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Dublin Core
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Title
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July 2021 List
Text
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July 2021 List
URL Address
<a href="http://doi.org/10.1080/07481187.2021.1914239" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/07481187.2021.1914239</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Developing a theoretically grounded, digital, ecological momentary intervention for parental bereavement care using the ORBIT model-Phase 1
Publisher
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Death Studies
Date
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2021
Subject
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bereaved parents; bereavement; Parent's experience; web-based intervention
Creator
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Dias N; Boring E; Johnson L; Grossoehme DH; Murphy S; Friebert S
Description
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Current models of bereavement care do not address all of bereaved parents' unique needs. Diverse challenges limit parents' ability to access certain bereavement services. A web-based intervention prototype for bereaved parents was developed. Using convenience and snowball techniques, 14 participants (pediatric providers, software developers, and bereaved parents) were enrolled in a descriptive, cross-sectional feasibility and usability study. While the intervention was generally considered acceptable, three themes were identified to enhance its usability and acceptability: timing; delivery; and revisions. Further intervention development is needed to improve both short- and long-term physical and psychological outcomes for bereaved parents.
Identifier
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<a href="http://doi.org/10.1080/07481187.2021.1914239" target="_blank" rel="noreferrer noopener">10.1080/07481187.2021.1914239</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Bereaved Parents
Bereavement
Boring E
Death studies
Dias N
Friebert S
Grossoehme DH
Johnson L
July 2021 List
Murphy S
Parent's Experience
web-based intervention
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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January 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2021 List
URL Address
<a href="http://doi.org/10.1136/archdischild-2020-320353" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/archdischild-2020-320353</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Consulting with young people: informing guidelines for children's palliative care
Publisher
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Archives of Disease in Childhood
Date
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2020
Subject
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palliative care; qualitative research; adolescent health
Creator
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Taylor J; Murphy S; Chambers L; Aldridge J
Description
An account of the resource
OBJECTIVE: Increasingly the views of young people are sought when improving healthcare; however, it is unclear how they shape policy or practice. This paper presents a consultation with young people commissioned by the National Institute for Health and Care Excellence (NICE) to inform clinical guidelines for paediatric palliative care (end-of-life care for infants, children and young people). METHODS: The consultation involved qualitative thematic analysis of data from 14 young people (aged 12-18 years) with a life-limiting or life-threatening condition who took part in focus groups or interviews. The topics explored were predefined by NICE: information and communication; care planning; place of care; and psychological care. Data collection consisted of discussion points and activities using visual cues and was informed by a pilot consultation group with five young adults (aged 19-24 years). Findings were shared with participants, and feedback helped to interpret the findings. RESULTS: Four overarching themes were identified, cutting across the predetermined topic areas: being treated as individuals with individual needs and preferences; quality of care more important than place; emotional well-being; and living as a young person. Importantly, care planning was viewed as a tool to support living well and facilitate good care, and the young people were concerned less about where care happens but who provides this. CONCLUSION: Young people's priorities differ from those of parents and other involved adults. Incorporating their priorities within policy and practice can help to ensure their needs and preferences are met and relevant research topics identified.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/archdischild-2020-320353" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2020-320353</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Adolescent health
Aldridge J
Archives of Disease in Childhood
Chambers L
January 2021 List
Murphy S
Palliative Care
Qualitative Research
Taylor J