1
40
7
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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July 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July 2019 List
URL Address
<a href="http://doi.org/10.1097/01.NAJ.0000544137.55887.5a" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1097/01.NAJ.0000544137.55887.5a</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pain in Nonverbal Children with Medical Complexity: A Two-Year Retrospective Study
Publisher
An entity responsible for making the resource available
The American journal of nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Child; Female; Male; Adolescent; Humans; Retrospective Studies; Child Behavior; Intellectual Disability; Pain Measurement/mt [Methods]; Pain/di [Diagnosis]; Pain/pp [Physiopathology]; Parents/px [Psychology]; Longitudinal Studies; New England; Nursing Assessment; Surveys and Questionnaires
Creator
An entity primarily responsible for making the resource
Quinn B L; Solodiuk J C; Morrill D; Mauskar S
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.NAJ.0000544137.55887.5a" target="_blank" rel="noreferrer noopener">10.1097/01.NAJ.0000544137.55887.5a</a>
2018
Adolescent
Child
Child Behavior
Female
Humans
Intellectual Disability
July 2019 List
Longitudinal Studies
Male
Mauskar S
Morrill D
New England
Nursing Assessment
Pain Measurement/mt [Methods]
Pain/di [diagnosis]
Pain/pp [Physiopathology]
Parents/px [psychology]
Quinn B L
Retrospective Studies
Solodiuk J C
Surveys And Questionnaires
The American journal of nursing
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s00431-012-1720-x" target="_blank" rel="noreferrer">http://doi.org/10.1007/s00431-012-1720-x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pain in cognitively impaired children: a focus for general pediatricians.
Publisher
An entity responsible for making the resource available
European Journal Of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Child; Humans; Pain Measurement; quality of life; Analgesics/tu [Therapeutic Use]; Cerebral Palsy/co [Complications]; Cognition Disorders/co [Complications]; Pain/et [Etiology]; Pain/di [Diagnosis]; Pain/dt [Drug Therapy]
Creator
An entity primarily responsible for making the resource
Pastore S; Ventura A; Barbi E
Description
An account of the resource
UNLABELLED: Pain in children with cognitive impairment and cerebral palsy is a particularly relevant issue due to its high prevalence and impact on quality of life. We review available evidence about prevalence of pain, causes and specific treatment, recognition and use of specific pain scales, physiology, and consequences of pain in this subset of patients., CONCLUSIONS: Pain is very common and is a critical determinant of quality of life in children with cognitive impairment and cerebral palsy. The diseases and associated complications that frequently expose these patients to pain can be treated and pain prevented. For patients with communication difficulties, appropriate, effective, validated tools are available and should be used to diagnose pain in itself, to >choose analgesic treatment and to determine effectiveness of these therapies. The level of awareness of pediatricians towards this issue seems to be quite low.
2013
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s00431-012-1720-x" target="_blank" rel="noreferrer">10.1007/s00431-012-1720-x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Analgesics/tu [Therapeutic Use]
Backlog
Barbi E
Cerebral Palsy/co [Complications]
Child
Cognition Disorders/co [Complications]
European Journal of Pediatrics
Humans
Journal Article
Pain Measurement
Pain/di [diagnosis]
Pain/dt [drug Therapy]
Pain/et [Etiology]
Pastore S
Quality Of Life
Ventura A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2007.0105" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2007.0105</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Determinants of do-not-resuscitate orders in palliative home care.
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Female; Humans; Male; Pain Measurement; Adult; Canada; Aged; Middle Aged; Activities of Daily Living; Demography; Case Management; adolescent; 80 and over; retrospective studies; DNAR; Resuscitation Orders; Neuropsychological Tests; Pain/di [Diagnosis]; Advance Directives/sn [Statistics & Numerical Data]; Critical Illness/mo [Mortality]; Critical Illness/th [Therapy]; Palliative Care/sn [Statistics & Numerical Data]; Cognition Disorders/di [Diagnosis]; Cognition Disorders/ep [Epidemiology]; Palliative Care/lj [Legislation & Jurisprudence]
Creator
An entity primarily responsible for making the resource
Brink P; Smith TF; Kitson M
Description
An account of the resource
OVERVIEW: Do-not-resuscitate (DNR) orders allow home care clients to communicate their own wishes over medical treatment decisions, helping to preserve their dignity and autonomy. To date, little is known about DNR orders in palliative home care. Basic research to identify rates of completion and determinants of DNR orders has yet to be examined in palliative home care., PURPOSE: The purpose of this exploratory study was to determine who in palliative home care has a DNR order as part of their advance directive., METHODS: Information on health was collected using the interRAI instrument for palliative care (interRAI PC). The sample included 470 home care clients from one community care access centre in Ontario., RESULTS: This study indicated that a preference to die at home (odds ratio [OR]: 8.29, confidence interval [CI]: 4.55-15.11); close proximity to death (OR: 0.99, CI: 0.99-1.00); daily incontinence (OR: 2.74, CI: 1.05-7.16); and sleep problems (OR: 1.85, CI: 1.02-3.37) are associated with DNR orders. In addition, clients who are more accepting of their situation are 5.67 times (CI: 1.67-19.27) more likely to have a DNR in place., CONCLUSION: This study represents an important first step to identifying issues related to DNR orders. In addition to proximity to death, incontinence, and sleep problems, acceptance of one's own situation and a preference to die at home are important determinants of DNR completion. The results imply that these discussions might often depend not only on the health of the clients but also on the clients' acceptance of their current situation and where they wish to die.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2007.0105" target="_blank" rel="noreferrer">10.1089/jpm.2007.0105</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
80 And Over
Activities of Daily Living
Adolescent
Adult
Advance Directives/sn [Statistics & Numerical Data]
Aged
Backlog
Brink P
Canada
Case Management
Cognition Disorders/di [Diagnosis]
Cognition Disorders/ep [Epidemiology]
Critical Illness/mo [Mortality]
Critical Illness/th [therapy]
Demography
DNAR
Female
Humans
Journal Article
Journal of Palliative Medicine
Kitson M
Male
Middle Aged
Neuropsychological Tests
Pain Measurement
Pain/di [diagnosis]
Palliative Care/lj [Legislation & Jurisprudence]
Palliative Care/sn [Statistics & Numerical Data]
Resuscitation Orders
Retrospective Studies
Smith TF
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00002508-200503000-00005" target="_blank" rel="noreferrer">http://doi.org/10.1097/00002508-200503000-00005</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Global and specific behavioral measures of pain in children with cerebral palsy.
Publisher
An entity responsible for making the resource available
The Clinical Journal Of Pain
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Communication Barriers; Sensitivity and Specificity; Reproducibility of Results; adolescent; Cerebral Palsy/co [Complications]; Pain/et [Etiology]; Cerebral Palsy/di [Diagnosis]; Child Behavior/cl [Classification]; Pain Measurement/mt [Methods]; Pain/di [Diagnosis]; Cerebral Palsy/rh [Rehabilitation]; Physical Therapy Modalities/ae [Adverse Effects]
Creator
An entity primarily responsible for making the resource
von Baeyer CL
Description
An account of the resource
OBJECTIVES: The aim of this research was to validate global and behavioral observation methods for measuring pain in children with cerebral palsy (CP)., MATERIALS AND METHODS: Nineteen children diagnosed with CP (2-21 years of age) and their primary caregivers participated in this study. Children and their caregivers were videotaped in their home before, during, and after a stretching exercise, and tests of cognitive and social development were administered. Children who were able to pass a training task were also asked to rate their experience of pain using a numerical rating scale (self-report NRS), but only 5 children (24%) passed so their self-report scores were not included. Healthcare professionals rated videotaped segments for each of the 3 time periods in a randomized order using an observer NRS and the Non-Communicating Children's Pain Checklist-Postoperative Version (NCCPC-PV). Raters trained in the Child Facial Coding System (CFCS) examined the same videotaped segments., RESULTS: Results showed significantly greater pain behavior (observer NRS, NCCP- PV) during the stretching procedure than during the baseline and recovery segments. There were no significant differences in CFCS scores, across time segments., CONCLUSIONS: These findings support the hypothesis that children with CP express discernible pain behaviors regardless of cognitive or language ability. These results contribute to multidimensional assessment of pain in children with neurologic impairment.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00002508-200503000-00005" target="_blank" rel="noreferrer">10.1097/00002508-200503000-00005</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adolescent
Adult
Backlog
Cerebral Palsy/co [Complications]
Cerebral Palsy/di [Diagnosis]
Cerebral Palsy/rh [Rehabilitation]
Child
Child Behavior/cl [Classification]
Communication Barriers
Female
Humans
Journal Article
Male
Pain Measurement/mt [Methods]
Pain/di [diagnosis]
Pain/et [Etiology]
Physical Therapy Modalities/ae [Adverse Effects]
Reproducibility of Results
Sensitivity and Specificity
The Clinical Journal Of Pain
von Baeyer CL
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0304-3959(02)00123-9" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0304-3959(02)00123-9</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pain in children with cerebral palsy: common triggers and expressive behaviors.
Publisher
An entity responsible for making the resource available
Pain
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Child; Female; Humans; Male; Pain Measurement; Adult; Parents; Questionnaires; Communication; Activities of Daily Living; Perception; adolescent; Preschool; infant; Cerebral Palsy/co [Complications]; Pain/di [Diagnosis]; Cerebral Palsy/px [Psychology]; Child Behavior; Pain/px [Psychology]
Creator
An entity primarily responsible for making the resource
von Baeyer CL
Description
An account of the resource
To obtain parents' identification and description of the behaviors, health care procedures and daily living situations associated with pain in children with cerebral palsy (CP), surveys were sent to parents of children with CP recruited via a clinic case list and a parents' newsletter. Forty-three parents completed the survey. Results indicated that children's ability to communicate pain verbally did not influence whether or not their parent reported observing pain. Most children (67%) were reported to have displayed pain within the month prior to rating. All pain behaviors on the Non-Communicating Children's Pain Checklist (Dev Med Child Neurol 40 (1998) 340) were endorsed by some parents, and few additional pain behaviors were identified, suggesting that this instrument adequately samples the pain behavior of children with CP. Assisted stretching was the daily living activity most frequently identified as painful by parents (93% of those reporting pain), and the one with the highest mean pain intensity. Needle injection (40%) was the medical and nursing procedure most frequently identified by parents as painful for their children. Range of motion manipulation was the therapy most frequently identified as painful by parents (58%), and the one with the highest mean intensity. Parents are able to observe pain in their children with CP regardless of the child's verbal fluency. Knowledge of behaviors and painful situations identified by parents can facilitate management of pain in children with CP.Copyright 2002 International Association for the Study of Pain
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0304-3959(02)00123-9" target="_blank" rel="noreferrer">10.1016/s0304-3959(02)00123-9</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Activities of Daily Living
Adolescent
Adult
Backlog
Cerebral Palsy/co [Complications]
Cerebral Palsy/px [Psychology]
Child
Child Behavior
Communication
Female
Humans
Infant
Journal Article
Male
Pain
Pain Measurement
Pain/di [diagnosis]
Pain/px [Psychology]
Parents
Perception
Preschool
Questionnaires
von Baeyer CL
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01376517-200410000-00004" target="_blank" rel="noreferrer">http://doi.org/10.1097/01376517-200410000-00004</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pain in children with cerebral palsy: a review.
Publisher
An entity responsible for making the resource available
The Journal Of Neuroscience Nursing : Journal Of The American Association Of Neuroscience Nurses
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Humans; Pain Measurement; Nurse's Role; Severity of Illness Index; Needs Assessment; Risk Factors; Activities of Daily Living; Nursing Assessment; Child welfare; Cerebral Palsy/co [Complications]; Pain/di [Diagnosis]; Pain/et [Etiology]; Pain Management; Motor Skills; Pain
Creator
An entity primarily responsible for making the resource
Kieckhefer GM; Engel Joyce M; Jensen MP; Labyak S
Description
An account of the resource
Children with cerebral palsy (CP) face many challenges including impaired motor control and coordination, functional impairment, sensory disturbances, and, sometimes, communication difficulties and cognitive deficits. Pain also may be a problem for children with CP due in part to the inherent deficits associated with the disease, as well as the invasive medical and surgical procedures and rehabilitative activities children with CP undergo on a regular basis. A review of current literature indicates pain is a common experience for children with CP and has been understudied in this population. Further emphasis and research on appropriate assessment and management strategies sensitive to the unique characteristics and limitations of children with CP are warranted.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01376517-200410000-00004" target="_blank" rel="noreferrer">10.1097/01376517-200410000-00004</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Activities of Daily Living
Backlog
Cerebral Palsy/co [Complications]
Child
Child welfare
Engel Joyce M
Humans
Jensen MP
Journal Article
Kieckhefer GM
Labyak S
Motor Skills
Needs Assessment
Nurse's Role
Nursing Assessment
Pain
Pain Management
Pain Measurement
Pain/di [diagnosis]
Pain/et [Etiology]
Risk Factors
Severity Of Illness Index
The Journal Of Neuroscience Nursing : Journal Of The American Association Of Neuroscience Nurses
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
Publisher
An entity responsible for making the resource available
Palliative & Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Perception; Procedures; Adult; Cross Sectional Study; Death; Dyspnea/di [diagnosis]; Female; Home Care; Human; Male; Pain/di [diagnosis]; Palliative Therapy; Parent; Pediatrics; Psychology; Quality Of Life; Questionnaire; Retrospective Study; Standards; Symptom Assessment
Creator
An entity primarily responsible for making the resource
Vollenbroich R; Borasio GD; Duroux A; Grasser M; Brandstatter M; Fuhrer M
Description
An account of the resource
RESULTS: Thirty-eight parent dyads participated (return rate 84%; 35% oncological disorders). According to parental report, dyspnea (61%) and pain (58%) were the dominant symptoms with an overall high symptom load (83%). Pain, agitation, and seizures could be treated more successfully than other symptoms. Successful symptom perception was achieved in most cases and predicted the quality of symptom treatment (R 2, 0.612). Concordant assessment of symptom severity between parents and healthcare professionals (HCPs) improved the satisfaction with the care provided (p = 0.037) as well as the parental quality-of-life (p = 0.041). Even in cases with unsuccessful symptom control, parents were very satisfied with the SHPPC team's care (median 10; numeric rating scale 0-10) and rated the child's death as highly peaceful (median 9). Significance of the results: The quality and the concordance of symptom perception between parents and HCPs essentially influence parental quality-of-life as well as parental satisfaction and constitute a predictive factor for the quality of symptom treatment and palliative care. OBJECTIVE: This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care setting and identifies which factors contribute to a high quality of palliative and end-of-life care for children. METHODS: In this retrospective, cross-sectional study, parents were surveyed at the earliest three months after their child's death. All children were cared for by a specialized home pediatric palliative care team that provides a 24/7 medical on-call service. Questionnaires assessed symptom prevalence and intensity during the child's last month of life as perceived by parents, symptom perception, and treatment by medical staff. The responses were correlated with essential palliative care outcome measures (e.g., satisfaction with the care provided, quality-of-life of affected children and parents, and peacefulness of the dying phase).
Identifier
An unambiguous reference to the resource within a given context
10.1017/S1478951515000462
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adult
Borasio GD
Brandstatter M
Cross Sectional Study
Death
Duroux A
Dyspnea/di [diagnosis]
Female
Führer M
Grasser M
Home Care
Human
January 2017 List
Male
Pain/di [diagnosis]
Palliative & Supportive Care
Palliative Therapy
Parent
Pediatrics
Perception
Procedures
Psychology
Quality Of Life
Questionnaire
Retrospective Study
Standards
Symptom Assessment
Vollenbroich R