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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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May 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2019 List
URL Address
<a href="http://doi.org/10.1080/07481187.2018.1526829" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/07481187.2018.1526829</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The experiences of physicians, nurses, and social workers providing end-of-life care in a pediatric acute-care hospital
Publisher
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Death Studies
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Creator
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Muskat B; Greenblatt A; Anthony S; Beaune L; Hubley P; Newman C; Brownstone D; Rapoport A
Identifier
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<a href="http://doi.org/10.1080/07481187.2018.1526829" target="_blank" rel="noreferrer noopener">10.1080/07481187.2018.1526829</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Description
An account of the resource
This qualitative study explored the experiences of social workers, nurses, and physicians providing end-of-life care to children in a pediatric acute-care hospital setting. Findings demonstrated that participants experienced both professional and personal impacts of their work and employed various coping strategies under each of these domains. The acute-care setting was found to create unique challenges in providing end-of-life care. Implications for policy and practice include promotion of both individual and institutional-level coping strategies and supports that meet the various needs of staff. Implications for future research include a nuanced examination of differences in experiences among nurses, social workers, and physicians.
2019
Anthony S
Beaune L
Brownstone D
Death studies
Greenblatt A
Hubley P
May 2019 List
Muskat B
Newman C
Rapoport A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/15524256.2014.906375" target="_blank" rel="noreferrer">http://doi.org/10.1080/15524256.2014.906375</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Poverty and pediatric palliative care: what can we do?
Publisher
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Journal of Social Work in End-of-Life & Palliative Care
Date
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2014
Subject
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Child Poverty Tool and Resource Guide; content validity; life limiting illness; Pediatric palliative care; qualitative methods; social determinants of health
Creator
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Beaune L; Leavens A; Muskat B; Ford-Jones L; Rapoport A; Zlotnik SR; Morinis J; Chapman LA
Description
An account of the resource
It has been recognized that families of children with life-limiting health conditions struggle with significant financial demands, yet may not have awareness of resources available to them. Additionally, health care providers may not be aware of the socioeconomic needs of families they care for. This article describes a mixed-methods study examining the content validity and utility for health care providers of a poverty screening tool and companion resource guide for the pediatric palliative care population. The study found high relevance and validity of the tool. Significant barriers to implementing the screening tool in clinical practice were described by participants, including: concerns regarding time required, roles and responsibilities, and discomfort in asking about income. Implications for practice and suggestions for improving the tool are discussed. Screening and attention to the social determinants of health lie within the scope of practice of all health care providers. Social workers can play a leadership role in this work.
2014
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/15524256.2014.906375" target="_blank" rel="noreferrer">10.1080/15524256.2014.906375</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2014
Backlog
Beaune L
Chapman LA
Child Poverty Tool and Resource Guide
content validity
Ford-Jones L
Journal Article
Journal of Social Work in End-of-Life & Palliative Care
Leavens A
life limiting illness
Morinis J
Muskat B
Pediatric Palliative Care
Qualitative Methods
Rapoport A
social determinants of health
Zlotnik SR
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July 2017 List
Notes
<p>1478-9523<br />Beaune, Laura<br />Muskat, Barbara<br />Anthony, Samantha J<br />Journal Article<br />England<br />Palliat Support Care. 2017 May 22:1-10. doi: 10.1017/S1478951517000396.</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Emergence Of Personal Growth Amongst Healthcare Professionals Who Care For Dying Children
Publisher
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Palliat Support Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
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Compassion Fatigue; Palliative Care; Pediatrics; Personal Growth; Qualitative Methods
Creator
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Beaune L; Muskat B; Anthony SJ
Description
An account of the resource
OBJECTIVE: Compassion fatigue, burnout, and vicarious traumatization are prominent topics in the current literature on the impact of the rewarding but challenging work of healthcare professionals who care for patients with life-limiting illnesses. The positive effects of caregiving constitute a newly emerging outcome that has been relatively unexplored in the pediatric literature, and yet they may play an important role in contributing to the satisfaction and well-being of the healthcare professionals who care for children who have a life-limiting illness. METHOD: This paper reports the results of a secondary analysis of qualitative interview transcripts that explored the experiences of hospital-based pediatric healthcare providers caring for children with varied life-limiting illnesses. In-depth qualitative interviews were conducted with 25 healthcare professionals (9 social workers, 8 nurses, and 8 physicians). The majority of participants were women (80%), with an age range between 20 and 60 years, and most (84%) had the experience of caring for more than 15 dying children. Thematic analysis was conducted using interpretive description and constant comparison. RESULTS: Every healthcare professional interviewed experienced personal growth as a result of their providing care for dying children. Three dimensions of personal growth were most consistently reported: (1) new or altered life perspectives, (2) enhanced personal resources, and (3) benevolence. SIGNIFICANCE OF RESULTS: A deeper understanding of the phenomenon of personal growth could help healthcare organizations to implement innovative approaches that would counterbalance compassion fatigue, and thereby enhance both healthcare provider well-being and child and family outcomes.
Identifier
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10.1017/s1478951517000396
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Anthony SJ
Beaune L
Compassion Fatigue
July 2017 List
Muskat B
Palliat Support Care
Palliative Care
Pediatrics
Personal Growth
Qualitative Methods