1
40
4
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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January 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2020 List
URL Address
<a href="https://www.ncbi.nlm.nih.gov/pubmed/31682350">https://www.ncbi.nlm.nih.gov/pubmed/31682350</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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An Objective Approach to Decisions to Withdraw or Withhold Life-sustaining Medical Treatment
Publisher
An entity responsible for making the resource available
Journal of Law and Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Australia; best interests; child; Child; Decision Making; England; futility; Humans; life-sustaining treatment; New Zealand; parens patriae; Preschool; Wales; withdrawing treatment; withholding treatment; Withholding Treatment
Creator
An entity primarily responsible for making the resource
Savulescu J; Cameron J
Description
An account of the resource
Courts in England and Wales, Australia, and New Zealand have insisted the question of when it is acceptable to withdraw or withhold life-sustaining medical treatment from a child must be considered on a case-by-case basis. Over the last 40 years a number of cases have considered whether treatment is objectively in the child's best interests. This article seeks to identify whether there are factors identified and weighed in a consistent manner across cases. Thirty cases involving decisions about the provision of life-sustaining medical treatment to children three years old or younger were identified. Judges regularly refer to the need to weigh benefits and burdens and these factors were identified and assigned scores. Eight key factors were identified, and a scoring range was assigned to each. The factors focus on the condition and position of the child and the burdens of invasive medical treatment. The review demonstrates there are factors consistently identified and despite criticisms of the indeterminacy of the best interests test, there may be a broadly consistent approach to decision-making. Cognitive capacity and unavoidably imminent death appear to be the two most influential factors in determining whether life-sustaining treatment should be provided.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Australia
best interests
Cameron J
Child
Decision Making
England
Futility
Humans
January 2020 List
Journal of law and medicine
life-sustaining treatment
New Zealand
parens patriae
Preschool
Savulescu J
Wales
Withdrawing Treatment
Withholding Treatment
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2013.0117" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2013.0117</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Siblings Caring for and about Pediatric Palliative Care Patients
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
adolescent; Child; Female; Humans; Male; Young Adult; Palliative Care; Terminally Ill; Siblings; Communication; caregivers; Qualitative Research; New Zealand; Preschool; Psychological; Grief; Anticipation
Creator
An entity primarily responsible for making the resource
Gaab EM; Owens GR; Macleod RD
Description
An account of the resource
Abstract Background: The experiences of young people who have siblings with life-limiting illnesses are not well understood. Aim: The study proposed to identify the concerns of siblings of pediatric palliative care (PPC) patients. Design and Measurement: Semistructured interviews were administered to participants and analyzed using qualitative inductive thematic analysis. Setting and Participants: Study subjects were 18 siblings of PPC patients aged 9 to 22 living in the Auckland area. Results: The siblings of PPC patients held concerns about their siblings' impending death and desires to be involved in their lives and care. Conclusions: Siblings may benefit from opportunities to be involved in conversations about mortality and the care of their ill sibling. They are able to express their concerns and help provide care to PPC patients.
2013-12
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2013.0117" target="_blank" rel="noreferrer">10.1089/jpm.2013.0117</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Adolescent
Anticipation
Backlog
Caregivers
Child
Communication
Female
Gaab EM
Grief
Humans
Journal Article
Journal of Palliative Medicine
Macleod RD
Male
New Zealand
Owens GR
Palliative Care
Preschool
Psychological
Qualitative Research
Siblings
Terminally Ill
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11969153" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11969153</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Paediatric respite care: A literature review from New Zealand
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Child; Health Planning; Family Health; New Zealand; adolescent; Human; Quality of Health Care/standards; Terminal Care/organization & administration; Palliative Care/organization & administration; Respite Care/organization & administration
Creator
An entity primarily responsible for making the resource
Horsburgh M; Trenholme A; Huckle T
Description
An account of the resource
This paper reviews relevant international and New Zealand literature, policy documents and reports on respite provision for children who are dying and their families. The literature describes why respite care for children is necessary, and evaluates present respite services in accord with recent reports and literature. The service provisions needed for dying children and their families are explored, including suggestions for the improvement of services and future research. The literature reveals that, although respite care for terminally ill children and their families is necessary, service provisions are uncoordinated, not always culturally sensitive and very limited for children and their families. Improvement in paediatric respite services is necessary and research needs to be conducted in this area to facilitate the development of more appropriate respite services for children and their families.
2002
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Adolescent
Backlog
Child
Family Health
Health Planning
Horsburgh M
Huckle T
Human
Journal Article
New Zealand
Palliative Care/organization & Administration
Palliative Medicine
Quality of Health Care/standards
Respite Care/organization & administration
Terminal Care/organization & Administration
Trenholme A
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2018 List
URL Address
<a href="http://doi.org/10.1111/jocn.13624" target="_blank" rel="noreferrer">http://doi.org/10.1111/jocn.13624</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Intensive care bereavement practices across New Zealand and Australian intensive care units: a qualitative content analysis
Publisher
An entity responsible for making the resource available
Journal of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Bereavement; Critical Care Nursing; Practice Patterns Nurses'; Adult; Australia; bereavement; Child; Death; dying; end-of-life care; Family; Female; Humans; Intensive Care; Intensive Care Units; Internet; Male; New Zealand; nursing role; Patient-Centered Care; Surveys and Questionnaires
Creator
An entity primarily responsible for making the resource
Coombs M; Mitchell M; James S; Wetzig K
Description
An account of the resource
BACKGROUND: End-of-life and bereavement care is an important consideration in intensive care. This study describes the type of bereavement care provided in intensive care units across Australia and New Zealand. DESIGN: Inductive qualitative content analysis was conducted on free-text responses to a web-based survey exploring unit-based bereavement practice distributed to nurse managers in 229 intensive care units in New Zealand and Australia. RESULTS: A total of 153 (67%) surveys were returned with 68 respondents making free-text responses. Respondents were mainly Australian (n = 54, 85.3%), from the public sector (n = 51, 75%) and holding Nurse Unit Managers/Charge Nurse roles (n = 39, 52.9%). From the 124 free-text responses, a total of 187 individual codes were identified focussing on bereavement care practices (n = 145, 77.5%), educational provision to support staff (n = 15, 8%) and organisational challenges (n = 27, 14.4%). Bereavement care practices described use of memory boxes, cultural specificity, annual memorial services and use of community support services. Educational provision identified local in-service programmes, and national bereavement courses for specialist bereavement nurse coordinators. Organisational challenges focussed on lack of funding, especially for provision of bereavement follow-up. CONCLUSIONS: This is the first Australasian-wide survey, and one of the few international studies, describing bereavement practices within intensive care, an important aspect of nursing practice. However, with funding for new bereavement services and education for staff lacking, there are continued challenges in developing bereavement care. Given knowledge about the impact of these areas of care on bereaved family members, this requires review. RELEVANCE TO CLINICAL PRACTICE: Nurses remain committed to supporting bereaved families during and following death in intensive care. With limited resource to support bereavement care, intensive care nurses undertake a range of bereavement care practices at time of death, and after death through family bereavement follow-up.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/jocn.13624" target="_blank" rel="noreferrer">10.1111/jocn.13624</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Adult
Australia
Bereavement
Child
Coombs M
Critical Care Nursing
Death
Dying
End-of-life Care
Family
Female
Humans
Intensive Care
Intensive Care Units
Internet
James S
January 2018 List
Journal of Clinical Nursing
Male
Mitchell M
New Zealand
nursing role
Patient-centered Care
Practice Patterns Nurses'
Surveys And Questionnaires
Wetzig K