog, Burns JP, Child, Communication, Decision Making, Humans, Infant, Intensive Care Units, Journal Article, Meyer EC, Newborn, Non-U.S. Gov't, Palliative Care/psychology, Parent-child Relations, Parents/psychology, Pediatric, Pediatrics, PedPal Lit, Preschool, Professional-family Relations, Questionnaires, Research Support, Ritholz MD, Terminal Care/psychology, Truog RD
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care setting and identifies which factors contribute to a high quality of palliative and…
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross-sectional Studies, Death, Duroux A, Dyspnea/diagnosis, Dyspnea/psychology, End-of-life Symptoms, Female, Führer M, Grasser M, Home Care Services/standards, Humans, Male, November 2016 List, Pain/diagnosis, Pain/psychology, Palliative & Supportive Care, Palliative Care/methods, Palliative Care/psychology, Parents/psychology, Pediatric Palliative Home Care, Pediatrics/methods, Perception, Quality Of Life/psychology, Retrospective Studies, Surveys And Questionnaires, Symptom Assessment/psychology, Symptom Perception, Vollenbroich R
Living with cerebral palsy and tube feeding: A population-based follow-up study
Tags: 1999, Activities of Daily Living, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Camfield C, Camfield P, Caregivers/psychology, Cerebral Palsy/mortality/psychology/therapy, Child, Community Health Planning, Enteral Nutrition/adverse effects/psychology, Follow-up Studies, Gastrostomy/adverse effects/psychology, Humans, Infant, Jejunostomy/adverse effects/psychology, Journal Article, Nova Scotia/epidemiology, Nutritional Failure, Parents/psychology, Precipitating Factors, Preschool, Psychological, Quality Of Life, Questionnaires, Smith SW, Survival Analysis, The Journal Of Pediatrics
Long-term effects of the death of a child on parents' adjustment in midlife
Tags: 2008, Adaptation, Adolescent, Adult, Backlog, Bereavement, Bereavement Leave Policy Paper, Death, Depressive Disorder/diagnosis/etiology/psychology, Family Conflict/psychology, Female, Floyd FJ, Follow-up Studies, Greenberg J, Grief, Health Status, Hong J, Humans, Journal Article, Journal Of Family Psychology, Longitudinal Studies, Male, Marriage/psychology, Middle Aged, Parents/psychology, Psychiatric Status Rating Scales, Psychological, Psychological/diagnosis/etiology/psychology, Rogers CH, Seltzer MM, Stress, Time, Wisconsin
Longitudinal Understanding of Prognosis among Adolescents with Cancer
Tags: 2021, 2021 Special Edition - Oncology, Adolescent, Child, Communication, Compas BE, Desjardins L, Female, Fisher RS, Follow-up Studies, Fults MZ, Gerhardt CA, Humans, Kenney AE, Longitudinal Studies, Male, Manring S, Neoplasms/pathology/psychology/therapy, Oncologists/psychology, Oncology, Palliative Care, Parents/psychology, Pediatric Blood & Cancer, Prognosis, Psycho-Oncology, psychosocial, Ranalli MA, Rausch JR, Rodriguez EM, Surveys And Questionnaires, Vannatta K, Young-Saleme T
Looking back: Identifying supportive care and unmet needs of parents of children receiving specialist paediatric palliative care from the bereavement perspective
Tags: 2022, August 2022 List, Bereavement, BMC Palliative Care, Bokemeyer C, Bronsema A, Cancer, Child, Children, Escherich G, Fin-ped ii, Grief, Humans, Neoplasms/psychology, Oechsle K, Palliative Care, Palliative Care/psychology, Parents, Parents/psychology, Rutkowski S, Support services, Supportive care needs, Theißen T, Ullrich A, Wikert J
Maintaining family life balance while facing a child's imminent death-A mixed methods study
Measuring parental grief after childhood cancer: potential use of the SCL-90R
Tags: 1997, Adolescent, Adult, Backlog, Bereavement, Child, Death studies, Evaluation Studies, Female, Gilliss CL, Humans, Infant, Journal Article, Longitudinal Studies, Male, Martinson IM, Middle Aged, Moore IM, Neoplasms, Newborn, Parent caregivers, Parents/psychology, Preschool, Psychological Tests, Questionnaires
Meeting the needs of parents around the time of diagnosis of disability among their children: evaluation of a novel program for information, support, and liaison by key workers
Tags: 2004, Backlog, Child, Child Health Services/manpower/organization & administration, Disabled Children, Female, Health Personnel, Hospital Departments, Humans, Hundt GL, Infant, Journal Article, London, Male, Manaras I, Miller 2009 BMC HSR Refs, Parents/psychology, Patient Care Team, Patient Satisfaction, Pediatrics, Preschool, Questionnaires, Rahi JS, Social Work, Tuomainen H, Vision Disorders/diagnosis/psychology
Metasynthesis of Factors That Influence Parents' Participation in Pain Management for Their Infants in the NICU
Tags: 2020, August 2021 List, Burry L, Chinian N, Franck LS, Journal of Obstetric, Gynecologic, & Neonatal Nursing, McAllister M, McNair C, Neonatal Intensive Care Unit Standards, Newborn Infant, Nicu, Pain Management, Pain Management/methods/standards/trends, Parenting/psychology/trends, parents’ participation, Parents/psychology, Patient Participation/methods/psychology, Patient Satisfaction, Professional-patient Relations, Qualitative Research, Quality of Health Care/standards, Shah V, Stevens B, Taddio A
Mortality in parents after death of a child in Denmark: A nationwide follow-up study.
Tags: 2003, Adolescent, Adult, Backlog, Bereavement, Cause Of Death, Child, Death, Denmark/epidemiology, Female, Follow-up Studies, Health Status, Humans, Incidence, Infant, Journal Article, Lancet, Li J, Life Change Events, Longitudinal Studies, Male, Mortality, Mortensen PB, Olsen J, Parents/psychology, Population Surveillance, Precht DH, Preschool, Proportional Hazards Models, Registries, Risk Factors, Sex Distribution, SSHRC CURA, Time Factors
Navigator-Based Intervention to Support Communication in the Pediatric Intensive Care Unit: A Pilot Study
Tags: 2020, Adolescent, American Journal of Critical Care, Aniciete DY, Attitude Of Health Personnel, August 2021 List, Brown M, Charleston E, Child, Ciolino JD, Clayman ML, Communication, Decision Making, Emotions, Family/psychology, Fragen P, Infant, Intensive Care Units Pediatric/organization & administration/standards, Jones V A, Malakooti M, Michelson KN, Parents/psychology, Patient Discharge, Persell SD, Pilot Projects, Preschool Child, Professional-family Relations, Rychlik K, Socioeconomic Factors, Sorce LR, Spadino P, White D
Neonatal end-of-life spiritual support care
Tags: 2011, Attitude To Death, Backlog, Bereavement, Female, Humans, Infant, Journal Article, Neonatal Nursing/methods, Newborn, Nurse's Role, Nursing Assessment/methods, Palliative Care/methods/psychology, Parent-child Relations, Parents/psychology, Pregnancy, Pregnancy Outcome/psychology, Rosenbaum JL, Smith JR, Spirituality, The Journal Of Perinatal & Neonatal Nursing, Zollfrank R
New understandings of parental grief: literature review
On The Child's Own Initiative: Parents Communicate With Their Dying Child About Death
Tags: 2015, Adolescent, Adult, Attitude To Death, Behavioral Research, Child, Child Behavior, Child Care/psychology, Child Preschool, Death studies, Female, Henter JI, Humans, Infant, Jalmsell L, Kontio T, Kreicbergs U, Male, March 2016 List, Neoplasms/psychology, Neoplasms/therapy, Palliative Care/psychology, Parent-child Relations, Parents/psychology, Qualitative Research, Stein M, Sweden, Terminally Ill/psychology