Browse Items (482 total)
- Tags: Palliative Therapy
Evaluating quality of life in pediatric palliative care: a cross-sectional analysis of children's and parents' perspectives
Tags: 2023, Adolescent, Article, Bolance C, Camprodon-Rosanas E, Child, Clinical Article, Cross-sectional Study, Disease Management, Drug Therapy, European Journal of Pediatrics, February List 2024, Female, Guillen M, Human, Limonero JT, Male, nonparametric test, Palliative Therapy, Parent, Perception, psychologic assessment, Quality Of Life, sociodemographics, special situation for pharmacovigilance, Toro-Perez D, Vilarrubi SN, Voice
Balancing pandemic public health restrictions and family support at the end of life: palliative care and bereavement experiences of parents whose child died during the COVID-19 pandemic
Tags: 2023, Adolescent, Article, Bereavement Support, BMC Palliative Care, Canada, Child, Chronic Disease, Controlled Study, Coping Behavior, coronavirus disease 2019, family support, February List 2024, Female, Health Care Access, health care facility, Health Care Policy, Health Service, Health Status, Human, Infant, Infection Control, Interview, Male, Nicholas DB, Palliative Therapy, Pandemic, Parental Attitude, Personal Experience, physical activity, Public Health, Qualitative Research, Rapoport A, Risk Assessment, Social Support, Terminal Care, Zulla RT
Healthy siblings' perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis
Palliative Care in Children with Inherited Metabolic Diseases: Why does it matter?
Tags: 2023, Article, Bereavement Support, Cancelinha C, Child, Cohort Analysis, communication disorder, Diogo L, drug combination, Emergency Ward, emotional support, Endocrine, Metabolic and Immune Disorders - Drug Targets, enteric feeding, February List 2024, Female, Ferreira S, Follow Up, Grilo E, Home Care, Hospital Admission, Hospitalization, Human, Intensive Care, Male, medical device, Metabolic Disorder, motor dysfunction, Neurologic Disease, Nogueira A, Noninvasive Ventilation, Palliative Therapy, Patient Referral, Pereira MJ, Place Of Death, respiratory equipment, Retrospective Study, School Child, Symptom Assessment
What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis
Tags: 2023, Adolescent, Adverse Drug Reaction, Aged, Article, Burgess A, Child, Child Parent Relation, Controlled Study, Disability, Drug Therapy, February List 2024, Female, Health Care System, Health Expectations, Hospital care, Human, Intellectual Impairment, Interpersonal Communication, Interview, kindness, Long J, Lucien A, Male, Ong N, Palliative Therapy, Parent, Patient Safety, Pediatric Hospital, Preschool Child, Qualitative Research, School Child, Semi Structured Interview, Side Effect, special situation for pharmacovigilance, Thematic Analysis, Walton M, Weise J
A psychological experience assessment protocol of parent caregivers in paediatric palliative care
Tags: 2023, Adult, Annals Of Medicine, Article, Caregiver, Child, Clinical Article, Coping Behavior, Coping Strategy Questionnaire, February List 2024, Human, Nogueira AJ, Palliative Therapy, Parent, Portugal, psychologic assessment, Questionnaire, Ribeiro MT, Semi Structured Interview, Social Support, Therapy, United Kingdom, VULNERABILITY
Implementing Palliative care, based on family-centered care, in a highly complex neonatal unit
Tags: 2023, Article, Blanco DE, Camprubi CM, Cause Of Death, Child, Clotet CJ, Congenital Malformation, Controlled Study, February List 2024, Female, Human, intimacy, Jornal De Pediatria, Major Clinical Study, Male, Morillo PA, Mortality, Neonatal Intensive Care Unit, Newborn Death, Observational Study, Palliative Therapy, Prognosis, Retrospective Study, Riverola de Veciana A, Silla GJ, Terminal Care, Transitional Care
Perinatal palliative care: focus on comfort
Pediatric palliative care in Canada
Improving Prenatal Palliative Care Consultation Using Diagnostic Trigger Criteria: Improving Prenatal Palliative Care Consultation through Quality Improvement
Tags: 2023, Ackerman O, Andescavage N, Article, Child, Congenital Malformation, Consultation, Controlled Study, Diagnosis, eligibility, February List 2024, Female, Fisher D, Human, Journal of Pain and Symptom Management, Lanzel AF, Lin M, Mahmood LA, outcome assessment, Palliative Therapy, Patient Referral, Pregnancy, Rholl E, Total Quality Management
The meaning of dying and death for children, their carers, and families: a scoping review
Exploring and Supporting Parents' Stories of Loss in the NICU: A Narrative Study
Tags: 2023, Article, Bereavement, Child, Child Parent Relation, Congenital Malformation, Controlled Study, Decision Making, Ethics, February List 2024, Grief, Human, Infant, Kunyk D, Lakhani J, Mack C, Medical Care, Morality, Narrative, Neonatal Intensive Care Unit, Palliative Therapy, Prematurity, Qualitative Health Research, Uncertainty, van Manen M
Changes in the End-of-Life Process in Patients with Life-Limiting Diseases through the Intervention of the Pediatric Palliative Care Team
Relevance of Potential Contributing Factors for the Development and Maintenance of Irritability of Unknown Origin in Pediatric Palliative Care
Navigating parental requests: considering the relational potential standard in paediatric end-of-life care in the paediatric intensive care unit
Tags: 2023, Adolescent, Article, Child, Clark J, Clinical Article, Clinician, Diekema D, Drug Therapy, Dudzinski DM, Ethical dilemma, February List 2024, Human, Intensive Care, Journal of Medical Ethics, Kingsley J, Lewis-Newby M, Medical Decision Making, Medical Ethics, Palliative Therapy, Pediatric Intensive Care Unit, Pediatrics, Physician, School Child, special situation for pharmacovigilance, Terminal Care
Palliative care for infants with life-limiting conditions: Integrative review
Tags: 2023, Advance Care Planning, Aged, biological marker, BMJ Supportive and Palliative Care, Chronic Disease, Consultation, Content Analysis, English (language), February List 2024, Gill FJ, health practitioner, Human, Infant, Interpersonal Communication, Iten R, Medical Specialist, Nurse, O'Connor M, Palliative Therapy, Primary Health Care, quality improvement study, Review, Terminal Care, Therapy
Implementation of an Innovative Palliative Care Screening Tool in the Pediatric Intensive Care Unit: A Pilot Study
Tags: 2023, Article, Child, Chronic Disease, Comorbidity, Congenital Malformation, Controlled Study, Deeter DM, Eckman ST, Even KM, February List 2024, Female, Freeman MC, Hodge CH, Human, Intensive Care, Journal of Palliative Medicine, Kerris EW, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Pilot Study, Prospective Study, tertiary health care
The Relationship Between Dyspnea Severity with Radiological and Laboratory Findings in Pneumonia in Children in Pediatric Palliative Care
Tags: 2023, Article, assisted ventilation, Atrophy, bacterial pneumonia, bone development, breathing muscle, bronchopneumonia, Caregiver, Çelik T, Cerebral Palsy, Child, Coskun M, Cross-sectional Study, Cubukcu D, Dyspnea, Epilepsy, February List 2024, Female, Genetic Disorder, Harputluoglu N, Hospitalization, Human, interstitial pneumonia, Journal of Pediatric Academy, laboratory diagnosis, Major Clinical Study, Male, medical device, modified Borg dyspnea scale, Nurse, Nutritional Support, Palliative Therapy, Pediatrician, physiotherapist, pneumonia/di [Diagnosis], radiodiagnosis, respiratory distress, scoring system, Social Worker, thorax radiography, virus pneumonia, X ray
Optimizing resource utilization: Palliative care consultations in critically ill pediatric trauma patients
Tags: 2023, Adolescent, Arteaga GM, Article, Baxter J, Child, Child Abuse, childhood trauma, Clinical Feature, Consultation, Controlled Study, Critically Ill Patient, electronic medical record, Elsbernd TA, February List 2024, Female, Goswami J, Human, Infant, injury, Intensive Care Unit, Klinkner DB, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Practice Guideline, Retrospective Study, Schiltz BM, School Child, special situation for pharmacovigilance, Surgery, toddler, Total Quality Management, Trauma Surgery and Acute Care Open, traumatic brain injury
The NeoPACE study: study protocol for the development of a core outcome set for neonatal palliative care
Tags: 2023, Adult, Article, Bluebond-Langner M, BMC Palliative Care, Chant K, Child, Controlled Study, Delphi Study, February List 2024, Gallagher K, Health Care Personnel, Human, Interview, Male, Mancini A, Marlow N, Newborn, Newborn Death, Newborn Intensive Care, Palliative Therapy, Perinatal Death, Systematic Review, Terminal Care, Therapy, Total Quality Management
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis
Tags: 2023, Article, Atkin K, care behavior, Caregiver, Child, Clinical Article, Content Analysis, Diagnosis, Ewing G, Father, February List 2024, Female, Fisher V, Fraser LK, Grande G, Human, Male, Needs Assessment, Palliative Medicine, Palliative Therapy, Parent, School Child, Secondary Analysis, social media, special situation for pharmacovigilance
Withholding life support for children with severe neurological impairment: Prevalence and predictive factors prior to admission in the PICU
Tags: 2023, Alexandre M, Archives de Pediatrie, Article, assisted ventilation, Brossier D, Child, Controlled Study, Disability, Duval C, February List 2024, Female, Functional Status, Human, Intensive Care, Intensive Care Unit, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Pediatrician, Porcheret F, Prevalence, Retrospective Study, Roulland C, special situation for pharmacovigilance, Therapy, Toulouse J, Viallard ML
In every detail: spiritual care in pediatric palliative care perceived by healthcare providers
Tags: 2023, Article, Cai S, Cheng L, Child, China, Controlled Study, developing country, February List 2024, Health Care Personnel, Human, Interview, Journal of Pain and Symptom Management, Nurse, Palliative Therapy, Qualitative Research, Religion, Social Worker, Spiritual Care, Thematic Analysis, Therapy, Zhai X, Zhou X
Pediatric palliative care in Sweden
A shared decision-making model in pediatric palliative care: a qualitative study of healthcare providers
Tags: 2023, Adult, Article, BMC Palliative Care, Cai S, Cheng L, Child, conceptual model, Controlled Study, Decision Making, Family Centered Care, February List 2024, Health Care Personnel, Human, Knowledge, Male, Nurse, Palliative Therapy, Peng X, pharmaceutics, Phenomenology, Physician, Qualitative Research, Semi Structured Interview, shared decision making, Social Worker, Wang R, Zhou X
Specialist perinatal palliative care: a retrospective review of antenatal referrals to a children's palliative care service over 14 years
Tags: 2023, Article, Bertaud S, BMC Palliative Care, Brightley G, Child, Craig F, Crowley N, February List 2024, Female, Fetus, Heart, Hospice, Hospital Mortality, Human, Infant, Major Clinical Study, Male, Medical Record Review, Palliative Therapy, prenatal period, Retrospective Study, School Child, Trisomy 18, Uncertainty, Wilkinson D
Supporting and Contextualizing Pediatric ECMO Decision-Making Using a Person-Centered Framework
The burden and scope of childhood cancer in displaced patients in Jordan: The King Hussein Cancer Center and Foundation Experience
Tags: 2023, 2023 SE5 - Low Resource Setting, Article, bone sarcoma, Brain Tumor, cancer center, Cancer Patient, Cancer Registry, Child, Childhood Cancer, drug cost, Female, Follow Up, Foundations, Frontiers in Oncology, Health Care Cost, Human, Iraqi, Jeha S, Jordan, Jordanian, Leukemia, Lymphoma, Major Clinical Study, Male, Mansour A, Nababteh M, Neoplasms, Overall Survival, Palliative Therapy, Public Health, refugee, retinoblastoma, Rihani R, Rodriguez-Galindo C, Social Support, Sultan I, Syrian, Yemeni
Pediatric Cancer and Palliative Care in Conflict Affected Area
Tags: 2023, 2023 SE5 - Low Resource Setting, Awareness, cancer control, Cancer Patient, Cancer Survival, Child, conference abstract, Controlled Study, Female, health Insurance, Hospital Bed Capacity, Human, investment, Kutluk T, Major Clinical Study, Male, Medical Society, Opiate, Pain, Palliative Care, Palliative Medicine, Palliative Therapy, refugee, Survival Rate, Turk (people), Turkey (republic), University Hospital
Assessing the Need for Pediatric Palliative Care in the Six Arab Gulf Cooperation Council Countries
Children's understanding of dying and death: A multinational grounded theory study
Tags: 2023, 2023 SE5 - Low Resource Setting, Adolescent, Adult, Altruism, Article, Child, Clinical Article, Controlled Study, Deshommes T, Downing J, Female, Friebert S, Gassant PYH, genetic transcription, Grossoehme DH, Grounded Theory, Haiti, Human, Interview, Male, McPoland P, Multicenter Study, Only Child, Palliative And Supportive Care, Palliative Therapy, Qualitative Research, Religion, Sheehan DC, Sibling, Stephenson P, thinking, uganda, vocabulary
Clinical and genetic characteristics of Tunisian children with infantile nephropathic cystinosis
Tags: 2023, 2023 SE5 - Low Resource Setting, Achour A, Article, Ben Youssef S, bicarbonate/dt [Drug Therapy], bicarbonate/pv [Special Situation for Pharmacovigilance], calcitriol/dt [Drug Therapy], calcitriol/pv [Special Situation for Pharmacovigilance], Child, citrate potassium/dt [Drug Therapy], citrate potassium/pv [Special Situation for Pharmacovigilance], Clinical Article, Clinical Feature, Controlled Study, CTNS gene, cystine/ec [Endogenous Compound], cystinosis/di [Diagnosis], cystinosis/dt [Drug Therapy], El Younsi M, exon, Fanconi renotubular syndrome, Female, founder mutation, Gargah T, gene, Gene Deletion, gene mutation, genetic analysis, genetic trait, Hammi Y, heterozygosity, homozygosity, Human, hypothyroidism/dt [Drug Therapy], Infant, infantile nephropathic cystinosis/di [Diagnosis], infantile nephropathic cystinosis/dt [Drug Therapy], Information Processing, Kharrat M, kidney disease/di [Diagnosis], kidney disease/dt [Drug Therapy], M'Rad R, Maazoul F, Male, mercaptamine/dt [Drug Therapy], mercaptamine/pv [Special Situation for Pharmacovigilance], molecular diagnosis, molecular fingerprinting, Only Child, Ouertani I, Palliative Therapy, Pediatric Nephrology, pediatric patient, Prenatal Diagnosis, Preschool Child, Retrospective Study, RNA splicing, Sanger sequencing, thyroid hormone/dt [Drug Therapy], thyroid hormone/pv [Special Situation for Pharmacovigilance], Trabelsi M, Tunisian
Children with palliative care needs in Papua New Guinea, and perspectives from their parents and health care workers: a qualitative study
Tags: 2023, 2023 SE5 - Low Resource Setting, acute lymphoblastic leukemia/di [Diagnosis], Adolescent, Adult, Anga G, Article, BMC Palliative Care, bronchiectasis/di [Diagnosis], Cerebral Palsy/di [Diagnosis], Child, Child Health Care, Clinical Article, congenital heart disease/di [Diagnosis], congenital malformation/di [Diagnosis], Controlled Study, Descriptive Research, Duke T, dyspnea/co [Complication], Female, germ cell tumor/di [Diagnosis], Guillain Barre syndrome/di [Diagnosis], health care need, Health Care Personnel, Health Care Quality, hemosiderosis/di [Diagnosis], Human, Human immunodeficiency virus infection/di [Diagnosis], Infant, Interview, job experience, Kilalang C, knowledge gap, Male, malignant neoplasm/di [Diagnosis], Medical Record, Melanesia, neuroblastoma/di [Diagnosis], Only Child, Pacific Islands, Pain/co [complication], Palliative Care, Palliative Therapy, Papua New Guinea, Parent, pediatric ward, Preschool Child, pulmonary hypertension/di [Diagnosis], Pulsan F, Qualitative Research, retinoblastoma/di [Diagnosis], School Child, thalassemia/di [Diagnosis], Thematic Analysis, tuberculosis/di [Diagnosis], Vince JD, Watch V
"It Seems Like a Bad Thing": US South Asian Youths' Perspectives About the Use of Hospice Care
Tags: 2023, 2023 SE5 - Low Resource Setting, Adolescent, American Journal Of Hospice And Palliative Care, Article, Clinical Article, Consensus, Controlled Study, Education, Female, Hospice Care, Hospices, Human, Indian, inheritance, juvenile, Khosla N, Palliative Therapy, Place Of Death, Qualitative Research, Quality Of Life, South Asian, Thematic Analysis, university student, vulnerable population
Exploring the Palliative Care Needs of Children in Refugee Settlements in Uganda
Tags: 2023, 2023 SE5 - Low Resource Setting, Adult, Bagasha P, Child, Chronic Disease, conference abstract, Data Analysis, Distress Syndrome, Downing J, Grant L, Howarth K, Human, Ikong H, Leng M, Maku S, McGeough K, mentor, Nabirye L, Nalutaaya F, Namukwaya E, Needs Assessment, Only Child, Opia V, Oziti G, Palliative Care, Palliative Medicine, Palliative Therapy, refugee, refugee camp, Santiago T, Smith C, Thermometer, uganda, Venkatesh C
Pediatric Palliative Care Program Implementation in Low- and Middle-income Countries: A Systematic Review Using a Strengths, Weaknesses, Opportunities and Threats Analysis
Tags: 2023, 2023 SE5 - Low Resource Setting, Child, conference abstract, Doherty M, Education, Gentica X, government, Gujral P, Hospice, Hughes-Visentin A, Human, Human Experiment, Kaye E, Kenneson SA, Lodhi S, lowest income group, Malipeddi D, middle income country, Multidisciplinary team, Palliative Care, Palliative Medicine, Palliative Therapy, Phadke S, Preferred Reporting Items for Systematic Reviews and Meta-Analyses, psychosocial care, Rayala S, resource limited setting, Sarvode S, Systematic Review, Wrigley J
Development of Children's Palliative Care in Perm Krai
Hospice Care in India-A Pediatrician's Perspective
An innovative hybrid palliative care fellowship program: empowering pediatricians and enhancing care for children in resource-limited settings
Tags: 2023, 2023 SE5 - Low Resource Setting, Archives of Disease in Childhood, Bangladesh, Brown S, Canada, career, Child, Child Health, clinical examination, conference abstract, Controlled Study, Doherty M, Female, Human, India, Leadership, Learning, Major Clinical Study, Male, mentor, Palat G, Palliative Care, Palliative Therapy, Pediatrician, Pediatrics, Philippines, resource limited setting, rigor, Rotation, running, Shah A, Skill, Southeast Asia, Teaching, Total Quality Management
Engaging Fathers in Pediatric Palliative Care Research
Tags: *Father-Child Relations, *Fathers/px [Psychology], *Palliative Care/px [Psychology], *Paternal Behavior/px [Psychology], 2020, 2023 SE4 - Parent Perspectives, Adaptation, Psychological, Adult, Barrera, M., Beaune, L., Belletrutti, M., Blumberg, J., Caregiver, Child, Child Health, Controlled Study, Father, Health Care Personnel, Humans, Ing, S., Interview, Journal of social work in end-of-life and palliative care, Male, Nicholas, D., Palliative Therapy, Paternal caregivers, Pediatrics, Perception, Professional-family Relations, Qualitative Research, Rapoport, A., research engagement, sample recruitment challenges, Wellbeing