1
40
7
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/jama.296.13.1650" target="_blank" rel="noreferrer">http://doi.org/10.1001/jama.296.13.1650</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Complexity of the cerebral palsy syndromes: toward a developmental neuroscience approach
Publisher
An entity responsible for making the resource available
Jama
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Magnetic Resonance Imaging; Preschool; Brain/pathology; Cerebral Palsy/physiopathology
Creator
An entity primarily responsible for making the resource
Msall ME
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/jama.296.13.1650" target="_blank" rel="noreferrer">10.1001/jama.296.13.1650</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2006
2006
Backlog
Brain/pathology
Cerebral Palsy/physiopathology
Child
Humans
JAMA
Journal Article
Magnetic Resonance Imaging
Msall ME
Preschool
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2006-0439" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2006-0439</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Physical and mental health of mothers caring for a child with Rett syndrome
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Emotions; Mother-Child Relations; Middle Aged; Family Relations; Health Status; Mental Health; Family Health; adolescent; Preschool; Caregivers/psychology; Psychological; Stress; social support; disabled children; Telemeres; Employment; Fractures; Bone/etiology/nursing; Rett Syndrome/complications/nursing
Creator
An entity primarily responsible for making the resource
Laurvick CL; Msall ME; Silburn S; Bower C; de Klerk N; Leonard H
Description
An account of the resource
OBJECTIVES: Our goal was to investigate the physical and mental health of mothers who care for a child with Rett syndrome. METHODS: We assessed maternal physical and mental health by using the SF-12 version 1 physical component summary and mental component summary scores as the outcome measures of interest. Mothers (n = 135) of children with Rett syndrome completed the SF-12 measure as part of the Australian Rett Syndrome Study in 2002. The analysis investigated linear relationships between physical and mental health scores and maternal, family, and child characteristics. RESULTS: Mothers ranged in age from 21 to 60 years and their children from 3 to 27 years. Nearly half of these mothers (47.4%) indicated that they worked full-time or part-time outside the home, and 41% had a combined family (gross) income of <40,000 Australian dollars. The resultant model for physical health demonstrated that the following factors were positively associated with better maternal physical health: the mother working full-time or part-time outside the home, having some high school education, having private health insurance, the child not having breathing problems in the last 2 years, the child not having home-based structured therapy, and high scores on the Family Resource Scale (indicating adequacy of time resources for basic and family needs). The resultant model for mental health demonstrated that the following factors were positively associated with better maternal mental health: the mother working full-time or part-time outside the home, the child not having a fracture in the last 2 years, lesser reporting of facial stereotypes and involuntary facial movements, being in a well-adjusted marriage, and having low stress scores. CONCLUSIONS: Our study suggests that the most important predictors of maternal physical and emotional health are child behavior, caregiver demands, and family function.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2006-0439" target="_blank" rel="noreferrer">10.1542/peds.2006-0439</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Adult
Backlog
Bone/etiology/nursing
Bower C
Caregivers/psychology
Child
de Klerk N
Disabled Children
Emotions
Employment
Family Health
Family Relations
Female
Fractures
Health Status
Humans
Journal Article
Laurvick CL
Leonard H
Male
Mental Health
Middle Aged
Mother-child Relations
Msall ME
Pediatrics
Preschool
Psychological
Rett Syndrome/complications/nursing
Silburn S
Social Support
Stress
Telemeres
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.111.3.548" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.111.3.548</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Functional disability and school activity limitations in 41,300 school-age children: relationship to medical impairments
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Miller 2009 BMC HSR Refs
Creator
An entity primarily responsible for making the resource
Msall ME; Avery RC; Tremont MR; Lima JC; Rogers ML; Hogan DP
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.111.3.548" target="_blank" rel="noreferrer">10.1542/peds.111.3.548</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2003
2003
Avery RC
Backlog
Hogan DP
Journal Article
Lima JC
Miller 2009 BMC HSR Refs
Msall ME
Pediatrics
Rogers ML
Tremont MR
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0003-9993(97)90302-6" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0003-9993(97)90302-6</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Interrater agreement and stability of the Functional Independence Measure for Children (WeeFIM): Use in children with developmental disabilities.
Publisher
An entity responsible for making the resource available
Archives Of Physical Medicine And Rehabilitation
Date
A point or period of time associated with an event in the lifecycle of the resource
1997
Subject
The topic of the resource
Child; Humans; Disabled Persons; Longitudinal Studies; Activities of Daily Living; Observer Variation; Health Status Indicators; Disability Evaluation; Preschool; infant
Creator
An entity primarily responsible for making the resource
Ottenbacher KJ; Msall ME; Lyon NR; Duffy LC; Granger CV; Braun S
Description
An account of the resource
OBJECTIVE: Examination of the interrater agreement and stability of ratings obtained using the Functional Independence Measure for Children (WeeFIM) in a sample of children with developmental disabilities. DESIGN: A relational design was used in which two sets of WeeFIM scores were collected under four conditions: same rater-short interval; same rater-long interval; different rater-short interval; and different rater-long interval. SETTING: WeeFIM scores were collected in outpatient developmental rehabilitation centers, school programs, and the children's homes. PARTICIPANTS: Data were collected for 205 children ranging in age from 11 to 87 months. All children had a medical diagnosis of disability and were receiving habilitative-educational intervention or follow-along services including neurodevelopmental surveillance. INSTRUMENT: The WeeFIM instrument examines basic daily living and functional skills in children from birth to 7 years of age. The WeeFIM is modeled after the Functional Independence Measure (FIM) for adults and includes 18 items in the following subscales: self-care, sphincter control, transfers, locomotion, communication, and social cognition. RESULTS: Kappa values for items ranged from .44 to .82. Intraclass correlation coefficients (ICC) for the six subscales ranged from .73 to .98. Total WeeFIM ICC values were greater than .95 for all analyses. CONCLUSIONS: The WeeFIM ratings for the 205 children with developmental disabilities participating in this investigation were consistent across raters and time.
1997
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0003-9993(97)90302-6" target="_blank" rel="noreferrer">10.1016/s0003-9993(97)90302-6</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1997
Activities of Daily Living
Archives Of Physical Medicine And Rehabilitation
Backlog
Braun S
Child
Disability Evaluation
Disabled Persons
Duffy LC
Granger CV
Health Status Indicators
Humans
Infant
Journal Article
Longitudinal Studies
Lyon NR
Msall ME
Observer Variation
Ottenbacher KJ
Preschool
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/000992289403300708" target="_blank" rel="noreferrer">http://doi.org/10.1177/000992289403300708</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Functional Independence Measure for Children (WeeFIM). Conceptual basis and pilot use in children with developmental disabilities.
Publisher
An entity responsible for making the resource available
Clinical Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
1994
Subject
The topic of the resource
Child; Female; Humans; Male; Pilot Projects; Longitudinal Studies; Disability Evaluation; adolescent; Preschool; Adaptation; Psychological; infant; Neuropsychological Tests; Developmental Disabilities/diagnosis
Creator
An entity primarily responsible for making the resource
Msall ME; DiGaudio K; Rogers BT; LaForest S; Catanzaro NL; Campbell J; Wilczenski F; Duffy LC
Description
An account of the resource
Few tools are available to pediatricians for tracking and monitoring disability status in children. We describe the conceptual basis and pilot use of the Functional Independence Measure for Children (WeeFIM). Our pilot use of this instrument in children with limb deficiency, Down's syndrome, spina bifida, cerebral palsy, and extreme prematurity demonstrates that the WeeFIM is a valid measure for tracking disability in preschool age and middle childhood. The WeeFIM measures the impact of developmental strengths and difficulties on independence at home, in school, and in the community. This allows the pediatrician to prioritize interventions for enhancing comprehensive functional outcomes and supporting families.
1994
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/000992289403300708" target="_blank" rel="noreferrer">10.1177/000992289403300708</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1994
Adaptation
Adolescent
Backlog
Campbell J
Catanzaro NL
Child
Clinical Pediatrics
Developmental Disabilities/diagnosis
DiGaudio K
Disability Evaluation
Duffy LC
Female
Humans
Infant
Journal Article
LaForest S
Longitudinal Studies
Male
Msall ME
Neuropsychological Tests
Pilot Projects
Preschool
Psychological
Rogers BT
Wilczenski F
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/000992289403300709" target="_blank" rel="noreferrer">http://doi.org/10.1177/000992289403300709</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
WeeFIM: Normative sample of an instrument for tracking functional independence in children.
Publisher
An entity responsible for making the resource available
Clinical Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
1994
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; Male; Age Factors; Longitudinal Studies; Self Care; Disability Evaluation; Preschool; Adaptation; Psychological; infant; Neuropsychological Tests
Creator
An entity primarily responsible for making the resource
Msall ME; DiGaudio K; Duffy LC; LaForest S; Braun S; Granger CV
Description
An account of the resource
A cross-sectional community sample of 417 children, ages 6 months to 8 years without developmental delays or in developmental programs, was seen. The Functional Independence Measure for Children (WeeFIM) was used to assess independence in self-care, sphincter control, transfers, locomotion, communication, and social cognition. Mean total WeeFIM was similar for males and females. There was a significant correlation between the age of the child in months and total WeeFIM scores for children ages 2 to 5 years (n = 222, r = .80, P < .01). There was a progressive increase of functional independence with increasing chronological age across all WeeFIM domains. We conclude that the WeeFIM is a useful instrument for measuring disability in children.
1994
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/000992289403300709" target="_blank" rel="noreferrer">10.1177/000992289403300709</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1994
Adaptation
Age Factors
Backlog
Braun S
Child
Clinical Pediatrics
Cross-sectional Studies
DiGaudio K
Disability Evaluation
Duffy LC
Female
Granger CV
Humans
Infant
Journal Article
LaForest S
Longitudinal Studies
Male
Msall ME
Neuropsychological Tests
Preschool
Psychological
Self Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/ana.22614" target="_blank" rel="noreferrer">http://doi.org/10.1002/ana.22614</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Physiological stress and brain vulnerability: understanding the neurobiology of connectivity in preterm infants
Publisher
An entity responsible for making the resource available
Annals Of Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Female; Humans; infant; Male; Intensive Care Units; Pregnancy; Developmental Disabilities; Magnetic Resonance Imaging; Brain; Infant Behavior; Neonatal; Premature
Creator
An entity primarily responsible for making the resource
Msall ME
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/ana.22614" target="_blank" rel="noreferrer">10.1002/ana.22614</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Annals Of Neurology
Backlog
Brain
Developmental Disabilities
Female
Humans
Infant
Infant Behavior
Intensive Care Units
Journal Article
Magnetic Resonance Imaging
Male
Msall ME
Neonatal
Pregnancy
Premature