Simulated learning for staff at a children's hospice: a quality improvement project
Child; child; terminal care; article; human; palliative therapy; Hospices; anxiety; hospice; Only Child; education; skill; questionnaire; care behavior; simulation; conversation; nurse; learning; total quality management; paramedical personnel
Simulated learning has well known positive effects but its use in palliative care education is limited. A quality improvement project was undertaken at a children's hospice to develop and evaluate simulation workshops. The aim was to increase the knowledge, skills and confidence of nurses and healthcare assistants in managing challenging situations commonly experienced when caring for children with life-limiting conditions and their families. The Plan, Do, Study, Act (PDSA) model for improvement was used to test simulation workshops on a small scale using a post-workshop questionnaire and reflective diaries. Despite some initial anxiety, participants felt that the workshop had enhanced their confidence, knowledge and skills, particularly in relation to conducting challenging conversations. The project has provided insight and evidence to develop simulated learning at the children's hospice and further afield.Copyright © 2023 RCN Publishing Company Ltd. All rights reserved. Not to be copied, transmitted or recorded in any way, in whole or part, without prior permission of the publishers.
Richardson S; Price J; Sheedy G; Chadwick A
Nursing Children and Young People
2023
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.7748/ncyp.2023.e1489" target="_blank" rel="noreferrer noopener">10.7748/ncyp.2023.e1489</a>
Evaluation of service user-led workshops in children's palliative care education
palliative care; Palliative Care; child health; grief; education; bereavement; clinical; end of life care; professional; post-registration education; pre-registration education
Children's nurses report feeling unprepared when caring for children with life-limiting conditions and their families, while the value of including service users in the provision of nursing education is increasingly recognised. This small-scale service evaluation examined the effect on learning of service user-led workshops as part of a module for final-year children's nursing students and post-registration children's nurses. The workshops focused on the experience of children's palliative care and child bereavement from the parents' perspective. Findings from evaluation data indicated high levels of satisfaction with the workshops and identified three themes: safe space, shift in perspective and enhancing practice. A model of service user facilitated learning describes how these themes can enable learning about children's palliative care. This evaluation suggests that the involvement of service users as partners in healthcare education can be transformative, enabling children's nursing students to examine their own perspectives and consider ways to enhance their future practice.
Pavey J; Kembrey J; Beringer A
Nursing Children and Young People
2023
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.7748/ncyp.2023.e1455" target="_blank" rel="noreferrer noopener">10.7748/ncyp.2023.e1455</a>
Care after death in children's hospices: recommendations for moving and handling, and for managing physiological deterioration
Bereavement; Death; End-of-life; Families; Grief; Palliative care; Professional handling; Terminal care
BACKGROUND: Children's hospices provide a range of services for babies, children and young people who have a life-limiting or life-threatening condition, including care after death in specialist 'cool bedrooms'. Care after death is a challenging but important element of hospice care. AIM: The aims of the study were to identify the practices of staff providing care after death in UK children's hospices, notably their moving and handling practices and their management of physiological deterioration, and to produce recommendations that promote safe and consistent practice in moving and handling and in managing physiological deterioration after death in UK children's hospices. METHOD(S): An electronic survey was sent to all 54 UK children's hospices. Free-text responses were analysed using deductive content analysis and used to add depth to the quantitative findings. FINDINGS: Out of 54 children's hospices, 33 responded to the survey. There were great variations in the way hospices delivered care after death, notably in length of stay, interventions and equipment. The lack of consistent practice grounded in evidence-based policy and training may mean that some staff experience higher levels of stress and anxiety than others and that some staff take risks when providing care after death, particularly to express empathy towards bereaved families. CONCLUSION(S): Recommendations are made about moving and handling a child's body after death and managing its physiological deterioration. Hospices can use these recommendations to develop policy and training, standardise what is expected of staff and support practitioners in adequately caring for children after death. Copyright © 2022 RCN Publishing Company Ltd. All rights reserved. Not to be copied, transmitted or recorded in any way, in whole or part, without prior permission of the publishers.
Tatterton M; Honour A; Billington D; Kirkby L; Lyon JA; Lyon N; Gaskin J
Nursing Children and Young People
2022
<a href="http://doi.org/10.7748/ncyp.2022.e1412" target="_blank" rel="noreferrer noopener">10.7748/ncyp.2022.e1412</a>
Nurses' experiences of managing vulnerability when working with seriously ill children
clinical; grief; professional issues; child health; end of life care; professional; attitudes to death; nurses’ wellbeing
BACKGROUND: Nurses who work with very unwell or dying children may experience intense sorrow and distress in response to loss, which can take an emotional toll on them, potentially affecting care provision. AIM: This study aimed to explore the experiences of children's nurses who work with seriously ill children and to gain an insight into the dynamics involved in working with children and their families, as well as the nurses' experiences of managing their own vulnerability. METHODS: In-depth interviews were conducted with five children's nurse participants, and data were analysed using interpretive phenomenological analysis. FINDINGS: Three thematic categories were identified - 'being emotionally full', 'navigating the rules of grief' and 'prism of time'. Caring for seriously ill and dying children is a unique type of nursing and is often regarded as contrary to the 'natural' process of life. Findings were dominated by unresolved grief and the mechanisms used to cope with this emotional pain. CONCLUSION: Nurse educators must be aware of the strategies that people use to avoid engaging with painful emotional experiences. Without this understanding and self-awareness, children's nurses can be caught in a cycle of unresolved grief that affects their own health and could affect their ability to engage with children and families in an empathetic and supportive way.
Nugent A; Donohue G; Higgins A
Nursing Children and Young People
2022
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.7748/ncyp.2022.e1403" target="_blank" rel="noreferrer noopener">10.7748/ncyp.2022.e1403</a>
Use of subcutaneous fluids in palliative care with children: a case study
artificial hydration; child health; clinical; end of life care; ethical issues; fluid management; hospices; Humans; hydration; Hypodermoclysis/methods/standards; nutrition; palliative care; Palliative Care/methods/standards; parents; Patient Comfort/standards; Pediatrics/instrumentation/methods; professional; Quality of Life/psychology; terminal care
Quality of life is a major consideration in children's palliative care, particularly at the end of life. Optimal symptom management is crucial in maintaining quality of life, with the aim being to ensure the child is as comfortable as possible. Ensuring adequate hydration will often be part of symptom management but may be associated with several practical and ethical challenges. Subcutaneous fluid administration in children's palliative care is relatively uncommon, so there is a lack of evidence on the topic. This article demonstrates that it is feasible to use subcutaneous fluid therapy in the children's hospice setting to address patients' hydration needs and manage their symptoms. It presents a case study of a child who received subcutaneous fluids in a children's hospice for dehydration and myoclonus. It uses the case study to discuss subcutaneous fluid therapy in the children's palliative care setting, including its indications and contraindications, administration, complications and important factors to consider.
Smith A; Brimble MJ
Nursing Children and Young People
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.7748/ncyp.2020.e1277" target="_blank" rel="noreferrer noopener">10.7748/ncyp.2020.e1277</a>
Implementing music therapy in a Norwegian neonatal intensive care unit
clinical; neonatal; intensive care; child health; critical care; medicines; infants; research; families; patients; child development; parents; music therapy; professional; complementary therapies; maternal bonding
BACKGROUND: Neonatal intensive care unit (NICU) music therapy is an emerging discipline. There is a growing evidence base supporting its use, with an emphasis on the immediate and short-term positive effects on infants' physiological responses and parents' experiences. AIM: To explore the implementation of music therapy aligned with standards of neonatal care and as an integral part of the care routinely provided in a Norwegian NICU. METHOD: Parents of infants hospitalised in the NICU were offered music therapy sessions based on the First Sounds: Rhythm, Breath and Lullaby model. Before discharge from the NICU, parents were asked to complete an electronic survey about their experiences of music therapy. Nurses' feedback and observations were also elicited and collected. FINDINGS: A total of 16 parents completed the survey. Overall, their experiences of music therapy were positive, and they noted several benefits for themselves and their infant. In addition, nurses observed that parents' interactions with their infant increased after participation in music therapy. However, nurses reported it was challenging to invite parents to participate in music therapy at a time of uncertainty, anxiety and grief. Nurses also found it challenging to disseminate information about music therapy to parents from other cultures. Furthermore, it was identified that most parents learned about the music therapy sessions from the music therapist, rather than from NICU medical or nursing staff, which indicates that music therapy was not fully integrated among the unit's multidisciplinary team. CONCLUSION: Music therapy can reinforce family-centred care and promote parent-infant bonding, but additional efforts are required to integrate it into the care routinely provided by the NICU multidisciplinary team.
Janner C; Söderström Gaden T; Nakstad B; Solevåg AL
Nursing Children and Young People
2021
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<a href="http://doi.org/10.7748/ncyp.2021.e1331" target="_blank" rel="noreferrer noopener">10.7748/ncyp.2021.e1331</a>
National Children's Hospitals Bereavement Network standards for supporting families following the death of a child
bereavement; bereavement support; child health; clinical; death; end-of-life care; grief; parents
In England, a child death review process must be undertaken when a child dies, regardless of the cause of death. Scotland and Wales have their own version of the child death review process, while it is the author's understanding that Northern Ireland are still developing their process. An important aspect of this process is family engagement and bereavement support. This article is an introduction to the bereavement support standards developed by the National Children's Hospitals Bereavement Network, a newly formed group of specialist children's nurses and allied health professionals interested in bereavement care. These standards translate the statutory requirements into practical guidance for healthcare professionals working in children's hospitals in the UK or district general hospitals that offer services for children and families. They also apply to NHS trusts that care for children and need to develop a local policy and workforce with the appropriate skills to provide bereavement care, thereby improving the experiences of families and healthcare professionals. The standards would also be applicable to other NHS trusts and healthcare services in the UK who want to develop an approach to bereavement care and support for families. Copyright © 2020 RCN Publishing Company Ltd. All rights reserved. Not to be copied, transmitted or recorded in any way, in whole or part, without prior permission of the publishers.
Edwards F
Nursing children and young people
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.7748/ncyp.2020.e1336" target="_blank" rel="noreferrer noopener">10.7748/ncyp.2020.e1336</a>
Young people falling into gap between child and adult care
THE GAP between children's and adult palliative care services is too wide to negotiate for some young people, according to a study of the experiences of young people with life-limiting conditions and their families.
2014-12
Nursing Children And Young People
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.7748/ncyp.26.10.6.s3" target="_blank" rel="noreferrer">10.7748/ncyp.26.10.6.s3</a>
Giving hope to families in palliative care and implications for practice
Child; Female; Humans; infant; Male; Attitude to Death; Communication; Family Nursing; Hope; Hospice and Palliative Care Nursing
Caring for a dying child and the family is one of the greatest nursing challenges. The way in which care is delivered will shape the experience they are about to face. Hope plays a crucial role in helping people cope, and healthcare professionals can foster appropriate hopes ethically, while maintaining open and honest communication. If palliative care is discussed with clients and families from the time of diagnosis, they can face realistic decisions better and not feel that they are 'giving up'. They need to know that everything possible is being done to improve the quality of the time left to them.
2014-06
Smith H
Nursing Children And Young People
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.7748/ncyp.26.5.21.e412" target="_blank" rel="noreferrer">10.7748/ncyp.26.5.21.e412</a>
Transition to adult services for young people with-limiting conditions.
Female; Humans; Male; Palliative Care; hospice care; Adolescent Health Services; Transition to Adult Care
Transition to adult services for young people with life-limiting conditions.
2014-07
Nursing Children And Young People
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.7748/ncyp.26.6.13.s15" target="_blank" rel="noreferrer">10.7748/ncyp.26.6.13.s15</a>
Innovative approach to providing 24/7 palliative care for children
end-of-life care; 24/7; Children’s hospice; paediatric symptom management
This study outlines an innovative, English hospice-based service that provides 24/7 care for children with life-limiting conditions and their families. Operational objectives were: symptom management; open access to families and professionals; choice in place of care and of death; and collaboration to develop shared pathways and management plans. Service standards were audited through questionnaires completed by professionals and families. Findings demonstrated that the nursing team filled a critical gap and met its pre-set standards. Keys to success were: having the right level and mix of specialist and advanced skills; funded on-call arrangements; anticipatory planning; symptom management plans; and clinical supervision. Further recommendations were to develop a multi-agency workforce strategy, and to increase capacity in the children's sector to undertake academic research measuring the impacts of interventions.
2014-07
Maynard L; Lynn D
Nursing Children And Young People
2014
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Journal Article
<a href="http://doi.org/10.7748/ncyp.26.6.27.e445" target="_blank" rel="noreferrer">10.7748/ncyp.26.6.27.e445</a>
Family-focused children's end of life care in hospital and at home
end-of-life care; Bereavement support
An increasing number of children and young people require end of life care, and providing them and their families with optimum support at this time is crucial. This article describes how nurses working with children and families in home, hospital and community settings used the principles of practice development methodology to develop end of life care provision and follow-up bereavement support. It outlines the 'ways of knowing' that informed developments and how parents' priorities were kept central to the process. Finally, it discusses how the approach taken to practice development reflected the value of compassion in nursing practice.
2014-07
Parker H; Farrell M; Ryder A; Fernley K; Cox C; Farasat H; Hewitt-Taylor J
Nursing Children And Young People
2014
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Journal Article
<a href="http://doi.org/10.7748/ncyp.26.6.35.e451" target="_blank" rel="noreferrer">10.7748/ncyp.26.6.35.e451</a>
Meeting the needs of siblings of children with life-limiting illnesses
Child; Humans; Terminal Care; Siblings; Professional-Family Relations; Health Services Needs and Demand; Patient-Centered Care; social support; Adaptation; Psychological
Siblings of children with life-threatening or life-limiting illnesses can face a number of challenges, yet this is a group that is often unacknowledged as needing specific support. It is essential that the needs of siblings are recognised and addressed as part of a family-centred approach. This article discusses the experiences and challenges faced by siblings in such families and what children's nurses can do to help. In particular, it outlines a group intervention offered by a community children's palliative care service.
2014-04
Lane C; Mason J
Nursing Children And Young People
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.7748/ncyp2014.04.26.3.16.e349" target="_blank" rel="noreferrer">10.7748/ncyp2014.04.26.3.16.e349</a>
The challenges faced when leaving a children’s hospice
THE MOVE into adult services can leave young people with life-shortening conditions in Scotland facing an uncertain future, as they leave the comfort of children’s services behind.
2014-02
O’Connor J
Nursing Children And Young People
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.7748/ncyp2014.02.26.1.8.s9" target="_blank" rel="noreferrer">10.7748/ncyp2014.02.26.1.8.s9</a>
Grief and the experiences of nurses providing palliative care to children and young people at home
AIMS: To elicit the views of children's nurses with regard to the personal, contextual and interprofessional challenges faced when delivering palliative and end of life care to children and young people in the community. METHODS: Semi-structured interviews were conducted with seven nurses who provided palliative care to one or more child or young person in the home. Data generated were analysed thematically to define topics. FINDINGS: Four themes emerged: service delivery, nurse-family relationships, nurses' grief, funeral rites and bereavement support. CONCLUSIONS: Nurses experienced considerable internal and external pressures. Some are inevitable but others, such as organisation of care provision to families and nurses' personal coping, could be improved by adequately resourced workforces, integrated service structures and guidance on reflective practice. Further research is needed.
2013-11
Reid F
Nursing Children And Young People
2013
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Journal Article
<a href="http://doi.org/10.7748/ncyp2013.11.25.9.31.e366" target="_blank" rel="noreferrer">10.7748/ncyp2013.11.25.9.31.e366</a>
Legal and ethical issues in neonatal nursing
gestational age; newborn nursing; Human; Male; Neonatal Intensive Care Unit; neonatal nurse; Newborn; prematurity; Prognosis
Neonatal nurses regularly face complex legal and ethical dilemmas. This article discusses the hypothetical case of Jack, a two-day-old infant, born at 39 weeks' gestation, and diagnosed with trisomy 13 (syndrome), a life-limiting condition and being cared for in a neonatal intensive care unit. Jack's prognosis is poor and he is not expected to live past two weeks of age.
Anonymous
Nursing Children And Young People
2016
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<a href="http://doi.org/10.7748/ncyp.28.7.51.s26" target="_blank" rel="noreferrer">10.7748/ncyp.28.7.51.s26</a>
Children with life-shortening conditions are denied the support they need, says charity
Healthcare Financing; Palliative Care; Respite Care; Adolescent; Charities; Child; Child Preschool; England; Hospice And Palliative Care Nursing; Humans; Infant; Infant Newborn; State Medicine; Young Adult
Children who require palliative care are being 'short changed or ignored', according to a survey of services in England by the charity Together for Short Lives.
[No authors listed]
Nursing Children And Young People
2016
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<span><span></span><span><a href="https://doi.org/10.7748/ncyp.28.7.7.s6">10.7748/ncyp.28.7.7.s6</a></span></span><span><span><br /></span></span>
How holistic nursing can enhance the quality of life of children with cystic fibrosis
Adolescent; Child Health; Cystic Fibrosis; Cystic Fibrosis/ Nursing/psychology; Family/psychology; Female; Holistic Nursing/ Methods; Humans; Life-limiting Illness; Paediatrics; Quality Of Life; Respiratory System; Siblings/psychology; Well-being
Cystic fibrosis (CF) is one of the most common life-limiting genetic conditions. Ellen Bolton (not her real name) is a teenager with one of the rarer presentations of CF. This case study explores the experiences of Ellen and her family. It discusses the effects of CF on the patient and her family, and how it affects their quality of life (QoL) and well-being.
Tointon K; Hunt J
Nursing Children And Young People
2016
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<a href="http://dx.doi.org/10.7748/ncyp.2016.e753" target="_blank" rel="noreferrer"><span>http://dx.doi.org/</span><span>10.7748</span><span>/</span><span>ncyp</span><span>.</span><span>2016</span><span>.</span><span>e753</span></a>
Consistency in end of life care
Adolescent; Child; Child Preschool; Communication; Decision Making; Hospice And Palliative Care Nursing/ Standards; Humans; Infant; Nurse-patient Relations; Patient Participation; Pediatric Nursing/ Standards; Practice Guidelines As Topic
Draft guidelines address regional variations, but there are worries over terminology, the needs of family members and implementation. The death of a child is a comparatively rare event in the UK. Even so, more than 3,000 infant and 2,000 children and young people age 1-19 years died in England and Wales in 2012.
Allen D
Nursing Children And Young People
2016
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://journals.rcni.com/doi/full/10.7748/ncyp.28.8.8.s8" target="_blank" rel="noreferrer">10.7748/ncyp.28.8.8.s8</a>
We need to attract more students to palliative care
Choice; Health Services Accessibility; Hospice And Palliative Care Nursing; Humans Personnel Selection; Students Nursing; Terminal Care/manpower
A good palliative care service is responsive, available to families where they want it, provided round the clock, and co-ordinated by a lead healthcare professional or team. This is the view of one hospice director of care in response to a draft good practice guideline on end of life care from the National Institute for Health and Care Excellence.
Walker C
Nursing Children And Young People
2016
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://dx.doi.org/10.7748/ncyp.28.8.5.s1" target="_blank" rel="noreferrer">10.7748/ncyp.28.8.5.s1</a>
Many people still fear child illness
One in four people show a 'worrying' lack of understanding about children's hospices and palliative care, a survey shows.
[No authors listed]
Nursing Children And Young People
2017
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<a href="https://doi.org/10.7748/ncyp.29.5.7.s4">10.7748/ncyp.29.5.7.s4</a>
Strategic thinking: end of life care
Major announcements were made in all four parts of the UK at the end of last year. All have the potential to improve the way seriously ill children are looked after.
Evans N
Nursing Children And Young People
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="https://doi.org/10.7748/ncyp.29.1.8.s8" target="_blank" rel="noreferrer">10.7748/ncyp.29.1.8.s8</a>
Respite Services For Children With Life-limiting Conditions And Their Families In Ireland
Appropriate respite care for children with life-limiting conditions (LLC) and their families is the cornerstone of high quality paediatric care. The effect of caring for children with LLC on families, including parental needs, cannot be underestimated and respite can give families support while caring for their children. There are many different types of respite care available in Ireland, including specialist respite, inhome respite or out-of-home respite; the wishes of the family should be sought when arranging care. Comparisons between Ireland and the UK have drawn similarities in the benefits and limitations of respite care. Although there are many positive attributes associated with respite care, there are inconsistencies between best practice recommendations and reality. Worldwide issues remain with a lack of funding for respite care. Such care should become an area which attracts funding for future research to improve the quality of life for these children.
Katie H
Nursing Children And Young People
2016
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10.7748/ncyp.2016.e658
The Spiritual Needs Of Seriously Ill Children And Their Families
Child Child; Preschool Critical Illness/nursing; Critical Illness/psychology; Humans Infant Parents/psychology; Pediatrics/methods Spirituality
Background Studies have documented the experiences of families with seriously ill children, but few have focused on the spiritual needs of families confronted with a child's imminent death.
Nursing Children And Young People
2017
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<a href="https://doi.org/10.7748/ncyp.29.3.27.s25" target="_blank" rel="noreferrer">10.7748/ncyp.29.3.27.s25</a>
Updated Perinatal Palliative Standards Emphasise Choice And Bereavement Support
Bereavement; Palliative Care/st [standards]; Perinatal Death; Female; Humans; Infant Newborn; Neonatal Nursing; Palliative Care/ma [manpower]; Practice Guidelines As Topic; Pregnancy; United Kingdom
Ana Todorovic's baby, Nadia, died just before birth. Ana says she received excellent care and was told when 37 weeks pregnant that Nadia was not going to survive for long.
Evans N
Nursing Children And Young People
2017
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10.7748/ncyp.29.5.8.s8
Improvements In Communication And Relationship Building Are Essential
Communication; Nurse-patient Relations; Palliative Care/st [standards]; Pediatric Nursing/mt [methods]; Pediatric Nursing/st [standards]; Humans
Understanding research priorities in children's palliative care is important for nurses, following the phasing out of the Liverpool Care Pathway, which has led to a change in palliative and end of life care ( Department of Health (DH) 2014 ). Advances in technology that can keep children alive for a long time is another area over which there is much debate ( Longden and Mayer 2007 ).
Anonymous
Nursing Children And Young People
2016
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10.7748/ncyp.28.4.13.s17
Partnership Working Between Hospice And Children's Community Nursing Teams.
Child Health; Children’s Community Nursing; Palliative Care; Service Evaluation
This article describes the implementation and evaluation of a new partnership between a children's hospice service and an NHS children's community nursing team to support children's palliative care in the community. Aims and outcomes of the service were established in its initial design and it was monitored for quality and improvement over its first year. Mixed methods of audit and evaluation strategies were used to assess the quality of the service. Findings demonstrate that it has offered significant support to children, and families valued the role of the new Alexander's nurse. Professionals described improved communication and working relationships through the collaborative partnership. The evaluation also identified areas of learning for future development of the service.
Bennett H; McCarthy L; McKinnon S
Nursing Children And Young People
2016
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DOI: 10.7748/ncyp.2016.e752
Storyboarding As An Aid To Learning About Death In Children's Nursing.
Child Health; Death; Nurse Education; Pediatrics; Reflection; Storyboarding; Teaching
The sudden or anticipated death of a child is one of the most challenging and unique experiences that children's nursing students will encounter in practice. There is evidence to suggest that the effect this can have on a practitioner can affect quality of care. Although education for nurses about dealing with death has been studied, there is limited research into the education of those working with dying children and how effective it is in preparing them to deal with the situation. This deficit presents those involved in children's nurse education with a significant challenge and an opportunity to be innovative. This article examines the use of storyboarding as a creative teaching tool to enable children's nursing students to reflect on their experiences of working with children and families in death situations. The wider implications for the use of this technique in practice and education are considered.
Dexter Y
Nursing Children And Young People
2016
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DOI: 10.7748/ncyp.28.5.16.s21