1
40
4
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2011-2846" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2011-2846</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Rising national prevalence of life-limiting conditions in children in England.
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Young Adult; Palliative Care; Adult; Prevalence; adolescent; Preschool; infant; Newborn; retrospective studies; England/epidemiology; Critical Illness/epidemiology; Terminally Ill/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Fraser LK; Miller M; Hain R; Norman P; Aldridge J; McKinney PA; Parslow RC
Description
An account of the resource
BACKGROUND: Life-limiting conditions (LLCs) describe diseases with no reasonable hope of cure that will ultimately be fatal. For children with these diseases, palliative care services should be available but few data are available to estimate the burden of these conditions. METHODS: Children (0-19 years) with LLCs were identified within an English Hospital Episode Statistics dataset (2000/2001-2009/2010) by applying a customized coding framework of the International Classification of Diseases, 10th Revision, disease codes. Prevalence per 10 000 population (0-19 years) was calculated by age, diagnostic group, ethnicity, deprivation, and region for each year. RESULTS: The Hospital Episode Statistics extract contained 175 286 individuals with 1 or more LLCs of which congenital anomalies were the most common (31%). Prevalence increased over 10 years from 25 to 32 per 10 000 population. Prevalence in the South Asian (48 per 10 000); black (42 per 10 000); and Chinese, mixed, and "other" (31 per 10 000) populations were statistically significantly higher compared with the white population (27 per 10 000). Prevalence shows an inverse J-shaped relationship with 5 categories of deprivation, with the highest prevalence in the most deprived areas and the lowest in the second least deprived. CONCLUSIONS: In 2010, the prevalence of LLCs in children in England was double the previously reported estimates and had increased annually in all areas over the past decade. This clearly identifies an escalating need for specialist pediatric palliative care services. When planning services for these increasing needs, the excess prevalence in ethnic minority groups, especially in deprived areas, needs to be considered.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2011-2846" target="_blank" rel="noreferrer">10.1542/peds.2011-2846</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Adolescent
Adult
Aldridge J
Backlog
Child
Critical Illness/epidemiology
England/epidemiology
Female
Fraser LK
Hain R
Humans
Infant
Journal Article
Male
McKinney PA
Miller M
Newborn
Norman P
Palliative Care
Parslow RC
Pediatrics
Preschool
Prevalence
Retrospective Studies
Terminally Ill/statistics & numerical data
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216314528743" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216314528743</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Patterns of diagnoses among children and young adults with life-limiting conditions: A secondary analysis of a national dataset
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Hospital Episode Statistics; Life-limiting conditions; end-of-life care
Creator
An entity primarily responsible for making the resource
Fraser LK; Lidstone V; Miller M; Aldridge J; Norman P; McKinney PA; Parslow RC
Description
An account of the resource
BACKGROUND: Numbers of children and young people with life-limiting conditions are rising, and increasing lifespans require young adults with life-limiting condition to transit to appropriate adult services. AIM: To describe the prevalence of life-limiting condition in children and young adults by age, sex, diagnostic group, ethnicity and deprivation. DESIGN: A secondary analysis of the English Hospital Episode Statistics dataset was undertaken to calculate prevalence per 10,000 population. SETTING/PARTICIPANTS: Individuals (0-40 years) with life-limiting conditions were identified within an English Hospital Episode Statistics dataset by applying a customised coding framework of International Classification of Diseases, 10th Edition, disease codes. RESULTS: There were 462,962 inpatient hospital admissions for 92,129 individual patients with a life-limiting condition. Prevalence-by-age group curve is U shaped with the highest overall prevalence in the under 1-year age group (127.3 per 10,000), decreasing until age 21-25 years (21.1 per 10,000) before rising steeply to reach 55.5 per 10,000 in the 36-40 -year age group. The distribution by diagnostic group varies by age: congenital anomalies are most prevalent in children until age 16-20 years with oncology diagnoses then becoming the most prevalent. CONCLUSION: Non-malignant diagnoses are common in children and young adults, and services that have historically focussed on oncological care will need to widen their remit to serve this population of life-limited patients. The diagnosis determining a patient's life-limiting condition will strongly influence their palliative care service needs. Therefore, understanding the diagnostic and demographic breakdown of this population of teenagers and young adults is crucial for planning future service provision.
2014-04
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0269216314528743" target="_blank" rel="noreferrer">10.1177/0269216314528743</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Aldridge J
Backlog
End-of-life Care
Fraser LK
Hospital Episode Statistics
Journal Article
Lidstone V
Life-limiting Conditions
McKinney PA
Miller M
Norman P
Palliative Medicine
Parslow RC
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.healthplace.2014.01.002" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.healthplace.2014.01.002</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Prevalence of life-limiting conditions in children and young people in England: time trends by area type
Publisher
An entity responsible for making the resource available
Health & Place
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Deprivation; Hospital Episode Statistics; Life-limiting conditions; ONS Supergroups
Creator
An entity primarily responsible for making the resource
Norman P; Fraser LK
Description
An account of the resource
Palliative care services in England lack data on the number of children with 'life limiting conditions' (LLCs). Recent research determined that the prevalence of LLCs in children in England was double previous estimates. We build on this by analysing time-trends in the prevalence of LLCs by small area deprivation and geodemographic area types. Prevalence is highest for children aged less than one year but time trends show no increase for the youngest age group but significant increases for older children. These increases are mirrored by a decrease in all cause mortality for children suggesting improved survival. Rates are highest in more deprived areas and those typified by multicultural populations. Increasing prevalence and number of cases over time may require increased paediatric palliative care service provision in the future.
2014-03
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.healthplace.2014.01.002" target="_blank" rel="noreferrer">10.1016/j.healthplace.2014.01.002</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Backlog
Deprivation
Fraser LK
Health & Place
Hospital Episode Statistics
Journal Article
Life-limiting Conditions
Norman P
ONS Supergroups
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
May 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2018 List
URL Address
<a href="http://doi.org/10.1016/j.healthplace.2014.01.002" target="_blank" rel="noreferrer noopener">http://dio.org/10.1016/j.healthplace.2014.01.002</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Prevalence of life-limiting conditions in children and young people in England: Time trends by area type
Publisher
An entity responsible for making the resource available
Health and Place
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Life limiting illnesses; multiculturalism; palliative care services; population research
Creator
An entity primarily responsible for making the resource
Norman P; Fraser L
Description
An account of the resource
Palliative care services in England lack data on the number of children with 'life limiting conditions' (LLCs). Recent research determined that the prevalence of LLCs in children in England was double previous estimates. We build on this by analysing time-trends in the prevalence of LLCs by small area deprivation and geodemographic area types. Prevalence is highest for children aged less than one year but time trends show no increase for the youngest age group but significant increases for older children. These increases are mirrored by a decrease in all cause mortality for children suggesting improved survival. Rates are highest in more deprived areas and those typified by multicultural populations. Increasing prevalence and number of cases over time may require increased paediatric palliative care service provision in the future. © 2014 Elsevier Ltd.
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.healthplace.2014.01.002" target="_blank" rel="noreferrer noopener">10.1016/j.healthplace.2014.01.002</a>
2014
Fraser L
Health and Place
Life limiting illnesses
May 2018 List
MULTICULTURALISM
Norman P
palliative care services
Population Research