Attention and Memory Functioning Among Pediatric Patients with Medulloblastoma
PedPal Lit
2005
Reeves CB; Palmer SL; Reddick WE; Merchant TE; Buchanan GM; Gajjar A; Mulhern RK
Journal of Pediatric Psychology
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1093/jpepsy/jsj019" target="_blank" rel="noreferrer">10.1093/jpepsy/jsj019</a>
Death of a child at home or in the hospital: subsequent psychological adjustment of the family
Child; Female; Hospitalization; Humans; Male; Grief; Family; Adult; Middle Aged; Death; Personality Inventory; Non-U.S. Gov't; P.H.S.; Research Support; U.S. Gov't; Adaptation; Psychological; Comparative Study; Neoplasms/therapy; location of death; Interview; home care services; MMPI; Terminal Care/methods
Twenty-four families who had participated in a Home Care Program for children terminally ill with cancer and 13 families of similar children who had died in the hospital completed inventories on parent and sibling personality as well as family functioning three to 29 months after the child's death. Parents of patients who received terminal care in the hospital were more anxious, depressed, and defensive and had greater tendencies toward somatic and interpersonal problems than parents of patients in the Home Care Program. Siblings of patients who received terminal care in the hospital were more emotionally inhibited, withdrawn, and fearful than their counterparts in the Home Care Program. Although some group differences in parental personality may have antedated terminal care, these results confirm parental reports of more adequate family adjustment following participation in a structured Home Care Program.
Mulhern RK; Lauer ME; Hoffmann RG
Pediatrics
1983
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/s0002-7138(09)61529-6" target="_blank" rel="noreferrer">10.1016/s0002-7138(09)61529-6</a>
Guidelines for assistance to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology
Child; Female; Male; Parent-Child Relations; Attitude to Death; Professional-Family Relations; Professional-Patient Relations; Family Health; Counseling; quality of life; Preschool; bereavement; social support; Human; Palliative Care; Anxiety/prevention & control; Terminal Care; Pain/prevention & control; Neoplasms/psychology/therapy; Child Care; Fear/psychology
This, the sixth official document of the SIOP Working Committee on psychosocial issues in pediatric oncology, develops another important and especially difficult topic: assistance for terminally ill children with cancer. This is provided for the pediatric oncology community as a useful set of guidelines. It should be always possible for a declining child to die without unnecessary physical pain, fear, or anxiety. It is essential that he or she receive adequate medical, spiritual, and psychological support, and that the child at no point feels abandoned. Palliative care, in the terminal phase of cancer, should be tailored to the different needs and desires of the child and the family, with the goal of providing the best possible quality of life for the days that remain.
1999
Masera G; Spinetta J; Jankovic M; Ablin AR; D'Angio GJ; Van Dongen-Melman J; Eden T; Martins AG; Mulhern RK; Oppenheim D; Topf R; Chesler MA
Medical & Pediatric Oncology
1999
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article