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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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August 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2022 List
URL Address
<a href="http://doi.org/10.3390/children9050642" target="_blank" rel="noreferrer noopener">http://doi.org/10.3390/children9050642</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The COVID-19 Pandemic: Early Ripple Effects in Pediatric Palliative Care
Publisher
An entity responsible for making the resource available
Children (Basel)
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
pediatric; burnout; resilience; pediatric palliative care; Covid-19; SARS-CoV-2; global
Creator
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Bustamante LM; Okhuysen-Cawley R; Downing J; Connor SR; Muckaden MA; Phillips M; Icaza A; Garzon N; Nakashima Y; Morgan K; Mauser D; Grunauer M
Description
An account of the resource
Palliative care, which aims to provide comprehensive, interdisciplinary, holistic care to children, adolescents and adults with life-threatening, and ultimately life-limiting conditions, is a discipline that has emerged as an integral component of healthcare systems throughout the world. Although the value of life-affirming palliative care (PC) has been shown across many domains, funding and acceptance of palliative care teams have been variable: some hospital systems have free-standing, dedicated interdisciplinary teams while, in many instances, palliative care services are provided "pro bono" by individuals with a special interest in the discipline, who provide PC in addition to other responsibilities. In this article, we hope to highlight some of the observations on the early effects of the COVID-19 pandemic on the provision of PC in children.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3390/children9050642" target="_blank" rel="noreferrer noopener">10.3390/children9050642</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
August 2022 List
Burnout
Bustamante LM
Children (Basel)
Connor SR
COVID-19
Downing J
Garzon N
global
Grunauer M
Icaza A
Mauser D
Morgan K
Muckaden MA
Nakashima Y
Okhuysen-Cawley R
Pediatric
Pediatric Palliative Care
Phillips M
Resilience
SARS-CoV-2
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January List 2023
URL Address
<a href="http://doi.org/10.1177/10499091221138298" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1177/10499091221138298</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Palliative Sedation Therapy Practice Comparison – A Survey of Pediatric Palliative Care and Pain Management Specialists
Publisher
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American Journal of Hospice and Palliative Medicine®
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Dexmedetomidine; End of Life; Pain Management; Palliative Care; Palliative Sedation Therapy; Propofol; Symptom Management
Creator
An entity primarily responsible for making the resource
Cuviello A; Ang N; Morgan K; Baker JN; Anghelescu DL
Description
An account of the resource
Context: Palliative sedation therapy (PST) can relieve suffering at end-of-life (EOL) in children with intolerable and refractory symptoms. However, updated and consistent guidance on PST practices are imperative. Objectives: We investigate current variations in clinical practice and PST implementation among pediatric palliative care (PPC) and pain management (PM) specialists. Methods: We distributed an IRB-exempt electronic anonymous survey via email through the Society of Pediatric Pain Medicine, and the American Academy of Hospice and Palliative Medicine. Survey responses were collated and descriptively reported. Results: Of 83 survey responses, the majority (75%) represented large academic children’s hospitals. The distribution between PPC and pediatric pain management specialists’ responses was 60% and 40%, respectively. Most respondents reported having designated pain management and/or palliative care teams (70% and 90%, respectively). Approximately half (48%) reported following an institutional PST protocol, most not requiring formal ethics consult (69%). Only 54% of respondents noted that the Do Not Resuscitate (DNR) order was required prior to PST initiation. PST was primarily utilized for children with oncologic diagnoses (76%). The primary and secondary medications of choice for PST implementation were reported to be opioids (39%) and benzodiazepines (36%) by pain management specialists, and benzodiazepines (52%) and barbiturates (28%) by palliative care specialists. Conclusions: Our study highlights the variability in the practice and implementation of PST. Further educational efforts are key for establishing PST practices and efficient protocol development.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/10499091221138298" target="_blank" rel="noreferrer noopener">10.1177/10499091221138298</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Palliative Care
2022
American Journal of Hospice and Palliative Medicine®
Ang N
Anghelescu DL
Baker JN
Cuviello A
Dexmedetomidine
End Of Life
January List 2023
Morgan K
Pain Management
Palliative Sedation Therapy
Propofol
Symptom Management
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January List 2023
URL Address
<a href="http://doi.org/10.3390/children9121887" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3390/children9121887</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative Sedation Therapy in Pediatrics: An Algorithm and Clinical Practice Update
Publisher
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Children
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Palliative; Sedation
Creator
An entity primarily responsible for making the resource
Cuviello A; Johnson LM; Morgan K; Anghelescu DL; Baker JN
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3390/children9121887" target="_blank" rel="noreferrer noopener">10.3390/children9121887</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Anghelescu DL
Baker JN
Children
Cuviello A
January List 2023
Johnson LM
Morgan K
Palliative
Sedation