1
40
86
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
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URL Address
<a href="http://doi.org/10.1016/j.pedn.2005.03.003" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.pedn.2005.03.003</a>
Dublin Core
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Title
A name given to the resource
A framework for integrated pediatric palliative care: being with dying
Publisher
An entity responsible for making the resource available
Journal Of Pediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Child; Female; Humans; Male; Palliative Care; patient care team; decision making; Parents; Cooperative Behavior; Goals; Nurse's Role; Pediatric Nursing; Interprofessional Relations; Conflict (Psychology); Holistic Health; Self Care; Self-Assessment; Benchmarking; Leukemia; Philosophy; Uncertainty; Myeloid; quality of life; PedPal Lit; Models; PEDI Study; Acute; Nursing; Organizational
Creator
An entity primarily responsible for making the resource
Rushton CH
Description
An account of the resource
Recent studies highlight the need for an integrated model for palliative and end-of-life pediatric care. About 55,000 children die each year in the United States and, on any given day, about 8,600 children could benefit from care that acknowledges their limited life expectancy and severity of illness. Two case studies of children illustrate different approaches-one that aggressively applies all possible technologies to maximize chances of survival and another that focuses on the patient's overall quality of life and on healing rather than curing. The cases highlight characteristics of an integrated model of palliative care to address clinical, moral, and ethical uncertainties. This model integrates being with doing, provides for developing attunement and presence as capacities for being with children and their parents, and addresses challenges in the healthcare environment. Strategies for integrating palliative care into pediatric practice include listening, fostering respect for the child and parents across the organization, nurturing collaborative connections, managing uncertainty, tolerating ambiguity, making peace with conflict, and committing to self-care. Every pediatric nurse can play a role in making the vision of palliative care a reality integrated into the fabric of pediatric practice.
2005-10
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.pedn.2005.03.003" target="_blank" rel="noreferrer">10.1016/j.pedn.2005.03.003</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Acute
Backlog
Benchmarking
Child
Conflict (Psychology)
Cooperative Behavior
Decision Making
Female
Goals
Holistic Health
Humans
Interprofessional Relations
Journal Article
Journal of Pediatric Nursing
Leukemia
Male
Models
Myeloid
Nurse's Role
Nursing
Organizational
Palliative Care
Parents
Patient Care Team
PEDI Study
Pediatric Nursing
PedPal Lit
Philosophy
Quality Of Life
Rushton CH
Self Care
Self-Assessment
Uncertainty
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1945-1474.2008.tb01137.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1945-1474.2008.tb01137.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A home for medically complex children: the role of hospital programs
Publisher
An entity responsible for making the resource available
Journal For Healthcare Quality
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Humans; home care services; Health Services Needs and Demand; Continuity of Patient Care; Models; Organizational; Disease Management; Hospitalized; Hospital-Based
Creator
An entity primarily responsible for making the resource
Cohen E; Friedman J; Nicholas DB; Adams S; Rosenbaum P
Description
An account of the resource
The medical home is a conceptual model of continuous and comprehensive care provision that is associated with improved outcomes for children with special healthcare needs. Most applications of the medical home have focused on improving primary care services. Despite concerted efforts to apply the medical home concept to the care of children with special healthcare needs, many barriers to its implementation still exist, in particular, for the subset of children with special healthcare needs who are medically complex. Applying the medical home concept to hospital-based care coordination may benefit both children with complex conditions and their families, as well as the community-based providers.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1945-1474.2008.tb01137.x" target="_blank" rel="noreferrer">10.1111/j.1945-1474.2008.tb01137.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adams S
Backlog
Child
Cohen E
Continuity Of Patient Care
Disease Management
Friedman J
Health Services Needs And Demand
home care services
Hospital-Based
Hospitalized
Humans
Journal Article
Journal For Healthcare Quality
Models
Nicholas DB
Organizational
Rosenbaum P
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1053/jpdn.2002.126711" target="_blank" rel="noreferrer">http://doi.org/10.1053/jpdn.2002.126711</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A model for transition from pediatric to adult care in cystic fibrosis
Publisher
An entity responsible for making the resource available
Journal Of Pediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Female; Humans; Male; Adult; adolescent; Models; Adolescent Transitions; Cystic Fibrosis/therapy; PST - ppublish; Organizational; London; Continuity of Patient Care; Disease Management; AID - S0882596302000167 [pii]; CRDT- 2002/09/10 10:00; EDAT- 2002/09/10 10:00; MHDA- 2002/10/22 04:00
Creator
An entity primarily responsible for making the resource
Madge S; Bryon M
Description
An account of the resource
With improved medical technology, many chronic medical conditions of childhood are now recognized as conditions of childhood onset. Appropriate treatment of these conditions in the adult patient is required. The pediatric setting is not appropriate in terms of philosophy, service delivery, and relationship with the patient. To design a suitable transition protocol, a survey of teenage patients with cystic fibrosis was carried out and the process was discussed with the relevant clinicians. The results of the survey indicated that young people identified transition to an adult service as necessary and accepted, provided that good preparation is given from the pediatric setting. This article provides a detailed example of a model of transition for cystic fibrosis services to encourage practice and evaluation of provision.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1053/jpdn.2002.126711" target="_blank" rel="noreferrer">10.1053/jpdn.2002.126711</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Adolescent
Adolescent Transitions
Adult
AID - S0882596302000167 [pii]
Backlog
Bryon M
Continuity Of Patient Care
CRDT- 2002/09/10 10:00
Cystic Fibrosis/therapy
Disease Management
EDAT- 2002/09/10 10:00
Female
Humans
Journal Article
Journal of Pediatric Nursing
London
Madge S
Male
MHDA- 2002/10/22 04:00
Models
Organizational
PST - ppublish
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1038/sj.jp.7211358" target="_blank" rel="noreferrer">http://doi.org/10.1038/sj.jp.7211358</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A paradigm of integrative care: healing with curing throughout life, "being with" and "doing to"
Publisher
An entity responsible for making the resource available
Journal Of Perinatology
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Child; Humans; Palliative Care; Pediatrics; Attitude of Health Personnel; Philosophy; Medical; Psychological; bereavement; Models
Creator
An entity primarily responsible for making the resource
Milstein J
Description
An account of the resource
We are presenting an integrative paradigm of care. We will review the basis for its evolution from prior series and parallel models. In this paradigm, healing and palliation (when indicated) are introduced in parallel with curative measures as soon as any diagnosis, especially a critical one, is made. Frequently palliative measures address patient symptoms, such as pain, anxiety, delirium, or depression, and are geared towards comfort care at the end of life. Our view of healing care is that it actively addresses the cognitive, emotional and spiritual needs of the patient and family, and includes the elements of palliative care as a complement. Because a loss is often experienced in many conditions, even in the absence of death, bereavement is represented in our model as an ongoing, continual process throughout a disease process. While we will be drawing mainly from experiences with children, the proposed model is applicable to all ages. In order to implement this model most effectively, it will be important to shift from our mindset of "doing to" to one that includes "being with" our patients and their families. The uniqueness of this paradigm, in contrast to other models, is its comprehensiveness and universality. It is appropriate for patients of any age, at any stage of their disease or illness, regardless of the severity or duration of their condition.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1038/sj.jp.7211358" target="_blank" rel="noreferrer">10.1038/sj.jp.7211358</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Attitude Of Health Personnel
Backlog
Bereavement
Child
Humans
Journal Article
Journal Of Perinatology
Medical
Milstein J
Models
Palliative Care
Pediatrics
Philosophy
Psychological
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/08836610701309724" target="_blank" rel="noreferrer">http://doi.org/10.1080/08836610701309724</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Adjustment to chronic pain: the role of pain acceptance, coping strategies, and pain-related cognitions
Publisher
An entity responsible for making the resource available
Annals Of Behavioral Medicine: A Publication Of The Society Of Behavioral Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Female; Humans; Male; Pain; Adult; Chronic disease; Aged; Middle Aged; Culture; Sick Role; Sex Factors; Activities of Daily Living; Depression; Internal-External Control; Psychometrics; Personality Inventory; Anxiety; Behavior Therapy; Adaptation; Psychological; Models; Statistical; Helplessness; Learned; Software; Mathematical Computing
Creator
An entity primarily responsible for making the resource
Esteve R; Ramírez-Maestre C; López-Marínez AE
Description
An account of the resource
BACKGROUND: Previous research has found that acceptance of pain is more successful than coping variables in predicting adjustment to pain. PURPOSE: To compare the influence of acceptance, pain-related cognitions and coping in adjustment to chronic pain. METHODS: One hundred seventeen chronic pain patients attending the Clinical Pain Unit were administered a battery of questionnaires assessing pain acceptance, active and passive coping, pain-related cognitions, and adjustment. RESULTS: The influence of acceptance, coping, and cognition on all the adjustment variables was considered simultaneously via Structural Equation Modeling using LISREL 8.30 software. A multigroup analysis showed that the male and female samples did not significantly differ regarding path coefficients. The final model showed that acceptance of pain determined functional status and functional impairment. However, coping measures had a significant influence on measures of emotional distress. Catastrophizing self-statements significantly influenced reported pain intensity and anxiety; resourcefulness beliefs had a negative and significant influence on depression. CONCLUSIONS: These findings suggest that acceptance may play a critical role in the maintenance of functioning and, with this aim, acceptance-based treatments are promising to avoid the development of disability. They also lend support to the role of control beliefs and of active coping to maintain a positive mood. Acceptance and coping are presented as complementary approaches.
2007-04
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/08836610701309724" target="_blank" rel="noreferrer">10.1080/08836610701309724</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Activities of Daily Living
Adaptation
Adult
Aged
Annals Of Behavioral Medicine: A Publication Of The Society Of Behavioral Medicine
anxiety
Backlog
Behavior Therapy
Chronic Disease
Culture
Depression
Esteve R
Female
Helplessness
Humans
Internal-External Control
Journal Article
Learned
López-Marínez AE
Male
Mathematical Computing
Middle Aged
Models
Pain
Personality Inventory
Psychological
Psychometrics
Ramírez-Maestre C
Sex Factors
Sick Role
Software
statistical
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=med4&AN=10558613" target="_blank" rel="noreferrer">http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=med4&AN=10558613</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Adolescent sibling bereavement as a catalyst for spiritual development: a model for understanding.
Publisher
An entity responsible for making the resource available
Death Studies
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Female; Humans; Male; Adolescent Psychology; Spirituality; Religion and Psychology; Sibling Relations; adolescent; Psychological; bereavement; Models; sibling bereavement; Interview; T
Creator
An entity primarily responsible for making the resource
Batten M; Oltjenbruns KA
Description
An account of the resource
While our understanding of adolescent bereavement has greatly expanded in recent years, one area yet to be clarified is the relationship between grief following a significant loss and spirituality. This article strengthens our understanding of this connection in two ways. First, the authors present a conceptual model explaining how developmental changes in cognitive capacity during the adolescent life stage make it possible to challenge one's beliefs and search for new meaning. The crisis of experiencing the death of a sibling during this period has the potential, then, of serving as a catalyst for enhanced spirituality--defined as a quest for new meaning. Secondly, interviews with four adolescents following the death of a sibling add more detailed understanding of that quest for meaning. Quotations drawn from these interviews illustrate these young persons' shifting perspective of self, others, the sibling relationship, a higher power, death, and life.
1999-09
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1999
Adolescent
Adolescent Psychology
Backlog
Batten M
Bereavement
Death studies
Female
Humans
Interview
Journal Article
Male
Models
Oltjenbruns KA
Psychological
Religion and Psychology
sibling bereavement
Sibling Relations
Spirituality
T
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2006.9.1310" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2006.9.1310</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Advanced illness index: Predictive modeling to stratify elders using self-report data
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Female; Humans; Male; Terminally Ill; Aged; Severity of Illness Index; Risk Assessment; Self Disclosure; Forecasting; 80 and over; Models; retrospective studies; Health Surveys; Theoretical
Creator
An entity primarily responsible for making the resource
Brody KK; Perrin NA; Dellapenna R
Description
An account of the resource
OBJECTIVES: Develop a prediction model to identify persons who have an increased risk of dying within the next 36 months, in order to focus additional resources and assessment in areas related to advanced care planning. DESIGN: Retrospective study with a 3-year observation period. SETTING: Integrated, not-for-profit managed care organization. Participants: Beneficiaries aged 65-105 responding to an annual survey (n = 4888). MEASUREMENTS: Survey instrument includes physical function, geriatric syndromes, health care utilization, special equipment use, self-care deficits, caregiving responsibilities, and general health problems. RESULTS: An 11-variable model changed the baseline chi2 from 315.71 (df = 1) to 742.511 (df = 11). The percent of subjects correctly classified was 74.3% and the negative predictive value was 92.2%. CONCLUSION: Advanced Illness Index (AII) model is stable. Characteristic variables used are not easily reversed: the 1997 cohort classified as at-risk consistently remained at risk or died in the subsequent years (1998, 92%; and 1999, 96%) and 92% of those not at-risk survived the next 36 months. Persons at high risk should at a minimum be made aware of the types of integrated home and community-based services available to them should it be needed. They also should be targeted for elicitation of treatment preferences, values, designation of health care proxy, planning, and advanced care directives.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2006.9.1310" target="_blank" rel="noreferrer">10.1089/jpm.2006.9.1310</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
80 And Over
Aged
Backlog
Brody KK
Dellapenna R
Female
Forecasting
Health Surveys
Humans
Journal Article
Journal of Palliative Medicine
Male
Models
Perrin NA
Retrospective Studies
Risk Assessment
Self Disclosure
Severity Of Illness Index
Terminally Ill
Theoretical
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=1282659" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=1282659</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
AIDS palliative care demands a new model
Publisher
An entity responsible for making the resource available
Medical Journal Of Australia
Date
A point or period of time associated with an event in the lifecycle of the resource
1992
Subject
The topic of the resource
Models; Human; Theoretical; Palliative Care; Terminal Care; Acquired Immunodeficiency Syndrome/therapy
Creator
An entity primarily responsible for making the resource
Malcolm JA; Sutherland DC
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1992
1992
Acquired Immunodeficiency Syndrome/therapy
Backlog
Human
Journal Article
Malcolm JA
Medical Journal Of Australia
Models
Palliative Care
Sutherland DC
Terminal Care
Theoretical
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=3511081" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=3511081</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
An alternative in terminal care: results of the National Hospice Study
Publisher
An entity responsible for making the resource available
Journal Of Chronic Diseases
Date
A point or period of time associated with an event in the lifecycle of the resource
1986
Subject
The topic of the resource
Female; Hospitalization; Male; United States; Adult; Aged; Health Services Research; Cancer Care Facilities; Outcome and Process Assessment (Health Care); quality of life; Non-U.S. Gov't; U.S. Gov't; Comparative Study; Models; Costs and Cost Analysis; Health; Insurance; Medicare/economics; Human; Theoretical; Support; Middle Age; home care services; Non-P.H.S.; Neoplasms/physiopathology/psychology/therapy; Hospices/classification/economics/organization & administration; Terminal Care/economics/organization & administration; Pain/epidemiology; Reimbursement/economics
Creator
An entity primarily responsible for making the resource
Greer DS; Mor V; Morris JN; Sherwood S; Kidder D; Birnbaum H
Description
An account of the resource
Hospice is a program of supportive services for terminally ill patients and their families, provided either at home or in designated inpatient settings, which is purported to improve patient and family quality of life at lower cost than conventional terminal care. The National Hospice Study was a multi-site, quasi-experimental study to compare the experiences of terminal cancer patients and their families in hospices with those of similar patients and families receiving conventional terminal care. The results indicate that, although care is different in hospices, e.g. lesser utilization of aggressive interventional therapy and diagnostic testing, patients' quality of life is similar in the hospice and conventional care systems with the exception of pain and symptom control, which may be better in the inpatient hospice setting. Hospice patients are more likely to die at home and their families are satisfied with that outcome. Otherwise, no consistent superiority of family outcome was associated with the hospice approach. The cost of hospice care is less than that of conventional terminal care for patients in hospices without inpatient facilities, but the cost of hospice appears to be equivalent to conventional care for patients in hospices having beds.
1986
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1986
Adult
Aged
Backlog
Birnbaum H
Cancer Care Facilities
Comparative Study
Costs And Cost Analysis
Female
Greer DS
Health
Health Services Research
home care services
Hospices/classification/economics/organization & administration
Hospitalization
Human
Insurance
Journal Article
Journal Of Chronic Diseases
Kidder D
Male
Medicare/economics
Middle Age
Models
Mor V
Morris JN
Neoplasms/physiopathology/psychology/therapy
Non-P.H.S.
Non-U.S. Gov't
Outcome And Process Assessment (health Care)
Pain/epidemiology
Quality Of Life
Reimbursement/economics
Sherwood S
Support
Terminal Care/economics/organization & administration
Theoretical
U.S. Gov't
United States
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
April 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2020 List
URL Address
<a href="http://doi.org/10.1037/tra0000499" target="_blank" rel="noreferrer noopener">http://doi.org/10.1037/tra0000499</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Attachment to God as a Mediator of the Relationship Between Religious Affiliation and Adjustment to Child Loss
Publisher
An entity responsible for making the resource available
Psychological Trauma: Theory, Research, Practice & Policy
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
Adaptation; Attachment Behavior – Evaluation – In Middle Age; Child Mortality – Psychosocial Factors; Female; Grief – Evaluation; Human; Male; Middle Age; Models; Parental Attitudes; Psychological; Psychological – Evaluation – In Middle Age; Psychotherapy; Questionnaires; Religion and Psychology – Evaluation – In Middle Age
Creator
An entity primarily responsible for making the resource
Frei-Landau R; Tuval-Mashiach R; Silberg T; Hasson-Ohayon I
Description
An account of the resource
Objectives: The loss of a child is a traumatic life event. While bereavement research has examined the roles of both interpersonal attachment and religiosity in coping with loss, only a handful of studies have addressed the concept of attachment to God (ATG). The current study examined ATG's role as a mediator in the relationship between religious affiliation (RA) and adjustment to child loss. Method: Seventy-seven bereaved parents (68% women; average age, 55 years) were administrated questionnaires referring to RA, ATG, and adjustment to loss (Two-Track Bereavement Questionnaire-TTBQ\_{7}{0}{)}. Results: The hypothesized mediation model was confirmed. Conclusions: The findings highlight the need to examine internal religion-related variables, such as ATG, while addressing religion and loss. From a clinical perspective, the findings may help therapists implement culturally sensitive practice as a part of spiritually informed psychotherapy. Enhancing therapists' familiarity with the client's internal constructs will enable a better evaluation and accommodation of therapy when working with bereaved parents. Clinical Impact Statement: Internal religion-related variables, such as Attachment to God, are important while addressing religion in the context of loss. Attachment to God orientations mediate the effects of religious affiliation on the grief process. Therapists should implement culturally sensitive practice as a part of spiritually informed psychotherapy.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1037/tra0000499" target="_blank" rel="noreferrer noopener">10.1037/tra0000499</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Adaptation
April 2020 List
Attachment Behavior – Evaluation – In Middle Age
Child Mortality – Psychosocial Factors
Female
Frei-Landau R
Grief – Evaluation
Hasson-Ohayon I
Human
Male
Middle Age
Models
Parental Attitudes
Psychological
Psychological – Evaluation – In Middle Age
Psychological Trauma: Theory, Research, Practice & Policy
Psychotherapy
Questionnaires
Religion and Psychology – Evaluation – In Middle Age
Silberg T
Tuval-Mashiach R
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1530-0277.2010.01182.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1530-0277.2010.01182.x</a>
<a href="http://search.ebscohost.com/login.aspx?direct=true&db=mnh&AN=20384608&site=ehost-live&scope=site" target="_blank" rel="noreferrer">http://search.ebscohost.com/login.aspx?direct=true&db=mnh&AN=20384608&site=ehost-live&scope=site</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Beta-endorphin mediates behavioral despair and the effect of ethanol on the tail suspension test in mice.
Publisher
An entity responsible for making the resource available
Alcoholism, Clinical And Experimental Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Female; Male; Behavior; Animals; Mice; Stress; Adaptation; Models; Sex Characteristics; Animal; Psychological/physiology; Animal/physiology; beta-Endorphin/physiology; beta-Endorphin/genetics; Central Nervous System Depressants/pharmacology; Depression/physiopathology; Ethanol/pharmacology; Hindlimb Suspension/psychology; Psychological/physiopathology; Psychological/psychology; Transgenic
Creator
An entity primarily responsible for making the resource
Barfield ET; Barry SM; Hodgin HB; Thompson BM; Allen SS; Grisel JE
Description
An account of the resource
Background: The opioid peptide beta-endorphin (beta-E) is synthesized and released in response to stressful stimuli as well as acute alcohol administration. The release of beta-E following exposure to an inescapable aversive situation may mediate behaviors that contribute to allostasis of the stress response. The present study examines the effects of beta-E on immobility in assays involving inescapable stress, both under basal conditions and after acute administration of EtOH.; Methods: Female and male transgenic mice with varying capacities to translate beta-E were subjected to either the forced swim (FST, Experiment 1) or the tail suspension test (TST, Experiment 2). In Experiment 3, mice were divided into three groups based on hormonal status (male, female-estrous, and female-nonestrous) and injected with either 1 g/kg EtOH or equivolume saline 14 minutes prior to behavioral assessment on the TST.; Results: Experiments 1 and 2 demonstrated a direct relationship between beta-E levels and immobility. There were also sex differences in behavior in these tests, with males displaying more immobility than females. A main effect of genotype in Experiment 3 replicated findings in Experiments 1 and 2. There was also an effect of EtOH (increasing immobility) and a significant interaction reflecting a particularly robust effect of the drug in mice with low beta-E. In addition, there were interactions between beta-E, EtOH effects, and hormonal status.; Conclusions: These findings support the contention that beta-E moderates behavioral responses to stressful stimuli and suggest a role for this peptide in coping behavior. Furthermore, the effects of EtOH on the response to stress may be mediated by beta-E. Sex differences in this influence may contribute to sex differences in disease susceptibility and expression.;
2010-06
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1530-0277.2010.01182.x" target="_blank" rel="noreferrer">10.1111/j.1530-0277.2010.01182.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Adaptation
Alcoholism, Clinical And Experimental Research
Allen SS
Animal
Animal/physiology
Animals
Backlog
Barfield ET
Barry SM
Behavior
beta-Endorphin/genetics
beta-Endorphin/physiology
Central Nervous System Depressants/pharmacology
Depression/physiopathology
Ethanol/pharmacology
Female
Grisel JE
Hindlimb Suspension/psychology
Hodgin HB
Journal Article
Male
Mice
Models
Psychological/physiology
Psychological/physiopathology
Psychological/psychology
Sex Characteristics
Stress
Thompson BM
Transgenic
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16518951" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16518951</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
CAMHS liaison: supporting care in general paediatric settings
Publisher
An entity responsible for making the resource available
Paediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; England; Education; Questionnaires; Nurse's Role; Interprofessional Relations; Organizational Objectives; Hospitals; Nursing Methodology Research; Nursing Evaluation Research; Pediatric; adolescent; PedPal Lit; Models; social support; Nursing; Adolescent Psychiatry; Child Psychiatry; Attitude of Health Personnel; Total Quality Management/organization & administration; Consultants/psychology; Continuing/organization & administration; Continuity of Patient Care/organization & administration; Nurse Clinicians/organization & administration/psychology; Nursing Staff/education/psychology; Pediatric Nursing/education/organization & administration; Psychiatric Nursing/education/organization & administration
Creator
An entity primarily responsible for making the resource
Watson E
Description
An account of the resource
Increasing numbers of children and young people with mental health problems are being cared for in general paediatric settings, presenting a challenge to nurses who do not have mental health nursing qualification and experience. A survey of nurses in a children's hospital identified their concerns and attitudes to caring for this client group. On-call nursing support was felt by almost all nurses (87 per cent, n=90) to be the most beneficial aspect of a liaison service, followed by teaching (84 per cent) and individual support with the young person/family (84 per cent). Based on the findings, a project was initiated to improve nursing liaison with CAMHS nurses providing support and advice to general children's nurses. Effective liaison between general paediatric wards and child and adolescent mental health services (CAMHS) can improve care for children and young people with diagnosed mental health problems. However, there is still a gap in addressing the need of the significant numbers of children with physical illness who also have mental health needs.
2006
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Adolescent Psychiatry
Attitude Of Health Personnel
Backlog
Child
Child Psychiatry
Consultants/psychology
Continuing/organization & administration
Continuity Of Patient Care/organization & Administration
Education
England
Hospitals
Humans
Interprofessional Relations
Journal Article
Models
Nurse Clinicians/organization & administration/psychology
Nurse's Role
Nursing
Nursing Evaluation Research
Nursing Methodology Research
Nursing Staff/education/psychology
Organizational Objectives
Paediatric Nursing
Pediatric
Pediatric Nursing/education/organization & administration
PedPal Lit
Psychiatric Nursing/education/organization & administration
Questionnaires
Social Support
Total Quality Management/organization & administration
Watson E
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1471-2431-4-1" target="_blank" rel="noreferrer">http://doi.org/10.1186/1471-2431-4-1</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Caregiving process and caregiver burden: conceptual models to guide research and practice.
Publisher
An entity responsible for making the resource available
Bmc Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Humans; Longitudinal Studies; Non-U.S. Gov't; Research Support; Adaptation; Psychological; Caregivers/psychology; Models; Parents/psychology; Psychological; Stress; disabled children
Creator
An entity primarily responsible for making the resource
Raina P; O'Donnell ME; Schwellnus H; Rosenbaum P; King G; Brehaut J; Russell D; Swinton M; King S; Wong M; Walter SD; Wood E
Description
An account of the resource
BACKGROUND: Parental care for a child with a developmental disability is an enormous responsibility, one that can far exceed that of typical parental care. While most parents adapt well to the situation of caring for a child with a disability, some do not. To understand parents' adaptations to their children's disabilities, the complex nature of stress processes must be accounted for and the constructs and factors that play a role in the caregiving must be considered. DISCUSSION: Evidence suggests that there is considerable variation in how caregivers adapt to their caregiving demands. Many studies have sought to qualify the association between caregiving and health outcomes of the caregivers. Contextual factors such as SES, child factors such as child behaviour problems and severity of disability, intra-psychic factors such as mastery and self-esteem, coping strategies and social supports have all been associated with psychological and/or physical outcome or parents or primary caregivers. In reviewing these issues, the literature appears to be limited by the use of traditional analytic approaches which examine the relationship between a factor and an outcome. It is clear, however, that changes to single factors, as represented in these studies, occur very rarely even in the experimental context. The literature has also been limited by lack of reliance on specific theoretical frameworks. SUMMARY: This conceptual paper documents the state of current knowledge and explores the current theoretical frameworks that have been used to describe the caregiving process from two diverse fields, pediatrics and geriatrics. Integration of these models into one comprehensive model suitable for this population of children with disabilities and their caregivers is proposed. This model may guide future research in this area.
2004-01
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1471-2431-4-1" target="_blank" rel="noreferrer">10.1186/1471-2431-4-1</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adaptation
Backlog
Bmc Pediatrics
Brehaut J
Caregivers/psychology
Child
Disabled Children
Humans
Journal Article
King G
King S
Longitudinal Studies
Models
Non-U.S. Gov't
O'Donnell ME
Parents/psychology
Psychological
Raina P
Research Support
Rosenbaum P
Russell D
Schwellnus H
Stress
Swinton M
Walter SD
Wong M
Wood E
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1545-5300.1986.00337.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1545-5300.1986.00337.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Circumplex Model VII: Validation studies and FACES III.
Publisher
An entity responsible for making the resource available
Family Process
Date
A point or period of time associated with an event in the lifecycle of the resource
1986
Subject
The topic of the resource
Humans; Family; Communication; Longitudinal Studies; Cultural Characteristics; Research; Adaptation; Psychological; Models; Psychological Tests; Marriage
Creator
An entity primarily responsible for making the resource
Olson DH
Description
An account of the resource
This paper reviews some of the recent empirical studies validating the Circumplex Model and describes the newly developed self-report measure, FACES III. Studies testing hypotheses derived from the Circumplex Model regarding the three dimensions of cohesion, change, and communication are reviewed. Case illustrations using FACES III and the Clinical Rating Scale are presented. These two assessment tools can be used for making a diagnosis of family functioning and for assessing changes over the course of treatment. This paper reflects the continuing attempt to develop further the Circumplex Model and to bridge more adequately research, theory, and practice.
1986
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1545-5300.1986.00337.x" target="_blank" rel="noreferrer">10.1111/j.1545-5300.1986.00337.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1986
Adaptation
Backlog
Communication
Cultural Characteristics
Family
Family Process
Humans
Journal Article
Longitudinal Studies
Marriage
Models
Olson DH
Psychological
Psychological Tests
Research
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.ymgme.2007.09.011" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.ymgme.2007.09.011</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Clinical and genetic spectrum of Sanfilippo type C (MPS IIIC) disease in The Netherlands
Publisher
An entity responsible for making the resource available
Molecular Genetics And Metabolism
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Middle Aged; Mutation; Netherlands; Phenotype; adolescent; Preschool; infant; Models; Q3 Literature Search; Age of Onset; DNA Mutational Analysis; Acetyltransferases/chemistry/deficiency/genetics; DNA/genetics; Genotype; Missense; Molecular; Mucopolysaccharidosis III/classification/enzymology/genetics/physiopathology
Creator
An entity primarily responsible for making the resource
Ruijter GJ; Valstar MJ; van de Kamp JM; van der Helm RM; Durand S; van Diggelen OP; Wevers RA; Poorthuis BJ; Pshezhetsky AV; Wijburg FA
Description
An account of the resource
Mucopolysaccharidosis IIIC (MPS IIIC, Sanfilippo C syndrome) is a lysosomal storage disorder caused by deficiency of the lysosomal enzyme acetyl-CoA:alpha-glucosaminide N-acetyltransferase (HGSNAT). We performed a clinical study on 29 Dutch MPS IIIC patients and determined causative mutations in the recently identified HGSNAT gene. Psychomotor development was reported to be normal in all patients during the first year of life. First clinical signs were usually noted between 1 and 6 years (mean 3.5 years), and consisted of delayed psychomotor development and behavioral problems. Other symptoms included sleeping and hearing problems, recurrent infections, diarrhoea and epilepsy. Two sisters had attenuated disease and did not have symptoms until the third decade. Mean age of death was 34 years (range 25-48). Molecular analysis revealed mutations in both alleles for all patients except one. Altogether 14 different mutations were found: two splice site mutations, one frame shift mutation due to an insertion, three nonsense mutations and eight missense mutations. Two mutations, p.R344C and p.S518F, were frequent among probands of Dutch origin representing 22.0% and 29.3%, respectively, of the mutant alleles. This study demonstrates that MPS IIIC has a milder course than previously reported and that both severity and clinical course are highly variable even between sibs, complicating prediction of the clinical phenotype for individual patients. A clear phenotype-genotype correlation could not be established, except that the mutations p.G262R and p.S539C were only found in two sisters with late-onset disease and presumably convey a mild phenotype.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.ymgme.2007.09.011" target="_blank" rel="noreferrer">10.1016/j.ymgme.2007.09.011</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Acetyltransferases/chemistry/deficiency/genetics
Adolescent
Adult
Age of Onset
Backlog
Child
DNA Mutational Analysis
DNA/genetics
Durand S
Female
Genotype
Humans
Infant
Journal Article
Male
Middle Aged
Missense
Models
Molecular
Molecular Genetics and Metabolism
Mucopolysaccharidosis III/classification/enzymology/genetics/physiopathology
Mutation
Netherlands
Phenotype
Poorthuis BJ
Preschool
Pshezhetsky AV
Q3 Scoping Review Results
Ruijter GJ
Valstar MJ
van de Kamp JM
van der Helm RM
van Diggelen OP
Wevers RA
Wijburg FA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0895-4356(96)00429-5" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0895-4356(96)00429-5</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Combining single patient (N-of-1) trials to estimate population treatment effects and to evaluate individual patient responses to treatment
Publisher
An entity responsible for making the resource available
Journal Of Clinical Epidemiology
Date
A point or period of time associated with an event in the lifecycle of the resource
1997
Subject
The topic of the resource
Humans; Outcome Assessment (Health Care); Research Design; Antidepressive Agents; Cross-Over Studies; Models; Statistical; Chronic disease; Amitriptyline/therapeutic use; Bayes Theorem; Fibromyalgia/drug therapy; Randomized Controlled Trials as Topic/statistics & numerical data; Tricyclic
Creator
An entity primarily responsible for making the resource
Zucker DR; Schmid CH; McIntosh MW; D'Agostino RB; Selker HP; Lau J
Description
An account of the resource
When treating individual patients, physicians may face difficulties using the evidence from center-based randomized control trials (RCTs) due to limitations in these studies generalizability. Therefore, they often perform their own "informal" tests of treatment effectiveness. Single patient ("N-of-1") trials provide a structured design for more rigorous assessment of medical treatments of chronic diseases, but are applied only to the index patient. We present a hierarchical Bayesian random effects model to combine N-of-1 studies to obtain an estimate of treatment effectiveness for the population and to use this population information to aid in the evaluation of an individual patient's trial results. The model's treatment effect estimates are adjustments between the population estimate and the individual's observed results. This adjustment is based upon the within-patient and between-patient heterogeneity. We demonstrate this patient-focused method using published data from 23 N-of-1 trial results comparing amitriptyline and placebo for the treatment of fibromyalgia.
1997
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0895-4356(96)00429-5" target="_blank" rel="noreferrer">10.1016/s0895-4356(96)00429-5</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1997
Amitriptyline/therapeutic use
Antidepressive Agents
Backlog
Bayes Theorem
Chronic Disease
Cross-Over Studies
D'Agostino RB
Fibromyalgia/drug therapy
Humans
Journal Article
Journal Of Clinical Epidemiology
Lau J
McIntosh MW
Models
Outcome Assessment (health Care)
Randomized Controlled Trials as Topic/statistics & numerical data
Research Design
Schmid CH
Selker HP
statistical
Tricyclic
Zucker DR
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/jpepsy/jsj032" target="_blank" rel="noreferrer">http://doi.org/10.1093/jpepsy/jsj032</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Constructing a prospective model of psychosocial adaptation in young adolescents with spina bifida: an application of optimal data analysis
Publisher
An entity responsible for making the resource available
Journal of Pediatric Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Female; Humans; Male; Prospective Studies; Self Concept; Longitudinal Studies; Sick Role; Social Adjustment; Conflict (Psychology); Motivation; Body Image; Stress; adolescent; Adaptation; Psychological; Models; Family/psychology; Statistical; Adolescent Transitions; Parents/psychology; Psychological/complications; Social Behavior; Educational Status; Individuation; Intelligence; Spinal Dysraphism/psychology
Creator
An entity primarily responsible for making the resource
Coakley RM; Holmbeck GN; Bryant FB
Description
An account of the resource
OBJECTIVE: To examine how individual- and family-level predictors in late childhood and preadolescence relate to psychosocial adaptation (i.e., scholastic success, social acceptance, and positive self-worth) in early adolescence. METHOD: This prospective longitudinal study includes 68 families of children with spina bifida and 68 comparison families of healthy children. Multimethod, multiinformant data were evaluated via optimal data analysis (ODA) and classification tree analysis (CTA) techniques. RESULTS: Factors best predicting psychosocial adaptation in early adolescence included (a) intrinsic motivation, (b) estimated verbal IQ, (c) behavioral conduct, (d) coping style, and (e) physical appearance. There were no significant group (spina bifida vs. able-bodied) effects. CONCLUSIONS: The final classification model correctly classified 77.8% of the total sample, indicating that this model had significant predictive capabilities. Results suggested that processes leading to psychosocial adaptation may be similar for youth with and without chronic illness.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/jpepsy/jsj032" target="_blank" rel="noreferrer">10.1093/jpepsy/jsj032</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adaptation
Adolescent
Adolescent Transitions
Backlog
Body Image
Bryant FB
Child
Coakley RM
Conflict (Psychology)
Educational Status
Family/psychology
Female
Holmbeck GN
Humans
Individuation
Intelligence
Journal Article
Journal of Pediatric Psychology
Longitudinal Studies
Male
Models
Motivation
Parents/psychology
Prospective Studies
Psychological
Psychological/complications
Self Concept
Sick Role
Social Adjustment
Social Behavior
Spinal Dysraphism/psychology
statistical
Stress
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1176/ajp.129.2.196" target="_blank" rel="noreferrer">http://doi.org/10.1176/ajp.129.2.196</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Continuity of care: an approach to measurement
Publisher
An entity responsible for making the resource available
The American Journal Of Psychiatry
Date
A point or period of time associated with an event in the lifecycle of the resource
1972
Subject
The topic of the resource
Hospitalization; Humans; Questionnaires; Follow-Up Studies; Prospective Studies; Communication; Psychotherapy; Comprehensive Health Care; Medical Records; Ambulatory Care; Models; referral and consultation; Theoretical; Community Mental Health Services; Evaluation Studies as Topic; Community Psychiatry; Day Care; Mental Disorders/therapy; Transfer Agreement
Creator
An entity primarily responsible for making the resource
Bass RD; Windle C
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1176/ajp.129.2.196" target="_blank" rel="noreferrer">10.1176/ajp.129.2.196</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1972
1972
Ambulatory Care
Backlog
Bass RD
Communication
Community Mental Health Services
Community Psychiatry
Comprehensive Health Care
Day Care
Evaluation Studies as Topic
Follow-up Studies
Hospitalization
Humans
Journal Article
Medical Records
Mental Disorders/therapy
Models
Prospective Studies
Psychotherapy
Questionnaires
Referral And Consultation
The American Journal Of Psychiatry
Theoretical
Transfer Agreement
Windle C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1207/s15324796abm2404_09" target="_blank" rel="noreferrer">http://doi.org/10.1207/s15324796abm2404_09</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Contrasting emotional approach coping with passive coping for chronic myofascial pain
Publisher
An entity responsible for making the resource available
Annals Of Behavioral Medicine: A Publication Of The Society Of Behavioral Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Female; Humans; Male; Adult; Emotions; Pennsylvania; Chronic disease; Aged; Middle Aged; Socioeconomic Factors; Sex Factors; Multivariate Analysis; Activities of Daily Living; Affect; Depression; Reproducibility of Results; Regression Analysis; 80 and over; Adaptation; Psychological; Models; Facial Pain
Creator
An entity primarily responsible for making the resource
Smith JA; Lumley Mark A; Longo DJ
Description
An account of the resource
Passive or emotion-focused coping strategies are typically related to worse pain and adjustment among chronic pain patients. Emotional approach coping (EAC), however, is a type of emotion-focused coping that appears to be adaptive in some nonpain populations but has not yet been examined in a chronic pain population. In a sample of 80 patients (75% women, M = 48.67 years of age) with chronic myofascial pain, we contrasted how EAC (assessed with the Emotional Approach Coping Scale) and 5 passive pain-coping strategies (assessed with the Vanderbilt Multidimensional Pain Coping Inventory (VMPCI)) were related to sensory and affective pain, physical impairment, and depression. Passive coping strategies were positively correlated with one another, but EAC was inversely correlated with most of them. The VMPCI passive strategies were substantially positively related to negative affect, whereas EAC was inversely related to negative affect. Controlling for potentially confounding demographics, higher EAC was related to less affective pain and depression, even after controlling for negative affect. Using passive coping strategies, in contrast, was associated with more pain, impairment, and depression, although these relations were greatly attenuated after controlling for negative affect. When considered simultaneously, EAC, but not passive coping, was related to affective pain, and both EAC and passive coping were significant correlates of depression, although in opposite directions. In secondary analyses, we found that EAC was related to less pain (particularly sensory) among men and to less depression among women. Unlike the use of passive pain-coping strategies, which are associated with worse pain and adjustment, the use of EAC (emotional processing and emotional expression) with chronic pain is associated with less pain and depression. This suggests that some emotion-focused types of pain coping may be adaptive, and it highlights the need to assess emotional coping processes that are not confounded with distress or dysfunction.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1207/s15324796abm2404_09" target="_blank" rel="noreferrer">10.1207/s15324796abm2404_09</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
80 And Over
Activities of Daily Living
Adaptation
Adult
Affect
Aged
Annals Of Behavioral Medicine: A Publication Of The Society Of Behavioral Medicine
Backlog
Chronic Disease
Depression
Emotions
Facial Pain
Female
Humans
Journal Article
Longo DJ
Lumley Mark A
Male
Middle Aged
Models
Multivariate Analysis
Pennsylvania
Psychological
Regression Analysis
Reproducibility of Results
Sex Factors
Smith JA
Socioeconomic Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/jme.2003.007153" target="_blank" rel="noreferrer">http://doi.org/10.1136/jme.2003.007153</a>
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Title
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Coordinating the norms and values of medical research, medical practice and patient worlds-the ethics of evidence based medicine in orphaned fields of medicine
Publisher
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Journal Of Medical Ethics
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Delivery of Health Care; Humans; Personal Autonomy; Attitude to Health; Clinical Competence; Ethics; Medical; Analytical Approach; Models; Theoretical; Health Care and Public Health; Social Responsibility; Allied Health Occupations/ethics; Cognitive Therapy/ethics; Evidence-Based Medicine/ethics; Integrated/ethics; Interprofessional Relations/ethics; Logic; Patient Care Team/ethics; Physical Therapy Modalities/ethics; Social Justice/ethics
Creator
An entity primarily responsible for making the resource
Vos R; Willems D; Houtepen R
Description
An account of the resource
Evidence based medicine is rightly at the core of current medicine. If patients and society put trust in medical professional competency, and on the basis of that competency delegate all kinds of responsibilities to the medical profession, medical professionals had better make sure their competency is state of the art medical science. What goes for the ethics of clinical trials goes for the ethics of medicine as a whole: anything that is scientifically doubtful is, other things being equal, ethically unacceptable. This particularly applies to so called orphaned fields of medicine, those areas where medical research is weak and diverse, where financial incentives are lacking, and where the evidence regarding the aetiology and treatment of disease is much less clear than in laboratory and hospital based medicine. Examples of such orphaned fields are physiotherapy, psychotherapy, medical psychology, and occupational health, which investigate complex syndromes such as RSI, whiplash, chronic low back pain, and chronic fatigue syndrome. It appears that the primary ethical problem in this context is the lack of attention to the orphaned fields. Although we agree that this issue deserves more attention as a matter of potential injustice, we want to argue that, in order to do justice to the interplay of heterogeneous factors that is so typical of the orphaned fields, other ethical models than justice are required. We propose the coordination model as a window through which to view the important ethical issues which relate to the communication and interaction of scientists, health care workers, and patients.
2004
Identifier
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<a href="http://doi.org/10.1136/jme.2003.007153" target="_blank" rel="noreferrer">10.1136/jme.2003.007153</a>
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Type
The nature or genre of the resource
Journal Article
2004
Allied Health Occupations/ethics
Analytical Approach
Attitude To Health
Backlog
Clinical Competence
Cognitive Therapy/ethics
Delivery of Health Care
Ethics
Evidence-Based Medicine/ethics
Health Care and Public Health
Houtepen R
Humans
Integrated/ethics
Interprofessional Relations/ethics
Journal Article
Journal of Medical Ethics
Logic
Medical
Models
Patient Care Team/ethics
Personal Autonomy
Physical Therapy Modalities/ethics
Social Justice/ethics
Social Responsibility
Theoretical
Vos R
Willems D
-
Text
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Backlog
URL Address
<a href="http://doi.org/10.1016/j.ijnurstu.2004.06.009" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.ijnurstu.2004.06.009</a>
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Title
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Coping with chronic pain
Publisher
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International Journal Of Nursing Studies
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Female; Humans; Male; Pain; Adult; Attitude to Health; Emotions; Questionnaires; Chronic disease; Aged; Middle Aged; Self Concept; social support; Nurse's Role; Problem Solving; Multivariate Analysis; Depression; Nursing Methodology Research; Predictive Value of Tests; Regression Analysis; Stress; Adaptation; Psychological; Models; Psychiatric Status Rating Scales; Norway
Creator
An entity primarily responsible for making the resource
Dysvik Elin; Natvig GK; Eikeland Ole-Johan; Lindstrøm TC
Description
An account of the resource
Many models of pain give coping an important role in understanding adaptation to chronic pain. Among these, Lazarus and Folkman's cognitive-phenomenological model of stress and coping provides a theoretical framework to conceptualise stress phenomena and coping strategies related to chronic pain. Chronic pain often necessitates new coping skills. An understanding of the concept of coping and how the patients cope is therefore crucial for the success of rehabilitation. The current study examined how coping, as measured by the Ways of Coping Checklist, was related to medical variables, depression measured by the Short Zung depression rating scale, and Rosenberg's self-esteem scale. The study sample consisted of 88 people who were recruited for a multidisciplinary pain management programme. Data were collected as part of a routine pre-treatment evaluation. Results indicated that the most predominant stressors were related to family life and social activities. We also recognised on the one hand, appraising pain as a challenge was predictive of problem-focused coping, while on the other hand, appraising pain as a threat, experiencing depression, and reduced self-esteem were predictive of emotion-focused coping. Clinical implications of these results in nursing are discussed.
2005-03
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.ijnurstu.2004.06.009" target="_blank" rel="noreferrer">10.1016/j.ijnurstu.2004.06.009</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adaptation
Adult
Aged
Attitude To Health
Backlog
Chronic Disease
Depression
Dysvik Elin
Eikeland Ole-Johan
Emotions
Female
Humans
International Journal Of Nursing Studies
Journal Article
Lindstrøm TC
Male
Middle Aged
Models
Multivariate Analysis
Natvig GK
Norway
Nurse's Role
Nursing Methodology Research
Pain
Predictive Value of Tests
Problem Solving
Psychiatric Status Rating Scales
Psychological
Questionnaires
Regression Analysis
Self Concept
Social Support
Stress
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1370/afm.104" target="_blank" rel="noreferrer">http://doi.org/10.1370/afm.104</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Designing a mixed methods study in primary care
Publisher
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Annals Of Family Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; Qualitative Research; Research Design; Primary Health Care; Models; Multi-site Ethics; Theoretical; Health Services Research/methods
Creator
An entity primarily responsible for making the resource
Creswell JW; Fetters MD; Ivankova NV
Description
An account of the resource
BACKGROUND: Mixed methods or multimethod research holds potential for rigorous, methodologically sound investigations in primary care. The objective of this study was to use criteria from the literature to evaluate 5 mixed methods studies in primary care and to advance 3 models useful for designing such investigations. METHODS: We first identified criteria from the social and behavioral sciences to analyze mixed methods studies in primary care research. We then used the criteria to evaluate 5 mixed methods investigations published in primary care research journals. RESULTS: Of the 5 studies analyzed, 3 included a rationale for mixing based on the need to develop a quantitative instrument from qualitative data or to converge information to best understand the research topic. Quantitative data collection involved structured interviews, observational checklists, and chart audits that were analyzed using descriptive and inferential statistical procedures. Qualitative data consisted of semistructured interviews and field observations that were analyzed using coding to develop themes and categories. The studies showed diverse forms of priority: equal priority, qualitative priority, and quantitative priority. Data collection involved quantitative and qualitative data gathered both concurrently and sequentially. The integration of the quantitative and qualitative data in these studies occurred between data analysis from one phase and data collection from a subsequent phase, while analyzing the data, and when reporting the results. DISCUSSION: We recommend instrument-building, triangulation, and data transformation models for mixed methods designs as useful frameworks to add rigor to investigations in primary care. We also discuss the limitations of our study and the need for future research.
2004
Identifier
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<a href="http://doi.org/10.1370/afm.104" target="_blank" rel="noreferrer">10.1370/afm.104</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Annals Of Family Medicine
Backlog
Creswell JW
Fetters MD
Health Services Research/methods
Humans
Ivankova NV
Journal Article
Models
Multi-site Ethics
Primary Health Care
Qualitative Research
Research Design
Theoretical
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/1751-486X.12094" target="_blank" rel="noreferrer">http://doi.org/10.1111/1751-486X.12094</a>
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Title
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Developing a process to support perinatal nurses after a critical event
Publisher
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Nursing For Women's Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Humans; Terminal Care; Attitude to Death; Neonatal Nursing; social support; Clinical Competence; Perinatal Care; Program Development; Needs Assessment; Nursing Methodology Research; Self Care; Risk Management; Family Nursing; Staff Development; Stress; Adaptation; Psychological; Models; Grief; Emergencies; Crisis Intervention
Creator
An entity primarily responsible for making the resource
Foreman S
Description
An account of the resource
The work of perinatal nurses sometimes includes emergencies involving death, or near death, which can leave health care providers with feelings of stress and grief. After experiencing a particularly stressful period, nurses at our organization identified processes to help themselves recover and to support each other. The result of this work is a written plan to facilitate the support of perinatal nurses after critical events. This article describes the development and implementation of this plan.
2014-03
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/1751-486X.12094" target="_blank" rel="noreferrer">10.1111/1751-486X.12094</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Adaptation
Attitude To Death
Backlog
Clinical Competence
Crisis Intervention
Emergencies
Family Nursing
Foreman S
Grief
Humans
Journal Article
Models
Needs Assessment
Neonatal Nursing
Nursing For Women's Health
Nursing Methodology Research
Perinatal Care
Program Development
Psychological
Risk Management
Self Care
Social Support
Staff Development
Stress
Terminal Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.casemgr.2004.11.005" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.casemgr.2004.11.005</a>
Dublin Core
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Title
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Enabling the transition to hospice through effective palliative care
Publisher
An entity responsible for making the resource available
The Case Manager
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Prognosis; Needs Assessment; Organizational Objectives; quality of life; Models; Chronic disease; Life Expectancy; Attitude to Death/ethnology; Case Management/organization & administration; Continuity of Patient Care/organization & Disease Progression; Hospice Care/organization & administration/psychology; Organizational; Palliative Care/organization & Professional Role; Referral and Consultation/organization & United States
Creator
An entity primarily responsible for making the resource
Bomba PA
Description
An account of the resource
The end of life has changed dramatically in recent years as life expectancies have increased, chronic disease rates have risen, and families, health care systems, and society have changed. As technology has advanced, death too often has become viewed by society as "failure" and even "optional." Too often, referral to hospice has come too late to be sufficiently effective. While expertise in palliation of pain and symptoms at the end of life has been developed, palliative care has not been well integrated with management of chronic diseases or incorporated into the continuum of medical management from health and wellness to the end of life. We can, and must, do better.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.casemgr.2004.11.005" target="_blank" rel="noreferrer">10.1016/j.casemgr.2004.11.005</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Attitude To Death/ethnology
Backlog
Bomba PA
Case Management/organization & administration
Chronic Disease
Continuity of Patient Care/organization & Disease Progression
Hospice Care/organization & administration/psychology
Humans
Journal Article
Life Expectancy
Models
Needs Assessment
Organizational
Organizational Objectives
Palliative Care/organization & Professional Role
Prognosis
Quality Of Life
Referral and Consultation/organization & United States
The Case Manager
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1046/j.1365-2702.2002.00623.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1365-2702.2002.00623.x</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Exploring multi-agency working in services to disabled children with complex healthcare needs and their families
Publisher
An entity responsible for making the resource available
Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Child; Humans; Great Britain; Cooperative Behavior; Interprofessional Relations; Family Health; Models; social support; Continuity of Patient Care/organization & administration; Organizational; Home Care Services/organization & administration; Child Health Services/organization & administration; Disabled Children/rehabilitation; Health Policy/legislation & jurisprudence; Health Services Accessibility/organization & administration; Needs Assessment/organization & administration; Patient Care Team/organization & administration; Social Work/organization & administration
Creator
An entity primarily responsible for making the resource
Watson D; Townsley R; Abbott D
Description
An account of the resource
Children with complex healthcare needs typically require technical and/or medical equipment in the home. This growing group of children and families need support that crosses agency and professional boundaries, necessitating effective multi-agency working. There are many examples of multi-agency working around the United Kingdom (UK), some specifically designed to meet the needs of children with complex healthcare needs and their families. Recent legislation and policy statements have highlighted the importance of joint planning and working. Currently no research exists that examines the impact of these initiatives on disabled children with complex healthcare needs and their families. The "Working Together" project is an ongoing research study based at the Norah Fry Research Centre, University of Bristol, Bristol, UK. The project aims to explore the impact of multi-agency work on children with complex healthcare needs and their families. This paper examines the literature on barriers to disabled children and the need for multi-agency working. It also considers the concept of multi-agency working and how different approaches to working together might be perceived by children and families.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1046/j.1365-2702.2002.00623.x" target="_blank" rel="noreferrer">10.1046/j.1365-2702.2002.00623.x</a>
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Type
The nature or genre of the resource
Journal Article
2002
Abbott D
Backlog
Child
Child Health Services/organization & administration
Continuity Of Patient Care/organization & Administration
Cooperative Behavior
Disabled Children/rehabilitation
Family Health
Great Britain
Health Policy/legislation & jurisprudence
Health Services Accessibility/organization & administration
Home Care Services/organization & administration
Humans
Interprofessional Relations
Journal Article
Journal of Clinical Nursing
Models
Needs Assessment/organization & administration
Organizational
Patient Care Team/organization & administration
Social Support
Social Work/organization & administration
Townsley R
Watson D
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/0029-6554(94)90045-0" target="_blank" rel="noreferrer">http://doi.org/10.1016/0029-6554(94)90045-0</a>
Dublin Core
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Title
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Facilitating transitions: redefinition of the nursing mission
Publisher
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Nursing Outlook
Date
A point or period of time associated with an event in the lifecycle of the resource
1994
Subject
The topic of the resource
Organizational Objectives; Philosophy; Organizational Innovation; Models; Nursing; Nursing/organization & administration
Creator
An entity primarily responsible for making the resource
Meleis AI; Trangenstein PA
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/0029-6554(94)90045-0" target="_blank" rel="noreferrer">10.1016/0029-6554(94)90045-0</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1994
1994
Backlog
Journal Article
Meleis AI
Models
Nursing
Nursing Outlook
Nursing/organization & administration
Organizational Innovation
Organizational Objectives
Philosophy
Trangenstein PA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archinternmed.2012.2364" target="_blank" rel="noreferrer">http://doi.org/10.1001/archinternmed.2012.2364</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Factors important to patients' quality of life at the end of life
Publisher
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Archives Of Internal Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
Female; Humans; Male; United States; Neoplasms; Terminal Care; Physician-Patient Relations; Terminally Ill; Adult; Follow-Up Studies; Prospective Studies; Aged; Middle Aged; Attitude to Death; caregivers; Drug Therapy; quality of life; Models; Meditation; Pastoral Care; Statistical
Creator
An entity primarily responsible for making the resource
Zhang B; Nilsson ME; Prigerson HG
Description
An account of the resource
BACKGROUND: When curative treatments are no longer options for patients dying of cancer, the focus of care often turns from prolonging life to promoting quality of life (QOL). Few data exist on what predicts better QOL at the end of life (EOL) for advanced cancer patients. The purpose of this study was to determine the factors that most influence QOL at the EOL, thereby identifying promising targets for interventions to promote QOL at the EOL. METHODS: Coping With Cancer is a US multisite, prospective, longitudinal cohort study of 396 advanced cancer patients and their informal caregivers who were enrolled from September 1, 2002, through February 28, 2008. Patients were followed up from enrollment to death a median of 4.1 months later. Patient QOL in the last week of life was a primary outcome of Coping With Cancer and the present report. RESULTS: The following set of 9 factors, preceded by a sign indicating the direction of the effect and presented in rank order of importance, explained the most variance in patients' QOL at the EOL: 1 = (-) intensive care unit stays in the final week (explained 4.4% of the variance in QOL at the EOL), 2 = (-) hospital deaths (2.7%), 3 = (-) patient worry at baseline (2.7%), 4 = (+) religious prayer or meditation at baseline (2.5%), 5 = site of cancer care (1.8%), 6 = (-) feeding-tube use in the final week (1.1%), 7 = (+) pastoral care within the hospital or clinic (1.0%), 8 = (-) chemotherapy in the final week (0.8%), and 9 = (+) patient-physician therapeutic alliance at baseline (0.7%). The vast majority of the variance in QOL at the EOL, however, remained unexplained. CONCLUSION: Advanced cancer patients who avoid hospitalizations and the intensive care unit, who are less worried, who pray or meditate, who are visited by a pastor in the hospital/clinic, and who feel a therapeutic alliance with their physicians have the highest QOL at the EOL.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archinternmed.2012.2364" target="_blank" rel="noreferrer">10.1001/archinternmed.2012.2364</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Adult
Aged
Archives Of Internal Medicine
Attitude To Death
Backlog
Caregivers
Drug Therapy
Female
Follow-up Studies
Humans
Journal Article
Male
Meditation
Middle Aged
Models
Neoplasms
Nilsson ME
Pastoral Care
Physician-patient Relations
Prigerson HG
Prospective Studies
Quality Of Life
statistical
Terminal Care
Terminally Ill
United States
Zhang B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1545-5300.1996.00313.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1545-5300.1996.00313.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Family bereavement and cultural diversity: a social developmental perspective
Publisher
An entity responsible for making the resource available
Family Process
Date
A point or period of time associated with an event in the lifecycle of the resource
1996
Subject
The topic of the resource
Humans; Cultural Diversity; Family Therapy; North America; Adaptation; Psychological; bereavement; Models; Attitude to Death/ethnology; SSHRC CURA; Family/ethnology/psychology; Acculturation
Creator
An entity primarily responsible for making the resource
Shapiro ER
Description
An account of the resource
This article offers an integrative, interdisciplinary model of bereavement as a family developmental process that unfolds in cultural context. A critique of cultural assumptions highlights the culture-bound nature of prevailing North American practices, which view grief as an isolated individual experience and emphasize detachment from the dead as a way to promote recovery. Death and grief precipitate two kinds of family change, both guided by culture yet uniquely experienced and interpreted by individual families: 1) recreating the family without a key family member, but capable of coping with both existing and new tasks; and 2) incorporating the death into an ongoing but irrevocably altered family life-cycle developmental process. In supporting family change after a death, family therapists need to collaborate with grieving families in examining the goodness of fit between their unique circumstances and the bereavement expectations of their community and culture. Four case examples are presented, two of which will apply this social developmental model to emphasize transformations of attachment to the deceased--rather than detachment--that will support the ongoing family development of grieving families.
1996
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1545-5300.1996.00313.x" target="_blank" rel="noreferrer">10.1111/j.1545-5300.1996.00313.x</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1996
Acculturation
Adaptation
Attitude To Death/ethnology
Backlog
Bereavement
Cultural Diversity
Family Process
Family Therapy
Family/ethnology/psychology
Humans
Journal Article
Models
North America
Psychological
Shapiro ER
SSHRC CURA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1300/j010v22n04_04" target="_blank" rel="noreferrer">http://doi.org/10.1300/j010v22n04_04</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Gender differences in parenting a child with cancer
Publisher
An entity responsible for making the resource available
Social Work In Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
1996
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Attitude to Health; Parent-Child Relations; Questionnaires; adolescent; Preschool; Adaptation; Psychological; Models; Parents/psychology; Parent caregivers; Gender Identity; Neoplasms/psychology; Parenting/psychology; Socialization
Creator
An entity primarily responsible for making the resource
Brown KA; Barbarin OA
Description
An account of the resource
This study of 124 parents of children diagnosed with cancer investigates parents' perceptions of their role in the illness situation. The study found that mothers and fathers differ in their experience of and response to parenting a child with cancer. These differences appear to reflect traditional parenting roles characterized by a gender-based division of labor. Sex-role socialization theory is discussed as an explanatory model of the parenting experience. Practice recommendations are offered to medical social workers and other health care professionals concerned about the long term psychosocial adjustment of parents with chronically ill children.
1996
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1300/j010v22n04_04" target="_blank" rel="noreferrer">10.1300/j010v22n04_04</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1996
Adaptation
Adolescent
Adult
Attitude To Health
Backlog
Barbarin OA
Brown KA
Child
Female
Gender Identity
Humans
Journal Article
Male
Models
Neoplasms/psychology
Parent caregivers
Parent-child Relations
Parenting/psychology
Parents/psychology
Preschool
Psychological
Questionnaires
Social Work in Health Care
Socialization
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2214.2004.00440.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2214.2004.00440.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Good practices that address continuity during transition from child to adult care: synthesis of the evidence
Publisher
An entity responsible for making the resource available
Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Humans; Family; Adult; Research Design; adolescent; Models; Adolescent Transitions; PST - ppublish; Organizational; Adolescent Health Services/organization & administration/standards; AID - 10.1111/j.1365-2214.2004.00440.x [doi]; AID - CCH440 [pii]; Child Health Services/organization & administration/standards; Continuity of Patient Care/organization & administration/standards; CRDT- 2004/08/24 05:00; Delivery of Health Care/organization & administration/standards; EDAT- 2004/08/24 05:00; Health Services/standards; MHDA- 2005/02/04 09:00; Quality of Health Care/organization & administration/standards
Creator
An entity primarily responsible for making the resource
While A; Forbes A; Ullman R; Lewis S; Mathes L; Griffiths P
Description
An account of the resource
BACKGROUND: Effective transition to adult services is required by an increasing number of children with ongoing needs. AIM: To identify practices that promote continuity at transition between child and adult services. METHODS: Systematic examination of the evidence from two search strategies yielding 5319 items. RESULTS: Only three of the 126 appraised items had strong external validity. A large range of different practices, which focused on the service, the young person and the family, were identified. Practices within the service addressed structural, process and outcome components. CONCLUSION: Four transition models are proposed for testing.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2214.2004.00440.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2004.00440.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adolescent
Adolescent Health Services/organization & administration/standards
Adolescent Transitions
Adult
AID - 10.1111/j.1365-2214.2004.00440.x [doi]
AID - CCH440 [pii]
Backlog
Child
Child Health Services/organization & administration/standards
Child: Care, Health and Development
Continuity of Patient Care/organization & administration/standards
CRDT- 2004/08/24 05:00
Delivery of Health Care/organization & administration/standards
EDAT- 2004/08/24 05:00
Family
Forbes A
Griffiths P
Health Services/standards
Humans
Journal Article
Lewis S
Mathes L
MHDA- 2005/02/04 09:00
Models
Organizational
PST - ppublish
Quality of Health Care/organization & administration/standards
Research Design
Ullman R
While A
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
July 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July 2018 List
URL Address
<a href="http://doi.org/10.1080/07481187.2017.1407380" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/07481187.2017.1407380</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Grief and coping of parents whose child has a constant life-threatening disability, hypoplastic left heart syndrome with reference to the Dual-Process Model
Publisher
An entity responsible for making the resource available
Death Studies
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Creator
An entity primarily responsible for making the resource
Cantwell-Bartl A
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/07481187.2017.1407380" target="_blank" rel="noreferrer noopener">10.1080/07481187.2017.1407380</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Description
An account of the resource
This paper reports on a study that examined the grief and coping of 29 parents whose child has hypoplastic left heart syndrome using the Dual Process Model. The study employed a secondary thematic analysis of interviews at key times of treatment and recovery for the child. After the diagnosis, parents experienced intense loss (LO), but focused upon restoration-orientated tasks (RO) to support their child. Over time, most parents employed a healthy oscillation between LO coping and RO coping, with waves of grief and with some grieving suppressed. There are some specific grief and coping and gender patterns employed by parents
2018
Cantwell-Bartl A
Child
Coping
Death studies
Grief
Human
Hypoplastic Left Heart Syndrome -- Diagnosis
Hypoplastic Left Heart Syndrome -- Psychosocial Factors
Hypoplastic Left Heart Syndrome -- Therapy
Interviews
July 2018 List
Models
Parent-child Relations
Parental Attitudes
Psychological
Recovery
Secondary Analysis
Thematic Analysis
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1399-3046.2004.00287.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1399-3046.2004.00287.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Growing up and moving on: transition from pediatric to adult care
Publisher
An entity responsible for making the resource available
Pediatric Transplantation
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Adult; Communication; Counseling; adolescent; Models; Adolescent Transitions; Continuity of Patient Care/organization & administration; Adolescent Health Services/organization & administration; Organizational; parenting; Organ Transplantation
Creator
An entity primarily responsible for making the resource
McDonagh JE
Description
An account of the resource
The development of transitional care is one of the major challenges for the twenty-first century as the survival rates and medical outcomes for child and adolescent recipients of transplants continue to improve. Such developments must include both paediatric and adult providers and is likely to require training of professionals in both arenas. Transition is a multidimensional process with transfer to adult care, only one event within that process. The aim of this paper is to present the philosophy of transition and an evidence-based approach to transitional care in terms of the need for it, proposed models of care and the evidence of the benefits of transitional care programmes. Examples of some key clinical aspects of transitional care including communication skills, parenting, self advocacy, vocation will be presented. Adherence issues will be presented in accompanying papers in this journal. Finally, potential barriers to successful transition will be explored.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1399-3046.2004.00287.x" target="_blank" rel="noreferrer">10.1111/j.1399-3046.2004.00287.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adolescent
Adolescent Health Services/organization & administration
Adolescent Transitions
Adult
Backlog
Communication
Continuity Of Patient Care/organization & Administration
Counseling
Humans
Journal Article
McDonagh JE
Models
Organ Transplantation
Organizational
Parenting
Pediatric Transplantation
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/tera.1097" target="_blank" rel="noreferrer">http://doi.org/10.1002/tera.1097</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Improving estimates of caregiver time cost and family impact associated with birth defects
Publisher
An entity responsible for making the resource available
Teratology
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Humans; Parents; Quality-Adjusted Life Years; Time Factors; Cost of Illness; Family Health; Caregivers/psychology; Models; Statistical; ICU Decision Making; social support; Abnormalities/epidemiology/psychology
Creator
An entity primarily responsible for making the resource
Tilford JM; Robbins JM; Hobbs CA
Description
An account of the resource
BACKGROUND: Birth defects impose substantial costs on both families and society because of medical, developmental, and special education needs. Caring for children with birth defects also may influence caregiver time and impact the family. However, the economic cost of caregiver time and other impacts on the family has received far less attention than traditional healthcare costs. METHODS: This study reviews the literature on measuring caregiver time costs and family impact in an economic framework. The economic framework involves translating caregiver time or difficulties into appropriate units such as cost or quality adjusted life years (QALYs). RESULTS: Despite the potential important contribution of caregiver time costs to the total cost estimate of birth defects, few studies estimate caregiver time costs related specifically to birth defects. Only two studies provide estimates of these costs. Recent work has investigated the impact of chronic illness on caregivers in QALY terms, but birth defects have not been studied. Several issues need to be addressed in both the estimation of caregiver time costs and family impact to improve cost estimates. CONCLUSIONS: Improved estimates of caregiver time costs and impact on the family will assist policy makers in allocating resources for the prevention and treatment of birth defects. Future research should investigate the economic costs of caregiver time and family impact associated with caring for children with birth defects.
2001
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/tera.1097" target="_blank" rel="noreferrer">10.1002/tera.1097</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Abnormalities/epidemiology/psychology
Backlog
Caregivers/psychology
Cost Of Illness
Family Health
Hobbs CA
Humans
ICU Decision Making
Journal Article
Models
Parents
Quality-Adjusted Life Years
Robbins JM
Social Support
statistical
Teratology
Tilford JM
Time Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2648.2011.05892.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2648.2011.05892.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Is an advance care planning model feasible in community palliative care? A multi-site action research approach.
Publisher
An entity responsible for making the resource available
Journal Of Advanced Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
Female; Humans; Male; Advance Directives; Adult; Victoria; Aged; Middle Aged; Program Evaluation; Urban Population; 80 and over; DNAR; Organizational; Palliative Care/og [Organization & Administration]; Terminal Care/og [Organization & Administration]; Advance Care Planning/og [Organization & Administration]; Models; Community Health Services/og [Organization & Administration]; Rural Population
Creator
An entity primarily responsible for making the resource
Blackford J; Street A
Description
An account of the resource
AIM: This article reports a study to determine the feasibility of an advance care planning model developed with Australian community palliative care services., BACKGROUND: An effective advance care planning programme involves an organizational wide commitment and preparedness for health service reform to embed advance care planning into routine practice. Internationally, such programmes have been implemented predominantly in aged and acute care with more recent work in primary care., METHODS: A multi-site action research was conducted over a 16-month period in 2007-2009 with three Victorian community palliative care services. Using mixed method data collection strategies to assess feasibility, we conducted a baseline audit of staff and clients; analysed relevant documents (client records, policies, procedures and quality improvement strategies) pre-implementation and post-implementation and conducted key informant interviews (n = 9)., SETTINGS AND PARTICIPANTS: Three community palliative care services: one regional and two metropolitan services in Victoria, Australia., RESULTS: The services demonstrated that it was feasible to embed the Model into their organizational structures. Advance care planning conversations and involvement of family was an important outcome measure rather than completion rate of advance care planning documents in community settings. Services adapted and applied their own concept of community, which widened the impact of the model. Changes to quality audit processes were essential to consolidate the model into routine palliative care practice., CONCLUSION: An advance care planning model is feasible for community palliative care services. Quality audit processes are an essential component of the Model with documentation of advance care planning discussion established as an important outcome measure.Copyright © 2011 Blackwell Publishing Ltd.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2648.2011.05892.x" target="_blank" rel="noreferrer">10.1111/j.1365-2648.2011.05892.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
80 And Over
Adult
Advance Care Planning/og [Organization & Administration]
Advance Directives
Aged
Backlog
Blackford J
Community Health Services/og [Organization & Administration]
DNAR
Female
Humans
Journal Article
Journal Of Advanced Nursing
Male
Middle Aged
Models
Organizational
Palliative Care/og [Organization & Administration]
Program Evaluation
Rural Population
Street A
Terminal Care/og [organization & Administration]
Urban Population
Victoria
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpediatrics.2010.12" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpediatrics.2010.12</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Learning that leads to action: impact and characteristics of a professional education approach to improve the care of critically ill children and their families
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Child; Humans; United States; Palliative Care; Canada; Education; Professional-Family Relations; Interdisciplinary Communication; Program Evaluation; Curriculum; Quality of Health Care; Patient Advocacy; Models; Continuing/methods; Educational; Pediatrics/education
Creator
An entity primarily responsible for making the resource
Solomon MZ; Browning DM; Dokken DL; Merriman MP; Rushton CH
Description
An account of the resource
OBJECTIVE: To determine the impact of an innovative professional educational approach on clinicians' confidence and ability to make institutional improvements in pediatric palliative care. DESIGN: Evaluation to assess impact of educational intervention on participants and participant institutions. SETTING: Retreats lasting 2.5 days. PARTICIPANTS: Physicians, nurses, psychosocial staff, and bereaved parents. INTERVENTION: "Relational learning across boundaries" pedagogy. MAIN OUTCOME MEASURES: Analysis of participant questionnaires (n = 782, response rate of 84%), team leader surveys (n = 72, response rate of 71%), and follow-up interview with subsample (n = 21, response rate of 81%). Outcomes included confidence to act and institutional improvements achieved. RESULTS: Seventy-four percent of team leaders reported significant or moderate improvement in pediatric palliative care after the retreat; only 1% reported no improvement. Ninety-one percent credited the retreat experience as being somewhat or very instrumental to the improvements, which included the establishment of pediatric palliative care and bereavement programs, improvements in interdisciplinary communication, care coordination, clinician-family interaction at the bedside, and educational programs. Participants attributed the impact of the 2.5-day retreat to its key pedagogical features, involvement of family members as equal participants and participation of colleagues from other disciplines and care settings, as well as the ground rules used for the small group seminars. CONCLUSIONS: The intervention was successful in improving clinicians' confidence and catalyzed improvements in pediatric palliative care within participating institutions. Relational learning holds promise for professional learning, especially when the educational goal is tied to enabling a shift in social and ethical norms.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpediatrics.2010.12" target="_blank" rel="noreferrer">10.1001/archpediatrics.2010.12</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Archives Of Pediatrics & Adolescent Medicine
Backlog
Browning DM
Canada
Child
Continuing/methods
Curriculum
Dokken DL
Education
Educational
Humans
Interdisciplinary Communication
Journal Article
Merriman MP
Models
Palliative Care
Patient Advocacy
Pediatrics/education
Professional-family Relations
Program Evaluation
Quality Of Health Care
Rushton CH
Solomon MZ
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1037/0003-066X.59.1.20" target="_blank" rel="noreferrer">http://doi.org/10.1037/0003-066X.59.1.20</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Loss, trauma, and human resilience: have we underestimated the human capacity to thrive after extremely aversive events?
Publisher
An entity responsible for making the resource available
The American Psychologist
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; Grief; Adult; Emotions; Adaptation; Psychological; Models; Wounds and Injuries/psychology; Laughter; Repression
Creator
An entity primarily responsible for making the resource
Bonanno GA
Description
An account of the resource
Many people are exposed to loss or potentially traumatic events at some point in their lives, and yet they continue to have positive emotional experiences and show only minor and transient disruptions in their ability to function. Unfortunately, because much of psychology's knowledge about how adults cope with loss or trauma has come from individuals who sought treatment or exhibited great distress, loss and trauma theorists have often viewed this type of resilience as either rare or pathological. The author challenges these assumptions by reviewing evidence that resilience represents a distinct trajectory from the process of recovery, that resilience in the face of loss or potential trauma is more common than is often believed, and that there are multiple and sometimes unexpected pathways to resilience.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1037/0003-066X.59.1.20" target="_blank" rel="noreferrer">10.1037/0003-066X.59.1.20</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adaptation
Adult
Backlog
Bonanno GA
Emotions
Grief
Humans
Journal Article
Laughter
Models
Psychological
Repression
The American Psychologist
Wounds and Injuries/psychology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/CCM.0b013e3181e8ad23" target="_blank" rel="noreferrer">http://doi.org/10.1097/CCM.0b013e3181e8ad23</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Models for structuring a clinical initiative to enhance palliative care in the intensive care unit: a report from the IPAL-ICU Project (Improving Palliative Care in the ICU)
Publisher
An entity responsible for making the resource available
Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Humans; Palliative Care; Critical Care; Models; ICU Decision Making; Organizational
Creator
An entity primarily responsible for making the resource
Nelson JE; Bassett R; Boss RD; Brasel KJ; Campbell ML; Cortez TB; Curtis JR; Lustbader DR; Mulkerin C; Puntillo KA; Ray DE; Weissman DE; Improve Palliative Care in the Intensive Care Unit Project
Description
An account of the resource
OBJECTIVE: To describe models used in successful clinical initiatives to improve the quality of palliative care in critical care settings. DATA SOURCES: We searched the MEDLINE database from inception to April 2010 for all English language articles using the terms "intensive care," "critical care," or "ICU" and "palliative care"; we also hand-searched reference lists and author files. Based on review and synthesis of these data and the experiences of our interdisciplinary expert Advisory Board, we prepared this consensus report. DATA EXTRACTION AND SYNTHESIS: We critically reviewed the existing data with a focus on models that have been used to structure clinical initiatives to enhance palliative care for critically ill patients in intensive care units and their families. CONCLUSIONS: There are two main models for intensive care unit-palliative care integration: 1) the "consultative model," which focuses on increasing the involvement and effectiveness of palliative care consultants in the care of intensive care unit patients and their families, particularly those patients identified as at highest risk for poor outcomes; and 2) the "integrative model," which seeks to embed palliative care principles and interventions into daily practice by the intensive care unit team for all patients and families facing critical illness. These models are not mutually exclusive but rather represent the ends of a spectrum of approaches. Choosing an overall approach from among these models should be one of the earliest steps in planning an intensive care unit-palliative care initiative. This process entails a careful and realistic assessment of available resources, attitudes of key stakeholders, structural aspects of intensive care unit care, and patterns of local practice in the intensive care unit and hospital. A well-structured intensive care unit-palliative care initiative can provide important benefits for patients, families, and providers.
2010-09
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/CCM.0b013e3181e8ad23" target="_blank" rel="noreferrer">10.1097/CCM.0b013e3181e8ad23</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Backlog
Bassett R
Boss RD
Brasel KJ
Campbell ML
Cortez TB
Critical Care
Critical Care Medicine
Curtis JR
Humans
ICU Decision Making
Improve Palliative Care in the Intensive Care Unit Project
Journal Article
Lustbader DR
Models
Mulkerin C
Nelson JE
Organizational
Palliative Care
Puntillo KA
Ray DE
Weissman DE
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2007-2875" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2007-2875</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Models of comprehensive multidisciplinary care for individuals in the United States with genetic disorders
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; Interdisciplinary Communication; Models; Adolescent Transitions; United States/epidemiology; Genetic; Genetic Diseases; Comprehensive Health Care/methods; Inborn/diagnosis/epidemiology/therapy
Creator
An entity primarily responsible for making the resource
Grosse SD; Schechter MS; Kulkarni R; Lloyd-Puryear MA; Strickland B; Trevathan E
Description
An account of the resource
Approaches to providing comprehensive coordinated care for individuals with complex diseases include the medical home approach, the chronic care model in primary care, and disease-specific, multidisciplinary specialty clinics. There is uneven availability and utilization of multidisciplinary specialty clinics for different genetic diseases. For 2 disorders (ie, hemophilia and cystic fibrosis), effective national networks of specialty clinics exist and reach large proportions of the target populations. For other disorders, notably, sickle cell disease, fewer such centers are available, centers are less likely to be networked, and centers are used less widely. Models of comanagement are essential for promoting ongoing communication and coordination between primary care and subspecialty services, particularly during the transition from pediatric care to adult care. Evaluation of the effectiveness of different models in improving outcomes for individuals with genetic diseases is essential.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2007-2875" target="_blank" rel="noreferrer">10.1542/peds.2007-2875</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adolescent Transitions
Backlog
Comprehensive Health Care/methods
Genetic
Genetic Diseases
Grosse SD
Humans
Inborn/diagnosis/epidemiology/therapy
Interdisciplinary Communication
Journal Article
Kulkarni R
Lloyd-Puryear MA
Models
Pediatrics
Schechter MS
Strickland B
Trevathan E
United States/epidemiology
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1200/jop.19.00100" target="_blank" rel="noreferrer noopener">http://doi.org/10.1200/jop.19.00100</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Models of Pediatric Palliative Oncology Outpatient Care-Benefits, Challenges, and Opportunities
Publisher
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Journal of Oncology Practice
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
models; oncology; outpatient care; Pediatric palliative care
Creator
An entity primarily responsible for making the resource
Brock K E; Snaman J M;Kaye E C; Bower K A; Weaver M S; Baker J N; Wolfe J; Ullrich C
Description
An account of the resource
PURPOSE: Although the bulk of current pediatric palliative care (PPC) services are concentrated in inpatient settings, the vast majority of clinical care, symptom assessment and management, decision-making, and advance care planning occurs in the outpatient and home settings. As integrated PPC/pediatric oncology becomes the standard of care, novel pediatric palliative oncology (PPO) outpatient models are emerging. The optimal PPO model is unknown and likely varies on the basis of institutional culture, resources, space, and personnel. METHODS: We review five institutions' unique outpatient PPO clinical models with their respective benefits and challenges. This review offers pragmatic guidance regarding PPO clinic development, implementation, and resource allocation. RESULTS: Specific examples include a floating clinic model, embedded disease-specific PPC experts, embedded consultative or trigger-based supportive care clinics, and telehealth clinics. CONCLUSION: Organizations that have overcome personnel, funding, and logistical challenges can serve as role models for centers developing PPO clinic models. In the absence of a one-size-fits-all model, pediatric oncology and PPC groups can select, tailor, and implement the model that best suits their respective personnel, needs, and capacities. Emerging PPO clinics must balance the challenges and opportunities unique to their organization, with the goal of providing high-quality PPC for children with cancer and their families.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/jop.19.00100" target="_blank" rel="noreferrer noopener">10.1200/jop.19.00100</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Baker J N
Bower K A
Brock K E
Journal of Oncology Practice
Kaye E C
Models
Oncology
Oncology 2019 List
outpatient care
Pediatric Palliative Care
Snaman J M
Ullrich C
Weaver M S
Wolfe J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1086/378781" target="_blank" rel="noreferrer">http://doi.org/10.1086/378781</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Mutations in capillary morphogenesis gene-2 result in the allelic disorders juvenile hyaline fibromatosis and infantile systemic hyalinosis
Publisher
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American Journal Of Human Genetics
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Child; Female; Humans; Male; Mutation; P.H.S.; Research Support; U.S. Gov't; Syndrome; infant; Models; Pedigree; Membrane Proteins/genetics; Base Sequence; Amino Acid Sequence; Exons; Genes; Recessive; Missense; Molecular; Chromosome Mapping; Fibroma/genetics; Genetic Markers; Focal/genetics; Glomerulosclerosis; Protein Conformation; Protein Structure; Secondary
Creator
An entity primarily responsible for making the resource
Dowling O; Difeo A; Ramirez MC; Tukel T; Narla G; Bonafe L; Kayserili H; Yuksel-Apak M; Paller AS; Norton K; Teebi AS; Grum-Tokars V; Martin GS; Davis GE; Glucksman MJ; Martignetti JA
Description
An account of the resource
Juvenile hyaline fibromatosis (JHF) and infantile systemic hyalinosis (ISH) are autosomal recessive syndromes of unknown etiology characterized by multiple, recurring subcutaneous tumors, gingival hypertrophy, joint contractures, osteolysis, and osteoporosis. Both are believed to be allelic disorders; ISH is distinguished from JHF by its more severe phenotype, which includes hyaline deposits in multiple organs, recurrent infections, and death within the first 2 years of life. Using the previously reported chromosome 4q21 JHF disease locus as a guide for candidate-gene identification, we identified and characterized JHF and ISH disease-causing mutations in the capillary morphogenesis factor-2 gene (CMG2). Although CMG2 encodes a protein upregulated in endothelial cells during capillary formation and was recently shown to function as an anthrax-toxin receptor, its physiologic role is unclear. Two ISH family-specific truncating mutations, E220X and the 1-bp insertion P357insC that results in translation of an out-of-frame stop codon, were generated by site-directed mutagenesis and were shown to delete the CMG-2 transmembrane and/or cytosolic domains, respectively. An ISH compound mutation, I189T, is predicted to create a novel and destabilizing internal cavity within the protein. The JHF family-specific homoallelic missense mutation G105D destabilizes a von Willebrand factor A extracellular domain alpha-helix, whereas the other mutation, L329R, occurs within the transmembrane domain of the protein. Finally, and possibly providing insight into the pathophysiology of these diseases, analysis of fibroblasts derived from patients with JHF or ISH suggests that CMG2 mutations abrogate normal cell interactions with the extracellular matrix.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1086/378781" target="_blank" rel="noreferrer">10.1086/378781</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
American Journal Of Human Genetics
Amino Acid Sequence
Backlog
Base Sequence
Bonafe L
Child
Chromosome Mapping
Davis GE
Difeo A
Dowling O
Exons
Female
Fibroma/genetics
Focal/genetics
Genes
Genetic Markers
Glomerulosclerosis
Glucksman MJ
Grum-Tokars V
Humans
Infant
Journal Article
Kayserili H
Male
Martignetti JA
Martin GS
Membrane Proteins/genetics
Missense
Models
Molecular
Mutation
Narla G
Norton K
P.H.S.
Paller AS
Pedigree
Protein Conformation
Protein Structure
Ramirez MC
Recessive
Research Support
Secondary
Syndrome
Teebi AS
Tukel T
U.S. Gov't
Yuksel-Apak M