1
40
9
-
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August 2022 List
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August 2022 List
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<a href="http://doi.org/10.34197/ats-scholar.2021-0089IN" target="_blank" rel="noreferrer noopener">http://doi.org/10.34197/ats-scholar.2021-0089IN</a>
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The Gift of Life: Interprofessional Organ Donation Curriculum in Pediatric Critical Care
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ATS Scholar
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2022
Subject
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organ donation; curriculum; interprofessional education
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Bursac I; Mtaweh H; Lee D; Mema B
Description
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BACKGROUND: The number of patients awaiting organ transplantation is high, particularly in Pediatrics, in which available organs are scarce. To maximize organ donation opportunities and to provide quality end-of-life care, clinicians from all professions must be familiar with the process. There continues to be important gaps in core competencies regarding organ donation, including donor criteria and eligibility, timing of referral to organ procurement organizations, neurological determination of death, donation after cardiocirculatory death, and donor management. These gaps affect healthcare providers across multiple professions and are significant barriers to donation. OBJECTIVE: We describe an interprofessional curriculum that is designed to teach Pediatric Critical Care Medicine (PCCM) clinicians about the process of organ donation and supporting the families through that process. The approach of families is the purview of organ procurement organization, and the support of the families through the process remains with PCCM clinicians. METHODS: Kern's six-step approach to curriculum development was used to develop, implement, and evaluate an interprofessional curriculum on organ donation in PCCM for physicians, nurses, and respiratory therapists. RESULTS: Problem formulation and both general and targeted needs assessments were performed through a comprehensive literature review, including review of national guidelines and Royal College of Physicians and Surgeons of Canada training objectives. Learning objectives and educational strategies were then outlined using two educational frameworks. After implementation, the curriculum was evaluated using learner self-assessments with a retrospective pre-post design. CONCLUSION: After identifying educational gaps contributing to barriers to organ donation, an interprofessional curriculum was developed to increase competency in multiple aspects of organ donation, including team communication and collaboration, with the ultimate goal of promoting a culture of donation while ensuring it is part of quality end-of-life care.
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<a href="http://doi.org/10.34197/ats-scholar.2021-0089IN" target="_blank" rel="noreferrer noopener">10.34197/ats-scholar.2021-0089IN</a>
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2022
ATS Scholar
August 2022 List
Bursac I
Curriculum
Interprofessional education
Lee D
Mema B
Mtaweh H
Organ Donation
-
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January 2022 List
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January 2022 List
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<a href="http://doi.org/10.1007/s00431-021-04139-3" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s00431-021-04139-3</a>
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Neonatal donation: are newborns too young to be recognized?
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European Journal of Pediatrics
Date
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2021
Subject
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Infant; Retrospective Studies; Newborn Infant; End-of-life care; Tissue and Organ Procurement; Brain Death; Tissue Donors; Pediatric; Organ donation; Neonatal; Death; Tissue donation
Creator
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Vileito A; Hulzebos CV; Toet MC; Baptist DH; Verhagen EAA; Siebelink MJ
Description
An account of the resource
Neonatal organ and tissue donation is not common practice in the Netherlands. At the same time, there is a transplant waiting list for small size-matched organs and tissues. Multiple factors may contribute to low neonatal donation rates, including a lack of awareness of this option. This study provides insight into potential neonatal organ and tissue donors and reports on how many donors were actually reported to the procurement organization. We performed a retrospective analysis of the mortality database and medical records of two largest neonatal intensive care units (NICUs) in the Netherlands. This study reviewed records of neonates with a gestational age >37 weeks and weight >3000g who died in the period from January 1, 2005 through December 31, 2016. During the study period, 259 term-born neonates died in the two NICUs. In total, 132 neonates with general contra-indications for donation were excluded. The medical records of 127 neonates were examined for donation suitability. We identified five neonates with documented brain death who were not recognized as potential organ and/or tissue donors. Of the remaining neonates, 27 were found suitable for tissue donation. One potential tissue donor had been reported to the procurement organization. In three cases, the possibility of donation was brought up by parents.Conclusion: A low proportion (2%) of neonates who died in the NICUs were found suitable for organ donation, and a higher proportion (12%) were found suitable for tissue donation. We suggest that increased awareness concerning the possibility of neonatal donation would likely increase the identification of potential neonatal donors. What is Known: • There is an urgent need for very small organs and tissues from neonatal donors What is New: • A number of neonates who died in the NICU were suitable organ or/and tissue donors but were not recognized as donors. • Knowledge on neonatal donation possibilities is also important for proper counseling of parents who sometimes inquire for the possibility of organ and tissue donation.
Identifier
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<a href="http://doi.org/10.1007/s00431-021-04139-3" target="_blank" rel="noreferrer noopener">10.1007/s00431-021-04139-3</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Baptist DH
Brain Death
Death
End-of-life Care
European Journal of Pediatrics
Hulzebos CV
Infant
January 2022 List
Neonatal
Newborn Infant
Organ Donation
Pediatric
Retrospective Studies
Siebelink MJ
Tissue and Organ Procurement
tissue donation
Tissue Donors
Toet MC
Verhagen EAA
Vileito A
-
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Title
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September 2021 List
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September 2021 List
URL Address
<a href="http://doi.org/10.1136/archdischild-2019-318457" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/archdischild-2019-318457</a>
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Fifteen-minute consultation: Paediatric organ and tissue donation
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Archives of Disease in Childhood: Education and Practice Edition
Date
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2021
Subject
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Paediatric; Pediatric; Organ donation; end-of-life conversations
Creator
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Singh A; Scales A; Mildner R
Description
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This article explores ways in which paediatricians can help increase awareness and embed organ and tissue donation in the end-of-life care process. This can save patient lives on the organ transplant waiting list, many of whom currently die prematurely. The information benefits multidisciplinary staff including doctors, nurses and allied professionals to (1) recognise triggers for making referral to the specialist nurse for organ donation in order to make timely assessment for suitability for organ and/or tissue donation, (2) plan a multidisciplinary approach for families to make decisions for the gift of life and (3) help provide on-going support to families and staff. Copyright ©
Identifier
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<a href="http://doi.org/10.1136/archdischild-2019-318457" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2019-318457</a>
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2021
Archives of Disease in Childhood: Education and Practice Edition
End-of-life Conversations
Mildner R
Organ Donation
Paediatric
Pediatric
Scales A
September 2021 List
Singh A
-
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Title
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2020 Developing World List
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Citation List Month
Developing World 2020 List
URL Address
<a href="http://doi.org/10.1111/petr.13740" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/petr.13740</a>
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First pediatric organ donation after circulatory determination of death in Singapore: Facing challenges in the absence of a local practice guideline
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Pediatric Transplantation
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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pediatrics; end-of-life care; organ donation; clinical practice guidelines; donation after circulatory determination of death
Creator
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Thong W Y; Chong P H; Koh P L; Loh W N; Tay S K
Description
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Pediatric organ donation represents only a low proportion of overall organ donation in many parts of world, unable to match the needs for pediatric organ transplantation. Pediatric organ donation after circulatory determination of death (DCD) is increasingly explored in pediatric transplantation, as it increases the availability of organ grafts. A 6-year-old Caucasian boy with a history of arteriovenous malformation presented with a catastrophic intracranial bleed, resulting in severe brainstem dysfunction despite maximal medical and surgical measures. He did not fulfill the criteria for brain death, which must be met for pediatric organ donation in Singapore. Due to parental request, his organs were donated after withdrawal of life support and determination of death by circulatory criteria. Pediatric organ DCD poses many challenges in the pediatric population, especially in the absence of a local practice guideline. We present the first case of a pediatric organ DCD that has occurred in Singapore. Further work is needed, particularly in establishing a national policy for pediatric organ DCD and increasing overall awareness and acceptance toward pediatric organ donations.
Identifier
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<a href="http://doi.org/10.1111/petr.13740" target="_blank" rel="noreferrer noopener">10.1111/petr.13740</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Chong P H
clinical practice guidelines
Developing World 2020 List
donation after circulatory determination of death
End-of-life Care
Koh P L
Loh W N
Organ Donation
Pediatric Transplantation
Pediatrics
Tay S K
Thong W Y
-
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Title
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July 2020 List
Text
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July 2020 List
URL Address
<a href="http://doi.org/10.1007/s12028-020-00997-1" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s12028-020-00997-1</a>
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Integration of Routine Parental Request of Organ Donation in End-of-Life Care of Children with Neurologic Disorders in the UK: Unresolved Medical, Legal, Cultural, and Religious Challenges
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Neurocritical care
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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children; end-of-life care; opt-out system; organ donation; pediatrics; practice guidelines; presumed consent; UK; United Kingdom
Creator
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Rady M Y
Description
An account of the resource
The UK adopted the opt-out system (deemed or presumed consent) in end-of-life organ donation enforceable in May 2020. Presumed consent applies to adults but not children. Transplant advocates have recommended that all children on end-of-life care should be referred for potential organ donation to increase the supply of transplantable organs in the UK. To buttress this objective, a UK survey of parents of deceased children mostly with neurologic disorders secondary to severe brain injuries recommended the integration of routine parental discussion of donation regardless of donation eligibility in end-of-life care. Donation discussions emphasize the utility and suitability of organs in dying children for transplantation to maximize consent rate. To ensure that this recommendation does not harm children and parents, contemporary medical, legal, cultural, and religious challenges to end-of-life organ donation should be disclosed in parental discussion of donation and resolved appropriately. To that effect, it is urged that: (1) practice guidelines for the diagnosis and treatment of neurologic disorders secondary to severe brain injuries in children are updated and aligned with recent advances in neuroscience to eliminate potential errors from premature treatment discontinuation and/or incorrect diagnosis of death by brain(stem) criteria, (2) transparent and non-biased disclosure of all empiric information when discussing donation to ensure informed parental decision-making, and (3) a societal dialogue is conducted on the legal, cultural, and religious consequences of integration of routine donation discussion and referral in end-of-life care of children in the UK.
Identifier
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<a href="http://doi.org/10.1007/s12028-020-00997-1" target="_blank" rel="noreferrer noopener">10.1007/s12028-020-00997-1</a>
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2020
Children
End-of-life Care
July 2020 List
Neurocritical care
opt-out system
Organ Donation
Pediatrics
Practice Guidelines
presumed consent
Rady M Y
UK
United Kingdom
-
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Title
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May 2020 List
Text
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Citation List Month
May 2020 List
URL Address
<a href="http://doi.org/10.1016/j.transproceed.2020.01.074" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.transproceed.2020.01.074</a>
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Title
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Communication of Death in the Context of Infant-Child Donation: Best Practices for Creating Family Interview for Organ and Tissue Donation
Publisher
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Transplantation Proceedings
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
communication; literature review; organ donation; tissue donation
Creator
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da Silva Knihs N; Santos J D; Schuantes Paim S M; Pestana Magalhaes A L; Erbs Pessoa J L; Ramos S F; Schirmer J; Bittencourt I; Albuquerque Bezerra H C; Reis Bellaguarda M L D; Lima da Silva E
Description
An account of the resource
OBJECTIVE: To analyze evidence capable of supporting best practices available in the literature to create dialogues about organ and tissue donation with parents of deceased children and adolescents. METHODS: An integrative literature review performed using Scopus, Cochrane, PsycINFO, PubMed/MEDLINE, Web of Science database, and SciELo electronic libraries from November of 2013 to November of 2018, using keyword syntax for each database. The categories were developed using the Alicante model. RESULTS: A total of 745 articles were identified, with 7 selected for analysis. The information obtained was grouped into 3 categories: death communication, which indicates the importance of using simple and clear words; emotional support, which reveals the need to respect family time and the importance of empathy and compassion; and donation information, which punctuates the importance of dissociating communication about the death from that regarding organ donation. CONCLUSIONS: Evidence shows that best practices are the use of simple language, respect for the family during the grieving process, and the importance of establishing different situations in which to communicate about the death and the donation process.
Identifier
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<a href="http://doi.org/10.1016/j.transproceed.2020.01.074" target="_blank" rel="noreferrer noopener">10.1016/j.transproceed.2020.01.074</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Albuquerque Bezerra H C
Bittencourt I
Communication
da Silva Knihs N
Erbs Pessoa J L
Lima da Silva E
Literature review
May 2020 List
Organ Donation
Pestana Magalhaes A L
Ramos S F
Reis Bellaguarda M L D
Santos J D
Schirmer J
Schuantes Paim S M
tissue donation
Transplantation Proceedings
-
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Title
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July 2019 List
Text
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Citation List Month
July 2019 List
URL Address
<a href="http://doi.org/10.1136/archdischild-2018-316382" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1136/archdischild-2018-316382</a>
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Title
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Parents' experiences of requests for organ and tissue donation: The value of asking
Publisher
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Archives of Disease in Childhood.
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
article; child; female; human; male; palliative therapy; retrospective study; qualitative research; awareness; clinical article; coping behavior; coronary care unit; fear; hospice; multicenter study; neonatal intensive care unit; organ donation; organ donor; palliative care; parents; pediatric intensive care unit; terminal care
Creator
An entity primarily responsible for making the resource
Darlington A S; Long-Sutehall T; Randall D; Wakefield C; Robinson V; Brierley J
Description
An account of the resource
Objective: A proportion of children die, making them potentially eligible to be organ/tissue donors. Not all are approached for donation, and experiences of those parents are not well understood. The objective was to investigate to what extent organ and tissue donation (OTD) is discussed as part of end-of-life care and to explore parents' and healthcare professionals' (HCPs) experiences. Design(s): A retrospective qualitative study. Setting(s): Multicentre study with participants recruited through two neonatal intensive care units (ICUs), two paediatric ICUs, a cardiac ICU and a children's hospice. Patient(s): Bereaved parents, parents of a child with a long-term condition (LTC) and HCPs. Intervention(s): None. Main Outcomes and Measures: Parents' and HCPs' views and experiences of discussions about OTD. Result(s): 24 parents of 20 children were interviewed: 21 bereaved parents and 3 parents of a child with a LTC. Seven parents were asked about donation (13 not asked), four agreed and two donated. 41 HCPs were interviewed. Themes: complexity of donation process, OTD as a coping strategy, the importance of asking, difficulty of raising the topic,\textbackslash and parents' assumptions about health of organs (when donation is not discussed). Conclusion(s): The findings add new knowledge about parents' assumptions about the value of their child's organs when discussions about OTD are not raised, and that HCPs do not routinely ask, are sometimes hesitant to ask in fear of damaging relationships, and the reality of the complexity of the donation process. Given the current levels of awareness around OTD, the topic should be raised. Copyright © Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.
Identifier
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<a href="http://doi.org/10.1136/archdischild-2018-316382" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2018-316382</a>
2019
Archives of Disease in Childhood.
Article
Awareness
Brierley J
Child
Clinical Article
Coping Behavior
coronary care unit
Darlington A S
Fear
Female
Hospice
Human
July 2019 List
Long-Sutehall T
Male
Multicenter Study
Neonatal Intensive Care Unit
Organ Donation
organ donor
Palliative Care
Palliative Therapy
Parents
Pediatric Intensive Care Unit
Qualitative Research
Randall D
Retrospective Study
Robinson V
Terminal Care
Wakefield C
-
Text
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Citation List Month
June 2017 List
URL Address
http://www.ncbi.nlm.nih.gov/pubmed/28390923
Dublin Core
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Title
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Ethical Considerations In Perinatal Palliative Care
Publisher
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Journal Of Obstetric, Gynecologic, And Neonatal Nursing: Jognn
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Clinical Ethics; Organ Donation; Perinatal Bereavement; Perinatal Palliative Care; Shared Decision Making
Creator
An entity primarily responsible for making the resource
Mendes Joana; Wool Jesse; Wool Charlotte
Description
An account of the resource
Clinicians may face new ethical considerations when parents continue pregnancies after receiving life-limiting fetal diagnoses and desire palliative care. In this article we present four ethical considerations in perinatal palliative care: ambiguous terminology in relation to diagnosis or prognosis, differences between bereavement support and palliative care, neonatal organ donation, and postdeath cooling. In this article, we enable readers to consider current topics from different perspectives and reflect on care when confronted with sensitive clinical scenarios.
Identifier
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10.1016/j.jogn.2017.01.011
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Clinical Ethics
Journal of obstetric, gynecologic, and neonatal nursing: JOGNN
June 2017 List
Mendes Joana
Organ Donation
perinatal bereavement
Perinatal Palliative Care
shared decision making
Wool Charlotte
Wool Jesse
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2016 List
Dublin Core
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Title
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Elective Ventilation To Facilitate Organ Donation In Infants With Anencephaly: Perinatal Professionals’ Views And An Ethical Analysis.
Publisher
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International Journal Of Paediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Anencephaly/diagnosis; Anencephaly/therapy; Attitude Of Health Personnel; Ethical Analysis; Female; Humans; London; Male; Palliative Care/ethics; Palliative Care/methods; Perinatal Care/ethics; Perinatal Care/methods; Pregnancy; Prenatal-diagnosis; Respiration Artificial/ethics; Tissue And Organ Procurement/ethics
Ethics; Major Congenital Anomaly; Neonates; Organ Donation
Creator
An entity primarily responsible for making the resource
Jivraj A; Scales A; Brierley J
Description
An account of the resource
AIM:
Following the elective ventilation and referral for organ donation of an infant with anencephaly, we sought local perinatal professionals' views of this practice.
METHODS:
Anonymous online survey: demographics, ethical viewpoints and potential public/maternal perceptions (standard 5-part Likert scale and free text).
RESULTS:
DEMOGRAPHICS:
49 replies (38 female): 4 obstetricians, 14 neonatologists, 6 foetal clinicians, 23 nurses, 1 anaesthetist and 1 reproductive specialist.
EXPERIENCE:
0.5-33 years (average 12). Twenty-one had experience of anencephalic delivery, and 10 reported pregnancy continued for religious reasons.
ETHICS:
(i) 73% thought anencephalic donation acceptable, of which 64% supported elective ventilation, 20% neutral and 16% disagreed. (ii) Provision of treatments not in infant's strict best interest to facilitate donation: 22% strongly agreed, 36% agreed, 33% neutral and 9% disagreed. (iii) Accept ventilation to permit donation if societal benefit: 53% agreed, 33% neutral and 13% disagreed. (iv) Public opinion: 59% disagreed anencephalic donation would harm public opinion about donation and 19% agreed.
CONCLUSION:
We found a supportive local environment for donation in the setting of anencephaly, including support for elective ventilation. Given this, and our ethical analysis, we recommend provision of organ donation information as part of palliative care counselling for women carrying a foetus with a condition likely to be fatal in infancy.
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Anencephaly/diagnosis
Anencephaly/therapy
Attitude Of Health Personnel
Brierley J
Ethical Analysis
Ethics
Female
Humans
International Journal of Paediatrics
Jivraj A
London
Major Congenital Anomaly
Male
May 2016 List
Neonates
Organ Donation
Palliative Care/ethics
Palliative Care/methods
Perinatal Care/ethics
Perinatal Care/methods
Pregnancy
Prenatal-diagnosis
Respiration Artificial/ethics
Scales A
Tissue And Organ Procurement/ethics