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Dublin Core
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Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
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<a href="http://doi.org/10.1016/j.nmd.2009.11.014" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.nmd.2009.11.014</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Children's Hospital of Philadelphia Infant Test of Neuromuscular Disorders (CHOP INTEND): Test development and reliability
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Neuromuscular Disorders
Date
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2010
Subject
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tone and motor problems; SMA1; tool development; scale development; CHOP INTEND
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Glanzman A M; Mazzone E; Main M; Pelliccioni M; Wood J; Swoboda K J; Scott C; Pane M; Messina S; Bertini E; Mercuri E; Finkel R S
Description
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The motor skills of patients with spinal muscular atrophy, type I (SMA-I) are very limited. It is difficult to quantify the motor abilities of these patients and as a result there is currently no validated measure of motor function that can be utilized as an outcome measure in clinical trials of SMA-I. We have developed the Children's Hospital of Philadelphia Infant Test of Neuromuscular Disorders (" CHOP INTEND" ) to evaluate the motor skills of patients with SMA-I. The test was developed following the evaluation of 26 infants with SMA-I mean age 11.5. months (1.4-37.9. months) with the Test of Infant Motor Performance and The Children's Hospital of Philadelphia Test of Strength in SMA, a newly devised motor assessment for SMA. Items for the CHOP INTEND were selected by an expert panel based on item mean and standard deviation, item frequency distribution, and Chronbach's alpha. Intra-rater reliability of the resulting test was established by test-retest of 9 infants with SMA-I over a 2. month period; Intraclass correlation coefficient (ICC) (3,1) = 0.96. Interrater reliability was by video analysis of a mixed group of infants with neuromuscular disease by 4 evaluators; ICC (3,4) = 0.98 and in a group of 8 typically developing infants by 5 evaluators ICC (3,5) = 0.93. The face validity of the CHOP INTEND is supported by the use of an expert panel in item selection; however, further validation is needed. The CHOP INTEND is a reliable measure of motor skills in patients with SMA-I and neuromuscular disorders presenting in infancy. © 2009 Elsevier B.V.
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<a href="http://doi.org/10.1016/j.nmd.2009.11.014" target="_blank" rel="noreferrer noopener">10.1016/j.nmd.2009.11.014</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2010
Bertini E
CHOP INTEND
Finkel R S
Glanzman A M
Main M
Mazzone E
Mercuri E
Messina S
Neuromuscular Disorders
Pane M
Pelliccioni M
scale development
Scott C
SMA1
Swoboda K J
tone and motor problems
tool development
Wood J