1
40
2
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2017 List
URL Address
http://www.ncbi.nlm.nih.gov/pubmed/28408466
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
‘best Interests’ In Paediatric Intensive Care: An Empirical Ethics Study
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Decision Making; End-of-life-care; Ethics; Law; Paediatric Intensive Care Units
Creator
An entity primarily responsible for making the resource
Birchley Giles; Gooberman-Hill Rachael; Deans Zuzana; Fraser James; Huxtable Richard
Description
An account of the resource
Objective In English paediatric practice, English law requires that parents and clinicians agree the ‘best interests’ of children and, if this is not possible, that the courts decide. Court intervention is rare and the concept of best interests is ambiguous. We report qualitative research exploring how the best interests standard operates in practice, particularly with decisions related to planned non-treatment. We discuss results in the light of accounts of best interests in the medical ethics literature. Design We conducted 39 qualitative interviews, exploring decision making in the paediatric intensive care unit, with doctors, nurses, clinical ethics committee members and parents whose children had a range of health outcomes. Interviews were audio-recorded and analysed thematically. Results Parents and clinicians indicated differences in their approaches to deciding the child’s best interests. These were reconciled when parents responded positively to clinicians’ efforts to help parents agree with the clinicians’ view of the child’s best interests. Notably, protracted disagreements about a child’s best interests in non-treatment decisions were resolved when parents’ views were affected by witnessing their child’s physical deterioration. Negotiation was the norm and clinicians believed avoiding the courts was desirable. Conclusions Sensitivity to the long-term interests of parents of children with life-limiting conditions is defensible but must be exercised proportionately. Current approaches emphasise negotiation but offer few alternatives when decisions are at an impasse. In such situations, the instrumental role played by a child’s deterioration and avoidance of the courts risks giving insufficient weight to the child’s interests. New approaches to decision making are needed.
Identifier
An unambiguous reference to the resource within a given context
10.1136/archdischild-2016-312076
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Archives of Disease in Childhood
Birchley Giles
Deans Zuzana
Decision Making
End-of-Life-Care
Ethics
Fraser James
Gooberman-Hill Rachael
Huxtable Richard
June 2017 List
Law
Paediatric Intensive Care Units
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
October 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2021 List
URL Address
<a href="http://doi.org/10.1016/j.enfie.2020.06.002" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.enfie.2020.06.002</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Children's visits to the paediatric intensive care unit from the nurses' experience
Publisher
An entity responsible for making the resource available
Enfermería Intensiva (English Edition)
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
Child; Child advocacy; Family Nursing; Paediatric Intensive Care Units
Creator
An entity primarily responsible for making the resource
González-Gil MT; Alcolea-Cosín MT; Pérez-García S; Luna-Castaño P; Torrent-Vela S; Piqueras-Rodríguez P; Gil-Domínguez S; Alonso-Lloret F; Belda-Holfheinz S; Sánchez-Díaz JI; Espinosa-Bayal MÁ
Description
An account of the resource
BACKGROUND: Family process disruption is one of the main consequences of the hospitalization of a critically ill child in a Paediatric Intensive Care Unit (PICU). Children's visits to PICU may help improve family coping. However, this is not standard practice and nurses' experiences in facilitating children's visits to units where it is encouraged is unknown. AIM: To explore nurses' experience related to promoting the visits of siblings to PICU. METHODS: An interpretative phenomenological study was carried out through in-depth interviews in two PICUs belonging to third level public hospitals in Madrid. Twelve nurses with more than two years of experience in PICU were interviewed. They were all were working in PICU during the study. Furthermore, a PICU psychologist with an experience of four years was interviewed and this was considered shadowed data. Data analysis followed a thematic discourse analysis. RESULTS: Nurses' experience of facilitating children's visits to PICU can be condensed into four themes: emerging demand for visits, progressive preparation, decision-making through common consensus and creating intimate spaces. CONCLUSIONS: The experience of nurses in facilitating visits is mainly in response to the demand of families going through prolonged hospitalisation or end-of-life situations. The role of the nurse is one of accompaniment, recognising the major role of parents in the preparation of children and in developing the visit. Nurses feel insecure and lack resources for emotional support and demand action protocols to guide intervention and decision making.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.enfie.2020.06.002" target="_blank" rel="noreferrer noopener">10.1016/j.enfie.2020.06.002</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Alcolea-Cosín MT
Alonso-Lloret F
Belda-Holfheinz S
Child
Child Advocacy
Enfermería Intensiva (English Edition)
Espinosa-Bayal MÁ
Family Nursing
Gil-Domínguez S
González-Gil MT
Luna-Castaño P
October 2021 List
Paediatric Intensive Care Units
Pérez-García S
Piqueras-Rodríguez P
Sánchez-Díaz JI
Torrent-Vela S