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Text
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Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1651-2227.2012.02680.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1651-2227.2012.02680.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Challenging symptoms in children with rare life-limiting conditions: findings from a prospective diary and interview study with families
Publisher
An entity responsible for making the resource available
Acta Paediatrica
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
Child; Female; Humans; Male; Young Adult; Interviews as Topic; Prospective Studies; Disease Progression; Medical Records; Family Health; adolescent; Preschool; Charting the Territory; Psychological; Stress; Mucopolysaccharidoses/diagnosis/psychology/therapy; Mucopolysaccharidosis I/diagnosis/therapy; Mucopolysaccharidosis III/diagnosis/therapy; Neuronal Ceroid-Lipofuscinoses/diagnosis/psychology/therapy
Creator
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Malcolm C; Hain R; Gibson F; Adams S; Anderson G; Forbat L
Identifier
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<a href="http://doi.org/10.1111/j.1651-2227.2012.02680.x" target="_blank" rel="noreferrer">10.1111/j.1651-2227.2012.02680.x</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Acta Paediatrica
Adams S
Adolescent
Anderson G
Backlog
Child
Disease Progression
Family Health
Female
Forbat L
Gibson F
Hain R
Humans
Interviews As Topic
Journal Article
Malcolm C
Male
Medical Records
Mucopolysaccharidoses/diagnosis/psychology/therapy
Mucopolysaccharidosis I/diagnosis/therapy
Mucopolysaccharidosis III/diagnosis/therapy
Neuronal Ceroid-Lipofuscinoses/diagnosis/psychology/therapy
Preschool
Prospective Studies
Psychological
Stress
Young Adult