1
40
3
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2023 Special Edition 5 - Low Resource Setting List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2023 SE5 - Low Resource Setting
URL Address
<a href="http://doi.org/10.1097/MPH.0000000000002564" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1097/MPH.0000000000002564</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Effects of COVID-19 on Pediatric Cancer Care: A Multicenter Study of 11 Middle Eastern Countries
Publisher
An entity responsible for making the resource available
Journal of Pediatric Hematology/Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
childhood cancer; article; cancer chemotherapy; human; Middle East; cancer palliative therapy; health care access; low income country; middle income country; health care availability; social status; cancer center; coronavirus disease 2019; pandemic; telemedicine; cancer radiotherapy; cancer therapy; cancer surgery; pediatric oncologist; high income country; drug shortage; emergency surgery; granulocyte colony stimulating factor/pv [Special Situation for Pharmacovigilance]; prophylaxis; social distancing; therapy delay
Creator
An entity primarily responsible for making the resource
Elzembely MM; Al Rawas A; Al-Hebshi A; Alhadi A; Ibrahim AK; Zein AA; Ragab I; Alshamsi ET; Dammag E; Gachi F; Zain GH; Mohammad HS; Haddad H; Boudiaf H; Alharbi I; Sultan I; Salami KH; Bayoumy MS; Al-Mulla NA; Al Mashaikhi N; Almajali RM; Farah R; Al Daama SA; Ahmad S; Ragab SM; Fadel SH; Ahmed S; Al-Sweedan S; Abdelmabood S; Kaleem WK; Madney Y
Description
An account of the resource
During the COVID-19 pandemic, major challenges are facing pediatric cancer centers regarding access to cancer centers, continuity of the anti-cancer therapy, hospital admission, and infection protection precautions. Pediatric oncologists actively treating children with cancer from 29 cancer centers at 11 countries were asked to answer a survey from May 2020 to August 2020 either directly or through the internet. COVID-19 pandemic affected the access to pediatric cancer care in the form of difficulty in reaching the center in 22 (75.9%) centers and affection of patients'flow in 21 (72.4%) centers. Health care professionals (HCP) were infected with COVID-19 in 20 (69%) surveyed centers. Eighteen centers (62%) modified the treatment guidelines. Care of follow-up patients was provided in-hospital in 8(27.6%) centers, through telemedicine in 10 (34.5%) centers, and just delayed in 11 (38%) centers. Pediatric oncologists had different expectations about the future effects of COVID-19 on pediatric cancer care. Seventy-six percent of pediatric oncologists think the COVID-19 pandemic will increase the use of telemedicine. Fifty-five percent of pediatric oncologists think if the COVID-19 pandemic persists, we will need to change chemotherapy protocols to less myelosuppressive ones. Collaborative studies are required to prioritize pediatric cancer management during COVID-19 era.Copyright © 2023 Lippincott Williams and Wilkins. All rights reserved.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/MPH.0000000000002564" target="_blank" rel="noreferrer noopener">10.1097/MPH.0000000000002564</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
2023 SE5 - Low Resource Setting
Abdelmabood S
Ahmad S
Ahmed S
Al Daama SA
Al Mashaikhi N
Al Rawas A
Al-Hebshi A
Al-Mulla NA
Al-Sweedan S
Alhadi A
Alharbi I
Almajali RM
Alshamsi ET
Article
Bayoumy MS
Boudiaf H
cancer center
Cancer Chemotherapy
Cancer Palliative Therapy
cancer radiotherapy
cancer surgery
Cancer Therapy
Childhood Cancer
coronavirus disease 2019
Dammag E
drug shortage
Elzembely MM
emergency surgery
Fadel SH
Farah R
Gachi F
granulocyte colony stimulating factor/pv [Special Situation for Pharmacovigilance]
Haddad H
Health Care Access
Health Care Availability
high income country
Human
Ibrahim AK
Journal Of Pediatric Hematology/oncology
Kaleem WK
low income country
Madney Y
Middle East
middle income country
Mohammad HS
Pandemic
pediatric oncologist
prophylaxis
Ragab I
Ragab SM
Salami KH
social distancing
social status
Sultan I
Telemedicine
therapy delay
Zain GH
Zein AA
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
April 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2020 List
URL Address
<a href="https://pediatrics.aappublications.org/content/142/1_MeetingAbstract/640">https://pediatrics.aappublications.org/content/142/1_MeetingAbstract/640</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative care in an underserved community: Striving and thriving
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
awareness; bereavement support; bone marrow; cancer patient; Caribbean; child; childhood cancer; conference abstract; congenital malformation; coordination compound; ethnic group; Europe; female; heart; Hispanic; hospice; hospital patient; human; Japan; kidney; liver; major clinical study; male; medicaid; memory; Middle East; music therapy; neonatal intensive care unit; newborn; nursing education; pain; palliative therapy; pastoral care; perception; posthumous care; resident; sibling; social work; terminal care; terminally ill patient
Creator
An entity primarily responsible for making the resource
Alladin A R; Juanico K; Webster-Carrion A; Nares M; Cantwell G P
Description
An account of the resource
Program Goals: Our program is uniquely positioned in a safety net hospital that serves as a large tertiary referral center for pediatric transplant, trauma and heart failure as well as being an international catchment area for the southern hemisphere. Meeting the palliative care needs of our medically complex and chronically ill children proves to be a tremendous challenge, oftentimes made worse by the fact that our most technology dependent children may be uninsured with families that have little to no resources. Despite the complexity of our population and our many financial and socioeconomic constraints, we have a burgeoning Pediatric Palliative Care (PPC) Service that strives to provide quality independent of our patients' circumstances. Evaluation: In 2008, we sought to institute PPC without having dedicated FTE's. By 2013, we had convened a consistent team with existing staff and improved the awareness and importance of palliative care. Our program has experienced significant growth and now consists of one full time PPC Nurse, one volunteer faculty physician, child life, music therapy, behavioral health, pastoral care, social work and volunteer services. In 2016, our team received 176 consults - a 76% increase from our initial efforts in 2013. The majority were for Pediatric Transplant patients including Bone Marrow, Cardiac, Renal, Liver, Intestinal and Multivisceral, accounting for 23% of our total. Pediatric Oncology was our next most frequent category at 20%. The third most common consultation was for complex congenital malformations and syndromes from the Neonatal ICU at 11%. 79% of our consults consisted of ethnic minorities (Black and Hispanic). Historically, our institution serves 80% Medicaid and 3% unfunded patients. Approximately 20% of our patient population consists of international referrals and in 2016 our consults included patients from the Middle East, Caribbean, South and Central America, Europe and Japan. Our services to patients include coordination of complex care, discharges to hospice, pain and symptom management, family and sibling support, field trips and even meal, transportation and gym access vouchers. We have facilitated international medical transportation of terminally ill children back to their countries of origin to provide a peaceful death surrounded by loved ones in a familiar environment. From our cumulative PPC census, there were 90 deaths in 2016. All members of our team assisted with inpatient end of life care, memory building, bereavement services and even funeral arrangements and expenses where possible.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Alladin A R
April 2020 List
Awareness
Bereavement Support
bone marrow
Cancer Patient
Cantwell G P
Caribbean
Child
Childhood Cancer
conference abstract
Congenital Malformation
coordination compound
Ethnic Group
Europe
Female
Heart
Hispanic
Hospice
Hospital Patient
Human
Japan
Juanico K
kidney
liver
Major Clinical Study
Male
Medicaid
Memory
Middle East
Music Therapy
Nares M
Neonatal Intensive Care Unit
Newborn
nursing education
Pain
Palliative Therapy
Pastoral Care
Pediatrics
Perception
Posthumous Care
Resident
Sibling
Social Work
Terminal Care
terminally Ill Patient
Webster-Carrion A
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
March 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2018 List
URL Address
<a href="http://doi.org/10.1542/peds.2012-0981" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2012-0981</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Neonatal end-of-life care: A single-center NICU experience in Israel over a decade
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
newborn care; newborn mortality; adrenal insufficiency/ep [Epidemiology]; anemia/ep [Epidemiology]; Article; brain edema/ep [Epidemiology]; brain hemorrhage/ep [Epidemiology]; cause of death; child parent relation; congenital malformation/ep [Epidemiology]; gestational age; Human; Incidence; Israel; Jerusalem; kidney failure/ep [Epidemiology]; Medical Decision Making; Middle East; necrotizing enterocolitis/ep [Epidemiology]; Newborn; newborn death; newborn hypoxia/ep [Epidemiology]; Newborn Intensive Care; newborn sepsis/ep [Epidemiology]; practice guideline; prematurity; priority journal; quality of life; Religion; respiratory failure/ep [Epidemiology]; sepsis/ep [Epidemiology]; shock/ep [Epidemiology]; treatment duration
Creator
An entity primarily responsible for making the resource
Eventov-Friedman S; Kanevsky H; Bar-Oz B
Description
An account of the resource
OBJECTIVES: To follow changes in the causes of neonatal deaths in the NICU at Hadassah Medical Center, Jerusalem, Israel, over a decade; to examine trends regarding types of end-of-life-care provided (primary nonintervention, maximal intensive, and redirection of intensive care, including limitation of care and withdrawal of life-sustaining treatment); and to assess the parental role in the decision-making process given that the majority of the population is religious. METHODS: All neonates who died between 2000 and 2009 were identified. The causes and circumstances of death were Abstract: ed from the medical records. Trends in end-of-life decisions were compared between 2 time periods: 2000-2004 versus 2005-2009. RESULTS: Overall, 239 neonates died. The leading cause of death in both study periods was prematurity and its complications (76%). Among term infants, the leading cause of death was congenital anomalies (48%). Fifty-six percent of the infants received maximal intensive care; 28% had redirection of intensive care, of whom 10% had withdrawal of life-sustaining treatment; and 16% had primary nonintervention care. Over the years, maximal intensive care decreased from 65% to 46% (P < .02), whereas redirection of care increased from 19.2% to 37.5% (P < .0005). An active parental role in the end-of-life decision process increased from 38% to 84%. CONCLUSIONS: Even among religious families of extremely sick neonates, redirection of care is a feasible treatment option, suggesting that apart from survival, quality-of-life considerations emerge as an important factor in the decision-making process for the infant, parents, and caregivers.
2013-06
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2012-0981" target="_blank" rel="noreferrer">10.1542/peds.2012-0981</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2013
adrenal insufficiency/ep [Epidemiology]
anemia/ep [Epidemiology]
Article
Bar-Oz B
brain edema/ep [Epidemiology]
brain hemorrhage/ep [Epidemiology]
Cause Of Death
Child Parent Relation
congenital malformation/ep [Epidemiology]
Eventov-Friedman S
Gestational Age
Human
Incidence
Israel
Jerusalem
Kanevsky H
kidney failure/ep [Epidemiology]
March 2018 List
Medical Decision Making
Middle East
necrotizing enterocolitis/ep [Epidemiology]
Newborn
Newborn Care
Newborn Death
newborn hypoxia/ep [Epidemiology]
Newborn Intensive Care
newborn mortality
newborn sepsis/ep [Epidemiology]
Pediatrics
Practice Guideline
Prematurity
Priority Journal
Quality Of Life
Religion
respiratory failure/ep [Epidemiology]
sepsis/ep [Epidemiology]
shock/ep [Epidemiology]
treatment duration