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40
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Text
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<a href="http://doi.org/10.1007/s11764-016-0517-8" target="_blank" rel="noreferrer">http://doi.org/10.1007/s11764-016-0517-8</a>
Dublin Core
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Title
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Adult childhood cancer survivors' narratives of managing their health: the unexpected and the unresolved
Publisher
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Journal Of Cancer Survivorship: Research And Practice
Date
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2016
Subject
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Health Services; Childhood cancer survivor; Narrative research; Patient perspective; Qualitative
Creator
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Howard AF; Goddard K; Tan de Bibiana J; Pritchard S; Olson R; Kazanjian A
Description
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PURPOSE: Currently, 80 % of children diagnosed with cancer will be cured. However, many of these survivors go on to develop long-term health problems or late effects related to their previous cancer and therapy and require varying degrees of lifelong follow-up care. The purpose of this study was to identify the different ways that adult survivors of childhood cancer manage their medical and psychological challenges. METHODS: Data from in-depth interviews with 30 adult survivors of a childhood cancer (9 to 38 years after diagnosis, currently 22 to 43 years of age, 60 % women) were analyzed using qualitative, thematic narrative analysis methods. RESULTS: The survivors had not expected the medical, psychological, and social challenges that arose over time and that often remained unresolved. Five narrative themes revealed distinct ways that survivors managed their health challenges: (1) trying to forget cancer, (2) trusting the system to manage my follow-up care, (3) being proactive about my health, (4) stumbling from one problem to the next, and (5) struggling to find my way. CONCLUSIONS: Variation exists in the ways in which childhood cancer survivors frame their health, their perceived significance of health challenges, strategies used to manage health, interactions with healthcare professionals and the health system, and parental involvement. IMPLICATIONS FOR CANCER SURVIVORS: This research provides novel insights that can be used to inform the development of patient-centered health services that promote the assessment and tailoring of care to the diverse ways survivors enact their agency, as well as their psychoeducational coping styles, therapeutic relationship needs, and information needs.
2016-08
Identifier
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<a href="http://doi.org/10.1007/s11764-016-0517-8" target="_blank" rel="noreferrer">10.1007/s11764-016-0517-8</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2016
Backlog
Childhood Cancer Survivor
Goddard K
Health Services
Howard AF
Journal Article
Journal Of Cancer Survivorship: Research And Practice
Kazanjian A
Narrative research
Olson R
Patient Perspective
Pritchard S
Qualitative
Tan de Bibiana J
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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January 2018 List
Text
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January 2018 List
URL Address
<a href="http://doi.org/10.1007/s10912-015-9359-z" target="_blank" rel="noreferrer">http://doi.org/10.1007/s10912-015-9359-z</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Losing Thomas & Ella: A Father's Story (A Research Comic)
Publisher
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Journal Of Medical Humanities
Date
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2017
Subject
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Graphic Novels as Topic; Grief; perinatal death; stillbirth; Comics-based research; Death; Fathers; Fathers/ psychology; Grief; Humans; Male; Narration; Narrative research; Perinatal Death; Qualitative Research; Research comics; Sequential art; stillbirth
Creator
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Weaver-Hightower MB
Description
An account of the resource
"Losing Thomas & Ella" presents a research comic about one father's perinatal loss of twins. The comic recounts Paul's experience of the hospital and the babies' deaths, and it details the complex grieving process afterward, including themes of anger, distance, relationship stress, self-blame, religious challenges, and resignation. A methodological appendix explains the process of constructing the comic and provides a rationale for the use of comics-based research for illness, death, and grief among practitioners, policy makers, and the bereaved.
Identifier
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<a href="http://doi.org/10.1007/s10912-015-9359-z" target="_blank" rel="noreferrer">10.1007/s10912-015-9359-z</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Comics-based research
Death
Fathers
Fathers/ Psychology
Graphic Novels as Topic
Grief
Humans
January 2018 List
Journal Of Medical Humanities
Male
Narration
Narrative research
Perinatal Death
Qualitative Research
Research comics
Sequential art
Stillbirth
Weaver-Hightower MB