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Dublin Core
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Title
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June 2020 List
Text
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Citation List Month
June 2020 List
URL Address
<a href="http://doi.org/10.1177/1049732320911627" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049732320911627</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Health Care Professionals' Awareness of a Child's Impending Death
Publisher
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Qualitative Health Research
Date
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2020
Subject
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case study; children; decision-making; end-of-life issues; Midwest; professional; qualitative; theory development
Creator
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Kobler K; Bell C; Kavanaugh K; Gallo A M; Corte C; Vincent C
Description
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Health care professionals' (HCPs) experiences during early pediatric end-of-life care were explored using a theory-building case study approach. Multiple data collection methods including observation, electronic medical record review, and semi-structured interviews were collected with 15 interdisciplinary HCPs across four cases. Within- and across-case analyses resulted in an emerging theory. HCPs' initial awareness of a child's impending death is fluid, ongoing, and informed through both relational and internal dimensions. Initial cognitive awareness is followed by a deeper focus on the child through time-oriented attention to the past, present, and future. HCPs engage in a "delicate dance of figuring out" key issues. Awareness was exemplified through four themes: professional responsibility, staying connected, grounded uncertainty, and holding in. The emerging theoretical model provides a framework for HCPs to assess their ongoing awareness, identify personal assumptions, and inform gaps in understanding when facilitating early end-of-life care discussions with families.
Identifier
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<a href="http://doi.org/10.1177/1049732320911627" target="_blank" rel="noreferrer noopener">10.1177/1049732320911627</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Bell C
Case Study
Children
Corte C
Decision-making
End-Of-Life Issues
Gallo A M
June 2020 List
Kavanaugh K
Kobler K
Midwest
Professional
Qualitative
Qualitative Health Research
theory development
Vincent C