1
40
5
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/09638280802242163" target="_blank" rel="noreferrer">http://doi.org/10.1080/09638280802242163</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The health and psychosocial functioning of caregivers of children with neurodevelopmental disorders
Publisher
An entity responsible for making the resource available
Disability And Rehabilitation
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Creator
An entity primarily responsible for making the resource
Lach LM; Kohen DE; Garner RE; Brehaut JC; Miller AR; Klassen AF; Rosenbaum PL
Description
An account of the resource
Purpose. Children with neurodevelopmental disorders (Neuro) pose complex parenting challenges, particularly if the condition co-occurs with behaviour problems. Such challenges are likely to impact caregiver health and well-being. This study explores the extent to which caregivers of children with both Neuro and behaviour problems differ in their physical and psychosocial outcomes from caregivers of children with either condition or neither condition. Method. The first wave of data collected in the National Longitudinal Survey of Children and Youth in Canada (1994) was used to identify four groups of caregivers of 4-to 11-year-old children: caregivers of children with a Neuro disorder and externalising behaviour problems (Both; n = 414), caregivers of children with a Neuro disorder only (Neuro Only; n = 750), caregivers of children with an externalising behaviour problem only (Ext Only; n = 1067), and caregivers of children with neither health condition (Neither; n = 7236). Results. Caregivers in the Both group were least likely to report excellent or very good health, and more frequently reported chronic conditions such as asthma, arthritis, back problems, migraine headaches, and limitations in activities as compared to the Neither group. This group also exhibited higher depression scores, experienced more problematic family functioning and reported lower social support than the Neither group. Scores for caregivers in the Ext Only and Neuro Only groups tended to lie between the Both and Neither group scores and often did not differ from one another. Conclusions. Caregivers of children with both neurovelopmental disorders and behaviour problems exhibited a greater number of health and psychosocial problems. While addressing children's behaviour problems, health care professionals should also consider caregiver physical and psychosocial health, as this may also have an impact on children's well-being.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/09638280802242163" target="_blank" rel="noreferrer">10.1080/09638280802242163</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Backlog
Brehaut JC
Disability And Rehabilitation
Garner RE
Journal Article
Klassen AF
Kohen DE
Lach LM
Miller AR
Rosenbaum PL
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
April 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2022 List
URL Address
<a href="http://doi.org/10.1186/s12913-022-07617-y" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12913-022-07617-y</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Terminology and descriptions of navigation and related practices for children with neurodisability and their families: a scoping review
Publisher
An entity responsible for making the resource available
BMC Health Services Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Terminology; Descriptions; Neurodisability; Families; Children; Scoping review
Creator
An entity primarily responsible for making the resource
Gardiner E; Wong V; Lin G; Miller AR
Description
An account of the resource
Children with neurodisability (ND) represent a significant population with a demonstrated need for coordinated support. Patient navigation has a primary focus on: facilitating access to and connection amongst fragmented systems; as well as the provision of educational and emotional support. Given the distinct needs of children with ND and their families, programs built upon such core concepts could be of great benefit. The diversity of terminology encompassing navigation-related concepts and activities (e.g., care coordination, case management, family support), however, presents challenges to both practice and research. This scoping review examined the terminology and descriptions provided within published articles on navigation-type models for children with ND and their families.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/s12913-022-07617-y" target="_blank" rel="noreferrer noopener">10.1186/s12913-022-07617-y</a>
2022
April 2022 List
BMC Health Services Research
Children
Descriptions
Families
Gardiner E
Lin G
Miller AR
Neurodisability
Scoping review
Terminology
Wong V
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1503/cmaj.1040019" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.1040019</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Responding to the needs of children with chronic health conditions in an era of health services reform
Publisher
An entity responsible for making the resource available
Canadian Medical Association Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Miller 2009 BMC HSR Refs
Creator
An entity primarily responsible for making the resource
Miller AR; Recsky MA; Armstrong RW
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1503/cmaj.1040019" target="_blank" rel="noreferrer">10.1503/cmaj.1040019</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2004
2004
Armstrong RW
Backlog
Canadian Medical Association Journal
Journal Article
Miller 2009 BMC HSR Refs
Miller AR
Recsky MA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1472-6963-9-242" target="_blank" rel="noreferrer">http://doi.org/10.1186/1472-6963-9-242</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Continuity of care for children with complex chronic health conditions: parents' perspectives
Publisher
An entity responsible for making the resource available
Bmc Health Services Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Adolescent Transitions; Chronic Condition; Caregiver
Creator
An entity primarily responsible for making the resource
Miller AR; Condin CJ; McKellin WH; Shaw N; Klassen AF; Sheps S
Description
An account of the resource
BACKGROUND: Continuity of care has been explored largely from academic and service provider perspectives, and in relation to adult patient/client groups. We interviewed parents of children with complex chronic health conditions to examine how their experiences and perceptions of continuity of care fit with these perspectives; and to identify the salient factors in the experience of, and factors contributing to, continuity in this population. METHODS: Parents of 47 elementary school-aged children with spina bifida, Down syndrome, attention-deficit/hyperactivity disorder, Duchenne muscular dystrophy or cystic fibrosis participated in semi-structured interviews. Parents described and mapped the pattern of their interactions with service providers over time in all domains relevant to their child's health, well-being, and development (medical, rehabilitational, educational, and social supportive services), with particular attention paid to their perceptions of connectedness or coherency in these interactions. Verbatim transcripts were analyzed thematically using a framework approach to impose structure regarding parents' perspectives on continuity of care. RESULTS: Existing academic concepts of relational, informational and management continuity were all discernable in parents' narratives. A thorough knowledge of the child on the part of service providers emerged as extremely important to parents; such knowledge was underpinned by continuity of personal relationships, principally, and also by written information. For this population, notions of continuity extend to the full range of service providers these children and families need to achieve optimal health status, and are not limited to physicians and nurses. Communication among providers was seen as integral to perceived continuity. Compartmentalization of services and information led to parents assuming a necessary, though at times, uncomfortable, coordinating role. Geographic factors, institutional structures and practices, provider attitudes, and, on occasion, parent preferences and judgments, were all found to create barriers to "seamless" management and provision of care continuity across providers, settings, and sectors. CONCLUSIONS: These findings add new perspectives to the understanding of continuity within chronically ill children's health care. They are relevant to contemporary initiatives to improve continuity of services to children with special health care needs, demonstrate the need for parental support of their important role in maintaining continuity, and suggest avenues for further research.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1472-6963-9-242" target="_blank" rel="noreferrer">10.1186/1472-6963-9-242</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adolescent Transitions
Backlog
BMC Health Services Research
Caregiver
Chronic Condition
Condin CJ
Journal Article
Klassen AF
McKellin WH
Miller AR
Shaw N
Sheps S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1471-2431-7-40" target="_blank" rel="noreferrer">http://doi.org/10.1186/1471-2431-7-40</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Conceptualizing childhood health problems using survey data: a comparison of key indicators
Publisher
An entity responsible for making the resource available
Bmc Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Miller 2009 BMC HSR Refs
Creator
An entity primarily responsible for making the resource
Kohen DE; Brehaut JC; Garner RE; Miller AR; Lach LM; Klassen AF
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1471-2431-7-40" target="_blank" rel="noreferrer">10.1186/1471-2431-7-40</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2007
2007
Backlog
Bmc Pediatrics
Brehaut JC
Garner RE
Journal Article
Klassen AF
Kohen DE
Lach LM
Miller 2009 BMC HSR Refs
Miller AR