The experience and perceptions of siblings of pediatric intensive care unit patients: A qualitative study
Family; Hospital Discharge; Intensive Care; Pandemics; Pediatrics; Phenomenology; Post PICU outcomes; Sibling experience; Siblings; Trauma
Over 200,000 patients are admitted into pediatric intensive care units (PICU) annually in North America, exposing families to extreme psychosocial stressors and adverse outcomes. While previous research has shown PICU patients and their parents experience post-traumatic stress disorder, few studies have addressed post-PICU outcomes in siblings and siblings' voices of their own experience are absent from the literature.The purpose of this study was to understand the experiences of school aged and adolescent siblings, ages six to 17 years, whose brother or sister experienced admission to a PICU due to a critical illness or injury. Interpretive phenomenology was used to gain an in-depth understanding of the experiences and perceptions of the lived experiences of siblings of PICU patients. Seven participants were identified from a list of families whose child was in the PICU at Dell Children's Medical Center within the past two years and discharged from the hospital for three months or longer. Families were screened for the presence of siblings in the household and for additional inclusion and exclusion criteria before being approached for to participate in the study. Those families meeting criteria received a study information letter and follow up phone call inviting them to participate and providing contact information for the researcher if they wanted to receive further information on the study. Data collection consisted of demographic information to describe the sample and semi-structured interviews to address the research questions. Interviews were conducted either face-to-face prior to the COVID-19 pandemic or by videoconference during the pandemic, and audio recorded and then transcribed word-for-word. Data analysis and interpretation utilized Colaizzi's methodology and Merleau-Ponty's Phenomenology of Perception (2012). Four themes emerged from the data: What I Remember; What I Felt; What Helped; and What's the Same and What's Different. (PsycInfo Database Record (c) 2022 APA, all rights reserved)
Christie LM
Children's Health Care
2022
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1207/s15326888chc2401_5" target="_blank" rel="noreferrer noopener">10.1207/s15326888chc2401_5</a>
Definitely Mixed Feelings: The Effect of COVID-19 on Bereavement in Parents of Children Who Died of Cancer
bereavement; Bereavement; Female; Humans; Male; Parents/psychology; Attitude to Death; Adaptation Psychological; grief; Attitude to Death; pediatric cancer; bereaved parents; Neoplasms; Neoplasms; Adaptation Psychological/physiology; Parents -- Psychosocial Factors; Disease Outbreaks; Pandemics; Covid-19; Bereavement; Coronavirus Infections/psychology; Pneumonia Viral/psychology; Arthritis Impact Measurement Scales; Coronavirus Infections -- Psychosocial Factors; Pneumonia Viral -- Psychosocial Factors; Ways of Coping Questionnaire
Context: Coronavirus disease 2019 (COVID-19) has impacted most elements of daily life, including the provision of support after a child's death and the experience of parental bereavement.Objectives: This study aims to examine ways in which COVID-19 has affected the bereavement experiences of parents whose children died of cancer before the pandemic.Methods: Parents who participated in a survey-based study examining the early grief experience were invited to complete a semistructured interview. During the interview, which focused on examining the current support for parents and other family members within the first several years after the child's death, participants were asked how COVID-19 has impacted their life and bereavement.Results: Fifteen of 33 eligible parents completed the interview; 14 were white and non-Hispanic, five were males. Parents participated an average of 19 (range 12-34) months after their child's death. COVID-19 was addressed in 13 interviews. Eleven codes were used to describe interview segments; the most commonly used codes were change in support, no effect, familiarity with uncertainty/ability to cope, and change in contact with care/research team.Conclusion: Parents identified multiple and variable ways-both positive, negative, and neutral-how COVID-19 has affected their bereavement. Many parents commented on feeling more isolated because of the inability to connect with family or attend in-person support groups, whereas others acknowledged their experience has made them uniquely positioned to cope with the uncertainty of the current situation. Clinicians must find innovative ways to connect with and support bereaved parents during this unique time.
Helton G; Wolfe J; Snaman JM
Journal of Pain and Symptom Management
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1016/j.jpainsymman.2020.08.035" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2020.08.035</a>
Disposition Decisions in Cases of Medical Complexity and Health Inequity
Adult; Covid-19; Child; Ethics; Clinical; Health; Inequities; Humans; Palliative Care; Pandemics
The question of optimal disposition for children with complex medical and social circumstances has long challenged the well-intentioned clinician. The coronavirus disease 2019 pandemic created unique difficulties for patients, families, and health care providers, in addition to highlighting long-standing racial and socioeconomic inequities in health care. In pediatric hospitals, necessary public health measures such as visitor restrictions shifted many shared decision-making processes such as discharge planning from complicated to impossible. Here, we present the case of a medically complex adult (with a long-standing pediatric condition) whose surrogate decision-maker objected to discharge to a long-term care facility because of restrictions and risks associated with the coronavirus disease 2019 pandemic. We offer the commentary of experts in clinical ethics, intensive care, inpatient subacute care, and palliative care. Our discussion includes analysis of the ethical considerations involved in the case, concrete guidance on steps toward an ethically permissible discharge, and suggestions for how a health equity lens can improve communication and decision-making for families who are victims of systemic racism and economic discrimination.
Shapiro J P; Anspacher M; Madrigal V; Lantos JD
Pediatrics
2022
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1542/peds.2021-055558">10.1542/peds.2021-055558</a>
Impact of COVID-19 on Admissions and Outcomes for Children With Complex Chronic Conditions
COVID-19; Child; Chronic Disease; Cross-Sectional Studies; Hospitalization; Humans; Pandemics
BACKGROUND: Although pediatric health care use declined during the coronavirus disease 2019 (COVID-19) pandemic, the impact on children with complex chronic conditions (CCCs) has not been well reported. OBJECTIVE: To describe the impact of the pandemic on inpatient use and outcomes for children with CCCs. METHODS: This multicenter cross-sectional study used data from the Pediatric Health Information System. We examined trends in admissions between January 2020 through March 2021, comparing them to the same timeframe in the previous 3 years (pre-COVID-19). We used generalized linear mixed models to examine the association of the COVID-19 period and outcomes for children with CCCs presenting between March 16, 2020 to March 15, 2021 (COVID-19 period) to the same timeframe in the previous 3 years (pre-COVID-19). RESULTS: Children with CCCs experienced a 19.5% overall decline in admissions during the COVID-19 pandemic. Declines began in the second week of March of 2020, reaching a nadir in early April 2020. Changes in admissions varied over time and by admission indication. Children with CCCs hospitalized for pneumonia and bronchiolitis experienced overall declines in admissions of 49.7% to 57.7%, whereas children with CCCs hospitalized for diabetes experienced overall increases in admissions of 21.2%. Total and index length of stay, costs, and ICU use, although statistically higher during the COVID-19 period, were similar overall to the pre-COVID-19 period. CONCLUSIONS: Total admissions for children with CCCs declined nearly 20% during the pandemic. Among prevalent conditions, the greatest declines were observed for children with CCCs hospitalized with respiratory illnesses. Despite declines in admissions, overall hospital-level outcomes remained similar.
Markham JL; Richardson T; Teufel RJ; Hersh AL; DePorre A; Fleegler EW; Antiel RM; Williams DC; Hotz A; Wilder JL; Shah SS
Hospital Pediatrics
2022
<a href="http://doi.org/10.1542/hpeds.2021-006334" target="_blank" rel="noreferrer noopener">10.1542/hpeds.2021-006334</a>
Ensuring Equity and Inclusion in Virtual Care Best Practices for Diverse Populations of Youth with Chronic Pain
Adolescent; Canada; Chronic Pain; COVID-19; Humans; Pandemics
Poor access to care is a top patient-oriented research priority for youth with chronic pain in Canada, and the COVID-19 pandemic has exacerbated these concerns. Our patient-oriented project team engaged with marginalized and racialized youth with chronic pain (Black youth with sickle cell disease, Indigenous youth and youth with complex medical needs) and their families to ensure that best practice recommendations for virtual care are inclusive and equitable. Input provided through virtual round-table discussions improved recommendations for leveraging, implementing and selecting best platforms for virtual care for youth with chronic pain and identified new gaps for future research, practice and policy change.
Birnie KA; Killackey T; Backlin G; Gavin F; Harris C; Jordan I; Kim L;Marianayagam J; Swidrovich J; Lalonde C; Tunji-Ajayi L; Oberlander T; Kirby-Allen M; Lambert S; Siden H; Swidrovich J; Noel M; Lalloo C; Stinson J
Healthcare Quarterly (Toronto, Ontario)
2022
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.12927/hcq.2022.26778" target="_blank" rel="noreferrer noopener">10.12927/hcq.2022.26778</a>
COVID-19 in pediatric palliative care: what can we learn from the pandemic and possible future directions
Child; Covid-19; epidemiology; Humans; Palliative Care; Pandemics; Retrospective Studies; SARS-CoV-2
INTRODUCTION: Patients in pediatric palliative care (PPC) live with multiple comorbidities which represent a risk factor for severe form of COVID-19. METHODS: This monocentric retrospective study was performed at the PPC Center of Padua (Italy). Testing methodology, prevention strategies and infection characteristics were documented and compared during the first and second peak of SARS-CoV-2 infection. RESULTS: Between April-June 2020 a population swab screening was performed and a strong reduction of the habitual family support was observed. Between November 2020-January 2021 swab testing was limited to specific cases and the support network for families was partially restored. Incidence of COVID-19 was low, resulting in 0.04% of total pediatic cases in the Veneto Region. No severe forms were observed. CONCLUSION: The use of adequate preventive measures by families and support networks associated with testing in specific contests is safe, cost effective and has a minor impact on caregiver's care load.
Avagnina I; Zanin A; Lazzarin P; Grigolon E; Shahi A; Papa S; Giacomelli L; Benini F
Annali dell'Istituto Superiore di Sanità
2021
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<a href="http://doi.org/10.4415/ann_21_04_03" target="_blank" rel="noreferrer noopener">10.4415/ann_21_04_03</a>
Grieving the loss of a child in times of COVID-19
Bereavement; Parents; Family Members; Couples; Grief; COVID-19; Pandemics; Child Loss
Given the massive influences of COVID-19 restrictions on people in nearly all nations, we conducted an in-depth qualitative study of 15 Belgian parents who had lost a child prior to the pandemic in order to understand its impact on their ongoing bereavement. Analysis of focus group sessions and couples interviews distinguished between experiences related to the pandemic and those related to resulting governmental restrictions (e.g., lockdown, social distancing). We theoretically framed our findings in terms of the dual processes of orienting to loss versus restoring life, reconstructing meaning in bereavement, and relationally attuning as a couple to a shared loss. We found that the COVID period accentuated all losses, awakening the parents’ grief for their own loss and their empathy for others. At the same time, they experienced limited opportunities for restoration-oriented distraction through connection with familiar activities and relationships beyond the family. Control or choice in this process of oscillation between orienting to grief versus ongoing life was impaired by the pandemic, as parents struggled to find a new dynamic balance to compensate for the risk of continuous engagement with reminders of their loss. Most notable was their close proximity as a couple, while being at a greater distance from the social network. The continuous attunement process between partners and family members played out in a process of drawing close and interposing distance, of grieving apart and together, of talking about grief and holding silence. We close by reflecting on the implications of our findings for clinical practice. (PsycInfo Database Record (c) 2021 APA, all rights reserved)
Hooghe A; Claeys A; Thompson B; Neimeyer RA; Rober P
Couple and Family Psychology: Research and Practice
2021
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<a href="http://doi.org/10.1037/cfp0000180" target="_blank" rel="noreferrer noopener">10.1037/cfp0000180</a>
Telemedicine in children with medical complexity on home ventilation during the COVID-19 pandemic
Adolescent; Child; Chronic Disease; COVID-19; Home Care Services; Hospitalization; mechanical ventilation; noninvasive ventilation; Pandemics; Artificial Respiration; respiratory technology; SARS-CoV-2; Telemedicine; telemonitoring
Children with medical complexity (CMC) are patients with one or more complex chronic conditions dependent on medical technologies. In our unit (Pediatric Pulmonology and Respiratory Intermediate Care Unit, Department of Pediatrics, "Bambino Gesù" Children's Hospital and Research Institute), we regularly follow-up CMC patients, particularly children on long-term, invasive (IMV) or noninvasive (NIV), ventilation. Children suffering from chronic diseases and with medical complexity have lost the possibility to go to the hospital during the COVID-19 pandemic. The aim of this article is to describe our experience with telemedicine (teleconsultation [TC] and telemonitoring of ventilator [TM]) in CMC on ventilation. We presented 21 children on long-term ventilation (NIV or IMV) whose planned hospital admission was postponed due to lockdown. A total of 12 healthcare problems were detected during scheduled TCs. Only one problem was not solved by our remote intervention. Specifically, TM has allowed us to change the ventilator parameters and to monitor patients on ventilation remotely. In conclusion, the use of telemedicine in CMC ventilated patients resulted in a feasible tool to avoid in-person visits during the pandemic.
Onofri A; Pavone M; De Santis S; Verrillo E; Caggiano S; Ullmann N; Cutrera R
Pediatric Pulmonology
2021
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1002/ppul.25289" target="_blank" rel="noreferrer noopener">10.1002/ppul.25289</a>
The COVID-19 pandemic: A rapid global response for children with cancer from SIOP, COG, SIOP-E, SIOP-PODC, IPSO, PROS, CCI, and St Jude Global
Humans; Child; pediatrics; childhood cancer; Pediatrics; Disease Management; Medical Oncology; Consensus; Societies; Medical; retinoblastoma; acute lymphoblastic leukemia; COVID-19; SARS-CoV-2; Betacoronavirus; Pandemics; Pneumonia; Burkitt lymphoma; Coronavirus Infections/*epidemiology; Neoplasms/complications/diagnosis/*therapy; Viral/*epidemiology; Hodgkin lymphoma; low-grade glioma; nephroblastoma; WHO Global Initiative on Childhood Cancer; Wilms tumor
The COVID-19 pandemic is one of the most serious global challenges to delivering affordable and equitable treatment to children with cancer we have witnessed in the last few decades. This Special Report aims to summarize general principles for continuing multidisciplinary care during the SARS-CoV-2 (COVID-19) pandemic. With contributions from the leadership of the International Society for Pediatric Oncology (SIOP), Children's Oncology Group (COG), St Jude Global program, and Childhood Cancer International, we have sought to provide a framework for healthcare teams caring for children with cancer during the pandemic. We anticipate the burden will fall particularly heavily on children, their families, and cancer services in low- and middle-income countries. Therefore, we have brought together the relevant clinical leads from SIOP Europe, COG, and SIOP-PODC (Pediatric Oncology in Developing Countries) to focus on the six most curable cancers that are part of the WHO Global Initiative in Childhood Cancer. We provide some practical advice for adapting diagnostic and treatment protocols for children with cancer during the pandemic, the measures taken to contain it (e.g., extreme social distancing), and how to prepare for the anticipated recovery period.
Sullivan M; Bouffet E; Rodriguez-Galindo C; Luna-Fineman S; Khan M S; Kearns P; Hawkins D S; Challinor J; Morrissey L; Fuchs J; Marcus K; Balduzzi A; Basset-Salom L; Caniza M; Baker J N; Kebudi R; Hessissen L; Sullivan R; Pritchard-Jones K
Pediatric Blood and Cancer
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1002/pbc.28409" target="_blank" rel="noreferrer noopener">10.1002/pbc.28409</a>
COVID-19 Pandemic Restrictions and the Use of Technology for Pediatric Palliative Care in the Acute Care Setting
Infant; Female; Humans; Parents; Intensive Care Units Pediatric; Hospice and Palliative Care Nursing; Terminally Ill; Palliative Care; Videoconferencing; Infection Control; Pandemics; Betacoronavirus; Visitors to Patients; Coronavirus Infections/epidemiology; Pneumonia Viral/epidemiology
The COVID-19 pandemic has caused health care facilities to restrict visitors for patients in all care settings. Most pediatric care facilities have restricted visitation to one parent at a time, unfortunately even if the child is in critical condition or is terminally ill. These situations have necessitated the use of technology such as the Zoom platform to have difficult conversations concerning complex medical decision-making and goals of care. In cases where the child is deemed at immediate end of life, many facilities will allow both parents to be at the bedside, but no other family or friends that may be integral support to the parents or child. These situations have compelled the use of FaceTime, Zoom, or Skype technology to facilitate real-time support at end of life for these young patients and their caregivers. This article presents a case where technologies such as these were utilized to assist a family in goals-of-care discussions and at end of life for an infant in the intensive care unit at a large urban pediatric care facility during the COVID-19 pandemic.
Bettini EA
Journal of Hospice and Palliative Nursing
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1097/njh.0000000000000694" target="_blank" rel="noreferrer noopener">10.1097/njh.0000000000000694</a>
The pervasive relevance of COVID-19 within routine paediatric palliative care consultations during the pandemic: A conversation analytic study
and/or publication of this; article.; authorship; child; communication; Covid-19; of interest with respect to the research; Palliative care; pandemics
BACKGROUND: The importance of caring for children with complex and serious conditions means that paediatric palliative care must continue during pandemics. The recent pandemic of Coronavirus Disease 2019 (COVID-19) provides a natural experiment to study health communication during pandemic times. However, it is unknown how communication within consultations might change during pandemics. AIM: This study, a sub-study of a larger project, aimed to examine real-world instances of communication in paediatric palliative care consultations prior to and during the COVID-19 pandemic to understand how clinicians and families talk about the pandemic. DESIGN: Paediatric palliative care consultations prior to, during, and immediately following the initial peak of COVID-19 cases in Australia were video recorded and analysed using Conversation Analysis methods. SETTING/PARTICIPANTS: Twenty-five paediatric palliative care consultations (including face-to-face outpatient, telehealth outpatient and inpatient consultations) were video recorded within a public children's hospital in Australia. Participants included 14 health professionals, 15 child patients, 23 adult family members and 5 child siblings. RESULTS: There was a pervasive relevance of both serious and non-serious talk about COVID-19 within the consultations recorded during the pandemic. Topics typical of a standard paediatric palliative care consultation often led to discussion of the pandemic. Clinicians (55%) and parents (45%) initiated talk about the pandemic. CONCLUSIONS: Clinicians should not be surprised by the pervasiveness of COVID-19 or other pandemic talk within standard paediatric palliative care consultations. This awareness will enable clinicians to flexibly address family needs and concerns about pandemic-related matters that may impact health and wellbeing.
Ekberg K; Weinglass L; Ekberg S; Danby S; Herbert A
Palliative Medicine
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1177/0269216320950089" target="_blank" rel="noreferrer noopener">10.1177/0269216320950089</a>
Rapid response in the COVID-19 pandemic: a Delphi study from the European Pediatric Dialysis Working Group
Adolescent; Child; Chronic/complications/*therapy; Coronavirus Infections/complications/prevention & control/*therapy; COVID-19; Delphi; Delphi Technique; Dialysis; Europe; Evidence-Based Medicine; Humans; Infant; Infection Control; Pandemics; Pandemics/prevention & control; Pneumonia; Preschool; Renal Dialysis; Renal Insufficiency; transplantation; Viral/complications/prevention & control/*therapy
BACKGROUND: COVID-19 was declared a global health emergency. Since children are less than 1% of reported cases, there is limited information to develop evidence-based practice recommendations. The objective of this study was to rapidly gather expert knowledge and experience to guide the care of children with chronic kidney disease during the COVID-19 pandemic. METHODS: A four-round multi-center Delphi exercise was conducted among 13 centers in 11 European countries of the European Pediatric Dialysis Working Group (EPDWG) between March, 16th and 20th 2020. Results were analyzed using a mixed methods qualitative approach and descriptive statistics. RESULTS: Thirteen COVID-19 specific topics of particular need for guidance were identified. Main themes encompassed testing strategies and results (n = 4), changes in use of current therapeutics (n = 3), preventive measurements of transmission and management of COVID-19 (n = 3), and changes in standard clinical care (n = 3). Patterns of center-specific responses varied according to regulations and to availability of guidelines. CONCLUSIONS: As limited quantitative evidence is available in real time during the rapid spread of the COVID-19 pandemic, qualitative expert knowledge and experience represent the best evidence available. This Delphi exercise demonstrates that use of mixed methodologies embedded in an established network of experts allowed prompt analysis of pediatric nephrologists' response to COVID-19 during this fast-emerging public health crisis. Such rapid sharing of knowledge and local practices is essential to timely and optimal guidance for medical management of specific patient groups in multi-country health care systems such as those of Europe and the US.
Eibensteiner F; Ritschl V; Ariceta G; Jankauskiene A; Klaus G; Paglialonga F; Edefonti A; Ranchin B; Schmitt C P; Shroff R; Stefanidis C J; Walle J V; Verrina E; Vondrak K; Zurowska A; Stamm T; Aufricht C
Pediatric Nephrology
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1007/s00467-020-04584-6" target="_blank" rel="noreferrer noopener">10.1007/s00467-020-04584-6</a>
Response and role of palliative care during the COVID-19 pandemic: A national telephone survey of hospices in Italy
COVID-19; end-of-life care; epidemics; health care surveys; hospice care; hospices; palliative care; pandemics; severe acute respiratory syndrome coronavirus 2
Background: Palliative care is an important component of health care in pandemics, contributing to symptom control, psychological support, and supporting triage and complex decision making. Aim(s): To examine preparedness for, and impact of, the COVID-19 pandemic on hospices in Italy to inform the response in other countries. Design(s): Cross-sectional telephone survey, in March 2020. Setting(s): Italian hospices, purposively sampled according to COVID-19 regional prevalence categorised as high (>25), medium (15-25) and low prevalence (<15) COVID-19 cases per 100,000 inhabitants. A brief questionnaire was developed to guide the interviews. Analysis was descriptive. Result(s): Seven high, five medium and four low prevalence hospices provided data. Two high prevalence hospices had experienced COVID-19 cases among both patients and staff. All hospices had implemented policy changes, and several had rapidly implemented changes in practice including transfer of staff from inpatient to community settings, change in admission criteria and daily telephone support for families. Concerns included scarcity of personal protective equipment, a lack of hospice-specific guidance on COVID-19, anxiety about needing to care for children and other relatives, and poor integration of palliative care in the acute planning response. Conclusion(s): The hospice sector is capable of responding flexibly and rapidly to the COVID-19 pandemic. Governments must urgently recognise the essential contribution of hospice and palliative care to the COVID-19 pandemic and ensure these services are integrated into the health care system response. Availability of personal protective equipment and setting-specific guidance is essential. Hospices may also need to be proactive in connecting with the acute pandemic response. Copyright © The Author(s) 2020.
Costantini M; Sleeman K E; Peruselli C; Higginson I J
Palliative Medicine
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1177/0269216320920780" target="_blank" rel="noreferrer noopener">10.1177/0269216320920780</a>
The Role of Palliative Care in Caring for the Families of Patients With COVID-19
Betacoronavirus; Child; Child Care; communication; Communication; Coronavirus Infections/*therapy; Covid-19; decision-making; distress; family; Family/psychology; Humans; Palliative Care/methods; Pandemics; Pastoral Care; Pneumonia; Social Work; support; Viral/*therapy
In palliative care, we strive to provide care to the whole patient. When we think about the whole patient, we include the people who are important in our patients' lives. Our New York City-based palliative care team has found that caring for patients' loved ones has proven to be an even more important aspect of the care we have provided during the COVID epidemic. In this article, we describe the multicomponenet interdisciplinary interventions we have implemented to enhance our ability to create a therapeutic alliance with family members and facilitate the provision of goal concordant care to patients with COVID during this extremely difficult time.
Bakar M; Capano E; Patterson M; McIntyre B; Walsh C J
American Journal of Hospice and Palliative Care
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1177/1049909120931506" target="_blank" rel="noreferrer noopener">10.1177/1049909120931506</a>