Implementing a Palliative Care Education Program in the NICU and Why It Is so Important: A Literature Review
Infant; Neonatal Palliative Care; Family; Nursing Staff; Anxiety; educational program; end-of-life care; Infant; neonatal; Palliative Care; Newborn Humans Intensive Care Units
Aim: To review the literature relevant to palliative care educational programs for nursing staff and families in the NICU. Background: Few hospitals have a palliative care educational program that is in place despite the increasing need for one. Neonatal staff are not educated or prepared to provide end-of-life care (EOLC) and support to family members. There is a lack of literature that looks at parents' perception of EOLC and the potential benefit that proper education may have had on their experience. Methods: Sixteen articles were reviewed, including 7 cohort studies, 5 expert opinions, 1 experimental trail, 1 case-controlled study, 1 literature review, and 1 case study. Conclusion: Implementation of a palliative care education program can provide the necessary tools for neonatal staff to provide EOLC. This education can reduce the stress and anxiety that staff feel about EOLC. With proper education, the neonatal staff can then provide the necessary support for family members. Relevance to Clinical Practice: EOLC is part of all NICUs, and neonatal staff should receive proper education on how to handle such situations.
Arbuckle AD
Neonatal Network
2022
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1891/nn-2021-0010" target="_blank" rel="noreferrer noopener">10.1891/nn-2021-0010</a>
Building a case for neonatal palliative care
2007
Romesberg TL
Neonatal Network
2007
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1891/0730-0832.26.2.111" target="_blank" rel="noreferrer">10.1891/0730-0832.26.2.111</a>
Parents and professionals in the NICU: communication within the context of ethical decision making--an integrative review
PedPal Lit; neonatal intensive care; Attitude to Health CanadaCommunication Cooperative BehaviorDecision Making/ethics Disabled Children/legislation & jurisprudence Europe Family Nursing/ethics/organization & administration/psychology Frustration Great Britain Humans Infant; Hospital/ethics/psychology Parents/education/psychology Patient Care Planning/ethics Patient-Centered Care/ethicsProfessional-Family Relations/ethics United States Withholding Treatment/ethics/legislation & jurisprudence; Neonatal/ethics/organization & administration/psychology Neonatal Nursing/ethics/organization & administration Nursing Methodology Research Nursing Staff; Newborn Informed Consent/ethics/psychology Intensive Care Units
Communication between parents and professionals in the NICU is a necessary part of collaborative decision making in the provision of family-centered care. Decisions with ethical components, those regarding treatment plans or neonatal research enrollment, need to be made conjointly with parents and health care professionals. This article reviews the present state of knowledge of how parents' input can be facilitated in regard to decisions made about their children. Research studies involving decisions made with ethical components in the NICU since the advent of the Baby Doe regulations reveal parents' frustration with communication practices, their need for control of information, and the trust in their children's health care providers that is required to best facilitate their input into ethical decisions made about their children.
2005
Ward FR
Neonatal Network
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1891/0730-0832.24.3.25" target="_blank" rel="noreferrer">10.1891/0730-0832.24.3.25</a>
Identifying, understanding, and working with grieving parents in the NICU, part II: strategies
Adaptation; PedPal Lit; Hospital/psychology Parent-Child Relations Parents/education/psychologyProfessional-Family Relations Referral and Consultation Self Care/methods/psychology Self-Help Groups Social Support Teaching Materials Time Factors; Neonatal/methods/psychology Internet Neonatal Nursing/methods Nurse's Role Nursing Staff; Psychological Aftercare/methods/psychology Attitude to Death Awareness Communication Cultural Diversity EmpathyGrief Health Promotion/methods Helping Behavior HumansIntensive Care
Supporting parents in coping with stress and loss improves the health and development of their child. This article looks at the need for monitoring the health and well-being of parents of infants in the NICU, including practical matters for health care professionals providing follow-up care. It is important to increase public and professional awareness of the grief response. Practical suggestions for coping with the NICU experience, many of them from professionals who are also parents of NICU patients, are offered for grieving parents and family members.
2005
Dyer KA
Neonatal Network
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1891/0730-0832.24.4.27" target="_blank" rel="noreferrer">10.1891/0730-0832.24.4.27</a>
Palliative care delivery in the NICU: What barriers do neonatal nurses face?
Nurses; Face
2006
Kain Victoria J
Neonatal Network
2006
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1891/0730-0832.25.6.387" target="_blank" rel="noreferrer">10.1891/0730-0832.25.6.387</a>
The NICU experience: A parent's perspective
2001
Owens Kim
Neonatal Network
2001
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1891/0730-0832.20.4.67" target="_blank" rel="noreferrer">10.1891/0730-0832.20.4.67</a>