Browse Items · Pediatric Palliative Care Library

A critical review of the Delphi technique as a research methodology for nursing

The Delphi technique is an approach used to gain consensus among a panel of experts. This is normally achieved through a series of rounds where information is fed back to panel members using questionnaires. It has been used extensively within social…

Tags: 2001, Backlog, Communication, Data Collection/methods/standards, Decision Making, Delphi Technique, Group Processes, Hasson F, Humans, International Journal Of Nursing Studies, Journal Article, Keeney S, McKenna HP, Nursing Research/methods/standards, Organizational, Questionnaires/standards, Reproducibility of Results, Research Design/standards

A framework for integrated pediatric palliative care: being with dying

Recent studies highlight the need for an integrated model for palliative and end-of-life pediatric care. About 55,000 children die each year in the United States and, on any given day, about 8,600 children could benefit from care that acknowledges…

A home for medically complex children: the role of hospital programs

The medical home is a conceptual model of continuous and comprehensive care provision that is associated with improved outcomes for children with special healthcare needs. Most applications of the medical home have focused on improving primary care…

Tags: 2008, Adams S, Backlog, Child, Cohen E, Continuity Of Patient Care, Disease Management, Friedman J, Health Services Needs And Demand, home care services, Hospital-Based, Hospitalized, Humans, Journal Article, Journal For Healthcare Quality, Models, Nicholas DB, Organizational, Rosenbaum P

A model for transition from pediatric to adult care in cystic fibrosis

With improved medical technology, many chronic medical conditions of childhood are now recognized as conditions of childhood onset. Appropriate treatment of these conditions in the adult patient is required. The pediatric setting is not appropriate…

Enabling the transition to hospice through effective palliative care

The end of life has changed dramatically in recent years as life expectancies have increased, chronic disease rates have risen, and families, health care systems, and society have changed. As technology has advanced, death too often has become viewed…

Exploring multi-agency working in services to disabled children with complex healthcare needs and their families

Children with complex healthcare needs typically require technical and/or medical equipment in the home. This growing group of children and families need support that crosses agency and professional boundaries, necessitating effective multi-agency…

Forgoing life support across borders: who decides and why?

Forgoing life-sustaining treatments in children: a comparison between Northern and Southern European pediatric intensive care units

OBJECTIVES: This study was conducted to determine how the decision-making process to forgo life support differs between southern and northern European pediatric intensive care units. DESIGN: Multiple-center, prospective study. SETTING: Thirty-nine…

Good practices that address continuity during transition from child to adult care: synthesis of the evidence

BACKGROUND: Effective transition to adult services is required by an increasing number of children with ongoing needs. AIM: To identify practices that promote continuity at transition between child and adult services. METHODS: Systematic examination…

Growing up and moving on: transition from pediatric to adult care

The development of transitional care is one of the major challenges for the twenty-first century as the survival rates and medical outcomes for child and adolescent recipients of transplants continue to improve. Such developments must include both…

Tags: 2005, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Communication, Continuity Of Patient Care/organization & Administration, Counseling, Humans, Journal Article, McDonagh JE, Models, Organ Transplantation, Organizational, Parenting, Pediatric Transplantation

Institutional review boards and multisite studies in health services research: is there a better way?

OBJECTIVE: The following paper examines the issue of whether the current system for ethics review of multisite health services research protocols is adequate, or whether there exist alternative methods that should be considered. PRINCIPAL FINDINGS:…

Tags: 2005, Backlog, Biomedical and Behavioral Research, Dewa CS, Efficiency, Ethics Committees, Gold JL, Health Services Research, Health Services Research/ethics, Humans, Journal Article, Multi-site Ethics, Multicenter Studies as Topic/ethics, Organizational, Reference Standards, Research/organization & administration

Is an advance care planning model feasible in community palliative care? A multi-site action research approach.

AIM: This article reports a study to determine the feasibility of an advance care planning model developed with Australian community palliative care services., BACKGROUND: An effective advance care planning programme involves an organizational wide…

Models for structuring a clinical initiative to enhance palliative care in the intensive care unit: a report from the IPAL-ICU Project (Improving Palliative Care in the ICU)

OBJECTIVE: To describe models used in successful clinical initiatives to improve the quality of palliative care in critical care settings. DATA SOURCES: We searched the MEDLINE database from inception to April 2010 for all English language articles…

Place and provision of palliative care for children with progressive cancer: a study by the Paediatric Oncology Nurses' Forum/United Kingdom Children's Cancer Study Group Palliative Care Working Group

PURPOSE: The purpose of this study was to describe and show effectiveness of the outreach team model of palliative care (PC) in allowing home death for children with incurable cancer. PATIENTS AND METHODS: Over 7 months, 185 children from 22 United…

Rare essentials: drugs for rare diseases as essential medicines

Since 1977, the WHO Model List of Essential Medicines (EML), published by WHO, has provided advice for Member States that struggle to decide which pharmaceutical technologies should be provided to patients within their public health systems.…

Social workers advocate for a seat at palliative care table

2008

Tags: 2008, Backlog, Beresford L, Humans, Interprofessional Relations, Journal Article, Journal of Palliative Medicine, Meier DE, Models, Organizational, Pain, Palliative Care, Professional Role, Social Work, United States

The Delphi method?

The ON TRAC model for transitional care of adolescents

This article describes the framework and clinical pathway for ON TRAC (Taking Responsibility for Adolescent/Adult Care), a model of transition care for adolescents with chronic health conditions, as applied to pediatric transplant transition. This…

Tags: 2006, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Backlog, Child, Continuity Of Patient Care/organization & Administration, Critical Pathways, Humans, Journal Article, Models, Organ Transplantation/psychology, Organizational, Paone MC, Patient Care Planning/organization & administration, Progress In Transplantation (aliso Viejo, Calif.), Saewyc E, Wigle M

Tracking the route to sustainability: a service evaluation tool for an advance care planning model developed for community palliative care services.

AIMS AND OBJECTIVES: The study aim was to develop a service evaluation tool for an advance care planning model implemented in community palliative care., BACKGROUND: Internationally, advance care planning programmes usually measure success by…

Transition from pediatric to adult services: are we getting it right?

PURPOSE OF REVIEW: The transition of healthcare from pediatric to adult settings has become more significant over the past 20 years as the survival of young people with chronic illness and disability has increased and healthcare delivery has become…

Tags: 2008, Adolescent, Adolescent Medicine/organization & administration, Adolescent Transitions, Age Factors, Australia, Backlog, Chronic Disease, Continuity Of Patient Care/organization & Administration, Current Opinion In Pediatrics, Delivery of Health Care/organization & administration, Humans, Journal Article, Kennedy A, Models, Organizational, Patient Care Planning/organization & administration, Pediatrics, Sawyer S

Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease

Pediatric providers can expect that 1 of every 10 patients they see will have a chronic, activity-limiting health condition. Thanks to earlier diagnosis and improved therapies, most of these children will live well into adulthood. This means that…

Transition to adult services for children and young people with palliative care needs: a systematic review

OBJECTIVE: To evaluate the evidence on the transition process from child to adult services for young people with palliative care needs. DESIGN: Systematic review. SETTING: Child and adult services and interface between healthcare providers. PATIENTS:…

Variability among institutional review boards' decisions within the context of a multicenter trial

BACKGROUND: Institutional review boards (IRBs) are given discretion to interpret and apply the federal regulations governing the protection of human subjects in research. OBJECTIVE: To determine the extent of the variability among different IRBs on…

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