1
40
3
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
February 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February List 2024
URL Address
<a href="http://doi.org/10.3390/children10111777%5C"> http://doi.org/10.3390/children10111777\</a>"
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Preparing for Death While Investing in Life: A Narrative Inquiry and Case Report of Home-Based Paediatric Palliative, End-of-Life, and After-Death Care
Publisher
An entity responsible for making the resource available
Children
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Palliative Care; Human; Male; Qualitative Studies; Bereavement; Support Psychosocial; Family Centered Care; Pediatric Care; Child; Methods; Collaboration; Interprofessional Relations; Diagnosis; Diffuse Intrinsic Pontine Glioma; Holistic Care; Home Health Care; Magnetic Resonance Imaging; Music Therapy; Narratives; Organ Donation; Pain Management; Pediatric Nurse Practitioners; Prognosis; Psychotherapy; Therapy
Creator
An entity primarily responsible for making the resource
Noyes M; Delaney A; Lang M; Maybury M; Moloney S; Bradford N
Description
An account of the resource
Paediatric palliative care is pivotal for addressing the complex needs of children with incurable diseases and their families. While home-based care offers a familiar and supportive environment, delivering comprehensive services in this context is challenging. The existing literature on home-based palliative care lacks detailed guidance for its organization and implementation. This qualitative narrative inquiry explores the organization and provision of home-based paediatric palliative care. Data were collected from healthcare practitioners using conversations, storytelling, and reflective journaling. Schwind's Narrative Reflective Process was applied to synthesize the data, resulting in an in-depth case description. The narrative approach illuminates the complexities of home-based paediatric palliative, end-of-life, and after-death care. Key findings encompass the importance of early-care coordination, interprofessional collaboration, effective symptom management, emotional and psychosocial support, and comprehensive end-of-life planning. Through the case study of the child patient, the challenges and strategies for providing holistic, family-centred care within the home environment are described. Practical insights gained from this report can inform the development and improvement of home-based palliative care programs, benefiting researchers, practitioners, and policymakers seeking to optimize care for children and families in similar contexts.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3390/children10111777%5C">10.3390/children10111777\</a>"
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Bereavement\
Bradford N
Child\
Children
Collaboration\
Delaney A
Diagnosis\
Diffuse Intrinsic Pontine Glioma
Family Centered Care\
February List 2024
Holistic Care\
Home Health Care\
Human\
Interprofessional Relations\
Lang M
Magnetic Resonance Imaging\
Male\
Maybury M
Methods\
Moloney S
Music Therapy\
Narratives\
Noyes M
Organ Donation\
Pain Management\
Palliative Care
Pediatric Care\
Pediatric Nurse Practitioners\
Prognosis\
Psychotherapy\
Qualitative Studies\
Support Psychosocial\
Therapy\
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2022 Special Edition 3 - Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2022 Special Edition 3 - Oncology List
URL Address
<a href="http://doi.org/https://doi.org/10.1002/pbc.29621" target="_blank" rel="noreferrer noopener"> http://doi.org/https://doi.org/10.1002/pbc.29621</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Location of end-of-life care of children with cancer: A systematic review of parent experiences
Publisher
An entity responsible for making the resource available
Pediatric Blood and Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Creator
An entity primarily responsible for making the resource
Noyes M; Herbert A; Moloney S; Irving H; Bradford N
Description
An account of the resource
Objective: To synthesize existing qualitative research exploring the experiences of parents caring for children with cancer during the end-of-life phase, and the factors that influence parental decision-making when choosing the location of end-of-life care and death for their child. Result(s): This review included 15 studies of 460 parents of 333 children and adolescents who died from progressive cancer. Where reported, the majority (58%) of children died at home or in a hospital (39%), with only a small fraction dying in a hospice. Factors impacting decision-making for the location of care included the quality of communication and the quality of care available. Themes related to choosing home for end-of-life care and death included honoring the child's wishes, the familiarity of home, and parents' desire to be their child's primary carer. Preference for the location of death in the hospital included trust in hospital staff, practical logistics, and the safety of the hospital environment. Copyright © 2022 Wiley Periodicals LLC.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/https://doi.org/10.1002/pbc.29621" target="_blank" rel="noreferrer noopener">https://doi.org/10.1002/pbc.29621</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
2022 Special Edition 3 - Oncology List
Bradford N
Herbert A
Irving H
Moloney S
Noyes M
Pediatric Blood and Cancer
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
June 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2019 List
URL Address
<a href="http://doi.org/10.1111/jpc.14409" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/jpc.14409</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Neonatal palliative care: A single site clinical audit
Publisher
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Journal of Paediatrics and Child Health
Date
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2019
Subject
The topic of the resource
cause of death; newborn; terminal care; major clinical study; retrospective study; newborn death; hospital admission; conference abstract; human; child; female; male; social work; palliative therapy; clinical audit; speech; bereavement support; physiotherapy; gold; music therapy; nursing staff; seashore
Creator
An entity primarily responsible for making the resource
Gill K; Weir K; Delaney A; Moloney S; Herbert A; Noyes M; Hong T; Broadbent A; Scuffham P; Mickan S
Description
An account of the resource
Background: Best practice, palliative and end-of-life care (EOLC) enhances symptom management and quality-of-life for individuals who are palliative and dying, and their families. Although Gold Coast Health (GCH) has a dedicated, interdisciplinary palliative care service (including allied health) for adults, no equivalent local neonatal/paediatric service exists, highlighting inequity of access to care based on age. This project investigated allied health service usage of neonates requiring palliative and EOLC and their families in GCH. Method(s): A retrospective clinical audit was conducted to map the patient journey of all neonatal deaths within GCH between September 2013 and May 2018. Variables included: number, place and cause of death, diagnoses, number/reasons for hospital admissions, frequency and type of allied health interventions received. Result(s): 66 neonatal deaths were identified. 62 deaths occurred at GCUH, 2 elsewhere, and 2 at home. Of the 127 interventions carried out (excluding daily nursing staff) 72 were provided by acute service allied health professionals. Proportion of AH interventions included Social Work (85%), Physiotherapy (11%), Speech Pathology (3%), and Music Therapy (1%). Only 1 neonate was registered with QPPCS, however 20 received palliation. Full data will be presented. Conclusion(s): GCH requires a funded, appropriately resourced, interdisciplinary palliative care and bereavement service for neonates and children to ensure our families are provided with equitable access to evidence based, local services across the continuum of care (including in-the-home).
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/jpc.14409" target="_blank" rel="noreferrer noopener">10.1111/jpc.14409</a>
2019
Bereavement Support
Broadbent A
Cause Of Death
Child
Clinical Audit
conference abstract
Delaney A
Female
Gill K
gold
Herbert A
Hong T
Hospital Admission
Human
Journal of Paediatrics and Child Health
June 2019 List
Major Clinical Study
Male
Mickan S
Moloney S
Music Therapy
Newborn
Newborn Death
Noyes M
Nursing Staff
Palliative Therapy
Physiotherapy
Retrospective Study
Scuffham P
seashore
Social Work
Speech
Terminal Care
Weir K