Developing a nursing dependency scoring tool for children's palliative care: the impact on hospice care
Allocation; Bed Occupancy; Complex health needs; England; Hospice and Palliative Care Nursing; Hospice Care/organization & administration; Hospices; Humans; Leadership; Nursing Models; Needs Assessment; Palliative Care/organization & administration; Resource Allocation; Respite Care/organization & administration; Technology dependence
BACKGROUND: Occupancy is commonly used to measure bed management in hospices. However, the increasing complexity of children and young people and growing dependence on technology mean that this is no longer effective. AIM: To develop a dependency tool that enables the hospice to safely and effectively manage the use of beds for planned short breaks (respite care), preserving capacity for children requiring symptom management and end-of-life care. METHODS: A comprehensive literature review and existing tools were used to inform the development of the Martin House Dependency Tool Framework. Training was provided to staff and the tool was piloted before applying it across the hospice caseload. FINDINGS: The tool has been used on 431 children (93.1% of caseload). The tool enabled consistency of assessment and more effective management of resources, due to a contemporaneous understanding of the clinical needs of those on the caseload. CONCLUSION: The tool has enabled consistent and transparent assessment of children, improving safety, effectiveness and responsiveness, and the management of the workforce and resources.
Tatterton M; Martin C; Moore C; Walker C
International Journal of Palliative Nursing
2021
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.12968/ijpn.2021.27.1.37" target="_blank" rel="noreferrer noopener">10.12968/ijpn.2021.27.1.37</a>
Parental treatment decision making in pediatric oncology
PedPal Lit; Attitude to Health Child Conflict (Psychology)Decision Making Educational Status Health Priorities Helping Behavior Humans Internal-External Control Models; Non-U.S. Gov't Social Support; Nursing Models; Psychological Neoplasms/therapyNurse's Role Nursing Methodology Research Oncologic Nursing Parents/education/psychology Patient Selection Pediatric Nursing Practice Guidelines Professional-Family Relations Prognosis Research Design Research Support
OBJECTIVE: To review progress and future plans for a research program about parents' making treatment decisions for their children with cancer. DATA SOURCES: Theoretical papers, review articles, and research reports. CONCLUSION: Three important questions need to be addressed to achieve the goal of supporting parents in treatment decision making: 1) Whatfactors predict a parent's preferred role iln decision making? 2) What are the critical outcomes from parental decision making that nurses could help to improve? 3) Is it role choice, actual role assumed, or congruence between preferred and actual role in decision making that predicts decision outcomes for the parents? IMPLICATIONS FOR NURSING PRACTICE: Research-based responses to the remaining questions about parent treatment decision making will help nurses develop and test interventions designed to support parents in their decision making experiences.
2005
Stewart JL; Pyke-Grimm KA; Kelly KP
Seminars In Oncology Nursing
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/j.soncn.2004.12.003" target="_blank" rel="noreferrer">10.1016/j.soncn.2004.12.003</a>
Collaborative clinical research on end-of-life care in pediatric oncology
U.S. Gov't; Attitudes; PedPal Lit; Multi-site Ethics; Extramural Research Support; N.I.H.; Non-U.S. Gov't Research Support; Nursing Models; Adolescent Adolescent Psychology Attitude of Health Personnel Attitude to Death Attitude to Health Child Child Psychology Clinical Nursing Research/; organization & administration Communication Cooperative Behavior Decision Making Forecasting Health Knowledge; P.H.S. Terminal Care/organization & administration; Practice Health Priorities Humans Models; Psychological Neoplasms/nursing/psychology Oncologic Nursing/organization & administration Parents/psychology Pediatric Nursing/organization & administration Practice Guidelines Research Design Research Support
OBJECTIVES: To present an overview of research into end-of-life (EoL) care for pediatric patients with cancer and to describe research completed by a newly formed collaboration of researchers. DATA SOURCES: Professional group position papers and guidelines; research studies. CONCLUSION: Studies to date in pediatric EoL care used retrospective, descriptive, or pilot intervention designs, have been conducted in single-institution settings, and have included small numbers of patients. Most studies have explored perspectives of parents and health care professionals but have omitted the perspective of the dying child. IMPLICATIONS FOR NURSING PRACTICE: Advancing the science of EoL care will depend on intervention-based clinical trials that include the perspective of the dying child in addi tion to parents and health care professionals.
2005
Nuss SL; Hinds PS; LaFond DA
Seminars In Oncology Nursing
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/j.soncn.2004.12.011" target="_blank" rel="noreferrer">10.1016/j.soncn.2004.12.011</a>
A perinatal hospice for an unborn child with a life-limiting condition
PedPal Lit; Nursing Models; Pediatric Humans Infant; Abnormalities/diagnosis/nursing Abortion; Newborn Medical Futility/psychology Minnesota Models; Nursing Prenatal Diagnosis Referral and Consultation Social Work/organization & administration; Organizational Neonatal Nursing/organization & administration Parents/education/psychology Patient Care Planning Perinatal Care/organization & administration Philosophy; Psychological Attitude to Death Attitude to Health Female Grief Hospice Care/organization & administration Hospitals; Therapeutic Adaptation
Perinatal hospice is a newly developing model of hospice care, offered to the family in the prenatal period, which provides support, guidance and comfort to families who make the difficult choice to continue a pregnancy after the diagnosis of a fatal fetal anomaly. The model is based on the hospice philosophy of living life fully and enjoying each moment. This article describes a perinatal hospice programme that is currently in place at a hospice home care programme of a children's hospital in the USA. It includes a case example of one family's experience of this programme.
2005
Ramer-Chrastek J; Thygeson MV
International Journal Of Palliative Nursing
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.12968/ijpn.2005.11.6.18294" target="_blank" rel="noreferrer">10.12968/ijpn.2005.11.6.18294</a>