Browse Items · Pediatric Palliative Care Library

A model for transition from pediatric to adult care in cystic fibrosis

With improved medical technology, many chronic medical conditions of childhood are now recognized as conditions of childhood onset. Appropriate treatment of these conditions in the adult patient is required. The pediatric setting is not appropriate…

Testing the grief to personal growth model using structural equation modeling.

The belief that loss can result in growth has been hypothesized for centuries.Yet, traditional grief theories have viewed grief work as a process of resolving grief and returning to normal. Formal conceptualizations of grief to growth models have…

Tags: 2002, Adult, Backlog, Death studies, Grief, Hogan NS, Humans, Journal Article, Models, Parents/psychology, Personality Development, Schmidt LA, Social Support, Theoretical

Mutations in capillary morphogenesis gene-2 result in the allelic disorders juvenile hyaline fibromatosis and infantile systemic hyalinosis

Juvenile hyaline fibromatosis (JHF) and infantile systemic hyalinosis (ISH) are autosomal recessive syndromes of unknown etiology characterized by multiple, recurring subcutaneous tumors, gingival hypertrophy, joint contractures, osteolysis, and…

Sense of coherence: a relevant resource in the coping process of mothers of deaf and hard-of-hearing children?

This study examined the importance of reported sense of coherence (Antonovsky, 1987) in mothers of children with hearing impairment. Sense of coherence was explored as a factor in relation to the experience of stress and subjective life satisfaction…

Tags: 2004, Adaptation, Analysis of Variance, Backlog, Deafness/psychology, Female, Hintermair M, Humans, Journal Article, Journal Of Deaf Studies And Deaf Education, Models, Mothers/psychology, Psychological, Psychological/psychology, Questionnaires, Stress, Theoretical

Good practices that address continuity during transition from child to adult care: synthesis of the evidence

BACKGROUND: Effective transition to adult services is required by an increasing number of children with ongoing needs. AIM: To identify practices that promote continuity at transition between child and adult services. METHODS: Systematic examination…

Coordinating the norms and values of medical research, medical practice and patient worlds-the ethics of evidence based medicine in orphaned fields of medicine

Evidence based medicine is rightly at the core of current medicine. If patients and society put trust in medical professional competency, and on the basis of that competency delegate all kinds of responsibilities to the medical profession, medical…

Caregiving process and caregiver burden: conceptual models to guide research and practice.

BACKGROUND: Parental care for a child with a developmental disability is an enormous responsibility, one that can far exceed that of typical parental care. While most parents adapt well to the situation of caring for a child with a disability, some…

Contrasting emotional approach coping with passive coping for chronic myofascial pain

Passive or emotion-focused coping strategies are typically related to worse pain and adjustment among chronic pain patients. Emotional approach coping (EAC), however, is a type of emotion-focused coping that appears to be adaptive in some nonpain…

The development of an interdisciplinary outpatient clinic in specialist palliative care

The interdisciplinary team approach is essential in the assessment and management of the palliative care of patients and their families. An innovative approach has been developed to allow the interdisciplinary team to see patients and their families…

Designing a mixed methods study in primary care

BACKGROUND: Mixed methods or multimethod research holds potential for rigorous, methodologically sound investigations in primary care. The objective of this study was to use criteria from the literature to evaluate 5 mixed methods studies in primary…

Tags: 2004, Annals Of Family Medicine, Backlog, Creswell JW, Fetters MD, Health Services Research/methods, Humans, Ivankova NV, Journal Article, Models, Multi-site Ethics, Primary Health Care, Qualitative Research, Research Design, Theoretical

The nature of opioid responsiveness and its implications for neuropathic pain: new hypotheses derived from studies of opioid infusions

In recent years, the observation that the response of patients to opioid drugs may be influenced by properties inherent in the pain or pain syndrome, such as its pathophysiology, has evolved into the belief that certain types of pain, e.g.,…

Circumplex Model VII: Validation studies and FACES III.

This paper reviews some of the recent empirical studies validating the Circumplex Model and describes the newly developed self-report measure, FACES III. Studies testing hypotheses derived from the Circumplex Model regarding the three dimensions of…

Tags: 1986, Adaptation, Backlog, Communication, Cultural Characteristics, Family, Family Process, Humans, Journal Article, Longitudinal Studies, Marriage, Models, Olson DH, Psychological, Psychological Tests, Research

Uncertainty in illness

1988

Tags: 1988, Adaptation, Backlog, Cognition, Disease/psychology, Educational Status, Humans, Image--the Journal Of Nursing Scholarship, Journal Article, Mental Processes, Mishel MH, Models, Professional-patient Relations, Psychological, Sick Role, Social Support

Reconceptualization of the uncertainty in illness theory

The theory of uncertainty in illness has its strongest support among subjects who are experiencing the acute phase of illness or are in a downward illness trajectory (mishel, 1988a). The theory has not addressed the experience of living with…

Tags: 1990, Adaptation, Anomie, Backlog, Concept Formation, Cues, Disease/psychology, Humans, Image--the Journal Of Nursing Scholarship, Journal Article, Mishel MH, Models, Psychological, Psychological Theory, Social Values

Continuity of care: an approach to measurement

An alternative in terminal care: results of the National Hospice Study

Hospice is a program of supportive services for terminally ill patients and their families, provided either at home or in designated inpatient settings, which is purported to improve patient and family quality of life at lower cost than conventional…

National hospice study analysis plan

Since the founding of the first hospice in the United States in 1974, the number of health care organizations providing hospice services has grown rapidly. In 1978, the U.S. General Accounting Office identified 59 operational hospices [1]. A survey…

The consultant and the patient-physician relationship. A trilateral deliberative model

Improving estimates of caregiver time cost and family impact associated with birth defects

BACKGROUND: Birth defects impose substantial costs on both families and society because of medical, developmental, and special education needs. Caring for children with birth defects also may influence caregiver time and impact the family. However,…

Tags: 2001, Abnormalities/epidemiology/psychology, Backlog, Caregivers/psychology, Cost Of Illness, Family Health, Hobbs CA, Humans, ICU Decision Making, Journal Article, Models, Parents, Quality-Adjusted Life Years, Robbins JM, Social Support, statistical, Teratology, Tilford JM, Time Factors

On the mathematical modelling of pain

In this review a case is presented for the use of mathematical modelling in the study of pain. The philosophy of mathematical modelling is outlined and a recommendation is made for the use of modern nonlinear techniques and computational neuroscience…

Tags: 1996, Analgesia, Animals, Axons/physiology, Backlog, Britton NF, Humans, Journal Article, Models, Nerve Net/physiology, Neurochemical Research, Neurological, Neuronal Plasticity, Neurons/physiology, Pain/physiopathology, Reproducibility of Results, Skevington SM, Theoretical

Facilitating transitions: redefinition of the nursing mission

1994

Tags: 1994, Backlog, Journal Article, Meleis AI, Models, Nursing, Nursing Outlook, Nursing/organization & administration, Organizational Innovation, Organizational Objectives, Philosophy, Trangenstein PA

Positive psychological states and coping with severe stress

Providing care to a spouse or partner who is dying and then losing that person are among the most stressful of human experiences. A longitudinal study of the caregiving partners of men with AIDS showed that in addition to intense negative…

Tags: 1997, Acquired Immunodeficiency Syndrome/psychology/therapy, Adaptation, Backlog, Bereavement, Caregivers/psychology, Death, Folkman S, Humans, Journal Article, Male, Models, P.H.S., Psychological, Research Support, Social science & medicine, Stress, U.S. Gov't

Quantitative estimation of rare adverse events which follow a biological progression: a new model applied to chronic NSAID use

Randomised controlled trials (RCTs) alone are unlikely to provide reliable estimates of the incidence of rare events because of their limited size. Cohort, case control, and other observational studies have large numbers but are vulnerable to various…

Combining single patient (N-of-1) trials to estimate population treatment effects and to evaluate individual patient responses to treatment

When treating individual patients, physicians may face difficulties using the evidence from center-based randomized control trials (RCTs) due to limitations in these studies generalizability. Therefore, they often perform their own "informal" tests…

Structural equation modeling with longitudinal data: strategies for examining group differences and reciprocal relationships

This article describes the use of structural equation modeling with latent variables to examine group differences and test competing models about cause-effect relationships in passive longitudinal designs. This approach is compared with several other…

Towards clarification of convergent concepts: sense of coherence, will to meaning, locus of control, learned helplessness and hardiness

The multidisciplinary field of stress and stress-related health outcomes has generated theoretical and practical knowledge which is of interest to nurses. Theoretical developments which have assumed a prominent role in the study of stress, health and…

Tags: 1993, Attitude, Backlog, Freedom, Health, Helplessness, Humans, Internal-External Control, Journal Article, Journal Of Advanced Nursing, Learned, Models, Nursing, Philosophy, Psychological, Psychological/psychology, Self Concept, Stress, Sullivan GC

Objective assessment of changing mortality risks in pediatric intensive care unit patients.

OBJECTIVE: To develop and validate a mortality risk predictor based on physiologic data that estimates daily the probability of a patient dying within the next 24 hrs as that probability changes with disease and recovery. SETTING: Nine pediatric ICUs…

Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease

Pediatric providers can expect that 1 of every 10 patients they see will have a chronic, activity-limiting health condition. Thanks to earlier diagnosis and improved therapies, most of these children will live well into adulthood. This means that…

The family, crisis and chronic illness: an evolutionary model

While chronic illness has a profound impact upon the individual, an immense burden is imposed upon the family. When the competing demands of an illness and the family escalate exponentially, there may be a crisis. Traditionally, crisis theory has…

Tags: 1992, Adolescent, Attitude To Health, Backlog, Chronic Disease/nursing/psychology, Crisis Intervention, Emergencies/nursing/psychology, Family/psychology, Female, Halliday PH, Humans, Journal Article, Journal Of Advanced Nursing, Models, Nursing, Parent caregivers, Role, Shaw MC, Systems Theory

Family bereavement and cultural diversity: a social developmental perspective

This article offers an integrative, interdisciplinary model of bereavement as a family developmental process that unfolds in cultural context. A critique of cultural assumptions highlights the culture-bound nature of prevailing North American…

Tags: 1996, Acculturation, Adaptation, Attitude To Death/ethnology, Backlog, Bereavement, Cultural Diversity, Family Process, Family Therapy, Family/ethnology/psychology, Humans, Journal Article, Models, North America, Psychological, Shapiro ER, SSHRC CURA

Stress, social support, and sense of coherence

In the Salutogenic Model, Aaron Antonovsky suggested that a sense of coherence (SOC) is the key determinant in the maintenance of health. He theorized that individuals with a strong SOC have the ability to (a) define life events as less stressful…

Gender differences in parenting a child with cancer

This study of 124 parents of children diagnosed with cancer investigates parents' perceptions of their role in the illness situation. The study found that mothers and fathers differ in their experience of and response to parenting a child with…

Re-examining perceived ease of use and usefulness: a confirmatory factor analysis

Adams et al. (1992) presented the results of 2 studies designed to replicate previous work by Davis (1989) regarding perceived usefulness, ease of use, and their influence on the usage of information technology. To measure the influence of usefulness…

Tags: 1993, Backlog, Evaluation Studies, Grover V, Journal Article, Management Information Systems Quarterly, Models, Segars A, Statistics, Theoretical

Weaving for the future: using rulers and roses

2001

Tags: 2001, Administration, Backlog, Biomedical, Canadian Oncology Nursing Journal, Davies B, Evidence-based Medicine, Forecasting, Humans, Journal Article, Leadership, Models, Nurse's Role, Nursing, Nursing Process, Nursing Research/organization &, Oncologic Nursing/education/organization &, Organizational Objectives, Technology Assessment

Sibling bereavement: a concept analysis.

Investigators of sibling bereavement contend that the death of a sibling represents a unique and intense loss experience. The empirical literature, however, lacks conceptual clarity about the characteristics of sibling bereavement. Metaphors of…

Tags: 1997, Adult, Backlog, Bereavement, Concept Formation, Death, Death studies, Humans, Journal Article, Mahon MM, Models, Psychological, Research Design, Robinson L, Self Concept, sibling bereavement, Sibling Relations, T, United States

Adolescent sibling bereavement as a catalyst for spiritual development: a model for understanding.

While our understanding of adolescent bereavement has greatly expanded in recent years, one area yet to be clarified is the relationship between grief following a significant loss and spirituality. This article strengthens our understanding of this…

Neuronal plasticity: increasing the gain in pain

We describe those sensations that are unpleasant, intense, or distressing as painful. Pain is not homogeneous, however, and comprises three categories: physiological, inflammatory, and neuropathic pain. Multiple mechanisms contribute, each of which…

Palliative care: an international view

This review article addresses first the different palliative care models currently in use. Studies addressing the effectiveness of the models used are briefly summarized. Special attention is further given to models developed and tested in palliative…

Tags: 2000, Abu-Saad HH, Age Factors, Backlog, Hospice Care, Human, Journal Article, Models, Palliative Care/methods/standards, Patient Education and Counseling, Research, Terminal Care, Theoretical

Neurodegenerative disease: the neuronal ceroid lipofuscinoses (Batten disease)

In the past decade there have been significant advances in our understanding of the molecular genetic basis of the neuronal ceroid lipofuscinoses, a clinically and genetically heterogeneous group of childhood neurodegenerative storage disorders.…

Tags: 2001, Animal, Backlog, Child, Chromosome Mapping, Current Opinion in Neurology, Genetic, Genotype, Human, Infant, Journal Article, Membrane Proteins/genetics, Mitchison HM, Models, Mole SE, Neuronal Ceroid-Lipofuscinosis/diagnosis/genetics/therapy, Phenotype, Phosphoprotein Phosphatase/genetics, Proteins/genetics

Browse Items (86 total)