Browse Items (134 total)
- Tags: Parents/psychology
When Parents Face The Death Of Their Child: A Nationwide Cross-sectional Survey Of Parental Perspectives On Their Child’s End- Of Life Care.
Parents facing the death of their child have a strong need for compassionate professional support. Care services should be based on empirical evidence, be sensitive to the needs of the families concerned, take into account the…
Tags:
2016, Attitude Of Health Personnel, Attitude To Death, Bergstraesser E, BMC Palliative Care, Chantal Grandjean, Cross-sectional Studies, Death, Decision Making, End Of Life, Engberg S, Eva Cignacco
K, Female, Humans, Infant Newborn, Male, Marfurt-Russenberger, May 2016 List, Nicolas Von der Weid, Parental Perspectives, Parents/psychology, Patricia Fahrni-Nater, Pediatrics, Pediatrics/standards, Perception, Questionnaire Survey, Ramelet AS, Resuscitation Orders/psychology, Surveys And Questionnaires, Switzerland, Terminal Care, Terminal Care/standards, Von der Weid N, Zimmermann K
A descriptive study of children dying in the pediatric intensive care unit after withdrawal of life-sustaining treatment
Tags: 2004, Adolescent, Analgesics/administration & dosage, Backlog, Child, DeVita MA, Euthanasia, Female, Humans, Hypnotics and Sedatives/administration & dosage, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Neuromuscular Blockade, Palliative Care, Parents/psychology, Passive, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Retrospective Studies, Time Factors, Zawistowski CA
Adaptational process of parents of pediatric oncology patients
Tags: 2000, Adaptation, Adolescent, Adult, Aged, Backlog, Caregivers/psychology, Chen ML, Child, Data Collection, Family Health, Family Relations, Female, Humans, Infant, Journal Article, Lee TT, Li W, Male, Middle Aged, Neoplasms/psychology, Non-U.S. Gov't, Parents/psychology, Pediatric Hematology And Oncology, Preschool, Psychological, Religion, Research Support, Social Support, Stress, Taiwan/ethnology, Yeh CH
The Experiences Of Families Living With The Anticipatory Loss Of A School-age Child With Spinal Muscular Atrophy – The Parents’ Perspectives
To probe into parents’ anticipatory loss of school-age children with Type I or II spinal muscular atrophy.
Background
Spinal muscular atrophy is a rare disorder that causes death. Children die early due to either gradual atrophy…
Tags: 2016, Adult, Anticipatory Loss, Child, Female, Grief, Humans, Interviews As Topic, Journal of Clinical Nursing, July 2016 List, Male, Middle Aged, Muscular Atrophy Spinal/nursing, Muscular Atrophy Spinal/psychology, Nurse's Role, Parents/psychology, School-age Children, Spinal Muscular Atrophy, Taiwan, Yang
What Information Do Parents Need When Facing End-of-life Decisions For Their Child? A Meta-synthesis Of Parental Feedback
Tags: 2015, BMC Palliative Care, Communication, Decision Making, Health Knowledge Attitudes Practice, Hope, Humans, Intensive Care Units Pediatric/organization & Administration, July 2017 List, Needs Assessment, Parents/education, Parents/psychology, Sullivan J, Terminal Care/methods, Terminal Care/psychology, Time Factors, Wilkinson D, Xafis V
Death Talk: Basic Linguistic Rules And Communication In Perinatal And Paediatric End-of-life Discussions.
This paper considers clinician/parent communication difficulties noted by parents involved in end-of-life decision-making in the light of linguistic theory.
METHODS:
Grice's Cooperative Principle and associated maxims, which enable…
Tags: 2016, Communication, Consumer Health Information, Death, Decision Making, Decision-making, End-of-life Care, Female, Health Communication, Humans, Linguistics, Male, May 2016 List, Parents/psychology, Patient Education and Counseling, Pediatrics, Perinatal Death, Pregnancy, Professional-family Relations, Terminal Care/methods, Terminally Ill, Watkins A, Wilkinson D, Xafis V
Caring Decisions: The Development Of A Written Resource For Parents Facing End-of-life Decisions
Tags: 2015, Adult, Advance Care Planning/ethics, Advance Care Planning/standards, Attitude Of Health Personnel, Australia, Child, Consumer Health Information/methods, Cossich M, Decision Making/ethics, Gillam L, Humans, Hynson J, Internet, Journal of Palliative Medicine, July 2017 List, Parents/education, Parents/psychology, Pilot Projects, Professional-family Relations, Publications, Sullivan J, Terminal Care/methods, Terminal Care/standards, Wilkinson D, Xafis V
Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Tags: 2016, Bereavement, Côté-Arsenault D, Critical Care/organization & Administration, Cross-sectional Studies, Denney-Koelsch E, Female, Fetal Mortality, Humans, Infant Newborn, Journal of Palliative Medicine, Kavanaugh K, Kim S, March 2016 List, Palliative Care/organization & Administration, Parents/psychology, Perinatal Care/organization & Administration, Perry Black B, Pregnancy, Professional-family Relations, Surveys And Questionnaires, United States, Wool C
Understanding of prognosis among parents of children who died of cancer: Impact on treatment goals and integration of palliative care
Tags: 2000, Adult, Attitude To Death, Backlog, Child, Data Collection, Death and Euthanasia, Decision Making, Empirical Approach, et al, Female, Grier HE, Humans, JAMA, Journal Article, Klar N, Male, Neoplasms/mortality/therapy, Oncology at EOL, Palliative Care, Parents/psychology, Physicians/psychology, Professional Patient Relationship, Prognosis, Regression Analysis, Terminally Ill, Wolfe J
Parental bereavement: the crisis of meaning
Views of adolescents and parents on pediatric research without the potential for clinical benefit
Tags: 2012, Abdoler E, Adolescent, Adolescent Psychology, Adult, Altruism, Attitude To Health, Backlog, Benefits of PPC, Female, Grady C, Humans, Journal Article, Male, Motivation, Nontherapeutic Human Experimentation, Parents/psychology, Pediatrics, Questionnaires, Research Subjects/psychology, Risk-Taking, Wendler D, Wiener L
The Marital Implications of Bereavement: Child Death and Intimate Partner Violence in West and Central Africa
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Africa Central, Africa Western, Bereavement, Child, Child Mortality, Child Preschool, Demography, Female, Humans, Infant, Infant Newborn, Intimate partner violence, Intimate Partner Violence/statistics & numerical data, Male, Marriage/statistics & numerical data, Middle Aged, Parents/psychology, Risk Factors, Smith-Greenaway E, Weitzman A, West and Central Africa, Young Adult
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care setting and identifies which factors contribute to a high quality of palliative and…
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross-sectional Studies, Death, Duroux A, Dyspnea/diagnosis, Dyspnea/psychology, End-of-life Symptoms, Female, Führer M, Grasser M, Home Care Services/standards, Humans, Male, November 2016 List, Pain/diagnosis, Pain/psychology, Palliative & Supportive Care, Palliative Care/methods, Palliative Care/psychology, Parents/psychology, Pediatric Palliative Home Care, Pediatrics/methods, Perception, Quality Of Life/psychology, Retrospective Studies, Surveys And Questionnaires, Symptom Assessment/psychology, Symptom Perception, Vollenbroich R
The effects of self-help and psychotherapy intervention on child loss: the limits of recovery
Tags: 1985, Adaptation, Adjustment Disorders/therapy, Backlog, Child, Combined Modality Therapy, Female, Grief, Humans, Intervention, Interventions, Journal Article, Lieberman M, Male, Non-U.S. Gov't, P.H.S., Parents/psychology, Psychological, Psychotherapy/methods, Research Support, Self-Help Groups, Social Adjustment, The American Journal Of Orthopsychiatry, U.S. Gov't, Videka-Sherman L
Choices and control: parental experiences in pediatric terminal home care
Tags: 2000, Adaptation, Adolescent, Backlog, Caregivers/psychology/statistics & numerical data, Carlisle C, Child, Choice Behavior, Home Care Services/statistics & Numerical Data, Humans, Internal-External Control, Interviews/methods, Journal Article, Journal Of Pediatric Oncology Nursing, Location Of Death, Observer Variation, Parents/psychology, Preschool, Psychological, Reproducibility of Results, Terminal Care/psychology/statistics & numerical data, Vickers JL
The suffering in silence of older parents whose child died of cancer: A qualitative study
Tags: 2016, Aged, Aged 80 And Over, Attitude To Death, Critical Care Medicine, Dillen L, Female Grief, Grounded Theory, Grypdonck M, Guilt, Humans, Life Change Events, Loneliness, Male, Middle Aged, Neoplasms/psychology, Oncology 2017 List, Parents/psychology, Piers R, Qualitative Research Stress Psychological, Van Den Noortgate N, Van Humbeeck L
Parents' experiences of pediatric palliative care and the impact on long-term parental grief.
Tags: 2014, Adult, Backlog, Cancer, Children, Communication, Continuity Of Patient Care, Cross-sectional Studies, Darlington Anne-Sophie E, Female, Grief, Humans, Journal Article, Journal of Pain and Symptom Management, Male, Michiels EMC, Middle Aged, Multivariate Analysis, Neoplasms/therapy, Palliative Care, Palliative Care/psychology, Parental Grief, Parents/psychology, Pediatrics, Pieters R, Retrospective Studies, Streng IC, Surveys And Questionnaires, Symptom Management, van den Heuvel-Eibrink MM, van der Geest IMM
Stillbirth memento photography
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Tags: 2006, Adaptation, Attitude To Health, Backlog, Barrera M, Baruchel S, Bouffet E, Capra M, Child, Decision Making, European Journal Of Oncology Nursing, Focus Groups/methods, Focus Groups/utilization, Gammon J, Geenberg ML, Helping Behavior, Hinds PS, Humans, Journal Article, Llewellyn-Thomas HA, Morale, Needs Assessment, Neoplasms, Nurse's Role, Nursing Methodology, Oncologic Nursing, Parents/psychology, Patient Selection, Patient-centered Care, Pediatric Nursing, PedPal Lit, Professional-family Relations, Program Development, Psychological, Qualitative Research, Quality Of Life/psychology, Questionnaires, Social Support, Sung L, Terminal Care, Tomlinson D, Volpe J
Challenges to participation in paediatric palliative care research: a review of the literature
Tags: 2007, Attitude Of Health Personnel, Backlog, Bartels U, Child, Constantin J, Hendershot E, Humans, Journal Article, Multi-site Ethics, Palliative Care/ethics, Palliative Medicine, Parents/psychology, Qualitative Research, Research Design/standards, Sung L, Terminally Ill/psychology, Tomlinson D, Wrathall G
Caregivers' perceptions following gastrostomy in severely disabled children with feeding problems
Tags: 1997, Adolescent, Adult, Attitude To Health, Backlog, Caregivers/psychology, Child, Clarke M, Cost Of Illness, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Dickson A, Eating Disorders/etiology/therapy, Female, Fundoplication, Gastrostomy, Humans, Infant, Journal Article, Male, Nutritional Failure, Parents/psychology, Preschool, Psychological/psychology, Q3 Scoping Review Results, Quality Of Life, Questionnaires, Stress, Tawfik R, Thomas AG, Time Factors, Treatment Outcome
Toward family-centered inpatient medical care: The role of parents as participants in medical decisions.
Tags: 2007, Adolescent, Adult, Backlog, Child, Christakis DA, Consumer Participation, Data Collection, Decision Making, Family Nursing, Female, Hospitalization, Humans, Journal Article, Logistic Models, Longitudinal Studies, Lozano P, Male, Middle Aged, Multivariate Analysis, Parents/psychology, Self Efficacy, Tarini BA, The Journal Of Pediatrics
Psychosocial functioning in youth with glycogen storage disease type I
Tags: 2008, Adaptation, Adolescent, Adolescent Transitions, Adult, Backlog, Case-Control Studies, Child, Correia C, Diabetes Mellitus/psychology, Family Health, Female, Florida, Glycogen Storage Disease Type I/psychology, Humans, Jacob M, Journal Article, Journal of Pediatric Psychology, Keeley M, Loneliness, Male, Merlo L, Parents/psychology, Preschool, Psychological, Quality Of Life, Storch E, Weinstein D
Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study
Tags: 2008, Adolescent, Backlog, Cadell S, Canada, Catastrophic Illness, Child, Davies B, Derman S, Feasibility Studies, Female, Health Services Research/methods, Hospices, Hospitals, Humans, Infant, International Journal of Palliative Nursing, Journal Article, Male, NET CV, Parents/psychology, Patient Acceptance of Health Care, Pediatric, Pilot Projects, Preschool, Research Design, Respite Care, Siden H, Steele R, Straatman L
Impact of research participation on parents of seriously ill children.
Tags: 2014, Adolescent, Adult, Andrews GS, Biomedical Research, Cadell S, Charting the territory, Child, Child Health Services, Child Preschool, Feichtinger L, Female, Humans, Infant, Infant Newborn, Journal of Palliative Medicine, Male, Middle Aged, Palliative Care, Parents/psychology, Severity Of Illness Index, Siden H, Smit QT, Steele R, Surveys And Questionnaires, Young Adult
Experiences of families in which a child has a prolonged terminal illness: modifying factors.
Living with cerebral palsy and tube feeding: A population-based follow-up study
Tags: 1999, Activities of Daily Living, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Camfield C, Camfield P, Caregivers/psychology, Cerebral Palsy/mortality/psychology/therapy, Child, Community Health Planning, Enteral Nutrition/adverse effects/psychology, Follow-up Studies, Gastrostomy/adverse effects/psychology, Humans, Infant, Jejunostomy/adverse effects/psychology, Journal Article, Nova Scotia/epidemiology, Nutritional Failure, Parents/psychology, Precipitating Factors, Preschool, Psychological, Quality Of Life, Questionnaires, Smith SW, Survival Analysis, The Journal Of Pediatrics
Predictors of distress in parents of children with cancer: a prospective study.
Tags: 2000, Adaptation, Adolescent, Backlog, Child, Cost Of Illness, Depression/diagnosis/drug therapy/psychology, Female, Humans, Internal-External Control, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Male, Neoplasms, Non-U.S. Gov't, Parent-child Relations, Parents/psychology, Prospective Studies, Psychological, Psychological/psychology, Questionnaires, Research Support, Sloper P, Social Adjustment, Social Support, Stress
What influences parents' decisions to limit or withdraw life support?
Tags: 2005, Adolescent, Adult, Attitude To Death, Backlog, Child, Decision Making, Emotions, Female, Humans, ICU Decision Making, Infant, Journal Article, Life Change Events, Life Support Care/psychology, Male, Meert KL, Middle Aged, Parents/psychology, Pediatric Critical Care Medicine, Pilot Projects, Preschool, Prospective Studies, Sarnaik AP, Sharman M, Withholding Treatment
Addressing transition to adult health care for adolescents with special health care needs
Tags: 2005, Adolescent, African Americans/statistics & numerical data, Aging, Backlog, Case Management, Chronic Disease/epidemiology/therapy, Continuity Of Patient Care/organization & Administration, Cross-sectional Studies, European Continental Ancestry Group/statistics & numerical data, Family Characteristics, Female, Health Services Needs And Demand, Health Surveys, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Insurance Coverage/statistics & numerical data, Ireland M, Journal Article, Male, Parents/psychology, Pediatrics, Poverty, Professional-family Relations, Questionnaires, Sampling Studies, Scal P, Socioeconomic Factors, United States/epidemiology
Do Interventions Make a Difference to Bereaved Parents? A Systematic Review of Controlled Studies.
Buffers for the bereaved: the impact of social factors on the emotional health of bereaving parents
Tags: 1984, Adaptation, Adult, Anxiety Disorders - psychology, Backlog, Bereavement Leave Policy Paper, Child, Cultural Characteristics, Depressive Disorder/psychology, Ethnic Groups/psychology, Female, Follow-up Studies, Grief, Humans, Infant, Interpersonal Relations, Israel, Journal Article, Male, Obsessive-Compulsive Disorder/psychology, Parents/psychology, Preschool, Psychological, Roskin M, Social Environment, Socioeconomic Factors, Somatoform Disorders/psychology, The International Journal Of Social Psychiatry
Neonatal end-of-life spiritual support care
Tags: 2011, Attitude To Death, Backlog, Bereavement, Female, Humans, Infant, Journal Article, Neonatal Nursing/methods, Newborn, Nurse's Role, Nursing Assessment/methods, Palliative Care/methods/psychology, Parent-child Relations, Parents/psychology, Pregnancy, Pregnancy Outcome/psychology, Rosenbaum JL, Smith JR, Spirituality, The Journal Of Perinatal & Neonatal Nursing, Zollfrank R
The relationship between grief adjustment and continuing bonds for parents who have lost a child
Tags: 2009, Adaptation, Adolescent, Adult, Attitude To Death, Backlog, Davies B, Female, Field NP, Grief, Humans, Infant, Interpersonal Relations, Journal Article, Kramer R, Life Change Events, Long JK, Male, Newborn, Object Attachment, Omega, Packman W, Parent-child Relations, Parents/psychology, Psychological, Quality Of Life, Questionnaires, Ronen R
Long-term effects of the death of a child on parents' adjustment in midlife
Tags: 2008, Adaptation, Adolescent, Adult, Backlog, Bereavement, Bereavement Leave Policy Paper, Death, Depressive Disorder/diagnosis/etiology/psychology, Family Conflict/psychology, Female, Floyd FJ, Follow-up Studies, Greenberg J, Grief, Health Status, Hong J, Humans, Journal Article, Journal Of Family Psychology, Longitudinal Studies, Male, Marriage/psychology, Middle Aged, Parents/psychology, Psychiatric Status Rating Scales, Psychological, Psychological/diagnosis/etiology/psychology, Rogers CH, Seltzer MM, Stress, Time, Wisconsin
Parental explicit heuristics in decision-making for children with life-threatening illnesses
Tags: 2013, Adolescent, Aphorisms and Proverbs as Topic, Backlog, Carroll KW, Child, Choice Behavior, Chronic Disease/psychology/therapy, Cohort Studies, Communication, Critical Illness/psychology/therapy, Decision Making, Female, Feudtner C, Hospitals, Humans, Infant, Interview, Journal Article, Judgment, Kang T, Male, Palliative Care/psychology, Parent caregivers, Parents/psychology, Pediatric, Pediatrics, Philadelphia, Preschool, Problem Solving, Professional-family Relations, Prospective Studies, Psychological, Renjilian CB, Womer JW, Young Adult
Grieving the death of a child
Tags: 2006, Backlog, Bmj, Child, Death, Grief, Humans, Journal Article, Parents/psychology, PedPal Lit, Raphael B
Caregiving process and caregiver burden: conceptual models to guide research and practice.
Tags: 2004, Adaptation, Backlog, Bmc Pediatrics, Brehaut J, Caregivers/psychology, Child, Disabled Children, Humans, Journal Article, King G, King S, Longitudinal Studies, Models, Non-U.S. Gov't, O'Donnell ME, Parents/psychology, Psychological, Raina P, Research Support, Rosenbaum P, Russell D, Schwellnus H, Stress, Swinton M, Walter SD, Wong M, Wood E