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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1111/ecc.13061" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/ecc.13061</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The experience of parents living with a child with cancer at the end of life
Publisher
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European Journal of Cancer Care (Engl)
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
end of life; paediatric cancer; parents; phenomenology
Creator
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Wang S C; Wu L M; Yang Y M; Sheen J M
Description
An account of the resource
The study was to describe the essence of the lived experience of parents with a child with incurable cancer at the end of life (EOL). A descriptive phenomenological study was conducted with ten parents of children with incurable cancer in a medical centre in Taiwan. Data were collected from in-depth interviews and were analysed according to the method of Giorgi. Two major themes emerged: (a) immersion in the struggling and suffering, which included conflicts and arguments, witnessing their child suffering, denying their child being at EOL and waiting for a miracle; and (b) acceptance of death, which included an end to suffering, living in the moment, discussion of death and letting go. Parents had difficulty adapting to a palliative care perspective due to their misconception that this meant giving up on their child. In addition, religion and belief played varied and important roles in the lived experience of these parents with a child with incurable cancer. Healthcare providers must address the core value of palliative care and help parents accept the reality of their child's situation at an earlier stage in order to provide a better quality of life for the child.
Identifier
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<a href="http://doi.org/10.1111/ecc.13061" target="_blank" rel="noreferrer noopener">10.1111/ecc.13061</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
End Of Life
European Journal of Cancer Care (Engl)
Oncology 2019 List
Paediatric cancer
Parents
Phenomenology
Sheen J M
Wang S C
Wu L M
Yang Y M
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1007/s00520-019-04806-0" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s00520-019-04806-0</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Parents' acceptance and regret about end of life care for children who died due to malignancy
Publisher
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Supportive Care in Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
analgesic agent; article; Cancer distress; cancer patient; child; childhood cancer; controlled study; End of life care; health care personnel; home environment; Home-based palliative care; human; India; open ended questionnaire; Paediatric cancer; pain; Palliative; palliative therapy; qualitative research; Qualitative study; respiratory distress; terminal care; Terminal care
Creator
An entity primarily responsible for making the resource
Das K; Khanna T; Arora A; Agrawal N
Description
An account of the resource
Purpose: To analyse the preference of end of life care place in paediatric oncology patients, and to understand the end of life care needs and regrets among the care givers. Method(s): This was an observational qualitative study. Parents of in-curable paediatric malignancy patients who died during the years 2016-2018 were interviewed using a pre-formed open-ended questionnaire. Fears during the last phase of child's life, most disturbing symptoms, choice of end of life care plan, regret of care givers and reasons for such choices were noted and analysed. Result(s): Twenty six families were interviewed. A median of 3 months of discordance was noted between declaration of in-curability and acceptance of the same by the family. During terminal months, pain (84.62%) was described as the most bothersome symptom followed by respiratory distress (73.08%). Eighteen families (69%) opted for home-based terminal care, 8 (31%) for hospital-based terminal care. Regret of choice was noted in 62.5% families of the hospital-based care group (separation from home environment being the main reason) and 38.89% of the home-based care group (lack of access to health care personnel and pain medication being the main reasons). Conclusion(s): Home-based care is the preferred option for end of life care by the care givers. Lack of community-based terminal care support system and availability of analgesics are the main areas to work on in India. Copyright © 2019, Springer-Verlag GmbH Germany, part of Springer Nature.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s00520-019-04806-0" target="_blank" rel="noreferrer noopener">10.1007/s00520-019-04806-0</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Agrawal N
Analgesic Agent
Arora A
Article
Cancer distress
Cancer Patient
Child
Childhood Cancer
Controlled Study
Das K
End Of Life Care
Health Care Personnel
home environment
home-based palliative care
Human
India
Khanna T
Oncology 2019 List
open ended questionnaire
Paediatric cancer
Pain
Palliative
Palliative Therapy
Qualitative Research
Qualitative Study
respiratory distress
Supportive Care In Cancer
Terminal Care