1
40
4
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2007-2681" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2007-2681</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Cancer-related symptoms most concerning to parents during the last week and last day of their child's life
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Female; Humans; Male; Palliative Care; Terminal Care; Adult; Parents; Death; Time; adolescent; Preschool; infant; Health; Parents/psychology; Neoplasms/physiopathology/psychology/therapy
Creator
An entity primarily responsible for making the resource
Pritchard M; Burghen E; Srivastava DK; Okuma J; Anderson L; Powell B; Furman WL; Hinds PS
Description
An account of the resource
OBJECTIVE: Studies of symptoms in children dying a cancer-related death typically rely on medical chart reviews or parental responses to symptom checklists. However, the mere presence of a symptom does not necessarily correspond with the distress it can cause the child's parents. The purpose of this study was to identify the cancer-related symptoms that most concerned parents during the last days of their child's life and the strategies parents identified as helpful with their child's care. METHODS: Sixty-five parents of 52 children who had died a cancer-related death within the previous 6 to 10 months participated in telephone interviews. Eligibility criteria included being the parent or guardian of a child aged 0 to 21 years who had died within the previous 6 to 10 months after being treated at a pediatric cancer center, having been with their child during the last week of the child's life, speaking English, being willing to participate, and having access to a telephone. RESULTS: Eighteen symptoms of concern were identified as occurring during their child's final week and final day of life. The most frequently reported symptoms at both times included changes in behavior, changes in appearance, pain, weakness and fatigue, and breathing changes. The proportion of reported symptoms did not differ according to patient gender, disease, or location of death (intensive care, elsewhere in the hospital, or home). The most helpful strategies used by health care professionals to assist the child or parents included giving pain and anxiety medications, spending time with the child or family, providing competent care, and giving advice. CONCLUSIONS: This knowledge can guide professionals in preparing parents for the symptoms that a child imminently dying of cancer is likely to experience and in providing care that will be helpful to parents.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2007-2681" target="_blank" rel="noreferrer">10.1542/peds.2007-2681</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adolescent
Adult
Anderson L
Backlog
Burghen E
Child
Death
Female
Furman WL
Health
Hinds PS
Humans
Infant
Journal Article
Male
Neoplasms/physiopathology/psychology/therapy
Okuma J
Palliative Care
Parents
Parents/psychology
Pediatrics
Powell B
Preschool
Pritchard M
Srivastava DK
Terminal Care
Time
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1477-7525-2-68" target="_blank" rel="noreferrer">http://doi.org/10.1186/1477-7525-2-68</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Relationship between three palliative care outcome scales
Publisher
An entity responsible for making the resource available
Health And Quality Of Life Outcomes
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Female; Hospitalization; Humans; Male; Adult; England; Questionnaires; Aged; Middle Aged; Socioeconomic Factors; Psychometrics; Sickness Impact Profile; 80 and over; Adaptation; Psychological; Caregivers/psychology; Family/psychology; Palliative Care/psychology; Quality of Life/psychology; home care services; Neoplasms/physiopathology/psychology/therapy; Outcome Assessment (Health Care)/methods
Creator
An entity primarily responsible for making the resource
Higginson IJ; Donaldson N
Description
An account of the resource
BACKGROUND: Various scales have been used to assess palliative outcomes. But measurement can still be problematic and core components of measures have not been identified. This study aimed to determine the relationships between, and factorial structure of, three widely used scales among advanced cancer patients. METHODS: Patients were recruited who received home or hospital palliative care services in the south of England. Hope, quality of life and palliative outcomes were assessed by patients in face to face interviews, using three previously established scales - a generic measure (EQoL), a palliative care specific measure (POS) and a measure of hope (Herth Hope Index). Analysis comprised: exploratory factor analysis of each individual scale, and all scales combined, and confirmatory factor analysis for model building and validation. RESULTS: Of 171 patients identified, 140 (81%) consented and completed first interviews; mean age was 71 years, 54% were women, 132 had cancer. In exploratory analysis of individual means, three out of the five factors in the EQoL explained 75% of its variability, four out of the 10 factors in POS explained 63% of its variability, and in the Hope Index, nine out of the 12 items explained 69% of its variability. When exploring the relative factorial structure of all three scales, five factors explained 56% of total combined variability. Confirmatory analysis reduced this to a model with four factors - self-sufficiency, positivity, symptoms and spiritual. Removal of the spiritual factor left a model with an improved goodness of fit and a measure with 11 items. CONCLUSION: We identified three factors which are important outcomes and would be simple to measure in clinical practice and research.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1477-7525-2-68" target="_blank" rel="noreferrer">10.1186/1477-7525-2-68</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
80 And Over
Adaptation
Adult
Aged
Backlog
Caregivers/psychology
Donaldson N
England
Family/psychology
Female
Health And Quality Of Life Outcomes
Higginson IJ
home care services
Hospitalization
Humans
Journal Article
Male
Middle Aged
Neoplasms/physiopathology/psychology/therapy
Outcome Assessment (Health Care)/methods
Palliative Care/psychology
Psychological
Psychometrics
Quality Of Life/psychology
Questionnaires
Sickness Impact Profile
Socioeconomic Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=3511081" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=3511081</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
An alternative in terminal care: results of the National Hospice Study
Publisher
An entity responsible for making the resource available
Journal Of Chronic Diseases
Date
A point or period of time associated with an event in the lifecycle of the resource
1986
Subject
The topic of the resource
Female; Hospitalization; Male; United States; Adult; Aged; Health Services Research; Cancer Care Facilities; Outcome and Process Assessment (Health Care); quality of life; Non-U.S. Gov't; U.S. Gov't; Comparative Study; Models; Costs and Cost Analysis; Health; Insurance; Medicare/economics; Human; Theoretical; Support; Middle Age; home care services; Non-P.H.S.; Neoplasms/physiopathology/psychology/therapy; Hospices/classification/economics/organization & administration; Terminal Care/economics/organization & administration; Pain/epidemiology; Reimbursement/economics
Creator
An entity primarily responsible for making the resource
Greer DS; Mor V; Morris JN; Sherwood S; Kidder D; Birnbaum H
Description
An account of the resource
Hospice is a program of supportive services for terminally ill patients and their families, provided either at home or in designated inpatient settings, which is purported to improve patient and family quality of life at lower cost than conventional terminal care. The National Hospice Study was a multi-site, quasi-experimental study to compare the experiences of terminal cancer patients and their families in hospices with those of similar patients and families receiving conventional terminal care. The results indicate that, although care is different in hospices, e.g. lesser utilization of aggressive interventional therapy and diagnostic testing, patients' quality of life is similar in the hospice and conventional care systems with the exception of pain and symptom control, which may be better in the inpatient hospice setting. Hospice patients are more likely to die at home and their families are satisfied with that outcome. Otherwise, no consistent superiority of family outcome was associated with the hospice approach. The cost of hospice care is less than that of conventional terminal care for patients in hospices without inpatient facilities, but the cost of hospice appears to be equivalent to conventional care for patients in hospices having beds.
1986
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1986
Adult
Aged
Backlog
Birnbaum H
Cancer Care Facilities
Comparative Study
Costs And Cost Analysis
Female
Greer DS
Health
Health Services Research
home care services
Hospices/classification/economics/organization & administration
Hospitalization
Human
Insurance
Journal Article
Journal Of Chronic Diseases
Kidder D
Male
Medicare/economics
Middle Age
Models
Mor V
Morris JN
Neoplasms/physiopathology/psychology/therapy
Non-P.H.S.
Non-U.S. Gov't
Outcome And Process Assessment (health Care)
Pain/epidemiology
Quality Of Life
Reimbursement/economics
Sherwood S
Support
Terminal Care/economics/organization & administration
Theoretical
U.S. Gov't
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/088800100276389" target="_blank" rel="noreferrer">http://doi.org/10.1080/088800100276389</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pain variations during cancer treatment in children: a descriptive survey
Publisher
An entity responsible for making the resource available
Pediatric Hematology And Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Child; Female; Humans; Male; Pain Measurement; Family; Prevalence; adolescent; Preschool; Non-U.S. Gov't; Research Support; Interviews; infant; Neoplasms/physiopathology/psychology/therapy; Pain/epidemiology/physiopathology/therapy
Creator
An entity primarily responsible for making the resource
Ljungman G; Gordh T; Sorensen S; Kreuger A
Description
An account of the resource
Structural interviews were conducted with 66 children and their families to investigate how the experience of pain varied during cancer treatment. At diagnosis, 49% experienced cancer-related pain. Intense pain was more common at the beginning of treatment when it was often believed that pain treatment could be better. Procedure- and treatment-related pain were the major problems initially. Procedural pain gradually decreased, but treatment-related pain was constant and dominating. For some procedures pain was rated highest initially, lower during the second period, and higher again during the final part of treatment. Pain intensity measurement was seldom performed, and parents increasingly considered themselves better judges of their child's pain than professionals. Increased knowledge about pain and pain treatment in children with cancer, where most pain is iatrogenic, will help us to meet the needs and demands of children and parents, and to reduce pain to a minimum.
2000
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/088800100276389" target="_blank" rel="noreferrer">10.1080/088800100276389</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2000
Adolescent
Backlog
Child
Family
Female
Gordh T
Humans
Infant
Interviews
Journal Article
Kreuger A
Ljungman G
Male
Neoplasms/physiopathology/psychology/therapy
Non-U.S. Gov't
Pain Measurement
Pain/epidemiology/physiopathology/therapy
Pediatric Hematology And Oncology
Preschool
Prevalence
Research Support
Sorensen S