1 40 1 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource August 2020 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month August 2020 List URL Address <a href="http://doi.org/10.1089/jpm.2019.0579" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1089/jpm.2019.0579</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Family Conferences in Prenatal Palliative Care Publisher An entity responsible for making the resource available Journal of Palliative Medicine Date A point or period of time associated with an event in the lifecycle of the resource 2020 Subject The topic of the resource fetal malformation; palliative medicine; patient care; perinatal; qualitative research Creator An entity primarily responsible for making the resource Bernardes L S; Oliveira F F; Jesus R C A; Benute G R G; Gibelli M A B C; Nascimento N B; Bolibio R; Barbosa T V A; Setubal M S V; Gomes A L; Rocha L S N; Rosa G R; Francisco R P Description An account of the resource Background: Fetal malformations are diagnosed prenatally in nearly 3% of pregnancies, and ~1.2% are major malformations. After prenatal diagnosis, it is imperative to consider families' values and to support their decision-making process. Prenatal palliative care is a growing field mainly based on family conferences. The prenatal care setting is unique and differs from postnatal and adult care. There are no descriptions of family conferences in prenatal palliative care. The descriptions of themes that emerge from the prenatal care conference charts may guide professionals in this delicate task, and help determine the causes of suffering and identify family values before the birth of the infant. Aim(s): To perform a content analysis of medical records of family conferences and to describe the main themes observed during prenatal palliative care follow-up after the diagnosis of a life-limiting fetal condition. Design(s): This is a retrospective study of medical records of family conferences from a perinatal palliative care group, the GAI group, between May 2015 and September 2016. Setting/Participants: Families with estimated perinatal mortality >50% and eligibility for follow-up at our tertiary fetal medicine center were enrolled. We included women who participated in at least one family conference with the GAI group and who had given birth at the clinic or delivered at another center and returned for the postnatal family conference. Result(s): Fifty women met the inclusion criteria. Five main themes and 18 categories emerged from the charts and are described in detail. A model of follow-up in prenatal palliative care is proposed based on the themes and categories identified. Conclusion(s): This analysis may guide health professionals who seek to better identify family needs and values and organize follow-up during prenatal palliative care. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1089/jpm.2019.0579" target="_blank" rel="noreferrer noopener">10.1089/jpm.2019.0579</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2020 August 2020 List Barbosa T V A Benute G R G Bernardes L S Bolibio R fetal malformation Francisco R P Gibelli M A B C Gomes A L Jesus R C A Journal of Palliative Medicine Nascimento N B Oliveira F F Palliative Medicine Patient Care Perinatal Qualitative Research Rocha L S N Rosa G R Setubal M S V