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Dublin Core
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Title
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January 2023 List
Text
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Citation List Month
January List 2023
URL Address
<a href="http://doi.org/10.1186/s12904-022-01077-1" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1186/s12904-022-01077-1</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Stories of paediatric palliative care: a qualitative study exploring health care professionals' understanding of the concept
Publisher
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BMC Palliat Care
Date
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2022
Subject
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Child; Health Personnel/Psychology; Health Care Professionals; Humans; Life-Limiting Conditions; Life-Threatening Conditions; Palliative Care/methods; Palliative Care; Qualitative Research; Quality of Life; Storytelling; Terminal Care Concept; Thematic Analysis; Pediatric Palliative Care (PPC)
Creator
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Riiser K; Holmen H; Winger A; Steindal SA; Castor C; Kvarme LG; Lee A; Lorentsen VB; Misvaer N; Früh EA
Description
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BACKGROUND: By sharing patient stories, health care professionals (HCPs) may communicate their attitudes, values and beliefs about caring and treatment. Previous qualitative research has shown that HCPs usually associate paediatric palliative care (PPC) with death or dying and that they find the concept challenging to understand and difficult to implement. Attending to HCPs' stories may provide a richer account of their understanding of PPC. Thus, the aim of this study was to explore PPC stories narrated by HCPs to gain increased insight into their understanding of what PPC entails. METHODS: This qualitative study collected data from four focus group interviews with 21 HCPs from different units in two Norwegian hospitals. Stories told by the HCPs to illustrate their comprehension of PPC were analysed following thematic analysis procedures. RESULTS: Four themes were identified illustrating what PPC meant to the participants: creating spaces for normality, providing tailored support for the family, careful preparations for saying goodbye and experiencing dilemmas and distress. The stories centred on family care, particularly relating to dramatic or affective situations when the death of a child was imminent. CONCLUSION: The stories reflect how the HCPs view PPC as a specific field of health care that requires particular professional sensitivity, including good communication, collaboration and planning. Thus, the HCPs in this study demonstrated knowledge about the core qualities needed to succeed in PPC. However, similar to previous research, the stories illustrate that how HCPs speak about PPC is strongly associated with end-of-life care, and by that the HCPs do not capture the breadth of the PPC concept. The findings highlight the importance of increasing knowledge about the meaning and content of PPC among HCPs in order to maintain quality of life for all children with life-limiting or life-threatening conditions throughout their illness trajectory.
Identifier
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<a href="http://doi.org/10.1186/s12904-022-01077-1" target="_blank" rel="noreferrer noopener">10.1186/s12904-022-01077-1</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Child
Humans
Palliative Care
Pediatric Palliative Care (PPC)
Thematic Analysis
2022
Bmc Palliat Care
Castor C
Früh EA
Health care professionals
Health Personnel/psychology
Holmen H
January List 2023
Kvarme LG
Lee A
Life-limiting Conditions
Life-threatening Conditions
Lorentsen VB
Misvaer N
Palliative Care/methods
Qualitative Research
Quality Of Life
Riiser K
Steindal SA
Storytelling
Terminal Care Concept
Winger A