1
40
32
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Dublin Core
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Title
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April 2024 List
Text
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April List 2024
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<a href="http://doi.org/10.1371/journal.pone.0293025" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1371/journal.pone.0293025</a>
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Consumer and provider perceptions of the specialist unit model of care: A qualitative study
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PLoS One
Date
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2024
Subject
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Humans; Child; Qualitative Research; Palliative Care; Australia
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Long JC; Carrigan A; Roberts N; Clay-Williams R; Hibbert PD; Zurynski Y; Maka K; Loy G; Braithwaite J
Description
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Background: Specialist care units cater to targeted cohorts of patients, applying evidence-based practice to people with a specific condition (e.g., dementia) or meeting other specific criteria (e.g., children). This paper aimed to collate perceptions of local consumers and health providers around specialist care units, as a model of care that may be considered for a new local healthcare facility. Methods: This was a qualitative study using two-hour workshops and interviews to collect data. Participants were consumers and health providers in the planned facility's catchment: 49 suburbs in metropolitan Australia. Consumers and health providers were recruited through advertisements and emails. An initial survey collected demographic details. Consumers and health providers participated in separate two-hour workshops in which a scenario around the specialist unit model was presented and discussion on benefits, barriers and enablers of the model was led by researchers. Detailed notes were taken for analysis. Results: Five consumer workshops (n = 22 participants) and five health provider workshops (n = 42) were conducted. Participants were representative of this culturally diverse region. Factors identified by participants as relevant to the specialist unit model of care included: accessibility; a perceived narrow scope of practice; coordination with other services; resources and infrastructure; and awareness and expectations of the units. Some factors identified as risks or barriers when absent were identified as strengths and enablers when present by both groups of participants. Conclusions: Positive views of the model centred on the higher perceived quality of care received in the units. Negative views centred on a perceived narrow scope of care and lack of flexibility. Consumers hinted, and providers stated explicitly, that the model needed to be complemented by an integrated model of care model to enable continuity of care and easy transfer of patients into and out of the specialist unit.
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0293025" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0293025</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2024
April List 2024
Australia
Braithwaite J
Carrigan A
Child
Clay-Williams R
Hibbert PD
Humans
Long JC
Loy G
Maka K
Palliative Care
PLoS One
Qualitative Research
Roberts N
Zurynski Y
-
Dublin Core
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Title
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2023 Special Edition 5 - Low Resource Setting List
Text
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Citation List Month
2023 SE5 - Low Resource Setting
URL Address
<a href="http://doi.org/10.1371/journal.pone.0288938" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1371/journal.pone.0288938</a>
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Doing our best and doing no harm: A focused ethnography of staff moral experiences of providing palliative care at a Médecins Sans Frontières pediatric hospital in Cox's Bazar, Bangladesh
Publisher
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PLoS One
Date
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2023
Subject
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Humans; Child; Hospitals Pediatric; Palliative Care; Infant; Bangladesh; Palliative Care; Morals; Hospitals Pediatric; Anthropology Cultural
Creator
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Yantzi R; Hadiuzzaman M; Sen Gupta PK; Lamrous A; Richardson K; Pringle J; Schwartz L; Hossain P; Kizito D; Burza S
Description
An account of the resource
INTRODUCTION: The Médecins Sans Frontières (MSF) Goyalmara Hospital in Cox's Bazar, Bangladesh is a referral centre offering the highest level of care available in the Rohingya camps for pediatrics and neonatology. Efforts are underway to integrate pediatric palliative care due to high mortality and medical complexity of patients, yet little is known about the experiences of staff delivering palliative and end-of-life care. The purpose of this study was to understand the moral experiences of MSF staff to inform program planning and implementation. METHODS: This focused ethnography was conducted between March-August 2021 at Goyalmara Hospital. Data collection involved participant-observation, individual interviews (22), focus group discussions (5), and analysis of documents including MSF clinical guidelines, admission and referral criteria, reports, and training materials. Data analysis followed a modified version of the Qualitative Analysis Guide of Leuven and data were coded using NVivo software. RESULTS: The prevailing understanding of pediatric palliative care among national and international staff was care that prioritized comfort for infants and children who were not expected to survive. Staff's views were informed by their sense of obligation to do no harm, to do their best on behalf of their patients, and religious beliefs about God's role in determining the child's outcome. The authority of doctors, international staff, as well as protocols and guidelines shaped palliative care decision-making. Staff saw clinical guidelines as valuable resources that supported a consistent approach to care over time, while others were concerned that palliative care guidelines were rigidly applied. CONCLUSION: When integrating palliative care into humanitarian programs, it is important to emphasize the active role of palliative care in reducing suffering. Advocacy for access to the highest level of care possible should continue alongside palliative care integration. While palliative care guidelines are valuable, it is essential to encourage open discussion of staff concerns and adapt care plans based on the family's needs and preferences.
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0288938" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0288938</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
2023 SE5 - Low Resource Setting
Anthropology Cultural
Bangladesh
Burza S
Child
Hadiuzzaman M
Hospitals Pediatric
Hossain P
Humans
Infant
Kizito D
Lamrous A
Morals
Palliative Care
PLoS One
Pringle J
Richardson K
Schwartz L
Sen Gupta PK
Yantzi R
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2021 Special Edition 1 - Low Resource Settings
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2021 Special Edition 1 - Low Resource Settings
URL Address
<a href="http://doi.org/10.1371/journal.pone.0236498" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1371/journal.pone.0236498</a>
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Sibling Mortality Burden in Low-Income Countries: A Descriptive Analysis of Sibling Death in Africa, Asia, and Latin America and the Caribbean
Publisher
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PLoS One
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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Child; Adolescent; Adult; Child Preschool; Female; Humans; Infant; Infant Newborn; Male; Middle Aged; Young Adult; Developing Countries; Socioeconomic Factors; Latin America; Asia; Poverty; Cost of Illness; Global Health; Siblings; Caribbean Region; Mortality/trends; West Indies
Creator
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Smith-Greenaway E; Weitzman A
Description
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In high-income countries, emerging research suggests sibling bereavement can have significant health and life course consequences for young people. Yet, we know far less about its burden in lower-income countries. Due to higher fertility and mortality in lower-income countries, the level, timing, intensity, and circumstances surrounding sibling mortality are likely to follow patterns distinct from those in higher-income settings. Thus, in this study, we offer a descriptive overview of sibling death in 43 countries across sub-Saharan Africa, South and Southeast Asia, and Latin America and the Caribbean. Specifically, we analyze Demographic and Health Survey data from nationally representative samples of 352,930 15- to 34-year-old women, born between 1985 and 2003, to document experiences of sibling death before age 25. On average, roughly one-third of individuals report a deceased sibling in these countries; estimates reach 40-50% of respondents in multiple African countries, particularly those that have experienced conflict and war. Although some sibling deaths occurred before the focal respondent was born, most bereaved individuals recalled a death during their lifetime-often in late childhood/early adolescence. High proportions of bereaved respondents report multiple sibling deaths, highlighting the clustering of deaths within families. Even so, bereaved individuals tend to come from large families and thus frequently have a comparable number of surviving siblings as people who never experienced a sibling die. Together, the results offer a window into global inequality in childhood experiences, and they attest to the need for research that explores the implications of sibling mortality for young people in world regions where the experience is concentrated.
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0236498" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0236498</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
2021 Special Edition 1 - Low Resource Settings
Adolescent
Adult
Asia
Caribbean Region
Child
Child Preschool
Cost Of Illness
Developing Countries
Female
Global Health
Humans
Infant
Infant Newborn
Latin America
Male
Middle Aged
Mortality/trends
PLoS One
Poverty
Siblings
Smith-Greenaway E
Socioeconomic Factors
Weitzman A
West Indies
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2021 Special Edition 1 - Low Resource Settings
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2021 Special Edition 1 - Low Resource Settings
URL Address
<a href="http://doi.org/10.1371/journal.pone.0248661" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1371/journal.pone.0248661</a>
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Perceptions of the Parents of Deceased Children and of Healthcare Providers about End-Of-Life Communication and Breaking Bad News at a Tertiary Care Public Hospital in India: A Qualitative Exploratory Study
Publisher
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PLoS One
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
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Palliative care; communication; Pediatrics; Parents; Nurses; Qualitative Studies; Physicians
Creator
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Das MK; Arora NK; Chellani HK; Debata PK; Meena KR; Rasaily R; Kaur G; Malik P; Joshi S; Kumari M
Description
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BACKGROUND: Parents of dying children face unique challenge and expect compassionate support from health care providers (HCPs). This study explored the experiences of the parents and HCPs about the end-of-life care and breaking bad news and related positive and negative factors in Indian context. METHODS: This qualitative exploratory study was conducted at paediatrics department of a tertiary care hospital in Delhi. In-depth interviews with the parents (n = 49) and family members (n = 21) of the children died at the hospital and HCPs (6 doctors, 6 nurses and 4 support staffs) were conducted. Also events and communication around death of eight children were observed. Data were inductively analysed using thematic content analysis method to identify emerging themes and codes. RESULTS: Doctors were the lead communicators. Majority of parents perceived the attitude, communication and language used as by resident doctors as brief, insensitive and sometimes inappropriate or negative. They perceived that the attitude and communication by senior doctor's as empathetic, positive and complete. Parents recalled the death declaration by resident doctors as non-empathetic, blunt and cold. Most parents received no emotional support from HCPs during and after death of their child. All doctors expressed that death of their patients affected them and their emotions, which they coped through different activities. The overcrowded wards, high workload, infrastructural limitation and no formal communication training added to the emotional stress of the HCPs. CONCLUSIONS: Majority of the communication by the HCPs during the hospitalisation and end-of-life period were perceived as suboptimal by the parents. The HCPs were emotionally affected and faced end-of-life communication challenges. The study highlights the communication by HCPs and support for parents during the end-of-life communication and breaking bad news. It suggests adoption of context specific communication protocol and materials and training of HCPs in communication to improve the quality of care.
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0248661" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0248661</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
2021 Special Edition 1 - Low Resource Settings
Arora NK
Chellani HK
Communication
Das MK
Debata PK
Joshi S
Kaur G
Kumari M
Malik P
Meena KR
Nurses
Palliative Care
Parents
Pediatrics
Physicians
PLoS One
Qualitative Studies
Rasaily R
-
Dublin Core
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Title
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March 2023 List
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March List 2023
URL Address
<a href="http://doi.org/10.1371/journal.pone.0280081" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1371/journal.pone.0280081</a>
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Neonatal Palliative Care: Assessing the Nurses Educational Needs for Terminally Ill Patients
Publisher
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PLoS One
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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Nursing Staff; Palliative Care; Child; Cross-Sectional Studies; Education; Nursing; Female; Human; Infant; Newborn; Male; Palliative Care; Surveys and Questionnaires; Terminally Ill
Creator
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Khraisat OM; Al-Bashaireh AM; Khafajeh R; Alqudah O
Description
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BACKGROUND: For terminally sick neonates and their families, it's crucial to provide holistic nursing care that incorporates both curative and palliative care as much as feasible. It is well known that the biggest obstacle to delivering palliative care for neonatal children is a lack of training for nurses. Aim: The aim of this research is to investigate the experiences of nurses who provide care for neonates who are terminally ill as well as their educational requirements for neonatal palliative care. METHOD: A cross-sectional descriptive study was conducted among 200 nurses working in a tertiary center providing care for terminally ill neonates in Saudi Arabia. Data was collected from using Neonatal Palliative Care Questionnaire (QNPC) from January 2021 to March 2021. RESULTS: Two hundred nurses were surveyed (the response rate was 79%). The mean age of the 158 participants was 35.67 (standard deviation (SD): 7.43), and the majority were female (151; 95.6%). The majority were bachelor's holders (119; 75.3%), with more than 5 years of experience in providing care for neonates (100; 63.3%). Most of the participants reported not receiving any education about palliative care (115; 72.8%). Nurses reported a moderate level of experience in all areas of neonatal palliative care. The total mean score of palliative care experiences of neonates was 3.42 (SD: 1.35). However, the majority of nurses reported little experience discussing the transition period to palliative care for neonates 2.95 (SD: 1.93), the discussion of code status (DNR) during terminal illness of neonates 3.11 (SD: 1.54) and spiritual support 2.90 (SD: 1.55). CONCLUSION: The assessment of the fundamental skills of neonatal palliative care by nurses was insufficient. To enhance the quality of care, it is crucial to incorporate education on neonatal palliative care into programs for nursing staff development.
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0280081" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0280081</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Al-Bashaireh AM
Alqudah O
Child
Cross-sectional Studies
Education
Female
Human
Infant
Khafajeh R
Khraisat OM
Male
March List 2023
Newborn
Nursing
Nursing Staff
Palliative Care
PLoS One
Surveys And Questionnaires
Terminally Ill
-
Dublin Core
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Title
A name given to the resource
2022 Special Edition 3 - Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2022 Special Edition 3 - Oncology List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0277212" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1371/journal.pone.0277212</a>
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Title
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A multisite randomized controlled trial of an early palliative care intervention in children with advanced cancer: The PediQUEST Response Study Protocol
Publisher
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PLOS ONE
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Creator
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Dussel V; Orellana L; Holder R; Porth R; Avery M; Wolfe J
Description
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Background The Pediatric Quality of Life and Evaluation of Symptoms Technology Response to Pediatric Oncology Symptom Experience (PQ-Response) intervention aims to integrate specialized pediatric palliative care into the routine care of children, adolescents, and young adults (AYAs) with advanced cancer. Aims To evaluate whether PQ-Response, compared to usual care, improves patient’s health related quality of life (HRQoL) and symptom burden (aim 1), parent psychological distress and symptom-related stress (aim 2), and family and symptom treatment activation (aim 3). Design Multisite, randomized (1:1), controlled, un-blinded, effectiveness trial comparing PediQUEST Response (intervention) vs usual cancer care (control). Setting Five US large, tertiary level pediatric cancer centers. Participants Children (≥2 years old)/AYAs who receive care at any of the participating sites because of advanced cancer or any progressive/recurrent solid or brain tumor and are palliative care “naïve.” Target: 200 enrolled patient-parent dyads (minimum goal: 136 dyads randomized, N = 68/arm). Interventions PediQUEST Response: combines patient-mediated activation (weekly feedback of patient- and parent-reported symptoms and HRQoL to families and providers using the PediQUEST web system) with integration of the palliative care team. Usual Cancer Care: participants receive usual care, which can include palliative care consultation, and use PediQUEST web to answer surveys, with no feedback. Methods Following enrollment, patients (if ≥5 years) and one parent receive weekly PediQUEST-Surveys assessing HRQoL (Pediatric Quality of Life Inventory 4.0) and symptom burden (PediQUEST-Memorial Symptom Assessment Scale). After a 2-week run-in period, dyads who answer ≥2 PediQUEST surveys per participant (responders), are randomized (concealed allocation) and followed up for 16-weeks. Parents answer six additional surveys (parent outcomes). Outcomes Primary: mean patient HRQoL score over 16-weeks as reported by a) the parent; and b) the patient if ≥5 years-old. Secondary: patient’s symptom burden; parent’s anxiety, depressive symptoms, symptom-related stress; family activation; and symptom treatment activation. Trial registration ClinicalTrials.gov (NCT03408314) 1/24/18. https://clinicaltrials.gov/ct2/show/NCT03408314.
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0277212" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0277212</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
2022 Special Edition 3 - Oncology List
Avery M
Dussel V
Holder R
Orellana L
PLoS One
Porth R
Wolfe J
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2022 Special Edition 3 - Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2022 Special Edition 3 - Oncology List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0270797" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1371/journal.pone.0270797</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer
Publisher
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PLOS ONE
Date
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2022
Creator
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Sansom-Daly UM; Wiener L; Darlington AS; Poort H; Rosenberg AR; Weaver MS; Schulte F; Anazodo A; Phillips C; Sue L; Herbert AR; Mack JW; Lindsay T; Evans H; Wakefield CE; Global Adolescent and Young Adult Cancer Accord End-of-Life Study Group
Description
An account of the resource
For the sizeable subset of adolescents and young adults whose cancer is incurable, developmentally appropriate end-of-life discussions are critical. Standards of care for adolescent and young adult end-of-life communication have been established, however, many health-professionals do not feel confident leading these conversations, leaving gaps in the implementation of best-practice end-of-life communication. We present a protocol for a Delphi study informing the development and implementation of clinician training to strengthen health-professionals' capacity in end-of-life conversations. Our approach will inform training to address barriers to end-of-life communication with adolescents and young adults across Westernized Adolescent and Young Adult Cancer Global Accord countries. The Adolescent and Young Adult Cancer Global Accord team involves 26 investigators from Australia, New Zealand, the United States, Canada and the United Kingdom. Twenty-four consumers, including adolescents and young adults with cancer history and carers, informed study design. We describe methodology for a modified Delphi questionnaire. The questionnaire aims to determine optimal timing for end-of-life communication with adolescents and young adults, practice-related content needed in clinician training for end-of-life communication with adolescents and young adults, and desireability of evidence-based training models. Round 1 involves an expert panel of investigators identifying appropriate questionnaire items. Rounds 2 and 3 involve questionnaires of international multidisciplinary health-professionals, followed by further input by adolescents and young adults. A second stage of research will design health-professional training to support best-practice end-of-life communication. The outcomes of this iterative and participatory research will directly inform the implementation of best-practice end-of-life communication across Adolescent and Young Adult Cancer Global Accord countries. Barriers and training preferences identified will directly contribute to developing clinician-training resources. Our results will provide a framework to support further investigating end-of-life communication with adolescents and young adults across diverse countries. Our experiences also highlight effective methodology in undertaking highly collaborative global research.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1371/journal.pone.0270797" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0270797</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
2022 Special Edition 3 - Oncology List
Adolescent
Anazodo A
Communication
Consensus
Darlington AS
Death
Delphi Technique
Evans H
Global Adolescent and Young Adult Cancer Accord End-of-Life Study Group
Herbert AR
Humans
Lindsay T
Mack JW
Neoplasms
Neoplasms/th [therapy]
Phillips C
PLoS One
Poort H
Rosenberg AR
Sansom-Daly UM
Schulte F
Sue L
Wakefield CE
Weaver MS
Wiener L
Young Adult
-
Dublin Core
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Title
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Special Edition #1 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Special Edition #1 2022 List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0248661" target="_blank" rel="noreferrer noopener">http://doi.org/10.1371/journal.pone.0248661</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Perceptions of the parents of deceased children and of healthcare providers about end-of-life communication and breaking bad news at a tertiary care public hospital in India: A qualitative exploratory study
Publisher
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PLoS One
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
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communication; Nurses; Palliative care; Parents; Pediatrics; Physicians; Qualitative Studies
Creator
An entity primarily responsible for making the resource
Das MK; Arora NK; Chellani HK; Debata PK; Meena KR; Rasaily R; Kaur G; Malik P; Joshi S; Kumari M
Description
An account of the resource
BACKGROUND: Parents of dying children face unique challenge and expect compassionate support from health care providers (HCPs). This study explored the experiences of the parents and HCPs about the end-of-life care and breaking bad news and related positive and negative factors in Indian context. METHODS: This qualitative exploratory study was conducted at paediatrics department of a tertiary care hospital in Delhi. In-depth interviews with the parents (n = 49) and family members (n = 21) of the children died at the hospital and HCPs (6 doctors, 6 nurses and 4 support staffs) were conducted. Also events and communication around death of eight children were observed. Data were inductively analysed using thematic content analysis method to identify emerging themes and codes. RESULTS: Doctors were the lead communicators. Majority of parents perceived the attitude, communication and language used as by resident doctors as brief, insensitive and sometimes inappropriate or negative. They perceived that the attitude and communication by senior doctor's as empathetic, positive and complete. Parents recalled the death declaration by resident doctors as non-empathetic, blunt and cold. Most parents received no emotional support from HCPs during and after death of their child. All doctors expressed that death of their patients affected them and their emotions, which they coped through different activities. The overcrowded wards, high workload, infrastructural limitation and no formal communication training added to the emotional stress of the HCPs. CONCLUSIONS: Majority of the communication by the HCPs during the hospitalisation and end-of-life period were perceived as suboptimal by the parents. The HCPs were emotionally affected and faced end-of-life communication challenges. The study highlights the communication by HCPs and support for parents during the end-of-life communication and breaking bad news. It suggests adoption of context specific communication protocol and materials and training of HCPs in communication to improve the quality of care.
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<a href="http://doi.org/10.1371/journal.pone.0248661" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0248661</a>
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2021
2022 Special Edition 1 - Parent Perspectives
Arora NK
Chellani HK
Communication
Das MK
Debata PK
Joshi S
Kaur G
Kumari M
Malik P
Meena KR
Nurses
Palliative Care
Parents
Pediatrics
Physicians
PLoS One
Qualitative Studies
Rasaily R
-
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2020 Developing World List
Text
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Developing World 2020 List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0234320" target="_blank" rel="noreferrer noopener">http://doi.org/10.1371/journal.pone.0234320</a>
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Effectiveness of utilizing the WHO safe childbirth checklist on improving essential childbirth practices and maternal and perinatal outcome: A systematic review and meta-analysis
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PLoS One
Date
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2020
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World Health Organization; perinatal; systematic review; meta-analysis; outcomes; WHO; childbirth
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Tolu L B; Jeldu W G; Feyissa G T
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INTRODUCTION: The World Health Organization (WHO) Safe Childbirth Checklist (SCC) is a 29-item checklist based on essential childbirth practices to help health-care workers to deliver consistently high quality maternal and perinatal care. The Checklist was intended to reduce maternal and perinatal mortality and address the primary cause of maternal death, intrapartum stillbirth, and early neonatal death. The objective of this review was to locate international literature reporting on the effectiveness of utilizing the WHO safe childbirth checklist on improving essential childbirth practices, early neonatal death, stillbirth, maternal mortality, and morbidity. METHODS: We searched MEDLINE, google scholar, Cochrane Central Register of Controlled Trials (CENTRAL), met-Register of Controlled Trials (m-RCT) (www.controlled-trials.com), ClinicalTrials.gov (www.clinicaltrials.gov) and the WHO International Clinical Trials Registry Platform (ICTRP) (www.who.int/stop/search/en) to retrieve all available comparative studieshttp://www.opengrey.eu/ published in English after 2008. Two reviewers did study selection, critical appraisal, and data extraction independently. We did a random or fixed-effect meta-analysis to pool studies together and effect estimates were expressed as an odds ratio. Quality of evidence for major outcomes was assessed using the Grading of Recommendations, Assessment, development, and evaluation(GRADE). RESULTS: We retained three cluster randomized trials and six pre-and-post intervention studies reporting on WHO SCC's. The WHO SCC utilization improved quality of preeclampsia management(moderate quality of evidence) (OR = 7.05 [95% CI 2.34-21.29]), maternal infection management(moderate quality of evidence) (OR = 7.29[95%CI 2.29-23.27]), Partograph utilization(moderate quality of evidence) (OR = 3.81 [95% 1.72-8.43]), postpartum counselling(low quality of evidence) (RR = 132.51[95% 49.27-356.36]) and still birth(moderate quality of evidence) (OR = 0.92[95% CI 0.87-0.96]). However, the utilization of the checklist had no impact on early neonatal death (very low quality of evidence) (OR = 1.07[95%CI [1.01-1.13]) and maternal death (low quality of evidence) (OR = 1.06[95% CI 0.77-1.45]). CONCLUSIONS: Moderate quality of evidence indicates that WHO SCC utilization is effective in reducing stillbirth and Improving preeclampsia management, maternal infection management and partograph utilization Low quality of evidence indicates that WHO SCC is effective in enhancing postpartum danger sign counseling. Low and very low quality of evidence suggests that WHO SCC has no impact on maternal and early neonatal death, respectively.
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<a href="http://doi.org/10.1371/journal.pone.0234320" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0234320</a>
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2020
childbirth
Developing World 2020 List
Feyissa G T
Jeldu W G
Meta-Analysis
Outcomes
Perinatal
PLoS One
Systematic Review
Tolu L B
WHO
World Health Organization
-
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Title
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2020 Developing World List
Text
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Developing World 2020 List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0240520" target="_blank" rel="noreferrer noopener">http://doi.org/10.1371/journal.pone.0240520</a>
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Increased perinatal survival and improved ventilation skills over a five-year period: An observational study
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PLoS One
Date
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2020
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observational study; Tanzania; ventilation; perinatal survival; Helping Babies Breathe program
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Størdal K; Eilevstjønn J; Mduma E; Holte K; Thallinger M; Linde J; Mdoe P; Kidanto H; Ersdal H L
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BACKGROUND AND AIM: The Helping Babies Breathe program gave major reductions in perinatal mortality in Tanzania from 2009 to 2012. We aimed to study whether this effect was sustained, and whether resuscitation skills changed with continued frequent training. METHODS: We analysed prospective data covering all births (n = 19,571) at Haydom Lutheran Hospital in Tanzania from July 2013 -June 2018. Resuscitation training was continued during this period. All deliveries were monitored by an observer recording the timing of events and resuscitation interventions. Heart rate was recorded by dry-electrode ECG and bag-mask-ventilation by sensors attached to the resuscitator device. We analyzed changes over time in outcomes, use of resuscitation interventions and performance of resuscitation using binary regression models with the log-link function to obtain adjusted relative risks. RESULTS: With introduction of user fees for deliveries since 2014, the number of deliveries decreased by 30% from start to the end of the five-year period. An increase in low heart rate at birth and need for bag-mask-ventilation indicate a gradual selection of more vulnerable newborns delivered in the hospital over time. Despite this selection, newborn deaths <24 hours did not change significantly and was maintained at an average of 8.8/1000 live births. The annual reductions in relative risk for perinatal death adjusted for vulnerability factors was 0.84 (95%CI 0.76-0.94). During the five-year period, longer duration of bag-mask ventilation sequences without interruption was observed. Delivered tidal volumes were increased and mask leak was decreased during ventilation. The time to initiation or total duration of ventilation did not change significantly. CONCLUSION: The reduction in 24-hour newborn mortality after introduction of Helping Babies Breathe was maintained, and a further decrease over the five-year period was evident when analyses were adjusted for vulnerability of the newborns. Perinatal survival and performance of ventilation were significantly improved.
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<a href="http://doi.org/10.1371/journal.pone.0240520" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0240520</a>
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2020
Developing World 2020 List
Eilevstjønn J
Ersdal H L
Helping Babies Breathe program
Holte K
Kidanto H
Linde J
Mdoe P
Mduma E
Observational Study
perinatal survival
PLoS One
Størdal K
Tanzania
Thallinger M
ventilation
-
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Title
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2020 Developing World List
Text
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Developing World 2020 List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0236194" target="_blank" rel="noreferrer noopener">http://doi.org/10.1371/journal.pone.0236194</a>
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Title
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Basic neonatal resuscitation skills of midwives and nurses in Eastern Ethiopia are not well retained: An observational study
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PLoS One
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2020
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Infant; Humans; Adolescent; Female; Male; Middle Aged; Cross-Sectional Studies; Clinical Competence; Adult; Young Adult; Pregnancy; Education; Checklist; Newborn; Ethiopia; Asphyxia Neonatorum/*therapy; Midwifery/*education; Neonatal Nursing/*education; Resuscitation/*methods; Nursing/statistics & numerical data
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Sintayehu Y; Desalew A; Geda B; Tiruye G; Mezmur H; Shiferaw K; Mulatu T
Description
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BACKGROUND: Neonatal resuscitation is a life-saving intervention for birth asphyxia, a leading cause of neonatal mortality. Worldwide, four million neonate deaths happen annually, and birth asphyxia accounts for one million deaths. Improving providers' neonatal resuscitation skills is critical for delivering quality care and for morbidity and mortality reduction. However, retention of these skills has been challenging in developing countries, including Ethiopia. Hence, this study aimed to assess neonatal resuscitation skills retention and associated factors among midwives and nurses in Eastern Ethiopia. METHODS: An institution-based cross-sectional study was conducted using a pre-tested, structured, observational checklist. A total of 427 midwives and nurses were included from 28 public health facilities by cluster sampling and simple random sampling methods. Data were collected on facility type, availability of essential resuscitation equipment, socio-demographic characteristics of participants, current working unit, years of professional experience, whether a nurse or midwife received refresher training, and skills and knowledge related to neonatal resuscitation. Binary logistic regression was used to analyse the association between neonatal resuscitation skill retention and independent variables. RESULTS: About 11.2% of nurses and midwives were found to have retention of neonatal resuscitation skills. Being a midwife (AOR, 7.39 [95% CI: 2.25, 24.24]), ever performing neonatal resuscitation (AOR, 3.33 [95% CI: 1.09, 10.15]), bachelor sciences degree or above (AOR, 4.21 [95% CI: 1.60, 11.00]), and good knowledge of neonatal resuscitation (AOR, 3.31 [95% CI: 1.41, 7.73]) were significantly associated with skill retention of midwives and nurses. CONCLUSION: Basic neonatal resuscitation skills of midwives and nurses in Eastern Ethiopia are not well retained. This could increase the death of neonates due to asphyxia. Being a midwife, Bachelor Sciences degree or above educational status, ever performing neonatal resuscitation, and good knowledge were associated with skill retention. Providers should be encouraged to upgrade their educational level to build their skill retention and expose themselves to NR. Further, understanding factors affecting how midwives and nurses gain and retain skills using high-level methodology are essential.
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<a href="http://doi.org/10.1371/journal.pone.0236194" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0236194</a>
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2020
Adolescent
Adult
Asphyxia Neonatorum/*therapy
Checklist
Clinical Competence
Cross-sectional Studies
Desalew A
Developing World 2020 List
Education
Ethiopia
Female
Geda B
Humans
Infant
Male
Mezmur H
Middle Aged
Midwifery/*education
Mulatu T
Neonatal Nursing/*education
Newborn
Nursing/statistics & numerical data
PLoS One
Pregnancy
Resuscitation/*methods
Shiferaw K
Sintayehu Y
Tiruye G
Young Adult
-
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Title
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2019 Oncology List
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Oncology 2019 List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0214138" target="_blank" rel="noreferrer noopener">http://doi.org/10.1371/journal.pone.0214138</a>
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Resilience as a predictive factor towards a healthy adjustment to grief after the loss of a child to cancer
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PLoS One
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2019
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bereavement; grief; oncology; resilience
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Vegsund H K; Reinfjell T; Moksnes U K; Wallin A E; Hjemdal O; Eilertsen M B
Description
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INTRODUCTION: Grief among bereaved parents is known to cause psychological distress and physical illness, but knowledge concerning factors that can contribute to health promotion after bereavement is scarce. Childhood cancer remains the most common non-accidental cause of death among children in Norway. The aim of the present study was to explore if resilience factors among cancer-bereaved parents could predict whether they will be able to come to terms with their grief 2-8 years following the loss. METHODS: A Norwegian cross-sectional national survey was conducted among 161 cancer-bereaved parents using a study-specific questionnaire. Logistic regression was used to explore whether resilience factors predicted parents' grief outcome 2-8 years after their loss. RESULTS: On the Resilience Scale for Adults (RSA), three of the resilience factors contributed significantly in predicting whether the parents in the present study would come to terms with their grief 2-8 years after the loss their child: "Perception of self "(OR 2.08, p = .048), "Social resources" (OR 2.83, p = .008) and "Family cohesion" (OR .41, p = .025). The results showed a negative relationship between time since loss (2-6 years) and whether the parents answered that they had come to terms with their grief (p = < .05). The loss of a parent (OR .30, p = .030) combined with the loss of their child had a negative and significant effect on whether they indicated that they had processed their grief. CONCLUSION: The total score of RSA and three of the six resilient factors contributed significantly in predicting whether cancer-bereaved parents in the present study indicated that they had come to terms with their grief to a great extent. The present study supports hypotheses that regard resilience as an important contribution in predicting healthy outcomes in people exposed to adverse life events.
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<a href="http://doi.org/10.1371/journal.pone.0214138" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0214138</a>
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2019
Bereavement
Eilertsen M B
Grief
Hjemdal O
Moksnes U K
Oncology
Oncology 2019 List
PLoS One
Reinfjell T
Resilience
Vegsund H K
Wallin A E
-
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Title
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January 2020 List
Text
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January 2020 List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0224325" target="_blank" rel="noreferrer noopener">http://doi.org/10.1371/journal.pone.0224325</a>
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Being there: A scoping review of grief support training in medical education
Publisher
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PLoS One
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
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learning; medical education; patients; pediatrics; physicians; psychological stress; trainees; workshops
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Sikstrom L; Saikaly R; Ferguson G; Mosher P J; Bonato S; Soklaridis S
Description
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INTRODUCTION: Medical education experts argue that grief support training for physicians would improve physician and patient and family wellness, and should therefore be mandatory. However, there is little evidence about the range of curricula interventions or the impact of grief training. The aim of this scoping review was to describe the current landscape of grief training worldwide in medical school, postgraduate residency and continuing professional development in the disciplines of pediatrics, family medicine and psychiatry. METHODS: Using Arksey and O'Malley's scoping review principles, MEDLINE, EMBASE, ERIC, PsychInfo and Web of Science were searched by a librarian. Two levels of screening took place: a title and abstract review for articles that fit a predefined criteria and a full-text review of articles that met those criteria. Three investigators reviewed the articles and extracted data for analysis. To supplement the search, we also scanned the reference lists of included studies for possible inclusion. RESULTS: Thirty-seven articles published between 1979 and 2019 were analyzed. Most articles described short voluntary grief training workshops. At all training levels, the majority of these workshops focused on transmitting knowledge about the ethical and legal dimensions of death, dying and bereavement in medicine. The grief trainings described were characterized by the use of diverse pedagogical tools, including lectures, debriefing sessions, reflective writing exercises and simulation/role-play. DISCUSSION: Grief training was associated with increased self-assessed knowledge and expertise; however, few of the studies analyzed the impact of grief training on physician and patient and family wellness. Our synthesis of the literature indicates key gaps exist, specifically regarding the limited emphasis on improving physicians' communication skills around death and dying and the limited use of interactive and self-reflexive learning tools. Most trainings also had an overly narrow focus on bereavement grief, rather than a more broadly defined definition of loss.
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<a href="http://doi.org/10.1371/journal.pone.0224325" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0224325</a>
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2019
Bonato S
Ferguson G
January 2020 List
Learning
Medical Education
Mosher P J
Patients
Pediatrics
Physicians
PLoS One
psychological stress
Saikaly R
Sikstrom L
Soklaridis S
trainees
workshops
-
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Title
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Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
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URL Address
<a href="http://doi.org/10.1371/journal.pone.0162463" target="_blank" rel="noreferrer noopener">http://doi.org/10.1371/journal.pone.0162463</a>
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Functional and gait assessment in children and adolescents affected by Friedreich's ataxia: A one-year longitudinal study
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PLoS ONE
Date
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2016
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adolescent; reliability; preschool child; longitudinal study; human; article; child; female; male; controlled study; clinical article; walking; Friedreich's ataxia; functional assessment; gait; assessment of humans; Gait Analysis and the Scale for the Assessment and Rating of Ataxia; step length; stride length; walking velocity; tone and motor problems; trajectory; characteristics
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Vasco G; Gazzellini S; Petrarca M; Lispi M L; Pisano A; Zazza M; Bella G D; Castelli E; Bertini E
Description
An account of the resource
Friedreich's ataxia is the most common autosomal recessive form of neurodegenerative ataxia. We present a longitudinal study on the gait pattern of children and adolescents affected by Friedreich's ataxia using Gait Analysis and the Scale for the Assessment and Rating of Ataxia (SARA). We assessed the spectrum of changes over 12 months of the gait characteristics and the relationship between clinical and instrumental evaluations. We enrolled 11 genetically confirmed patients affected by Friedreich's ataxia in this study together with 13 normally developing age-matched subjects. Eight patients completed a 12-month follow-up under the same protocol. By comparing the gait parameters of Friedreich's ataxia with the control group, we found significant differences for some relevant indexes. In particular, the increased knee and ankle extension in stance revealed a peculiar biomechanical pattern, which correlated reliably with SARA Total, Gait and Sitting scores. The knee pattern showed its consistency also at the follow-up: Knee extension increased from 6.8+/-3.5degree to -0.5+/-3.7degree and was significantly correlated with the SARA total score. This feature anticipated the loss of the locomotor function in two patients. In conclusion, our findings demonstrate that the selective and segmental analysis of kinetic/kinematic features of ataxic gait, in particular the behavior of the knee, provides sensitive measures to detect specific longitudinal and functional alterations, more than the SARA scale, which however has proved to be a reliable and practical assessment tool. Functional outcomes measures integrated by instrumental evaluation increase their sensitivity, reliability and suitability for the follow-up of the disease progression and for the application in clinical trials and in rehabilitative programs.
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<a href="http://doi.org/10.1371/journal.pone.0162463" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0162463</a>
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2016
Adolescent
Article
assessment of humans
Bella G D
Bertini E
Castelli E
characteristics
Child
Clinical Article
Controlled Study
Female
Friedreich's ataxia
functional assessment
Gait
Gait Analysis and the Scale for the Assessment and Rating of Ataxia
Gazzellini S
Human
Lispi M L
longitudinal study
Male
Petrarca M
Pisano A
PLoS One
Preschool Child
Reliability
step length
stride length
tone and motor problems
Trajectory
Vasco G
Walking
walking velocity
Zazza M
-
Dublin Core
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Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1371/journal.pone.0067042" target="_blank" rel="noreferrer noopener">http://doi.org/10.1371/journal.pone.0067042</a>
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Disorders of Upper Limb Movements in Ataxia-Telangiectasia
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PLoS ONE
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Cross-Sectional Studies; Age Factors; Male; Severity of Illness Index; Young Adult; Child; Humans; Adult; Adolescent; Female; Child Preschool; Periodicity; Ataxia Telangiectasia/pp [Physiopathology]; Motor Activity; Movement; Upper Extremity; Accelerometry; Biomechanical Phenomena; Motor Activity/ph [Physiology]; Movement Disorders/pp [Physiopathology]; Movement/ph [Physiology]; Posture/ph [Physiology]; Tremor/pp [Physiopathology]; Upper Extremity/pp [Physiopathology]; tone and motor problems; ataxia telangiectasia; trajectory; characteristics; abnormal involuntary movements; kinetic tremor; postural tremor; resting tremor
Creator
An entity primarily responsible for making the resource
Shaikh A G; Zee D S; Mandir A S; Lederman H M; Crawford T O
Description
An account of the resource
Ataxia-telangiectasia is known for cerebellar degeneration, but clinical descriptions of abnormal tone, posture, and movements suggest involvement of the network between cerebellum and basal ganglia. We quantitatively assessed the nature of upper-limb movement disorders in ataxia-telangiectasia. We used a three-axis accelerometer to assess the natural history and severity of abnormal upper-limb movements in 80 ataxia-telangiectasia and 19 healthy subjects. Recordings were made during goal-directed movements of upper limb (kinetic task), while arms were outstretched (postural task), and at rest. Almost all ataxia-telangiectasia subjects (79/80) had abnormal involuntary movements, such as rhythmic oscillations (tremor), slow drifts (dystonia or athetosis), and isolated rapid movements (dystonic jerks or myoclonus). All patients with involuntary movements had both kinetic and postural tremor, while 48 (61%) also had resting tremor. The tremor was present in transient episodes lasting several seconds during two-minute recording sessions of all three conditions. Percent time during which episodic tremor was present was greater for postural and kinetic tasks compared to rest. Resting tremor had higher frequency but smaller amplitude than postural and kinetic tremor. Rapid non-rhythmic movements were minimal during rest, but were triggered during sustained arm postures and goal directed arm movements suggesting they are best considered a form of dystonic jerks or action myoclonus. Advancing age did not correlate with the severity of involuntary limb movements. Abnormal upper-limb movements in ataxia-telangiectasia feature classic cerebellar impairment, but also suggest involvement of the network between the cerebellum and basal ganglia.
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0067042" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0067042</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2013
abnormal involuntary movements
accelerometry
Adolescent
Adult
Age Factors
ataxia telangiectasia
Ataxia Telangiectasia/pp [Physiopathology]
Biomechanical Phenomena
characteristics
Child
Child Preschool
Crawford T O
Cross-sectional Studies
Female
Humans
kinetic tremor
Lederman H M
Male
Mandir A S
Motor Activity
Motor Activity/ph [Physiology]
Movement
Movement Disorders/pp [Physiopathology]
Movement/ph [Physiology]
Periodicity
PLoS One
postural tremor
Posture/ph [Physiology]
resting tremor
Severity Of Illness Index
Shaikh A G
tone and motor problems
Trajectory
Tremor/pp [Physiopathology]
Upper Extremity
Upper Extremity/pp [Physiopathology]
Young Adult
Zee D S
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1371/journal.pone.0146644" target="_blank" rel="noreferrer noopener">http://doi.org/10.1371/journal.pone.0146644</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Long-term clinical outcome of internal globus pallidus deep brain stimulation for dystonia
Publisher
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PLoS ONE
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
tone and motor problems; IND; surgical intervention; deep brain stimulation
Creator
An entity primarily responsible for making the resource
Park H R; Lee J M; Ehm G; Yang H J; Song I H; Lim Y H; Kim M R; Kim K R; Lee W W; Kim Y E; Hwang J H; Shin C W; Park H; Kim J W; Kim H J; Kim C; Kim D G; Jeon B S; Paek S H
Description
An account of the resource
Background: GPi (Internal globus pallidus) DBS (deep brain stimulation) is recognized as a safe, reliable, reversible and adjustable treatment in patients with medically refractory dystonia. Objectives: This report describes the long-term clinical outcome of 36 patients implanted with GPi DBS at the Neurosurgery Department of Seoul National University Hospital. Methods: Nine patients with a known genetic cause, 12 patients with acquired dystonia, and 15 patients with isolated dystonia without a known genetic cause were included. When categorized by phenomenology, 29 patients had generalized, 5 patients had segmental, and 2 patients had multifocal dystonia. Patients were assessed preoperatively and at defined follow-up examinations postoperatively, using the Burke-Fahn-Marsden dystonia rating scale (BFMDRS) for movement and functional disability assessment. The mean follow-up duration was 47 months (range, 12-84) Results: The mean movement scores significantly decreased from 44.88 points preoperatively to 26.45 points at 60-month follow up (N = 19, P = 0.006). The mean disability score was also decreased over time, from 11.54 points preoperatively to 8.26 points at 60-month follow up, despite no statistical significance (N = 19, P = 0.073). When analyzed the movement and disability improvement rates at 12-month follow up point, no significant difference was noted according to etiology, disease duration, age at surgery, age of onset, and phenomenology. However, the patients with DYT-1 dystonia and isolated dystonia without a known genetic cause showed marked improvement. Conclusions: GPi DBS is a safe and efficient therapeutic method for treatment of dystonia patients to improve both movement and disability. However, this study has some limitations caused by the retrospective design with small sample size in a single-center.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1371/journal.pone.0146644" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0146644</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
deep brain stimulation
Ehm G
Hwang J H
IND
Jeon B S
Kim C
Kim D G
Kim H J
Kim J W
Kim K R
Kim M R
Kim Y E
Lee J M
Lee W W
Lim Y H
Paek S H
Park H
Park H R
PLoS One
Shin C W
Song I H
surgical intervention
tone and motor problems
Yang H J
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1371/journal.pone.0084128" target="_blank" rel="noreferrer noopener">http://doi.org/10.1371/journal.pone.0084128</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Assessment of sleep in children with mucopolysaccharidosis type III
Publisher
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PLoS ONE
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Actigraphy; Adolescent; Case-Control Studies; Child; Preschool; Female; Humans; Male; Melatonin/me [Metabolism]; Mucopolysaccharidosis III/pp [Physiopathology]; Sleep/ph [Physiology]; Time Factors; JL5DK93RCL (Melatonin); sleep disturbance/disorders; MPSIIIA; MPSIIIB; trajectory; characteristics
Creator
An entity primarily responsible for making the resource
Mahon L V; Lomax M; Grant S; Cross E; Hare D J; Wraith J E; Jones S; Bigger B; Langford-Smith K; Canal M
Description
An account of the resource
Sleep disturbances are prevalent in mucopolysaccharidosis Type III (MPS III), yet there is a lack of objective, ecologically valid evidence detailing sleep quantity, quality or circadian system. Eight children with MPS III and eight age-matched typically developing children wore an actigraph for 7-10 days/nights. Saliva samples were collected at three time-points on two separate days, to permit analysis of endogenous melatonin levels. Parents completed a sleep questionnaire and a daily sleep diary. Actigraphic data revealed that children with MPS III had significantly longer sleep onset latencies and greater daytime sleep compared to controls, but night-time sleep duration did not differ between groups. In the MPS III group, sleep efficiency declined, and sleep onset latency increased, with age. Questionnaire responses showed that MPS III patients had significantly more sleep difficulties in all domains compared to controls. Melatonin concentrations showed an alteration in the circadian system in MPS III, which suggests that treatment for sleep problems should attempt to synchronise the sleep-wake cycle to a more regular pattern. Actigraphy was tolerated by children and this monitoring device can be recommended as a measure of treatment success in research and clinical practice.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1371/journal.pone.0084128" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0084128</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2014
Actigraphy
Adolescent
Bigger B
Canal M
Case-Control Studies
characteristics
Child
Cross E
Female
Grant S
Hare D J
Humans
JL5DK93RCL (Melatonin)
Jones S
Langford-Smith K
Lomax M
Mahon L V
Male
Melatonin/me [Metabolism]
MPSIIIA
MPSIIIB
Mucopolysaccharidosis III/pp [Physiopathology]
PLoS One
Preschool
sleep disturbance/disorders
Sleep/ph [Physiology]
Time Factors
Trajectory
Wraith J E
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1371/journal.pone.0147555" target="_blank" rel="noreferrer noopener">http://doi.org/10.1371/journal.pone.0147555</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Validating the Rett Syndrome Gross Motor Scale
Publisher
An entity responsible for making the resource available
PLoS ONE
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
tone and motor problems; Rett syndrome; tool development; scale development; RSGMS
Creator
An entity primarily responsible for making the resource
Downs J; Stahlhut M; Wong K; Syhler B; Bisgaard A; Jacoby P; Leonard H
Description
An account of the resource
© 2016 Downs et al. Rett syndrome is a pervasive neurodevelopmental disorder associated with a pathogenic mutation on the MECP2 gene. Impaired movement is a fundamental component and the Rett Syndrome Gross Motor Scale was developed to measure gross motor abilities in this population. The current study investigated the validity and reliability of the Rett Syndrome Gross Motor Scale. Video data showing gross motor abilities supplemented with parent report data was collected for 255 girls and women registered with the Australian Rett Syndrome Database, and the factor structure and relationships between motor scores, age and genotype were investigated. Clinical assessment scores for 38 girls and women with Rett syndrome who attended the Danish Center for Rett Syndrome were used to assess consistency of measurement. Principal components analysis enabled the calculation of three factor scores: Sitting, Standing and Walking, and Challenge. Motor scores were poorer with increasing age and those with the p.Arg133Cys, p.Arg294* or p.Arg306Cys mutation achieved higher scores than those with a large deletion. The repeatability of clinical assessment was excellent (intraclass correlation coefficient for total score 0.99, 95% CI 0.930.98). The standard error of measurement for the total score was 2 points and we would be 95% confident that a change 4 points in the 45-point scale would be greater than within-subject measurement error. The Rett Syndrome Gross Motor Scale could be an appropriate measure of gross motor skills in clinical practice and clinical trials.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1371/journal.pone.0147555" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0147555</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Bisgaard A
Downs J
Jacoby P
Leonard H
PLoS One
Rett syndrome
RSGMS
scale development
Stahlhut M
Syhler B
tone and motor problems
tool development
Wong K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2019 List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0210574" target="_blank" rel="noreferrer noopener">http://doi.org/10.1371/journal.pone.0210574</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)
Publisher
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PLoS ONE
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
children; adolescent; adult; article; child; cohort analysis; female; human; major clinical study; male; palliative therapy; retrospective study; controlled study; palliative care; school child; Ontario; aged; health insurance; infant; young adult; age; America; amyotrophic lateral sclerosis; amyotrophic lateral sclerosis/ep [Epidemiology]; animals; APEC countries; Canada; childhood disease/ep [Epidemiology]; childhood diseases; Chordata; cohort studies; Commonwealth of Nations; data base; death rate; Developed Countries; disease course; disease prevalence; disease progression; eukaryotes; health care; Hominidae; Homo; human diseases; incidence; International Classification of Diseases; mammals; man; middle aged; mortality; mortality rates; muscles; neuromuscular disease/ep [Epidemiology]; neuromuscular diseases; neuromuscular disorders; North America; OECD Countries; planning; population research; preschool child; prevalence; primates; retrospective studies; sclerosis; spinal muscular atrophy/ep [Epidemiology]; spine; survival; trend study; trends; vertebrates
Creator
An entity primarily responsible for making the resource
Rose L; McKim D; Leasa D; Nonoyama M; Tandon A; Bai Y; Amin R; Katz S; Goldstein R; Gershon A
Description
An account of the resource
Background: Population trends of disease prevalence and incidence over time measure burden of disease and inform healthcare planning. Neuromuscular disorders (NMD) affect muscle and nerve function with varying degrees of severity and disease progression. Objective: Using health administrative databases we described trends in incidence, prevalence, and mortality of adults and children with NMD. We also explored place of death and use of palliative care. Methods: Population-based (Ontario, Canada) cohort study (2003 to 2014) of adults and children with NMD identified using International Classification of Disease and health insurance billing codes within administrative health databases. Results: Adult disease prevalence increased on average per year by 8% (95% confidence interval (CI) 6% to 10%, P<.001), with the largest increase in adults 18-39 years. Childhood disease prevalence increased by 10% (95% CI 8% to 11%, P<.0001) per year, with the largest increase in children 0 to 5 years. Prevalence increased across all diagnoses except amyotrophic lateral sclerosis and spinal muscular atrophy for adults and all diagnoses for children. Adult incidence decreased by 3% (95% CI -4% to -2%, P<.0001) but incidence remained stable in children. Death occurred in 34,336 (18.5%) adults; 21,236 (61.8%) of whom received palliative care. Death occurred in 1,009 (5.6%) children; 507 (50.2%) of whom received palliative care. Mortality decreased over time in adults (odds ratio (OR) 0.86, 95% CI 0.86-0.87, P<.0001) and children (OR 0.79, 95% CI 0.76-0.82, P<.0001). Use of palliative care over time increased for adults (OR 1.18, 95% CI 1.09 to 1.28, P <.0001) and children (OR 1.22, 95% CI 1.20 to 1.23, P <.0001). Conclusions: In both adults and children, NMD prevalence is rising and mortality rates are declining. In adults incidence is decreasing while in children it remains stable. This confirms on a population-based level the increased survival of children and adults with NMD.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1371/journal.pone.0210574" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0210574</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Adolescent
Adult
Age
Aged
America
Amin R
amyotrophic lateral sclerosis
amyotrophic lateral sclerosis/ep [Epidemiology]
Animals
APEC countries
Article
August 2019 List
Bai Y
Canada
Child
childhood disease/ep [Epidemiology]
childhood diseases
Children
Chordata
Cohort Analysis
Cohort Studies
Commonwealth of Nations
Controlled Study
Data Base
death rate
Developed Countries
Disease Course
disease prevalence
Disease Progression
Eukaryotes
Female
Gershon A
Goldstein R
Health Care
health Insurance
Hominidae
Homo
Human
Human Diseases
Incidence
Infant
International Classification of Diseases
Katz S
Leasa D
Major Clinical Study
Male
Mammals
Man
McKim D
Middle Aged
Mortality
mortality rates
muscles
neuromuscular disease/ep [Epidemiology]
Neuromuscular Diseases
Neuromuscular Disorders
Nonoyama M
North America
OECD Countries
Ontario
Palliative Care
Palliative Therapy
planning
PLoS One
Population Research
Preschool Child
Prevalence
Primates
Retrospective Studies
Retrospective Study
Rose L
School Child
sclerosis
spinal muscular atrophy/ep [Epidemiology]
Spine
Survival
Tandon A
trend study
Trends
Vertebrates
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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February 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2019 List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0208134" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/10.1371/journal.pone.0208134</a>
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Title
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Mothers' experience of maternity and neonatal care when babies die: A quantitative study
Publisher
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PLoS One
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Creator
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Redshaw M; Henderson J
Description
An account of the resource
BACKGROUND: The death of a newborn baby is devastating. While clinical issues may be a primary concern, interpersonal aspects can impact significantly. Mothers in this situation are not easy to access for research and little quantitative evidence is available. In this study we aimed to describe their experience of care, emphasising associations with infant gestational age. METHODS: Secondary analysis of population-based survey data collected through the Office for National Statistics following neonatal death in England in 2012-13. Women were asked about clinical events and care during pregnancy, labour and birth, when the baby died, postnatally and in the neonatal unit. RESULTS: 249 mothers returned completed questionnaires (30% response rate), 50% of births were at 28 weeks' gestation or less and 66% had babies admitted for neonatal care. 24% of women were left alone and worried during labour and 18% after birth. Only 49% felt sufficiently involved in decision-making at this time. Postnatally only 53% were cared for away from other mothers and babies, 47% could not have their partner stay with them, and 55% were not located close to their baby. Mothers of term babies were significantly less likely to report confidence in staff, feeling listened to and having concerns taken seriously during labour, and postnatally many felt insufficiently informed about their baby's condition, and that neonatal staff were not always aware of parental needs. However, most mothers (84%) were satisfied with neonatal care. CONCLUSIONS: There is room for improvement if women whose babies die in the neonatal period are to receive the care and support they need. Women who have a baby admitted to a neonatal unit should be cared for nearby, with room for their partner and with greater involvement in decision-making, particularly where withdrawal of life support is considered.
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0208134" target="_blank" rel="noreferrer noopener">10.1371/journal.pone.0208134</a>
2018
February 2019 List
Henderson J
PLoS One
Redshaw M
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1371/journal.pone.0099888" target="_blank" rel="noreferrer">http://doi.org/10.1371/journal.pone.0099888</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Trends in the aggressiveness of end-of-life care for Korean pediatric cancer patients who died in 2007-2010
Publisher
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Plos One
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
retrospective studies; pediatric cancer
Creator
An entity primarily responsible for making the resource
Park JD; Kang HJ; Kim Young A; Jo MinKyoung; Lee Eun S; Shin Hee Young; Yun Young H
Description
An account of the resource
BACKGROUND: In light of the Korean Supreme Court's 2009 ruling favoring a patient's right to die with dignity, we evaluated trends in aggressive care in a cohort of pediatric cancer patients. Methods We conducted a population-based retrospective study that used administrative data for patients who died in 2007-2010 among the 5,203 pediatric cancer patients registered at the Korean Cancer Central Registry (KCCR) during 2007-2009. RESULTS: In the time period covered, 696 patients died. The proportion who had received chemotherapy in the last 30 days of life decreased from 58.1% to 28.9% (P<0.001), those who received new chemotherapy in the same time period decreased from 55.2% to 15.1% (P<0.001), and those who received treatment in the last 2 weeks of life decreased from 51.4% to 21.7% (P<0.001). In the last 30 days of life, the proportion of patients whose hospital admission period was over 14 days increased from 70.5% to 82.5% (P = 0.03), the proportion who received cardiopulmonary resuscitation decreased from 28.6% to 9.6% (P<0.001), and we found no statistically significant trends in the proportion of emergency department visits, intensive care unit admissions, or mechanical ventilation. CONCLUSIONS: In this study, in contrast with earlier ones, the aggressiveness of end-of-life care of Korean pediatric cancer patients decreased dramatically.
2014
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0099888" target="_blank" rel="noreferrer">10.1371/journal.pone.0099888</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Backlog
Jo MinKyoung
Journal Article
Kang HJ
Kim Young A
Lee Eun S
Park JD
Pediatric Cancer
PLoS One
Retrospective Studies
Shin Hee Young
Yun Young H
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1371/journal.pone.0107418" target="_blank" rel="noreferrer">http://doi.org/10.1371/journal.pone.0107418</a>
<a href="http://dx.doi.org/10.1371/journal.pone.0107418" target="_blank" rel="noreferrer">http://dx.doi.org/10.1371/journal.pone.0107418</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Effect of Prophylactic Low Level Laser Therapy on Oral Mucositis: A Systematic Review and Meta-Analysis
Publisher
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Plos One
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Creator
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Oberoi S; Zamperlini–Netto G; Beyene J; Treister NS; Sung L
Description
An account of the resource
Background Objective was to determine whether prophylactic low level laser therapy (LLLT) reduces the risk of severe mucositis as compared to placebo or no therapy. Methods MEDLINE, EMBASE, and Cochrane Central Register of Controlled Trials were searched until February 2014 for randomized controlled trials (RCTs) comparing prophylactic LLLT with placebo or no therapy in patients with cancer or undergoing hematopoietic stem cell transplantation (HSCT). All analyses used random effects models. Results Eighteen RCTs (1144 patients) were included. Prophylactic LLLT reduced the overall risk of severe mucositis (risk ratio (RR) 0.37, 95% confidence interval (CI) 0.20 to 0.67; P = 0.001). LLLT also reduced the following outcomes when compared to placebo/no therapy: severe mucositis at the time of anticipated maximal mucositis (RR 0.34, 95% CI 0.20 to 0.59), overall mean grade of mucositis (standardized mean difference −1.49, 95% CI −2.02 to −0.95), duration of severe mucositis (weighted mean difference −5.32, 95% CI −9.45 to −1.19) and incidence of severe pain (RR 0.26, 95% CI 0.18 to 0.37). Conclusion Prophylactic LLLT reduced severe mucositis and pain in patients with cancer and HSCT recipients. Future research should identify the optimal characteristics of LLLT and determine feasibility in the clinical setting.
2014-09
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0107418" target="_blank" rel="noreferrer">10.1371/journal.pone.0107418</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Backlog
Beyene J
Journal Article
Oberoi S
PLoS One
Sung L
Treister NS
Zamperlini–Netto G
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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March 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2018 List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0191635" target="_blank" rel="noreferrer">http://doi.org/10.1371/journal.pone.0191635</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The impact of stillbirth on bereaved parents: A qualitative study
Publisher
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Plos One
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Creator
An entity primarily responsible for making the resource
Nuzum D; Meaney S; O'Donoghue K
Description
An account of the resource
PURPOSE: To explore the lived experiences and personal impact of stillbirth on bereaved parents. METHODS: Semi-structured in-depth interviews analysed by Interpretative Phenomenological Analysis (IPA) on a purposive sample of parents of twelve babies born following fetal death at a tertiary university maternity hospital in Ireland with a birth rate of c8,500 per annum and a stillbirth rate of 4.6/1000. RESULTS: Stillbirth had a profound and enduring impact on bereaved parents. Four superordinate themes relating to the human impact of stillbirth emerged from the data: maintaining hope, importance of the personhood of the baby, protective care and relationships (personal and professional). Bereaved parents recalled in vivid detail their experiences of care following diagnosis of stillbirth and their subsequent care. The time between diagnosis of a life-limiting anomaly or stillbirth and delivery is highlighted as important for parents as they find meaning in their loss. CONCLUSIONS: The impact of stillbirth on bereaved parents is immense and how parents are cared for is recalled in precise detail as they revisit their experience. Building on existing literature, these data bring to light the depth of personal experience and impact of stillbirth for parents and provides medical professionals with valuable insights to inform their care of bereaved parents and the importance of clear and sensitive communication.
2018
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0191635" target="_blank" rel="noreferrer">10.1371/journal.pone.0191635</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
March 2018 List
Meaney S
Nuzum D
O'Donoghue K
PLoS One
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1371/journal.pone.0124426" target="_blank" rel="noreferrer">http://doi.org/10.1371/journal.pone.0124426</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Absolute leukocyte telomere length in HIV-infected and uninfected individuals: evidence of accelerated cell senescence in HIV-associated chronic obstructive pulmonary disease
Publisher
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Plos One
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
Female; Humans; Male; Cohort Studies; Adult; Middle Aged; HIV Infections; Pulmonary Disease; Leukocytes; Chronic Obstructive; Cell Aging; Telomere
Creator
An entity primarily responsible for making the resource
Liu JCY; Leung JM; Ngan DA; Nashta NF; Guillemi S; Harris M; Lima VD; Um Soo-Jung; Li Y; Tam S; Shaipanich T; Raju Rekha; Hague C; Leipsic JA; Bourbeau J; Tan Wan C; Harrigan PR; Sin Don D; Montaner J; Man SFP
Description
An account of the resource
Combination antiretroviral therapy (cART) has extended the longevity of human immunodeficiency virus (HIV)-infected individuals. However, this has resulted in greater awareness of age-associated diseases such as chronic obstructive pulmonary disease (COPD). Accelerated cellular senescence may be responsible, but its magnitude as measured by leukocyte telomere length is unknown and its relationship to HIV-associated COPD has not yet been established. We measured absolute telomere length (aTL) in peripheral leukocytes from 231 HIV-infected adults. Comparisons were made to 691 HIV-uninfected individuals from a population-based sample. Subject quartiles of aTL were assessed for relationships with measures of HIV disease severity, airflow obstruction, and emphysema severity on computed tomographic (CT) imaging. Multivariable regression models identified factors associated with shortened aTL. Compared to HIV-uninfected subjects, the mean aTL in HIV-infected patients was markedly shorter by 27 kbp/genome (p<0.001); however, the slopes of aTL vs. age were not different (p=0.469). Patients with longer known durations of HIV infection (p=0.019) and lower nadir CD4 cell counts (p=0.023) had shorter aTL. Shorter aTL were also associated with older age (p=0.026), smoking (p=0.005), reduced forced expiratory volume in one second (p=0.030), and worse CT emphysema severity score (p=0.049). HIV-infected subjects demonstrate advanced cellular aging, yet in a cART-treated cohort, the relationship between aTL and age appears no different from that of HIV-uninfected subjects.
2015
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0124426" target="_blank" rel="noreferrer">10.1371/journal.pone.0124426</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2015
Adult
Backlog
Bourbeau J
Cell Aging
Chronic Obstructive
Cohort Studies
Female
Guillemi S
Hague C
Harrigan PR
Harris M
HIV Infections
Humans
Journal Article
Leipsic JA
Leukocytes
Leung JM
Li Y
Lima VD
Liu JCY
Male
Man SFP
Middle Aged
Montaner J
Nashta NF
Ngan DA
PLoS One
Pulmonary Disease
Raju Rekha
Shaipanich T
Sin Don D
Tam S
Tan Wan C
Telomere
Um Soo-Jung
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1371/journal.pone.0005289" target="_blank" rel="noreferrer">http://doi.org/10.1371/journal.pone.0005289</a>
Dublin Core
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Title
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Pain reactivity and plasma beta-endorphin in children and adolescents with autistic disorder
Publisher
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Plos One
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Child; Female; Humans; Male; Case-Control Studies; adolescent; beta-Endorphin/blood; Biomarkers of Pain; Pain/physiopathology; Biomarkers Reference List; Autistic Disorder/blood/physiopathology
Creator
An entity primarily responsible for making the resource
Tordjman S; Anderson GM; Botbol M; Brailly-Tabard S; Perez-Diaz F; Graignic R; Carlier M; Schmit G; Rolland AC; Bonnot O; Trabado S; Roubertoux P; Bronsard G
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1371/journal.pone.0005289" target="_blank" rel="noreferrer">10.1371/journal.pone.0005289</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
BACKGROUND: Reports of reduced pain sensitivity in autism have prompted opioid theories of autism and have practical care ramifications. Our objective was to examine behavioral and physiological pain responses, plasma beta-endorphin levels and their relationship in a large group of individuals with autism. METHODOLOGY/PRINCIPAL FINDINGS: The study was conducted on 73 children and adolescents with autism and 115 normal individuals matched for age, sex and pubertal stage. Behavioral pain reactivity of individuals with autism was assessed in three observational situations (parents at home, two caregivers at day-care, a nurse and child psychiatrist during blood drawing), and compared to controls during venepuncture. Plasma beta-endorphin concentrations were measured by radioimmunoassay. A high proportion of individuals with autism displayed absent or reduced behavioral pain reactivity at home (68.6%), at day-care (34.2%) and during venepuncture (55.6%). Despite their high rate of absent behavioral pain reactivity during venepuncture (41.3 vs. 8.7% of controls, P<0.0001), individuals with autism displayed a significantly increased heart rate in response to venepuncture (P<0.05). Moreover, this response (Delta heart rate) was significantly greater than for controls (mean+/-SEM; 6.4+/-2.5 vs. 1.3+/-0.8 beats/min, P<0.05). Plasma beta-endorphin levels were higher in the autistic group (P<0.001) and were positively associated with autism severity (P<0.001) and heart rate before or after venepuncture (P<0.05), but not with behavioral pain reactivity. CONCLUSIONS/SIGNIFICANCE: The greater heart rate response to venepuncture and the elevated plasma beta-endorphin found in individuals with autism reflect enhanced physiological and biological stress responses that are dissociated from observable emotional and behavioral reactions. The results suggest strongly that prior reports of reduced pain sensitivity in autism are related to a different mode of pain expression rather than to an insensitivity or endogenous analgesia, and do not support opioid theories of autism. Clinical care practice and hypotheses regarding underlying mechanisms need to assume that children with autism are sensitive to pain.
2009
Adolescent
Anderson GM
Autistic Disorder/blood/physiopathology
Backlog
beta-Endorphin/blood
Biomarkers of Pain
Biomarkers Reference List
Bonnot O
Botbol M
Brailly-Tabard S
Bronsard G
Carlier M
Case-Control Studies
Child
Female
Graignic R
Humans
Journal Article
Male
Pain/physiopathology
Perez-Diaz F
PLoS One
Rolland AC
Roubertoux P
Schmit G
Tordjman S
Trabado S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1371/journal.pone.0047569" target="_blank" rel="noreferrer">http://doi.org/10.1371/journal.pone.0047569</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Endogenous opioids in wound-site neutrophils of sternotomy patients
Publisher
An entity responsible for making the resource available
Plos One
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
Female; Humans; Male; Aged; Middle Aged; beta-Endorphin/blood; Biomarkers of Pain; Enkephalin; Biomarkers Reference List; Postoperative Period; Pain Management; Neutrophils/metabolism; Inflammation/metabolism; Flow Cytometry; Gene Expression Regulation; Dynorphins/blood; Interleukin-10/metabolism; Interleukin-4/metabolism; Methionine/blood; Sternotomy/methods; Wound Healing
Creator
An entity primarily responsible for making the resource
Awad H; Abas M; Elgharably H; Tripathi R; Theofilos T; Bhandary S; Sai-Sudhakar C; Sen CK; Roy S
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0047569" target="_blank" rel="noreferrer">10.1371/journal.pone.0047569</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Abas M
Aged
Awad H
Backlog
beta-Endorphin/blood
Bhandary S
Biomarkers of Pain
Biomarkers Reference List
Dynorphins/blood
Elgharably H
Enkephalin
Female
Flow Cytometry
Gene Expression Regulation
Humans
Inflammation/metabolism
Interleukin-10/metabolism
Interleukin-4/metabolism
Journal Article
Male
Methionine/blood
Middle Aged
Neutrophils/metabolism
Pain Management
PLoS One
Postoperative Period
Roy S
Sai-Sudhakar C
Sen CK
Sternotomy/methods
Theofilos T
Tripathi R
Wound Healing
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1371/journal.pone.0029512" target="_blank" rel="noreferrer">http://doi.org/10.1371/journal.pone.0029512</a>
<a href="http://dx.plos.org/10.1371/journal.pone.0029512" target="_blank" rel="noreferrer">http://dx.plos.org/10.1371/journal.pone.0029512</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Henoch Schonlein Purpura – A 5-Year Review and Proposed Pathway
Publisher
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Plos One
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Creator
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Watson L; Richardson ARW; Holt Richard CL; Jones CA; Beresford MW
Identifier
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<a href="http://doi.org/10.1371/journal.pone.0029512" target="_blank" rel="noreferrer">10.1371/journal.pone.0029512</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Backlog
Beresford MW
Holt Richard CL
Jones CA
Journal Article
PLoS One
Richardson ARW
Watson L
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2018 List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0187375" target="_blank" rel="noreferrer">http://doi.org/10.1371/journal.pone.0187375</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Challenges to code status discussions for pediatric patients
Publisher
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Plos One
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Child; comfort; distress syndrome; Female; Human; major clinical study; Male; morality; nurse; pediatric ward; Questionnaire; resident; self report; student; vision
Creator
An entity primarily responsible for making the resource
Kruse KE; Batten J; Constantine ML; Kache S; Magnus D
Description
An account of the resource
Objectives: In the context of serious or life-limiting illness, pediatric patients and their families are faced with difficult decisions surrounding appropriate resuscitation efforts in the event of a cardiopulmonary arrest. Code status orders are one way to inform end-of-life medical decision making. The objectives of this study are to evaluate the extent to which pediatric providers have knowledge of code status options and explore the association of provider role with (1) knowledge of code status options, (2) perception of timing of code status discussions, (3) perception of family receptivity to code status discussions, and (4) comfort carrying out code status discussions. Design: Nurses, trainees (residents and fellows), and attending physicians from pediatric units where code status discussions typically occur completed a short survey questionnaire regarding their knowledge of code status options and perceptions surrounding code status discussions. Setting: Single center, quaternary care children's hospital. Measurements and main results: 203 nurses, 31 trainees, and 29 attending physicians in 4 high-acuity pediatric units responded to the survey (N = 263, 90% response rate). Based on an objective knowledge measure, providers demonstrate poor understanding of available code status options, with only 22% of providers able to enumerate more than two of four available code status options. In contrast, provider groups self-report high levels of familiarity with available code status options, with attending physicians reporting significantly higher levels than nurses and trainees (p = 0.0125). Nurses and attending physicians show significantly different perception of code status discussion timing, with majority of nurses (63.4%) perceiving discussions as occurring "too late" or "much too late" and majority of attending physicians (55.6%) perceiving the timing as "about right" (p<0.0001). Attending physicians report significantly higher comfort having code status discussions with families than do nurses or trainees (p0.0001). Attending physicians and trainees perceive families as more receptive to code status discussions than nurses (p<0.0001 and p = 0.0018, respectively). Conclusions: Providers have poor understanding of code status options and differ significantly in their comfort having code status discussions and their perceptions of these discussions. These findings may reflect inherent differences among providers, but may also reflect discordant visions of appropriate care and function as a potential source of moral distress. Lack of knowledge of code status options and differences in provider perceptions are likely barriers to quality communication surrounding end-of-life options.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1371/journal.pone.0187375" target="_blank" rel="noreferrer">10.1371/journal.pone.0187375</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Batten J
Child
Comfort
Constantine ML
Distress Syndrome
Female
Human
January 2018 List
Kache S
Kruse KE
Magnus D
Major Clinical Study
Male
Morality
Nurse
pediatric ward
PLoS One
Questionnaire
Resident
Self Report
Student
vision
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.1371/journal.pone.0181024" target="_blank" rel="noreferrer">http://doi.org/10.1371/journal.pone.0181024</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The bereavement experience of adolescents and early young adults with cancer: Peer and parental loss due to death is associated with increased risk of adverse psychological outcomes
Publisher
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Plos One
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Creator
An entity primarily responsible for making the resource
Johnson LM; Torres C; Sykes A; Gibson DV; Baker JN
Description
An account of the resource
BACKGROUND: Adolescents commonly experience loss due to death, and perceived closeness to the deceased can often increase the intensity of bereavement. Adolescents and early young adult (AeYA) oncology patients may recall previous losses or experience new losses, possibly of other children with cancer, while coping with their own increased risk of mortality. The bereavement experiences of AeYA patients are not well described in the literature. METHODS AND FINDINGS: This analysis of bereavement sought to describe the prevalence and types of losses, the support following a death, and the impact of loss on AeYAs aged 13-21 years with malignant disease (or a hematologic disorder requiring allogeneic transplant). Participants were receiving active oncologic therapy or had completed therapy within the past 3 years. Participants completed a bereavement questionnaire and inventories on depression, anxiety, and somatization. The cross-sectional study enrolled 153 AeYAs (95% participation), most (88%) of whom had experienced a loss due to death. The most commonly reported losses were of a grandparent (58%) or friend (37%). Peer deaths were predominantly cancer related (66%). Many participants (39%) self-identified a loss as "very significant." As loss significance increased, AeYAs were more likely to report that it had changed their life "a lot/enormously" (P<0.0001), that they were grieving "slowly or never got over it" (P<0.0001), and that they felt a need for more professional help (P = 0.026). Peer loss was associated with increased risk of adverse psychological outcomes (P = 0.029), as was parental loss (P = 0.018). CONCLUSIONS: Most AeYAs with serious illness experience the grief process as slow or ongoing. Peer or parental loss was associated with increased risk of negative mental health outcomes. Given the high prevalence of peer loss, screening for bereavement problems is warranted in AeYAs with cancer, and further research on grief and bereavement is needed in AeYAs with serious illness.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1371/journal.pone.0181024" target="_blank" rel="noreferrer">10.1371/journal.pone.0181024</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Baker JN
Gibson DV
Johnson LM
Oncology 2017 List
PLoS One
Sykes A
Torres C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2017 List
URL Address
<a href="http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0178861" target="_blank" rel="noreferrer">http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0178861</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Meaning and coping orientation of bereaved parents: Individual and dyadic processes
Publisher
An entity responsible for making the resource available
Plos One
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Adaptation Psychological; Bereavement; Child; Female; Humans; Male; Parents/ Psychology
Creator
An entity primarily responsible for making the resource
Albuquerque S; Buyukcan-Tetik A; Stroebe MS; Schut HAW; Narciso I; Pereira M; Finkenauer C
Description
An account of the resource
The present study aimed to examine whether bereaved parents “meaning-made”–defined as results of attempts to reduce discrepancies between the meaning assigned to the death of the child and self and world-views—was influenced by their own and their partner’s coping orientations. Coping orientations were conceptualized within the Dual Process Model, which entails loss coping orientation (LO; focus on the loss itself), restoration coping orientations (RO; focus on stressors that come about as an indirect consequence of the bereavement), and a flexible oscillation between both coping orientations. The sample consisted of 227 couples identified through obituary notices in local and national newspapers, who provided data at 6, 13, and 20 months after the death of their child. At all three points of measurement, both partners independently completed the Dual Coping Inventory (DCI) and a scale developed by the authors about meaning-made from the loss. Data were analyzed using a multi-level Actor-Partner Interdependence Model. Results show that the combination of parents’ own LO and RO (operationalized through the interaction effect between LO and RO) have a positive effect in parents’ meaning-made. Partners’ LO have a negative effect in parents’ meaning-made. These results highlight the importance of, in the context of parental bereavement, being flexible by using both coping orientations, and of acknowledging the interdependence between partners, namely, the interpersonal process by which partner’s coping affect one’s meaning-made.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://doi.org/10.1371/journal.pone.0178861" target="_blank" rel="noreferrer">10.1371/journal.pone.0178861</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Adaptation Psychological
Albuquerque S
August 2017 List
Bereavement
Buyukcan-Tetik A
Child
Female
Finkenauer C
Humans
Male
Narciso I
Parents/ Psychology
Pereira M
PLoS One
Schut HAW
Stroebe MS
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Clinical Profiles Of Adverse Drug Reactions Spontaneously Reported At A Single Korean Hospital Dedicated To Children With Complex Chronic Conditions
Publisher
An entity responsible for making the resource available
Plos One
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Creator
An entity primarily responsible for making the resource
Kim B; Kim SZ; Lee J; Jung AH; Jung SH; Hahn HJ; Kang HR; Suh DI
Identifier
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10.1371/journal.pone.0172425
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
April 2017 List
Hahn HJ
Jung AH
Jung SH
Kang HR
Kim B
Kim SZ
Lee J
PLoS One
Suh DI
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Modelling Neonatal Care Pathways For Babies Born Preterm: An Application Of Multistate Modelling.
Publisher
An entity responsible for making the resource available
Plos One
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Time; Infant; Competing Risks; Premature Babies; Death; Multidisciplinary Sciences; Survival; Population; Length; Variables; Stay; Babies; Funding; Health Sciences; Data Analysis; Intensive Care; Collaboration
Creator
An entity primarily responsible for making the resource
Seaton SE; Barker L; Draper ES; Abrams KR; Modi N; Manktelow BN
Description
An account of the resource
Modelling length of stay in neonatal care is vital to inform service planning and the counselling of parents. Preterm babies, at the highest risk of mortality, can have long stays in neonatal care and require high resource use. Previous work has incorporated babies that die into length of stay estimates, but this still overlooks the levels of care required during their stay. This work incorporates all babies, and the levels of care they require, into length of stay estimates. Data were obtained from the National Neonatal Research Database for singleton babies born at 24-31 weeks gestational age discharged from a neonatal unit in England from 2011 to 2014. A Cox multistate model, adjusted for gestational age, was used to consider a baby's two competing outcomes: death or discharge from neonatal care, whilst also considering the different levels of care required: intensive care; high dependency care and special care. The probabilities of receiving each of the levels of care, or having died or been discharged from neonatal care are presented graphically overall and adjusted for gestational age. Stacked predicted probabilities produced for each week of gestational age provide a useful tool for clinicians when counselling parents about length of stay and for commissioners when considering allocation of resources. Multistate modelling provides a useful method for describing the entire neonatal care pathway, where rates of in-unit mortality can be high. For a healthcare service focussed on costs, it is important to consider all babies that contribute towards workload, and the levels of care they require.
Identifier
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DOI: 10.1371/journal.pone.0165202
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Abrams KR
Babies
Barker L
Collaboration
Competing Risks
Data Analysis
Death
Draper ES
Funding
Health Sciences
Infant
Intensive Care
Length
Manktelow BN
Modi N
Multidisciplinary Sciences
October 2016 List
PLoS One
Population
Premature Babies
Seaton SE
Stay
Survival
Time
Variables