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40
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Dublin Core
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Title
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Special Edition #2 2022 List
Text
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Citation List Month
Special Edition #2
URL Address
<a href="http://doi.org/10.1097/ANC.0000000000000703" target="_blank" rel="noreferrer noopener">http://doi.org/10.1097/ANC.0000000000000703</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parents' Experiences About Support Following Stillbirth and Neonatal Death
Publisher
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Advances in Neonatal Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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neonatal death; parent experiences; parental grief; professional support; social support; stillbirth
Creator
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Camacho ÁM; Fernández MIM; Jiménez-López FR; Granero-Molina J; Hernández-Padilla JM; Hernández SE; Fernández-Sola C
Description
An account of the resource
BACKGROUND: Stillbirth and neonatal death are one of the most stressful life events, with negative outcomes for parents. Society does not recognize this type of loss, and parental grieving is particularly complicated and intense. PURPOSE: The aim of this study was to describe and understand the experiences of parents in relation to professional and social support following stillbirth and neonatal death. METHODS: This was a qualitative study based on Gadamer's hermeneutic phenomenology. Twenty-one semistructured interviews were carried out. Inductive analysis was used to find themes based on the data. RESULTS: Twenty-one parents (13 mothers and 8 fathers) from 6 families participated in the study. The analysis identified 2 main themes: (1) "professional care in dealing with parents' grief," with the subthemes "important aspects of professional care," "continuing of pathways of care"; and (2) "effects of social support in parental grief," including the subthemes "the silence that surrounds grieving parents," "family and other children: a key element," and "perinatal loss support groups: a reciprocal help." IMPLICATIONS FOR PRACTICE: Counseling and support according to parents' requirements by an interdisciplinary team of professionals educated in perinatal loss and ethical family-centered care is needed. A social support system for families is necessary to avoid negative emotional consequences. IMPLICATIONS FOR RESEARCH: Further research is needed to analyze midwives' and nurses' experience as facilitators to improve parental grief and the difficulties experienced by the family, other children, and friends of parents with perinatal loss in providing support.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/ANC.0000000000000703" target="_blank" rel="noreferrer noopener">10.1097/ANC.0000000000000703</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
2022 Special Edition 2 - Parent Perspectives
Advances in Neonatal Care
Camacho ÁM
Fernández MIM
Fernández-Sola C
Granero-Molina J
Hernández SE
Hernández-Padilla JM
Jiménez-López FR
Neonatal Death
Parent Experiences
Parental Grief
professional support
Social Support
Stillbirth
-
Dublin Core
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Title
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2020 Oncology List
Text
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Citation List Month
Oncology 2020 List
URL Address
<a href="http://doi.org/10.1007/s00520-019-05249-3" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s00520-019-05249-3</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Reconsidering early parental grief following the death of a child from cancer: a new framework for future research and bereavement support
Publisher
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Supportive Care in Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
grief; parental grief; pediatric oncology; bereavement; bereavement support
Creator
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Snaman J; Morris S E; Rosenberg A R; Holder R; Baker J; Wolfe J
Description
An account of the resource
Purpose: Parents of children that die from cancer are at increased risk of significant long-term psychosocial and physical morbidities. Less, however, is known about the experience of parents early in the grief process. Currently used frameworks and instruments used to understand and assess outcomes in parents early in the grief experience are inadequate and may serve to pathologize the normal grief response. Method(s): Through review of the literature, previously conducted qualitative work, and extensive clinical experience working with bereaved parents, we developed a new framework for understanding, assessing, and studying parental grief during the first 2 years following the death of a child from cancer. Result(s): Our novel longitudinal framework hypothesizes that short- and long-term psychosocial sequalae in parents following the death of a child from cancer depend not only on pre-death factors but on the support present through the disease experience and the oscillation between protective factors and risk factors in the post-death period. We further hypothesize that protective factors and risk factors may be modifiable, making them key potential targets for supportive interventions aimed at augmenting protective factors and diminishing the effect of risk factors. Conclusion(s): This is a new framework for understanding and assessing the grief experience of parents within the first 2 years of a child's death. Many questions about how best to support parents following the death of a child from cancer remain providing ample opportunities for future research and development of interventions to improve both short- and long-term outcomes in bereaved parents. Copyright © 2019, Springer-Verlag GmbH Germany, part of Springer Nature.
Identifier
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<a href="http://doi.org/10.1007/s00520-019-05249-3" target="_blank" rel="noreferrer noopener">10.1007/s00520-019-05249-3</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Baker J
Bereavement
Bereavement Support
Grief
Holder R
Morris S E
Oncology 2020 List
Parental Grief
Pediatric Oncology
Rosenberg A R
Snaman J
Supportive Care In Cancer
Wolfe J
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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October 2020 List
Text
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Citation List Month
October 2020 List
URL Address
<a href="http://doi.org/10.1159/000507480" target="_blank" rel="noreferrer noopener">http://doi.org/10.1159/000507480</a>
Dublin Core
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Title
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Developing an Infrastructure for Bereavement Outreach in a Maternal-Fetal Care Center
Publisher
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Fetal Diagnosis and Therapy
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
Bereavement outreach; Birth defects; Congenital anomalies; Fetal care; Grief support; Maternal care; Parental grief; Perinatal loss
Creator
An entity primarily responsible for making the resource
Cole J C M; Budney A; Howell L J; Moldenhauer J S
Description
An account of the resource
Although bereavement programs are a common element of palliative medicine and hospice programs, few maternal-fetal care centers offer universal bereavement outreach services following perinatal loss. In this article, we describe the implementation of a bereavement outreach program at the Center for Fetal Diagnosis and Treatment at the Children's Hospital of Philadelphia. The four primary goals identified when developing the bereavement outreach protocol included: (1) centralize communication for patient tracking when a perinatal loss occurs, (2) provide individualized and consistent resource support for grieving patients and families, (3) identify strategic outreach points throughout the first year post-loss, and (4) instate programmatic improvements in response to feedback from patients and their families. Strategies for establishing standardized follow-up protocols and operationalizing methods to address outreach initiatives will be shared, with the primary aim of providing other fetal care centers with a proposed model for perinatal bereavement outreach services.
Identifier
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<a href="http://doi.org/10.1159/000507480" target="_blank" rel="noreferrer noopener">10.1159/000507480</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Bereavement outreach
Birth defects
Budney A
Cole J C M
Congenital Anomalies
Fetal care
Fetal Diagnosis and Therapy
Grief support
Howell L J
Maternal care
Moldenhauer J S
October 2020 List
Parental Grief
Perinatal Loss
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
May 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2020 List
URL Address
<a href="http://doi.org/10.1097/ANC.0000000000000703" target="_blank" rel="noreferrer noopener">http://doi.org/10.1097/ANC.0000000000000703</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Parents' Experiences About Support Following Stillbirth and Neonatal Death
Publisher
An entity responsible for making the resource available
Advances in Neonatal Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
neonatal death; parent experiences; parental grief; professional support; social support; stillbirth
Creator
An entity primarily responsible for making the resource
Camacho Ávila M; Fernández Medina I M; Jiménez-López F R; Granero-Molina J; Hernández-Padilla J M; Hernández Sánchez E; Fernández-Sola C
Description
An account of the resource
BACKGROUND: Stillbirth and neonatal death are one of the most stressful life events, with negative outcomes for parents. Society does not recognize this type of loss, and parental grieving is particularly complicated and intense. PURPOSE: The aim of this study was to describe and understand the experiences of parents in relation to professional and social support following stillbirth and neonatal death. METHODS: This was a qualitative study based on Gadamer's hermeneutic phenomenology. Twenty-one semistructured interviews were carried out. Inductive analysis was used to find themes based on the data. RESULTS: Twenty-one parents (13 mothers and 8 fathers) from 6 families participated in the study. The analysis identified 2 main themes: (1) "professional care in dealing with parents' grief," with the subthemes "important aspects of professional care," "continuing of pathways of care"; and (2) "effects of social support in parental grief," including the subthemes "the silence that surrounds grieving parents," "family and other children: a key element," and "perinatal loss support groups: a reciprocal help." IMPLICATIONS FOR PRACTICE: Counseling and support according to parents' requirements by an interdisciplinary team of professionals educated in perinatal loss and ethical family-centered care is needed. A social support system for families is necessary to avoid negative emotional consequences. IMPLICATIONS FOR RESEARCH: Further research is needed to analyze midwives' and nurses' experience as facilitators to improve parental grief and the difficulties experienced by the family, other children, and friends of parents with perinatal loss in providing support.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/ANC.0000000000000703" target="_blank" rel="noreferrer noopener">10.1097/ANC.0000000000000703</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Advances in Neonatal Care
Camacho Ávila M
Fernández Medina I M
Fernández-Sola C
Granero-Molina J
Hernández Sánchez E
Hernández-Padilla J M
Jiménez-López F R
May 2020 List
Neonatal Death
Parent Experiences
Parental Grief
professional support
Social Support
Stillbirth
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2013.07.007" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jpainsymman.2013.07.007</a>
Dublin Core
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Title
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Parents' experiences of pediatric palliative care and the impact on long-term parental grief.
Publisher
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Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Cross-Sectional Studies; Female; Humans; Male; Palliative Care; Adult; Middle Aged; Communication; Multivariate Analysis; Continuity of Patient Care; Children; retrospective studies; Neoplasms/therapy; cancer; Grief; Parents/psychology; Pediatrics; Palliative Care/psychology; parental grief; Surveys and Questionnaires; symptom management
Creator
An entity primarily responsible for making the resource
van der Geest IMM; Darlington Anne-Sophie E; Streng IC; Michiels EMC; Pieters R; van den Heuvel-Eibrink MM
Description
An account of the resource
CONTEXT: Approximately 25% of children diagnosed with cancer eventually die. Losing a child puts parents at increased risk for developing psychological problems. OBJECTIVES: To explore parents' perceptions of the interaction with health care professionals (communication, continuity of care, and parental involvement) and symptom management during the pediatric palliative phase, and to investigate the influence on long-term grief in parents who lost a child to cancer. METHODS: A total of 89 parents of 57 children who died of cancer between 2000 and 2004 participated in this retrospective cross-sectional study by completing a set of questionnaires measuring grief (Inventory of Traumatic Grief), parents' perceptions of the interaction with health care professionals (communication, continuity of care, and parental involvement), and symptom management during the palliative phase. Care was assessed on a five point Likert scale (1=disagree and 5=agree). RESULTS: Parents highly rated communication (4.6+/-0.6), continuity of care (4.3+/-0.6), and parental involvement (4.6+/-0.7) during the palliative phase. Parents' most often reported physical and psychological symptoms of their child during the palliative phase were fatigue (75%), pain (74%), anxiety to be alone (52%), and anger (48%). Higher ratings of parents on communication (beta=-9.08, P=0.03) and continuity of care (beta=-11.74, P=0.01) were associated with lower levels of long-term parental grief. The severity of the child's dyspnea (beta=2.96, P=0.05), anxiety to be alone (beta=4.52, P<0.01), anxiety about the future (beta=5.02, P<0.01), anger (beta=4.90, P<0.01), and uncontrolled pain (beta=6.60, P<0.01) were associated with higher levels of long-term parental grief. Multivariate models combining the interaction with health care professionals and symptom management showed a significant influence of both aspects on long-term parental grief. CONCLUSION: Both interaction with health care professionals, especially communication and continuity of care, and symptom management in children dying of cancer are associated with long-term parental grief levels.
2014-06
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2013.07.007" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2013.07.007</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Adult
Backlog
Cancer
Children
Communication
Continuity Of Patient Care
Cross-sectional Studies
Darlington Anne-Sophie E
Female
Grief
Humans
Journal Article
Journal of Pain and Symptom Management
Male
Michiels EMC
Middle Aged
Multivariate Analysis
Neoplasms/therapy
Palliative Care
Palliative Care/psychology
Parental Grief
Parents/psychology
Pediatrics
Pieters R
Retrospective Studies
Streng IC
Surveys And Questionnaires
Symptom Management
van den Heuvel-Eibrink MM
van der Geest IMM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2017 List
Notes
<p>1541-3764<br />Suttle, Markita L<br />Gerhardt, Cynthia A<br />Fults, Marci Z<br />Journal Article<br />United States<br />Omega (Westport). 2017 Jan 1:30222817724701. doi: 10.1177/0030222817724701.</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Factors Related To Parent Attendance At A Follow-up Meeting With An Intensivist After A Child's Death In The Pediatric Intensive Care Unit
Publisher
An entity responsible for making the resource available
Omega (westport)
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Parental Grief; Parent Follow-up Meeting; Pediatric Death; Pediatric Intensive Care Unit; Traumatic Death
Creator
An entity primarily responsible for making the resource
Suttle M; Gerhardt C; Fults M
Description
An account of the resource
Parents who experience the death of a child are at high risk for psychopathology. Because a large percentage of pediatric deaths occur in the pediatric intensive care unit each year, a follow-up meeting between bereaved parents and intensivists could provide essential emotional support, although some parents may not attend. The aim of this study was to explore demographic and medical factors that may distinguish between bereaved parents who attend a follow-up meeting with their child's pediatric intensivist and those who do not. Our analysis revealed that parents of children who died of trauma were less likely to attend a follow-up meeting with an intensivist. It is possible that symptoms of posttraumatic stress play a role in these findings. Enhanced efforts to identify other interventions for this specific subset of bereaved parents may be necessary.
Identifier
An unambiguous reference to the resource within a given context
10.1177/0030222817724701
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Fults M
Gerhardt C
October 2017 List
Omega (Westport)
Parent Follow-up Meeting
Parental Grief
Pediatric Death
Pediatric Intensive Care Unit
Suttle M
Traumatic Death