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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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June 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2020 List
URL Address
<a href="http://doi.org/10.1097/NJH.0000000000000628" target="_blank" rel="noreferrer noopener">http://doi.org/10.1097/NJH.0000000000000628</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Nurses' Perceptions of the Palliative Care Needs of Neonates With Multiple Congenital Anomalies
Publisher
An entity responsible for making the resource available
Journal of Hospice and Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
Abnormalities; Age Factors; Consent (Research); Content Analysis; Data Analysis Software; Descriptive Statistics; Educational Status; Feedback; Female; Health Services Needs and Demand – In Infancy and Childhood; Human; Infant; Intensive Care Units; Interviews; Male; Multiple; Neonatal; Neonatal Intensive Care Nursing; Newborn; Nurse Attitudes – Evaluation; Palliative Care; Quality of Life; Questionnaires; Semi-Structured Interview; Thematic Analysis; Time Factors
Creator
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Şener Taplak A; Gürol A; Polat S
Description
An account of the resource
This study was conducted to determine neonatal intensive care unit (NICU) nurses' opinions about the palliative care needs of neonates with multiple congenital anomalies. The study sample consisted of the 20 nurses who agreed to participate in the study and worked in the NICU between November and December 2017. A one-to-one interview method was utilized using a semistructured interview form. Written consent was obtained from participants and reconfirmed verbally prior to data collection. In the study, most of the nurses stated that the therapeutic medical treatment should not be started for dying neonates with multiple congenital anomalies. It was also found that nurses did not have enough palliative care knowledge for neonates. The palliative care needs of the neonates with multiple congenital anomalies in NICUs were found to be pain management, infection care, enhancing quality of life by avoiding unnecessary medical practices, skin care, the care of the baby in the ventilator, timely application of the treatment of neonates, and supporting family.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/NJH.0000000000000628" target="_blank" rel="noreferrer noopener">10.1097/NJH.0000000000000628</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Abnormalities
Age Factors
Consent (Research)
Content Analysis
Data Analysis Software
Descriptive Statistics
Educational Status
Feedback
Female
Gürol A
Health Services Needs and Demand – In Infancy and Childhood
Human
Infant
Intensive Care Units
Interviews
Journal of Hospice and Palliative Nursing
June 2020 List
Male
Multiple
Neonatal
Neonatal Intensive Care Nursing
Newborn
Nurse Attitudes – Evaluation
Palliative Care
Polat S
Quality Of Life
Questionnaires
Semi-Structured Interview
Şener Taplak A
Thematic Analysis
Time Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/jama.296.13.1602" target="_blank" rel="noreferrer">http://doi.org/10.1001/jama.296.13.1602</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Clinical and MRI correlates of cerebral palsy: the European Cerebral Palsy Study
Publisher
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Jama
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; infant; Male; Pregnancy; Pregnancy Complications; Risk Factors; Magnetic Resonance Imaging; Preschool; infant; Newborn; Premature; Brain/pathology; Cerebral Palsy/epidemiology/etiology/physiopathology; Delivery; Infectious; Multiple; Obstetric
Creator
An entity primarily responsible for making the resource
Bax M; Tydeman C; Flodmark O
Description
An account of the resource
CONTEXT: Magnetic resonance imaging (MRI) findings have been reported for specific clinical cerebral palsy (CP) subgroups or lesion types but not in a large population of children with all CP subtypes. Further information about the causes of CP could help identify preventive strategies. OBJECTIVE: To investigate the correlates of CP in a population sample and compare clinical findings with information available from MRI brain studies. DESIGN AND SETTING: Cross-sectional, population-based investigative study conducted in 8 European study centers (North West London and North East London, England; Edinburgh, Scotland; Lisbon, Portugal; Dublin, Ireland; Stockholm, Sweden; Tubingen, Germany; and Helsinki, Finland). PARTICIPANTS: Five hundred eighty-five children with CP were identified who had been born between 1996 and 1999; 431 children were clinically assessed and 351 had a brain MRI scan. MAIN OUTCOME MEASURES: Standardized clinical examination results, parental questionnaire responses, MRI results, and obstetric, genetic, and metabolic data from medical records. RESULTS: Important findings include the high rate of infections reported by mothers during pregnancy (n = 158 [39.5%]). In addition, 235 children (54%) were born at term while 47 children (10.9%) were very preterm (<28 weeks). A high rate of twins was found, with 51 children (12%) known to be from a multiple pregnancy. Clinically, 26.2% of children had hemiplegia, 34.4% had diplegia, 18.6% had quadriplegia, 14.4% had dyskinesia, 3.9% had ataxia, and 2.6% had other types of CP. Brain MRI scans showed that white-matter damage of immaturity, including periventricular leukomalacia (PVL), was the most common finding (42.5%), followed by basal ganglia lesions (12.8%), cortical/subcortical lesions (9.4%), malformations (9.1%), focal infarcts (7.4%), and miscellaneous lesions (7.1%). Only 11.7% of these children had normal MRI findings. There were good correlations between the MRI and clinical findings. CONCLUSIONS: These MRI findings suggest that obstetric mishaps might have occurred in a small proportion of children with CP. A systematic approach to identifying and treating maternal infections needs to be developed. Multiple pregnancies should be monitored closely, and the causes of infant stroke need to be investigated further so preventive strategies can be formulated. All children with CP should have an MRI scan to provide information on the timing and extent of the lesion.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/jama.296.13.1602" target="_blank" rel="noreferrer">10.1001/jama.296.13.1602</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Backlog
Bax M
Brain/pathology
Cerebral Palsy/epidemiology/etiology/physiopathology
Child
Cross-sectional Studies
Delivery
Female
Flodmark O
Humans
Infant
Infectious
JAMA
Journal Article
Magnetic Resonance Imaging
Male
Multiple
Newborn
Obstetric
Pregnancy
Pregnancy Complications
Premature
Preschool
Risk Factors
Tydeman C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.2307/3528691" target="_blank" rel="noreferrer">http://doi.org/10.2307/3528691</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Extreme prematurity and parental rights after Baby Doe
Publisher
An entity responsible for making the resource available
The Hastings Center Report
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; infant; Parents; Euthanasia; Newborn; Premature; Passive/legislation & jurisprudence; ICU Decision Making; Multiple; Abnormalities; Texas; Prejudice; Child Advocacy/legislation & jurisprudence; Civil Rights/legislation & jurisprudence; Disabled Persons/legislation & jurisprudence; Neonatology/legislation & jurisprudence
Creator
An entity primarily responsible for making the resource
Robertson JA
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.2307/3528691" target="_blank" rel="noreferrer">10.2307/3528691</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2004
2004
Abnormalities
Backlog
Child Advocacy/legislation & jurisprudence
Civil Rights/legislation & jurisprudence
Disabled Persons/legislation & jurisprudence
Euthanasia
Humans
ICU Decision Making
Infant
Journal Article
Multiple
Neonatology/legislation & jurisprudence
Newborn
Parents
Passive/legislation & jurisprudence
Prejudice
Premature
Robertson JA
Texas
The Hastings Center Report