Belonging to a Community of Care: Mothers' Experiences of Online Peer Support Groups for Parents Having Lost a Child with Congenital Heart Defects
Child death; mother grief; peer support; parent support
The aim was to study mothers' experiences of online peer support groups after the death of a child. Participants (Nā=ā8) were recruited through a newsletter for the Swedish association for families/children with heart defects, and two closed support groups on Facebook (900 and 100 members) and interviewed by telephone. Transcripts were analyzed with qualitative content analysis. The groups were available around the clock, regardless of support need, and mothers joined both to receive and provide support. Participation in online peer support groups may provide a sense of belonging to a caring community and serve as a valuable complement to healthcare.
Klarare A; Carlsson T; Mattsson E
Death Studies
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1080/07481187.2020.1850548" target="_blank" rel="noreferrer noopener">10.1080/07481187.2020.1850548</a>
Parent Grief 1-13 Months After Death In Neonatal And Pediatric Intensive Care Units
Child Death; Father Grief; Grief; Infant Death; Mother Grief
OBJECTIVE: Describe changes in mothers' and fathers' grief from 1 to 13 months after infant/child neonatal/pediatric intensive care unit death and identify factors related to their grief. METHODS: Mothers (n = 130) and fathers (n = 52) of 140 children (newborn-18 years) completed the Hogan Grief Reaction Checklist at 1, 3, 6, and 13 months post-death. RESULTS: Grief decreased from 3 to 13 months for mothers and from 3 to 6 months for fathers. Grief was more intense for: mothers of deceased adolescents and mothers whose child was declared brain dead. CONCLUSION: Mothers' and fathers' grief intensity may not coincide, resulting in different needs during the 13 months after infant/child death.
Youngblut JM; Brooten D; Glaze J; Promise T; Yoo C
Journal Of Loss And Trauma
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
10.1080/15325024.2016.1187049
Parent Grief 1-13 Months After Death In Neonatal And Pediatric Intensive Care Units
Child Death; Father Grief; Grief; Infant Death; Mother Grief
Youngblut JM; Brooten D; Glaze J; Promise T; Yoo C
Journal Of Loss And Trauma
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
10.1080/15325024.2016.1187049