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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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September 2019 List
Text
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Citation List Month
September 2019 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2019.06.025" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2019.06.025</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Anxiety and depression in bereaved parents after losing a child due to life-limiting diagnoses: A Danish nationwide questionnaire survey
Publisher
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Journal of pain and symptom management.
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
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adult; article; child; female; human; major clinical study; male; controlled study; education; palliative therapy; anxiety; bereavement; questionnaire; Center for Epidemiological Studies Depression Scale; Denmark; depression; father; mother; single (marital status); young adult
Creator
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Lykke C; Ekholm O; Schmiegelow K; Olsen M; Sjogren P
Description
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CONTEXT: Losing a child is the most burdensome event parents can experience involving risks of developing anxiety and depression. OBJECTIVES: To investigate anxiety and depression in bereaved parents during their child's life-limiting illness and imminent death and three to five years after the loss to target future interventions. METHODS: A Danish nationwide cross-sectional questionnaire survey. From 2012 to 2014, a register-based study identified causes of deaths of 951 children aged zero to 18 years. Potential palliative diagnoses were classified according to previously used classification. A total of 402 families were included. A modified version of the self-administered questionnaire "To lose a child" was used. Non-response surveys identified reasons for lack of response. RESULTS: In all, 136 mothers and 57 fathers completed a questionnaire, representing parents of 152 children (38%). Sixty-five percent of mothers and 63% of fathers reported moderate-to-severe anxiety during the child's illness. However, three to five years after their loss anxiety had decreased markedly. Thirty-five percent of mothers and 39% of fathers reported moderate-to-severe depression during the child's illness; three to five years after the loss they were suffering equivalently from depression. The Center for Epidemiologic Studies Depression Scale indicated that severe depression was significantly associated with lower education and being unmarried. CONCLUSION: The reporting of anxiety during the child's illness and prolonged depression in bereaved parents three to five years after the loss indicates a potential need for psychological interventions. In the process of implementing specialized pediatric palliative care in Denmark, our findings should be considered for future treatment programs.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2019.06.025" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2019.06.025</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Adult
anxiety
Article
Bereavement
Center for Epidemiological Studies Depression Scale
Child
Controlled Study
Denmark
Depression
Education
Ekholm O
Father
Female
Human
Journal of Pain and Symptom Management.
Lykke C
Major Clinical Study
Male
Mother
Olsen M
Palliative Therapy
Questionnaire
Schmiegelow K
September 2019 List
single (marital status)
Sjogren P
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
October 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2019 List
URL Address
<a href="http://doi.org/10.1136/bmjspcare-2018-001709" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/bmjspcare-2018-001709</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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End-of-life communication: a nationwide study of bereaved parents' perceptions
Publisher
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BMJ Supportive & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
children; palliative care; parents; bereavement; communication
Creator
An entity primarily responsible for making the resource
Lykke C; Ekholm O; Schmiegelow K; Olsen M; Sjogren P
Description
An account of the resource
OBJECTIVE: To investigate bereaved parents' perception of end-of-life communication with healthcare professionals after losing a child due to life-limiting diagnoses. METHODS: A national register identified the causes of death of 951 children aged 0-18 years during the period 2012-2014. A previously described classification of life-limiting diagnoses identified 402 children. A modified version of the self-administered questionnaire 'To Lose a Child' was distributed to the parents of these 402 children, capturing their perceptions of communication with the healthcare professionals throughout the child's disease trajectory and imminent death. RESULTS: A total of 193 bereaved parents, representing 38% of the identified children, participated in the study. Overall, 98% of the parents expressed the view that physicians should immediately disclose when curatively intended treatment options were exhausted. Some 79% of parents reported that information about their child's incurable illness was given in an appropriate manner; however, 42% said that information about the child's imminent death was given too late. Finally, 31% felt deprived of the option to say goodbye to their child in their preferred manner, and 56% said that their child's death was "a shock". CONCLUSIONS: Parents request accurate and timely information. However, a substantial number of the parents surveyed reported that healthcare professionals communicated too late about palliative care and end-of-life issues. Even though healthcare professionals strive to communicate effectively with dying children and their parents, barriers were identified that may hinder even the best of intentions. National guidelines addressing communication issues and improved education of healthcare professionals should form part of any future agenda.
Identifier
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<a href="http://doi.org/10.1136/bmjspcare-2018-001709" target="_blank" rel="noreferrer noopener">10.1136/bmjspcare-2018-001709</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Bereavement
BMJ Supportive & Palliative Care
Children
Communication
Ekholm O
Lykke C
October 2019 List
Olsen M
Palliative Care
Parents
Schmiegelow K
Sjogren P