Browse Items (134 total)
- Tags: Parents/psychology
"The worst journey of our lives": parents' experiences of a specialised paediatric retrieval service
Tags: 2003, Backlog, Child, Colville G, Consumer Satisfaction/statistics & numerical data, Gracey D, Humans, ICU Decision Making, Intensive and Critical Care Nursing, Intensive Care Units, Journal Article, London, Nonparametric, Orr F, Parents/psychology, Pediatric, Retrospective Studies, Statistics, Transportation of Patients/standards
“have No Regrets:” Parents’ Experiences And Developmental Tasks In Pregnancy With A Lethal Fetal Diagnosis.
Lethal fetal diagnoses are made in 2% of all pregnancies. The pregnancy experience is certainly changed for the parents who choose to continue the pregnancy with a known fetal diagnosis but little is known about how the psychological…
Tags: 2016, Adult, Choice Behavior, Côté-Arsenault D, Denney-Koelsch E, Developmental Task, Emotions, Female, Fetal Diseases/diagnosis, Fetal Diseases/mortality, Humans, Infant, Lethal Fetal Diagnosis, Longitudinal, Longitudinal Studies, Male, March 2016 List, Middle Aged, Needs Assessment, Palliative Care, Parents/psychology, Perinatal Care, Perinatal Palliative Care, Phenomenology, Pregnancy, Prenatal Diagnosis, Prenatal Diagnosis/psychology, Qualitative Research, Social science & medicine, Usa, Young Adult
[from One Passing To Another, Analogies Between Birth And Death].
There are disturbing analogies between the beginning and the end of the life of a child. The hypothesis of a similarity between the birth and the dying process of the child gives rise to discussion around the support provided in the context…
A descriptive study of children dying in the pediatric intensive care unit after withdrawal of life-sustaining treatment
Tags: 2004, Adolescent, Analgesics/administration & dosage, Backlog, Child, DeVita MA, Euthanasia, Female, Humans, Hypnotics and Sedatives/administration & dosage, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Neuromuscular Blockade, Palliative Care, Parents/psychology, Passive, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Retrospective Studies, Time Factors, Zawistowski CA
A population-based nationwide study of parents' perceptions of a questionnaire on their child's death due to cancer.
Tags: 2004, Attitude, Attitude To Death, Backlog, Bereavement, Biomedical and Behavioral Research, Child, Data Collection, Death and Euthanasia, Empirical Approach, Ethics, Female, Henter JI, Humans, Interviews, Journal Article, Kreicbergs U, Lancet, Longitudinal Studies, Male, Parents/psychology, Pilot Projects, Questionnaires, Research, Steineck G, Sweden, Valdimarsdottir U
A Time to Live and a Time to Die: Heterotopian Spatialities and Temporalities in a Pediatric Palliative Care Team
Tags: 2019, Anthropology, Attitude To Death, Child, Communication, Davis C S, Death, Health Communication, Hicks L, Humans, Irvin L, King L, Palliative Care, Parents/psychology, Patient Care Team, pediatric hospitals, Pediatrics, September 2020 List, Shukraft A, Snider M J, Sonda J D, spatial analysis, Time Factors, Uncertainty
Achieving Child-Centred Care for Children and Young People with Life-Limiting and Life-Threatening Conditions-A Qualitative Interview Study
Tags: Adolescent, Child, Child Care, End of Life Care, Paediatrics, Palliative Care, Qualitative Research, 2022, Bluebond-Langner M, Braybrook D, Bristowe K, Children, Coombes L, Downing J, Ellis-Smith C, European Journal of Pediatrics, Family/psychology, Farsides B, Fraser LK, Harding R, Harðardóttir D, Humans, Murtagh FEM, Normality, November 2022 List, Parents/psychology, Roach A, Scott H, Social Support, Symptom Assessment
Adaptational process of parents of pediatric oncology patients
Tags: 2000, Adaptation, Adolescent, Adult, Aged, Backlog, Caregivers/psychology, Chen ML, Child, Data Collection, Family Health, Family Relations, Female, Humans, Infant, Journal Article, Lee TT, Li W, Male, Middle Aged, Neoplasms/psychology, Non-U.S. Gov't, Parents/psychology, Pediatric Hematology And Oncology, Preschool, Psychological, Religion, Research Support, Social Support, Stress, Taiwan/ethnology, Yeh CH
Addressing transition to adult health care for adolescents with special health care needs
Tags: 2005, Adolescent, African Americans/statistics & numerical data, Aging, Backlog, Case Management, Chronic Disease/epidemiology/therapy, Continuity Of Patient Care/organization & Administration, Cross-sectional Studies, European Continental Ancestry Group/statistics & numerical data, Family Characteristics, Female, Health Services Needs And Demand, Health Surveys, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Insurance Coverage/statistics & numerical data, Ireland M, Journal Article, Male, Parents/psychology, Pediatrics, Poverty, Professional-family Relations, Questionnaires, Sampling Studies, Scal P, Socioeconomic Factors, United States/epidemiology
Anxiety is contagious-symptoms of anxiety in the terminally ill child affect long-term psychological well-being in bereaved parents
Tags: 2010, Adaptation, Adolescent, Adult, Anxiety/epidemiology/etiology/psychology, Backlog, Bereavement, Child, Depression/epidemiology, Female, Henter JI, Humans, Infant, Jalmsell L, Journal Article, Kreicbergs U, Male, Neoplasms/psychology, Newborn, Onelov E, Parent-child Relations, Parents/psychology, Pediatric Blood & Cancer, Preschool, Psychological, Quality Of Life, Steineck G, Sweden/epidemiology, Terminally Ill/psychology, Young Adult
Bereaved mothers' and fathers' prolonged grief and psychological health 1 to 5 years after loss-A nationwide study
Tags: 2019, Adaptation, Adult, Attitude To Death, Child, Childhood Cancer, Depression, Depression/psychology, Fathers, Fathers/*psychology, Female, Grief, Humans, insomnia, Kreicbergs U, Male, May 2020 List, Mental Health/*statistics & numerical data, Middle Aged, Mothers, Mothers/*psychology, Parents/psychology, Pediatric Oncology, Pgd, Pohlkamp L, Posttraumatic stress, prolonged grief disorder, Psycho-Oncology, Psychological, Sveen J
Bereaved parents' experience of research participation.
Tags: 2004, Accidents/psychology, Adolescent, Adult, Attitude, Backlog, Bereavement, Biomedical and Behavioral Research, Child, Dyregrov K, Empirical Approach, Ethics, Female, Follow-up Studies, Humans, Infant, Interview, Journal Article, Longitudinal Studies, Male, Medical/methods, Middle Aged, Multi-site Ethics, Newborn, Norway, Parents/psychology, Preschool, Psychological, Registries, Regression Analysis, Research, Research Subjects/psychology, Social science & medicine, Sociology, Sudden Infant Death, Suicide/psychology
Bereavement outcomes for parents who lose a child to cancer: are place of death and sex of parent associated with differences in psychological functioning?
Tags: 2004, Adaptation, Adult, Anxiety/diagnosis/epidemiology/psychology, Attitude To Death, Backlog, Bereavement, Child, Depression/diagnosis/epidemiology/psychology, Drew D, Female, Goodenough B, Higgins S, Humans, Journal Article, Location Of Death, Longitudinal Studies, Male, Outcome Assessment (health Care), Parents/psychology, Psycho-Oncology, Psychological, Psychology, Questionnaires, Sex Factors, Trethewie S
Bereavement support for families following the death of a child from cancer: experience of bereaved parents
Tags: 2006, Aoun S, Backlog, Bereavement, Child, Dadd G, Death, deCinque N, Hospital, Humans, Intensive Care Units, Journal Article, Journal Of Psychosocial Oncology, Macpherson R, Monterosso L, Neoplasms, Parents, Parents/psychology, Pediatric, Personnel, Professional-family Relations, sibling bereavement, Siblings, Siblings/psychology, Sidhu R, Social Support, SSHRC CURA
Buffers for the bereaved: the impact of social factors on the emotional health of bereaving parents
Tags: 1984, Adaptation, Adult, Anxiety Disorders - psychology, Backlog, Bereavement Leave Policy Paper, Child, Cultural Characteristics, Depressive Disorder/psychology, Ethnic Groups/psychology, Female, Follow-up Studies, Grief, Humans, Infant, Interpersonal Relations, Israel, Journal Article, Male, Obsessive-Compulsive Disorder/psychology, Parents/psychology, Preschool, Psychological, Roskin M, Social Environment, Socioeconomic Factors, Somatoform Disorders/psychology, The International Journal Of Social Psychiatry
Cancer incidence in parents who lost a child: a nationwide study in Denmark
Tags: 2002, Backlog, Bereavement, Cancer, Causality, Child, Denmark/epidemiology, Female, Hansen D, Humans, Incidence, Johansen C, Journal Article, Li J, Longitudinal Studies, Male, Neoplasms/epidemiology/mortality/psychology, Olsen J, Parents/psychology, Psychological/complications, Risk Factors, Stress
Cancer-related symptoms most concerning to parents during the last week and last day of their child's life
Tags: 2008, Adolescent, Adult, Anderson L, Backlog, Burghen E, Child, Death, Female, Furman WL, Health, Hinds PS, Humans, Infant, Journal Article, Male, Neoplasms/physiopathology/psychology/therapy, Okuma J, Palliative Care, Parents, Parents/psychology, Pediatrics, Powell B, Preschool, Pritchard M, Srivastava DK, Terminal Care, Time
Caregiver Perceptions about their Decision to Pursue Tracheostomy for Children with Medical Complexity
Tags: 2018, Adolescent, Adult, Caregivers/psychology, Child, Child Preschool, Death, Decision Making, Decision-making, Disabled Children, Female, Golden SL, Gower WA, Grandparents/psychology, home care services, Humans, Infant, Journal of Pediatrics, King NMP, Life-sustaining treatments, Male, May 2019 List, Middle Aged, Nageswaran S, Outcomes, Parents/psychology, Pediatrics, Qualitative Research, Quality Of Life, Tracheostomy, Young Adult
Caregivers' perceptions following gastrostomy in severely disabled children with feeding problems
Tags: 1997, Adolescent, Adult, Attitude To Health, Backlog, Caregivers/psychology, Child, Clarke M, Cost Of Illness, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Dickson A, Eating Disorders/etiology/therapy, Female, Fundoplication, Gastrostomy, Humans, Infant, Journal Article, Male, Nutritional Failure, Parents/psychology, Preschool, Psychological/psychology, Q3 Scoping Review Results, Quality Of Life, Questionnaires, Stress, Tawfik R, Thomas AG, Time Factors, Treatment Outcome
Caregiving process and caregiver burden: conceptual models to guide research and practice.
Tags: 2004, Adaptation, Backlog, Bmc Pediatrics, Brehaut J, Caregivers/psychology, Child, Disabled Children, Humans, Journal Article, King G, King S, Longitudinal Studies, Models, Non-U.S. Gov't, O'Donnell ME, Parents/psychology, Psychological, Raina P, Research Support, Rosenbaum P, Russell D, Schwellnus H, Stress, Swinton M, Walter SD, Wong M, Wood E
Caregiving stress, immune function, and health: implications for research with parents of medically fragile children
Caring Decisions: The Development Of A Written Resource For Parents Facing End-of-life Decisions
Tags: 2015, Adult, Advance Care Planning/ethics, Advance Care Planning/standards, Attitude Of Health Personnel, Australia, Child, Consumer Health Information/methods, Cossich M, Decision Making/ethics, Gillam L, Humans, Hynson J, Internet, Journal of Palliative Medicine, July 2017 List, Parents/education, Parents/psychology, Pilot Projects, Professional-family Relations, Publications, Sullivan J, Terminal Care/methods, Terminal Care/standards, Wilkinson D, Xafis V
Challenges to participation in paediatric palliative care research: a review of the literature
Tags: 2007, Attitude Of Health Personnel, Backlog, Bartels U, Child, Constantin J, Hendershot E, Humans, Journal Article, Multi-site Ethics, Palliative Care/ethics, Palliative Medicine, Parents/psychology, Qualitative Research, Research Design/standards, Sung L, Terminally Ill/psychology, Tomlinson D, Wrathall G
Children's outcomes at 2-year follow-up after 4 years of structured multi-professional medical-ethical decision-making in a neonatal intensive care unit
Tags: 2017, Child, Clinical Decision-Making/ethics, Critical Illness/mortality/therapy, de Boer JC, Female, Follow-up Studies, Gennissen L, Humans, Infant, Intensive Care Units, Journal Of Perinatology, July 2018 List, Male, Naghib S, Neonatal, Netherlands, Newborn, Palliative Care, Parents/psychology, Preschool, Prospective Studies, Reiss I, Sol J, Survival Analysis, Tibboel D, van Dijk M, Williams M, Withholding Treatment/ethics/standards
Choices and control: parental experiences in pediatric terminal home care
Tags: 2000, Adaptation, Adolescent, Backlog, Caregivers/psychology/statistics & numerical data, Carlisle C, Child, Choice Behavior, Home Care Services/statistics & Numerical Data, Humans, Internal-External Control, Interviews/methods, Journal Article, Journal Of Pediatric Oncology Nursing, Location Of Death, Observer Variation, Parents/psychology, Preschool, Psychological, Reproducibility of Results, Terminal Care/psychology/statistics & numerical data, Vickers JL
Circumstances surrounding end of life in a pediatric intensive care unit
Tags: 2003, Adolescent, Adult, Analgesia, Attitude To Death, Backlog, Cause Of Death, Child, Cox PN, Decision Making, Female, Garros D, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Newborn, Ontario, Parent-child Relations, Parents/psychology, Patient Care Team, Pediatric, Pediatrics, Physicians/psychology, Preschool, Resuscitation Orders, Rosychuk RJ, Terminal Care/psychology, Treatment Failure, Withholding Treatment
Constructing a prospective model of psychosocial adaptation in young adolescents with spina bifida: an application of optimal data analysis
Tags: 2006, Adaptation, Adolescent, Adolescent Transitions, Backlog, Body Image, Bryant FB, Child, Coakley RM, Conflict (Psychology), Educational Status, Family/psychology, Female, Holmbeck GN, Humans, Individuation, Intelligence, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Male, Models, Motivation, Parents/psychology, Prospective Studies, Psychological, Psychological/complications, Self Concept, Sick Role, Social Adjustment, Social Behavior, Spinal Dysraphism/psychology, statistical, Stress
Consultation with children in hospital: children, parents' and nurses' perspectives
Tags: 2006, Attitude Of Health Personnel, Backlog, Child, Communication, Comprehension, Coyne I, Decision Making, England, Hospital/psychology, Hospitalized/psychology, Hospitals, Humans, Interviews, Journal Article, Journal of Clinical Nursing, Nurse-patient Relations, Nurse's Role, Nursing Staff, Parent-child Relations, Parents/psychology, Patient Participation, Pediatric, PedPal Lit, Questionnaires
Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy
Tags: 2006, Adaptation, Adolescent, Adult, Backlog, Camfield CS, Camfield PR, Caregivers/psychology, Child, Chronic Disease, Developmental Medicine and Child Neurology, Epilepsy/nursing/psychology, Family Health, Female, Humans, Journal Article, Male, Middle Aged, Nolan KJ, Parent-child Relations, Parents/psychology, Preschool, Psychological, Psychological/psychology, Q3 Scoping Review Results, Seizures/nursing/psychology, Severity Of Illness Index, Social Isolation, Social Support, Stress, Syndrome
Death of adolescents: parental grief and coping strategies
Death Talk: Basic Linguistic Rules And Communication In Perinatal And Paediatric End-of-life Discussions.
This paper considers clinician/parent communication difficulties noted by parents involved in end-of-life decision-making in the light of linguistic theory.
METHODS:
Grice's Cooperative Principle and associated maxims, which enable…
Tags: 2016, Communication, Consumer Health Information, Death, Decision Making, Decision-making, End-of-life Care, Female, Health Communication, Humans, Linguistics, Male, May 2016 List, Parents/psychology, Patient Education and Counseling, Pediatrics, Perinatal Death, Pregnancy, Professional-family Relations, Terminal Care/methods, Terminally Ill, Watkins A, Wilkinson D, Xafis V
Defining Legacy: The Perceptions of Pediatric Health Care Providers
Tags: 2020, Adaptation Psychological, Attitude To Death, Boles J, Child, Child Hospitalized/psychology, Clinical Pediatrics, Cook J, Dunbar J, February 2021 List, Female, Health Care, Humans, Jones M, legacy, Male, Parents/psychology, Pediatrics, Pediatrics/standards, perceptions, Physician's Role, Providers, Social Support, Terminal Care/psychology, Terminally Ill/psychology
Definitely Mixed Feelings: The Effect of COVID-19 on Bereavement in Parents of Children Who Died of Cancer
Tags: 2020, 2021 Special Edition - Oncology, Adaptation Psychological, Adaptation Psychological/physiology, Arthritis Impact Measurement Scales, Attitude To Death, Bereaved Parents, Bereavement, Coronavirus Infections -- Psychosocial Factors, Coronavirus Infections/psychology, COVID-19, Disease Outbreaks, Female, Grief, Helton G, Humans, Journal of Pain and Symptom Management, Male, Neoplasms, Pandemics, Parents -- Psychosocial Factors, Parents/psychology, Pediatric Cancer, Pneumonia Viral -- Psychosocial Factors, Pneumonia Viral/psychology, Snaman JM, Ways of Coping Questionnaire, Wolfe J
Do Interventions Make a Difference to Bereaved Parents? A Systematic Review of Controlled Studies.
Do parents want to be present during invasive procedures performed on their children in the emergency department? A survey of 400 parents
Tags: 1999, Adolescent, Adult, Aged, Annals Of Emergency Medicine, Attitude To Health, Backlog, Boie ET, Brummett C, Cardiopulmonary Resuscitation/psychology, Child, Choice Behavior, Emergency Treatment/psychology, Female, Hospitalized/psychology, Humans, ICU Decision Making, Intratracheal/psychology, Intubation, Journal Article, Middle Aged, Moore GP, Nelson DR, Parents/psychology, Patients' Rooms, Penetrating/therapy, Phlebotomy/psychology, Questionnaires, Spinal Puncture/psychology, Wounds
Dying At Lifes Beginning: Experiences Of Parents And Health Professionals In Switzerland When An ’in Utero' Diagnosis Incompatible With Life Is Made.
The disclosure of a diagnosis during pregnancy of a fetal malformation, which is incompatible with life, normally comes completely unexpectedly to the parents. Although a body of international literature has considered the topic, most of…
Tags: 2016, Attitude Of Health Personnel, Decision Making, Female, Fetal Congenital Malformation, Fetus/abnormalities, Fleming V, Gaps, Genetic Counseling/psychology, Humans, Iljuschin I, Interviews As Topic, Male, March 2016 List, Maurer F, Midwifery, Parents/psychology, Parpan F, Pehlke-Milde J, Pregnancy, Prenatal-diagnosis, Surveys And Questionnaires, Switzerland, Temporality, Thematic Analysis
Emotionally focused interventions for couples with chronically ill children: a 2-year follow-up
Tags: 2002, Adaptation, Analysis of Variance, Backlog, Child, Chronic Disease/psychology, Cloutier PF, Cost Of Illness, Family Characteristics, Female, Follow-up Studies, Humans, Intervention, Interventions, Johnson SM, Journal Article, Journal Of Marital And Family Therapy, Male, Manion IG, Marital Therapy/methods, Marriage/psychology, Ontario, Parents/psychology, Preschool, Psychological, Psychological/etiology, Spouses/psychology, Stress, Time Factors, Treatment Outcome, Walker JG
End-of-life care in the pediatric intensive care unit: research review and recommendations
Tags: 2004, Adult, Analgesia/ethics/standards, Attitude Of Health Personnel, Attitude To Death, Attitudes, Backlog, Bereavement, Burns JP, Child, Conscious Sedation/ethics/standards, Critical Care Clinics, Decision Making, Evidence-based Medicine, Forecasting, Health Care/organization & administration, Health Knowledge, Humans, ICU Decision Making, Infant, Infant Mortality, Intensive Care Units, Intensive Care/ethics/organization & administration/psychology, Journal Article, Parents/psychology, Pediatric/ethics/organization & administration, Practice, Practice Guidelines, Quality Assurance, Resuscitation/ethics/standards, Rushton CH, Terminal Care/ethics/organization & administration/psychology, United States/epidemiology, Withholding Treatment/ethics/standards