1
40
32
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Title
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February 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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February List 2024
URL Address
<a href="http://doi.org/10.1089/jpm.2023.0147" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1089/jpm.2023.0147</a>
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Title
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Community-Based Pediatric Palliative Care: How Services Support Children's and Families' Quality of Life
Publisher
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Journal of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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mental health; child; article; controlled study; human; male; palliative therapy; pain; sibling; spiritual care; quality of life; interview; interpersonal communication; cost effectiveness analysis; adolescent; socialization; caregiver; convenience sample; bereavement support; family; clinician; participatory research; self care; psychological well-being; physical well-being; disease management; community; community integration
Creator
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Wang Y; Ferreira E; Savageau J; Beitman A; Young M; Gabovitch E; Merriam G; Jozan A; Padgett K; Bateman S
Description
An account of the resource
Background: The Massachusetts Department of Public Health's Pediatric Palliative Care Network (PPCN) provides Community-Based Pediatric Palliative Care (CBPPC) to children with life-limiting conditions and their families. CBPPC services aim to improve children and families' quality of life (QOL). <br/>Objective(s): To identify perceived domains of QOL important for children and families and to understand whether and how CBPPC supports QOL. <br/>Design(s): A community-based participatory research framework was used to develop recruitment and data collection materials for eight focus groups and seven interviews. Collected data were transcribed and analyzed with an inductive approach. Setting/Subjects: A convenience sample of 33 PPCN caregivers, 20 providers, and seven key informants, including policymakers, community organizations, and hospital-based clinicians, were interviewed virtually in the United States. Measurements: Perceived QOL domains for children and families, respectively, and perceived impact of CBPPC services on QOL. <br/>Result(s): Reported QOL domains described as important for children were socialization/community integration and accessibility; expression/play; and physical wellness. Control or autonomy, psycho-emotional wellness, and self-care were identified as important for families. Clinical services were described as "integral to mental health" through offered spiritual support; advocacy in the community; and education. PPCN's integrative services were noted as distractions from pain and helped improve communication and bonding. Sibling support and bereavement care were also mentioned as impactful on QOL. <br/>Conclusion(s): Family-centered CBPPC was described as supportive of children's and families' QOL. Future studies should consider using population-based QOL measures, leveraging the QOL domains identified through this analysis and other outcome measures in a cost-effectiveness analysis.
Identifier
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<a href="http://doi.org/10.1089/jpm.2023.0147" target="_blank" rel="noreferrer noopener">10.1089/jpm.2023.0147</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Adolescent
Article
Bateman S
Beitman A
Bereavement Support
Caregiver
Child
Clinician
Community
community integration
Controlled Study
Convenience Sample
Cost Effectiveness Analysis
Disease Management
Family
February List 2024
Ferreira E
Gabovitch E
Human
Interpersonal Communication
Interview
Journal of Palliative Medicine
Jozan A
Male
Mental Health
Merriam G
Padgett K
Pain
Palliative Therapy
participatory research
physical well-being
Psychological Well-being
Quality Of Life
Savageau J
Self Care
Sibling
Socialization
Spiritual Care
Wang Y
Young M
-
Dublin Core
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Title
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August 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August List 2023
URL Address
<a href="http://doi.org/10.1542/peds.2022-059122" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1542/peds.2022-059122</a>
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Title
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The FATHER Model of Loss and Grief After Child's Life-Limiting Illness
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
mental health; Child; child; article; female; human; male; palliative therapy; practice guideline; Medline; anxiety; systematic review; grief; guilt; ethnography; Cinahl; Only Child; Scopus; fatigue; deterioration; injury; mother; meta analysis; quality control; ScienceDirect; ambivalence; father; directory; disenfranchised grief; Preferred Reporting Items for Systematic Reviews and Meta-Analyses; unresolved grief
Creator
An entity primarily responsible for making the resource
Postavaru GI; Hamilton J; Davies S; Swaby H; Michael A; Swaby R; Mukaetova-Ladinska EB
Description
An account of the resource
Context: Loss of a child to a life-limiting condition (LLC) is 1 of the most traumatic life events for parents. Research focusing on fathers' experiences is in its infancy. Objectives: Using a meta-ethnographic approach, we systematically reviewed the literature around fathers' predeath and postdeath experiences of loss and grief. Data sources: We searched Medline, Scopus, Cumulative Index to Nursing and Allied Health Literature, and Science Direct, and used the meta-ethnography reporting guidelines; the Preferred Reporting Items for Systematic Reviews and Meta-Analyses; and sampling strategy, type of study, approaches, range of years, limits, inclusion and exclusions, terms used, and electronic sources recommendations. Study selection: We used the Guide to Children's Palliative Care and the directory of LLCs to select qualitative articles published up until the end of March 2023 that described fathers' predeath and postdeath experiences of loss and grief after their child's LLC. We excluded studies that failed to differentiate outcomes between mothers and fathers. Data extraction: Extracted data included study details, participants' characteristics, response rate, source of participants, method and time of data collection, children's characteristics, and quality assessment. First-order and second-order data were also extracted. Results: Forty studies informed a FATHER model of loss and grief. This highlights both similarities (ambivalence, trauma responses, fatigue, anxiety, unresolved grief, guilt) and distinct features defining the predeath and postdeath experiences of loss and grief. Limitations: There was a bias toward greater mother participation in research. Specific categories of fathers remain underrepresented in palliative care literature. Conclusions: Many fathers experience disenfranchised grief and deterioration in mental health after a child's diagnosis and postdeath. Our model opens possibilities for personalized clinical support in the palliative care system for fathers.
Identifier
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<a href="http://doi.org/10.1542/peds.2022-059122" target="_blank" rel="noreferrer noopener">10.1542/peds.2022-059122</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
ambivalence
anxiety
Article
August List 2045
Child
Cinahl
Davies S
Deterioration
directory
disenfranchised grief
ethnography
Father
Fatigue
Female
Grief
Guilt
Hamilton J
Human
injury
Male
Medline
Mental Health
meta analysis
Michael A
Mother
Mukaetova-Ladinska EB
Only Child
Palliative Therapy
Pediatrics
Postavaru GI
Practice Guideline
Preferred Reporting Items for Systematic Reviews and Meta-Analyses
quality control
ScienceDirect
Scopus
Swaby H
Swaby R
Systematic Review
unresolved grief
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2023 Special Edition 1 - Parent Perspectives List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2023 SE1 - Parent Perspectives
URL Address
<a href="http://doi.org/10.1177/2374373520938909" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1177/2374373520938909</a>
Dublin Core
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Title
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Patient Experience Research in Children and Young People's Mental Health Services in England: A Route to Genuine Service Transformation or Just Pretty Pictures and Tasteful Color Schemes?
Publisher
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Journal of Patient Experience
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Creator
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Crosier A; Knightsmith P
Description
An account of the resource
The personalization of service provision and responding to patients' expressed needs are key components of government plans to improve children and young people's mental health services in England. This qualitative study explored the use of patient experience research in these services. Despite national level commitments to listening to and acting on the "patient's voice," both service users (young people) and parents of this group reported never having been invited to participate in patient experience research. Most professional respondents reported that such research was frequently tokenistic and conducted solely to meet an administrative requirement. Senior policy makers justified the limited investment in, and use made of patient experience research, by pointing to what they felt were more urgent priorities facing children and young people's mental health services. These included unprecedented levels of demand and critical underfunding of mental health services and related youth- and community-based services. The conceptualization of patient experience research within the National Health Service (NHS) as a service improvement issue was found to have led to its status being diminished to one concerned with relatively cosmetic matters, such as the color scheme or choice of pictures on the walls of clinics. Senior policy makers argued that it was important to rethink the role and value of patient experience research, and to recognize its unique contribution to addressing the existential questions facing services.
Identifier
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<a href="http://doi.org/10.1177/2374373520938909" target="_blank" rel="noreferrer noopener">10.1177/2374373520938909</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
2023 SE1 - Parent Perspectives
children and young people
Crosier A
Journal of Patient Experience
Knightsmith P
Mental Health
patient feedback
patient perspectives/narratives
Patient Safety
Patient Satisfaction
Qualitative Methods
-
Dublin Core
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Title
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April 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2022 List
URL Address
<a href="http://doi.org/10.1016/j.jadohealth.2021.12.020" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jadohealth.2021.12.020</a>
Dublin Core
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Title
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Emotional Wellbeing in Adolescents Living With Chronic Conditions: A Metasynthesis of the Qualitative Literature
Publisher
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Journal of Adolescent Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
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Adolescents; Anxiety; Depression; Mental health; Pediatrics; Positive health assets; Psychological wellbeing; Subjective wellbeing; Suicide; Teen
Creator
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Courtwright SE; Le Pard A; Jones J
Description
An account of the resource
Adolescents living with chronic conditions (ALWCCs) are at a higher risk of suicide (odds ratio: 4.3) than their peers. No consensus exists in the scientific community on a definition or conceptual elements of emotional well-being in this vulnerable population, hindering informed interventional research. This study investigated the meaning of emotional well-being in ALWCCs. A systematic metasynthesis of the qualitative literature was performed and structured using ENTREQ guidelines for reporting qualitative metasynthesis. A final sample of 11 primary qualitative studies met inclusion criteria and was critically analyzed using a team-based thematic synthesis and reciprocal translation approach. The meaning of emotional well-being in ALWCCs is having positive relationships that ease loss, foster hope and resilience, and promote self-efficacy and self-actualization. The role of healthcare providers as a safe, stable nurturing relationship which promotes hope and positive body image emerges an area for future research. Spirituality as it relates to emotional well-being in this population is scarce in the qualitative literature and should be further explored.
Identifier
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<a href="http://doi.org/10.1016/j.jadohealth.2021.12.020" target="_blank" rel="noreferrer noopener">10.1016/j.jadohealth.2021.12.020</a>
2022
Adolescents
anxiety
April 2022 List
Courtwright SE
Depression
Jones J
Journal of Adolescent Health
Le Pard A
Mental Health
Pediatrics
Positive health assets
psychological wellbeing
Subjective wellbeing
Suicide
Teen
-
Dublin Core
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Title
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2020 Oncology List
Text
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Citation List Month
Oncology 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2019.11.022" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2019.11.022</a>
Dublin Core
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Title
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Defining the Boundaries of Palliative Care in Pediatric Oncology
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
child; human; palliative therapy; controlled study; female; major clinical study; male; article; childhood cancer; terminal care; quality of life; interview; comfort; cancer patient; content analysis; skill; mental health; nurse practitioner; genetic transcription; pediatric oncologist; standardization
Creator
An entity primarily responsible for making the resource
Cuviello A; Raisanen J C; Donohue P K; Wiener L; Boss R D
Description
An account of the resource
Context: Although palliative care (PC) continues to be integrated into pediatric oncological care, only a minority of patients with cancer receive a formal PC consult.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2019.11.022" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2019.11.022</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Article
Boss R D
Cancer Patient
Child
Childhood Cancer
Comfort
Content Analysis
Controlled Study
Cuviello A
Donohue P K
Female
genetic transcription
Human
Interview
Journal of Pain and Symptom Management
Major Clinical Study
Male
Mental Health
Nurse Practitioner
Oncology 2020 List
Palliative Therapy
pediatric oncologist
Quality Of Life
Raisanen J C
Skill
standardization
Terminal Care
Wiener L
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
December 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2020 List
URL Address
<a href="http://doi.org/10.2196/22329" target="_blank" rel="noreferrer noopener">http://doi.org/10.2196/22329</a>
Dublin Core
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Title
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eHealth and mHealth psychosocial interventions for youths with chronic illnesses: A systematic review
Publisher
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JMIR Pediatrics and Parenting
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
chronic illness; eHealth; mental health; mHealth; pediatrics; psychosocial interventions
Creator
An entity primarily responsible for making the resource
Lau N; Waldbaum S; Parigoris R; O'Daffer A; Walsh C; Colt SF; Yi-Frazier JP; Palermo TM; McCauley E; Rosenberg AR
Description
An account of the resource
BACKGROUND: An estimated 12.8% of children and adolescents experience chronic health conditions which lead to poor quality of life, adjustment and coping issues, and concurrent mental health problems. Digital health deployment of psychosocial interventions to support youth with chronic illness has become increasingly popular with the advent of the technological advances in the Digital Age. OBJECTIVE: To (1) systematically review published efficacy studies of eHealth (internet-based) and mHealth (mobile health) psychosocial interventions for youths with chronic illnesses; and, (2) review intervention theory and treatment components. METHODS: PubMed, Embase, Web of Science, PsychInfo, and Cochrane Database of Systematic reviews were searched for studies published from 2008-2019 of eHealth and mHealth psychosocial interventions designed for children and adolescents with chronic illnesses in which efficacy outcomes were reported. We excluded studies of interventions for caregivers, healthy youth, disease and medication management, and telehealth interventions that function solely as a platform to connect patients to providers via phone, text, or videoconference. RESULTS: We screened 2,551 articles, and 133 relevant full-text articles. Sixteen efficacy studies with psychosocial and health outcomes met inclusion criteria, which represented 12 unique interventions. Of the included studies, 12 were randomized controlled trials and four were prospective cohort studies with no comparison group. Most interventions were based in cognitive-behavioral theory and designed as eHealth interventions; only 2 were designed as an mHealth intervention. All but two interventions provided access to support staff via text, phone, email, or discussion forums. The significant heterogeneity in intervention content, intervention structure, medical diagnoses, and outcomes precluded meta-analysis. For example, measurement timepoints ranged from immediately post-completion of the mHealth program to 18-months later, and we identified 39 unique outcomes of interest. The majority of included studies (11/16, 68.75%) reported significant changes in measured health and/or psychosocial post-treatment outcomes, with small to large effect sizes. CONCLUSIONS: Although the available literature on the efficacy of eHealth and mHealth psychosocial interventions for youth with chronic illnesses is limited, preliminary research suggests some evidence of positive treatment responses. Future studies should continue to evaluate whether digital health platforms may be a viable alternative model of delivery to traditional face-to-face approaches.
Identifier
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<a href="http://doi.org/10.2196/22329" target="_blank" rel="noreferrer noopener">10.2196/22329</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Chronic Illness
Colt SF
December 2020 List
eHealth
JMIR Pediatrics and Parenting
Lau N
McCauley E
Mental Health
mHealth
O'Daffer A
Palermo TM
Parigoris R
Pediatrics
psychosocial interventions
Rosenberg AR
Waldbaum S
Walsh C
Yi-Frazier JP
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
October 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2020 List
URL Address
<a href="http://doi.org/10.1186/s13643-020-01387-6" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s13643-020-01387-6</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Effectiveness of psychotherapeutic interventions on psychological distress in women who have experienced perinatal loss: a systematic review protocol
Publisher
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Systematic Reviews
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
animals; Chordata; eukaryotes; gestation; Hominidae; Homo; human diseases; mammals; man; mental disorders; mental health; mental illness; meta-analysis; perinatal mortality; pregnancy; pregnancy complications; pregnant women; primates; psychotherapy; randomized controlled trials; systematic reviews; vertebrates; women
Creator
An entity primarily responsible for making the resource
Charrois E M; Bright K S; Wajid A; Mughal M K; Hayden K A; Kingston D
Description
An account of the resource
Background: Perinatal loss is a traumatic and complex experience that contributes to negative maternal psychological states and adverse outcomes impacting fetal development, maternal-fetal/infant bonding, marital/partner relationships, and child cognitive, emotional, and behavioral development. These outcomes present preventable disease burden and financial liability to individuals, families, and the healthcare system. Psychological interventions have the potential to improve outcomes for women and their families after perinatal loss. A few studies have explored the effectiveness of individual psychotherapeutic interventions in reducing maternal psychological distress after perinatal loss; however, a systematic review to compare these interventions has not been conducted. The primary objective of this systematic review is to determine the effectiveness of psychotherapeutic intervention on psychological distress and perception, coping, and adjustment in women who have experienced perinatal loss. The secondary objective of this review is to examine the content and delivery methods of effective psychotherapeutic interventions. Methods: We endeavor to search electronic databases (PsycINFO, MEDLINE, Embase, Cochrane Central Register of Controlled Trials (CENTRAL), Scopus, CINAHL, Social Work Abstracts, Family and Society Studies Worldwide, Family Studies Abstracts, Academic Search Premier), gray literature databases (Proquest Dissertation and Theses Global, Web of Science Conference Proceedings Citation Index, OAIster, Open-Grey, Canadian Electronic Library, Canadian Research Index), and relevant organizational websites and conduct forward and backward citation searches of included studies. Inclusion criteria will consider studies that (1) are randomized controlled trials (RCTs), quasi-experimental (e.g., before-after design), and observational (prospective cohort); (2) include women affected by perinatal loss accessing psychotherapeutic intervention or support; and (3) evaluate a mental health or related outcome. Two authors will independently screen all citations, full-text articles, and abstract data. The study methodological quality (or bias) will be appraised using an appropriate tool. The primary outcome(s) will be measurements on the severity of depressive, anxiety, grief, and post-traumatic stress symptoms. Secondary outcomes will include measurements on difficulties in perception, coping, social, or dyadic adjustment. Conducting a narrative synthesis will identify relationships within study findings, and if appropriate, a random effects meta-analysis will be performed. Discussion: This systematic review will summarize the effectiveness of psychological interventions, including their content and delivery method, in reducing psychological distress and improving outcomes for women affected by perinatal loss. The evidence generated from this review can inform researchers and policymakers in expanding on related research and developing customized interventions or programs.
Identifier
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<a href="http://doi.org/10.1186/s13643-020-01387-6" target="_blank" rel="noreferrer noopener">10.1186/s13643-020-01387-6</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Animals
Bright K S
Charrois E M
Chordata
Eukaryotes
gestation
Hayden K A
Hominidae
Homo
Human Diseases
Kingston D
Mammals
Man
Mental Disorders
Mental Health
mental illness
Meta-Analysis
Mughal M K
October 2020 List
Perinatal Mortality
Pregnancy
Pregnancy Complications
Pregnant Women
Primates
Psychotherapy
Randomized Controlled Trials
Systematic reviews
Vertebrates
Wajid A
Women
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
March 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2019.12.241" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2019.12.241</a>
Dublin Core
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Title
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National Institute of Nursing Research and MedlinePlus Team Up to Offer a Palliative Care Text Campaign (QI632)
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
adult; child; conference abstract; e-mail; human; mental health; national health organization; nursing research; palliative therapy; pediatric patient; transcription initiation; videorecording; wellbeing
Creator
An entity primarily responsible for making the resource
Burroughs A; Lemon A; Coppess S; Miller J
Description
An account of the resource
Objectives: * Apply the principles of plain language to deliver easy-to-understand, evidence-based palliative care information to those with serious illnesses and their families. * Utilize common forms of telecommunications (text messaging and email) to reach English- and Spanish-speaking patients. Background Research has shown that patients who receive palliative care report improvement in pain, nausea, and shortness of breath; communication with their healthcare providers and family members; and emotional support. Aim Statement To increase awareness of palliative care and its benefits for those living with serious illnesses and their families. Methods From February 2018 to February 2019, the National Institute of Nursing Research (NINR) and the National Library of Medicine's MedlinePlus® ran a text message campaign about palliative care. Messages included information for adult and pediatric patients and their families. The campaign also ran in Spanish from February to August 2018. Subscribers received one text message per week. About a month into the campaign, a weekly e-mail option was added. Results 3,143 subscribers signed up for the English text messages, and 944 signed up for the Spanish campaign. An additional 8,004 subscribers signed up for English e-mails, and 9,252 subscribers signed up for Spanish e-mails. The 56 links shared generated 16,039 clicks to NINR and MedlinePlus® content. The average engagement rate of a message was 1%, or only 1% of subscribers clicked the link of any message. The most popular messages were about mental health/emotional wellbeing and new research. Conclusions and Implications A successful campaign is determined by the number of people reached, increased visitors to linked content, attrition, and engagement. The growth was steady and the campaign was successful in gaining new subscribers. Attrition was low; fewer than 10 people unsubscribed. Overall, this campaign was successful in reach, but engagement was low. Implications for practice A future campaign should: a.Include an e-mail option from the beginning to reach a wider audience. b.Focus on engaging content. Create action-based content that elicits a response from subscribers. c.Link only to mobile-friendly pages, not PDFs and videos, since many subscribers are accessing content from mobile devices.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2019.12.241" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2019.12.241</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Adult
Burroughs A
Child
conference abstract
Coppess S
E-mail
Human
Journal of Pain and Symptom Management
Lemon A
March 2020 List
Mental Health
Miller J
national health organization
Nursing Research
Palliative Therapy
pediatric patient
transcription initiation
videorecording
Wellbeing
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1016/j.pediatrneurol.2014.10.006" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.pediatrneurol.2014.10.006</a>
Dublin Core
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Title
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Pilot Validation of the Tuberous Sclerosis-Associated Neuropsychiatric Disorders (TAND) Checklist
Publisher
An entity responsible for making the resource available
Pediatric Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
psychosocial; children; Pediatrics; cognition; behavior; Neurosciences & Neurology; mental health; autism; gene; recommendations; academic; attention deficits; complex consensus conference; diagnostic-criteria; identification; neuropsychology; population; sample; TAND; tuberous sclerosis complex; behavioral problems; tuberous sclerosis; tool development; scale development
Creator
An entity primarily responsible for making the resource
Leclezio L; Jansen A; Whittemore V H; de Vries P J
Description
An account of the resource
BACKGROUND: Tuberous sclerosis complex is a multisystem disorder that includes a range of tuberous sclerosis associated neuropsychiatric disorders (TAND). The lifetime prevalence rates of TAND are very high; yet surveys suggest that the majority of individuals with tuberous sclerosis never receive appropriate assessment or treatment for TAND. To aid systematic enquiry, a TAND Checklist was developed. Here, we performed pilot validation of the TAND Checklist. METHOD: Mixed methods were used across two stages. In stage 1, we gathered feedback on the Checklist from tuberous sclerosis "expert professionals" and "expert parents and caregivers." The aim was to examine face and content validity. Stage 2 involved the administration of the refined TAND Checklist to 20 parents of individuals with tuberous sclerosis concurrently with four widely used validated rating scales, to examine external validity and obtain qualitative feedback on face-to-face administration of the TAND Checklist. RESULTS: Twenty professionals and 62 parents and caregivers from 28 countries participated in the pilot. The TAND Checklist demonstrated good face and content validity with high overall mean and median scores. Qualitative analysis highlighted concerns about the likely use of the TAND Checklist, suggesting that family members and individuals with tuberous sclerosis should drive usage. Stage 2 results showed moderate-to-very good external validity across TAND domain and key subdomains. Internal consistency of domains and subdomains was acceptable to very good. Ninety-three percent of all participants (93%) reported four or more lifetime TAND behavioral difficulties. CONCLUSION: The pilot validation suggested that the TAND Checklist could provide a useful screening tool in clinical settings.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.pediatrneurol.2014.10.006" target="_blank" rel="noreferrer noopener">10.1016/j.pediatrneurol.2014.10.006</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2015
academic
attention deficits
Autism
Behavior
behavioral problems
Children
Cognition
complex consensus conference
de Vries P J
diagnostic-criteria
gene
identification
Jansen A
Leclezio L
Mental Health
neuropsychology
Neurosciences & Neurology
Pediatric Neurology
Pediatrics
Population
psychosocial
Recommendations
sample
scale development
TAND
tool development
Tuberous Sclerosis
Tuberous sclerosis complex
Whittemore V H
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2018 Developing World List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Developing World 2018 List
URL Address
<a href="http://doi.org/10.1016/j.annepidem.2016.06.001" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1016/j.annepidem.2016.06.001</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Depressive symptoms in mothers after perinatal and early infant loss in rural Bangladesh: a population-based study
Publisher
An entity responsible for making the resource available
Annals of Epidemiology
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Rural Population; Needs Assessment; Pregnancy; Infant Newborn; Young Adult; Infant Mortality; Humans; Adult; Stillbirth; Risk Assessment; Adolescent; Cohort Studies; Female; Infant; Retrospective Studies; Databases Factual; Incidence; Developing Countries; Mothers/ psychology; Postpartum Period; Perinatal Mortality/trends; Maternal Health; Bangladesh; Bangladesh/epidemiology; Depression/ epidemiology/etiology; Depressive symptoms; Mental health; Neonatal death; Stillbirth/ ethnology
Creator
An entity primarily responsible for making the resource
Surkan PJ; Sakyi K; Strobino DM; Mehra S; Labrique A; Ali H; Ullah B; Wu L; Klemm R; Rashid M; West KP; Christian P
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.annepidem.2016.06.001" target="_blank" rel="noreferrer noopener">10.1016/j.annepidem.2016.06.001</a>
2016
Adolescent
Adult
Ali H
Annals of Epidemiology
Bangladesh
Bangladesh/epidemiology
Christian P
Cohort Studies
Databases Factual
Depression/ epidemiology/etiology
Depressive symptoms
Developing Countries
Developing World 2018 List
Female
Humans
Incidence
Infant
Infant Newborn
Infant Mortality
Klemm R
Labrique A
Maternal Health
Mehra S
Mental Health
Mothers/ Psychology
Needs Assessment
Neonatal Death
Perinatal Mortality/trends
Postpartum Period
Pregnancy
Rashid M
Retrospective Studies
Risk Assessment
Rural Population
Sakyi K
Stillbirth
Stillbirth/ ethnology
Strobino DM
Surkan PJ
Ullah B
West KP
Wu L
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2018 List
URL Address
<a href="http://doi.org/10.1186/s13052-018-0531-8" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s13052-018-0531-8</a>
Dublin Core
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Title
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Comparison of mothers and grandmothers physical and mental health and functioning within 6 months after child NICU/PICU death
Publisher
An entity responsible for making the resource available
Italian Journal of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Attitude to Death; Bereavement; Blacks; Checklists; Chi Square Test; Cross Sectional Studies; Depression; Employment Status; Grandparents Psychosocial Factors; Grief; Health Status; Hispanics; Human; Intensive Care Units; Interviews; Mental Health; Mothers Psychosocial Factors; Neonatal; Paired T-Tests; Pediatric; Physical Fitness; Post-Traumatic; Psychological Tests; Psychosocial; Stress Disorders; Support
Creator
An entity primarily responsible for making the resource
Youngblut JM; Brooten D
Description
An account of the resource
Losing a child is devastating for parents and grandparents. Family and friends generally focus on comforting and supporting the bereaved parents, unintentionally ignoring the bereaved grandparents. Grandmothers and grandfathers often struggle with wanting to help their adult children (deceased child’s parents) without usurping the parents’ responsibilities and decisions regarding the deceased child. Research on mothers’ and grandmothers’ health at about the same time after the same child’s death in the neonatal or pediatric intensive care unit is lacking. The aim of this study was to compare mothers and grandmothers on physical health, mental health, and functioning in the first 1–6 months after the same child’s death in a neonatal or pediatric intensive care unit.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/s13052-018-0531-8" target="_blank" rel="noreferrer noopener">10.1186/s13052-018-0531-8</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here.
2018
Attitude To Death
Bereavement
Blacks
Brooten D
Checklists
Chi Square Test
Cross Sectional Studies
Depression
Employment Status
Grandparents Psychosocial Factors
Grief
Health Status
Hispanics
Human
Intensive Care Units
Interviews
Italian Journal of Pediatrics
Mental Health
Mothers Psychosocial Factors
Neonatal
October 2018 List
Paired T-Tests
Pediatric
Physical Fitness
Post-traumatic
Psychological Tests
psychosocial
September 2018 List
Stress Disorders
Support
Youngblut JM
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2018 List
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2018 List
URL Address
<a href="http://doi.org/10.1177/1049909116660688" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909116660688</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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A Multimodal Mindfulness Training to Address Mental Health Symptoms in Providers Who Care for and Interact With Children in Relation to End-of-Life Care
Publisher
An entity responsible for making the resource available
The American journal of hospice & palliative care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Humans; Intensive Care Units; Intensive Care Units; Middle Aged; Female; Male; Adult; Aged; Pediatric; Neonatal; Terminal Care/px [Psychology]; Mental Health; Burnout; Health Personnel/px [Psychology]; Mindfulness/mt [Methods]; Clergy/px [Psychology]; Depression/px [Psychology]; Social Workers/px [Psychology]; Professional/px [Psychology]
Creator
An entity primarily responsible for making the resource
O'Mahony S; Gerhart J; Abrams I; Greene M; McFadden Rory; Tamizuddin S; Levy MM
Description
An account of the resource
AIM: Medical providers may face unique emotional challenges when confronted with the suffering of chronically ill, dying, and bereaved children. This study assessed the preliminary outcomes of participation in a group-based multimodal mindfulness training pilot designed to reduce symptoms of burnout and mental health symptoms in providers who interact with children in the context of end-of-life care., METHODS: A total of 13 medical providers who care for children facing life-threatening illness or bereaved children participated in a 9-session multimodal mindfulness session. Mental health symptoms and burnout were assessed prior to the program, at the program midpoint, and at the conclusion of the program., RESULTS: Participation in the pilot was associated with significant reductions in depressive and posttraumatic stress disorder (PTSD) symptoms among providers ( P < .05)., CONCLUSION: Mindfulness-based programs may help providers recognize and address symptoms of depression and PTSD. Additional research is needed to enhance access and uptake of programming among larger groups of participants.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1049909116660688" target="_blank" rel="noreferrer noopener">10.1177/1049909116660688</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Abrams I
Adult
Aged
August 2018 List
Burnout
Clergy/px [Psychology]
Depression/px [Psychology]
Female
Gerhart J
Greene M
Health Personnel/px [psychology]
Humans
Intensive Care Units
Levy MM
Male
McFadden Rory
Mental Health
Middle Aged
Mindfulness/mt [Methods]
Neonatal
O'Mahony S
Pediatric
Professional/px [Psychology]
Social Workers/px [psychology]
Tamizuddin S
Terminal Care/px [psychology]
The American Journal of Hospice & Palliative Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pon.3053" target="_blank" rel="noreferrer">http://doi.org/10.1002/pon.3053</a>
<a href="http://ovidsp.tx.ovid.com.ezproxy.library.ubc.ca/sp-3.12.0b/ovidweb.cgi?&S=JEGHFPHFGCDDCKFGNCMKKEOBCHJNAA00&Complete+Reference=FL.S.sh.75.6%7C3%7C1" target="_blank" rel="noreferrer">http://ovidsp.tx.ovid.com.ezproxy.library.ubc.ca/sp-3.12.0b/ovidweb.cgi?&S=JEGHFPHFGCDDCKFGNCMKKEOBCHJNAA00&Complete+Reference=FL.S.sh.75.6%7c3%7c1</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Psychological health in siblings who lost a brother or sister to cancer 2 to 9 years earlier: Psychological health in siblings who lost a brother or sister to cancer
Publisher
An entity responsible for making the resource available
Psycho-oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Child; Female; Humans; Male; Young Adult; bereavement; Neoplasms; Cohort Studies; Adult; Questionnaires; Follow-Up Studies; Self Concept; Siblings; Health Status; Mental Health; Sweden; Case-Control Studies; Adaptation; Psychological; sibling bereavement; Sleep Initiation and Maintenance Disorders
Creator
An entity primarily responsible for making the resource
Eilegård A; Steineck G; Nyberg T; Kreicbergs U
Identifier
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<a href="http://doi.org/10.1002/pon.3053" target="_blank" rel="noreferrer">10.1002/pon.3053</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2013-03
2013
Adaptation
Adult
Backlog
Bereavement
Case-Control Studies
Child
Cohort Studies
Eilegård A
Female
Follow-up Studies
Health Status
Humans
Journal Article
Kreicbergs U
Male
Mental Health
Neoplasms
Nyberg T
Psycho-Oncology
Psychological
Questionnaires
Self Concept
sibling bereavement
Siblings
Sleep Initiation and Maintenance Disorders
Steineck G
Sweden
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
March 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2018 List
URL Address
<a href="http://doi.org/10.1016/j.jaac.2017.07.064" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jaac.2017.07.064</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Enhancing resilience in hospitalized children and adolescents
Publisher
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Journal Of The American Academy Of Child And Adolescent Psychiatry
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
hospitalized child; Anxiety; biofeedback; California; Child; clinical psychology; Comorbidity; complication; distress syndrome; Female; Hospitalization; Human; Male; Mental Health; music; pain; Palliative therapy; pet therapy; PostTraumatic Stress Disorder; psychiatrist; psychosocial care; Socialization; wellbeing
Creator
An entity primarily responsible for making the resource
Ihle EC
Description
An account of the resource
Objectives: This presentation will describe a collaborative intervention that can enhance resilience in hospitalized patients when they are struggling with the emotional sequelae of their medical illness. The presentation will discuss the specialty services at the University of California, San Francisco, Benioff Children's Hospital (UCSF BCH) that work cooperatively to support salutogenesis (the origin of health), in contrast to pathogenesis. The efficacy of our multidisciplinary approach will be demonstrated through descriptions of changes in patients' mental status and subjective reports of distress from patients and parents. Methods: This seminar will present our multidisciplinary approach to enhancing well-being and supporting resilience. The presentation will describe the collaboration of several complementary specialties. Primary source material and anecdotal reports from clinical cases will be presented from these medical, psychological, and psychosocial disciplines. Results: At UCSF BCH, specialists play complementary roles in the effort to support the emotional well-being of hospitalized patients. The child and adolescent consultation-liaison psychiatrist provides insight into psychiatric comorbidities that may be contributing to distress and interfere with coping. Pharmacologic interventions target the symptoms of these comorbid illnesses. Pediatric palliative care physicians address the physiologic symptoms endured by children with serious medical illnesses. Clinical psychologists help to identify the feedback loop between anxiety and pain and enhance a sense of safety through empirically validated interventions for anxiety and traumatic stress. The Child Life Specialist's role includes preparation for procedures; creating and implementing a coping plan for individual procedures and overall hospitalization through art and music; and providing psychosocial support through socialization, medical play, pet therapy, and biofeedback. Conclusions: Diverse disciplines can work collaboratively to support the overall well-being of the hospitalized child and his/her family members by effectively promoting coping. This multidisciplinary approach to enhancing resilience enables children to thrive even if their illnesses are life-limiting.
2017
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jaac.2017.07.064" target="_blank" rel="noreferrer">10.1016/j.jaac.2017.07.064</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
anxiety
biofeedback
California
Child
clinical psychology
Comorbidity
Complication
Distress Syndrome
Female
Hospitalization
Hospitalized Child
Human
Ihle EC
Journal Of The American Academy Of Child And Adolescent Psychiatry
Male
March 2018 List
Mental Health
music
Pain
Palliative Therapy
Pet Therapy
PostTraumatic Stress Disorder
psychiatrist
psychosocial care
Socialization
Wellbeing
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/cncr.24109" target="_blank" rel="noreferrer">http://doi.org/10.1002/cncr.24109</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Behavioral, social, and educational outcomes after pediatric stem cell transplantation and related factors
Publisher
An entity responsible for making the resource available
Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
adolescent; Child; Female; Humans; Male; mothers; Neoplasms; Adult; Parent-Child Relations; Treatment Outcome; Longitudinal Studies; Social Adjustment; Behavior; Mental Health; Depression; Internal-External Control; Survivors; Teaching; Adaptation; Psychological; Cranial Irradiation; Social Behavior; Stem Cell Transplantation
Creator
An entity primarily responsible for making the resource
Barrera M; Atenafu E; Pinto J
Description
An account of the resource
BACKGROUND: The purpose of the current study was to investigate longitudinally children's behavioral and social competence outcomes up to 2 years after pediatric stem cell transplantation (SCT) and related factors. METHODS: Ninety-nine mothers and 24 youths completed standardized questionnaires (Child Behavior Checklist [CBCL] and Youth Self-Report [YSR]) pre-SCT, and 12 and 24 months after SCT; 26 teachers completed Teacher Report Form (TRF) at 24 months. Information regarding clinical (eg, diagnosis, cranial radiation, graft vs host disease [GVHD]), child (eg, age, sex, physical health), and familial (eg, maternal age, education, distress) factors was also obtained. RESULTS: Linear mixed regression models with compound covariance structure followed by adjusted pairwise analyses yielded significant improvements from pre-SCT to 1 and 2 years after SCT in total scores; in externalizing and internalizing scores from pre-SCT to 2 years after SCT; and in total competence from pre-SCT to 1 year after SCT. Child's physical health, maternal age, and depression were found to be significantly associated with the total, internalizing, and externalizing CBCL scores, whereas GVHD, mother's age, and time since diagnosis were associated with CBCL competence scores. Diagnosis, cranial radiation, GVHD, child's physical health, and maternal age and education were associated with YSR total behavioral and competence scores. Finally, total TRF scores were associated with time since diagnosis; TRF educational and adaptability scores were associated with maternal education, age, and distress. CONCLUSIONS: Clinical, personal, and familial factors must be considered to understand the psychosocial outcomes of these survivors up to 2 years after SCT. This study has important implications for psychosocial interventions for this population.
2009-02
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/cncr.24109" target="_blank" rel="noreferrer">10.1002/cncr.24109</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adaptation
Adolescent
Adult
Atenafu E
Backlog
Barrera M
Behavior
Cancer
Child
Cranial Irradiation
Depression
Female
Humans
Internal-External Control
Journal Article
Longitudinal Studies
Male
Mental Health
Mothers
Neoplasms
Parent-child Relations
Pinto J
Psychological
Social Adjustment
Social Behavior
Stem Cell Transplantation
Survivors
Teaching
Treatment Outcome
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/bmj.330.7493.721" target="_blank" rel="noreferrer">http://doi.org/10.1136/bmj.330.7493.721</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Chronic illness and disability
Publisher
An entity responsible for making the resource available
Bmj (clinical Research Ed.)
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Emotions; Mental Health; Family Health; Primary Health Care; Patient Compliance; adolescent; Adolescent Transitions; Patient Transfer; Educational Status; Chronic Disease/psychology/therapy; Disabled Persons/psychology
Creator
An entity primarily responsible for making the resource
Yeo M; Sawyer S
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/bmj.330.7493.721" target="_blank" rel="noreferrer">10.1136/bmj.330.7493.721</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Adolescent
Adolescent Transitions
Backlog
Bmj (clinical Research Ed.)
Chronic Disease/psychology/therapy
Disabled Persons/psychology
Educational Status
Emotions
Family Health
Humans
Journal Article
Mental Health
Patient Compliance
Patient Transfer
Primary Health Care
Sawyer S
Yeo M
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2006-0439" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2006-0439</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Physical and mental health of mothers caring for a child with Rett syndrome
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Emotions; Mother-Child Relations; Middle Aged; Family Relations; Health Status; Mental Health; Family Health; adolescent; Preschool; Caregivers/psychology; Psychological; Stress; social support; disabled children; Telemeres; Employment; Fractures; Bone/etiology/nursing; Rett Syndrome/complications/nursing
Creator
An entity primarily responsible for making the resource
Laurvick CL; Msall ME; Silburn S; Bower C; de Klerk N; Leonard H
Description
An account of the resource
OBJECTIVES: Our goal was to investigate the physical and mental health of mothers who care for a child with Rett syndrome. METHODS: We assessed maternal physical and mental health by using the SF-12 version 1 physical component summary and mental component summary scores as the outcome measures of interest. Mothers (n = 135) of children with Rett syndrome completed the SF-12 measure as part of the Australian Rett Syndrome Study in 2002. The analysis investigated linear relationships between physical and mental health scores and maternal, family, and child characteristics. RESULTS: Mothers ranged in age from 21 to 60 years and their children from 3 to 27 years. Nearly half of these mothers (47.4%) indicated that they worked full-time or part-time outside the home, and 41% had a combined family (gross) income of <40,000 Australian dollars. The resultant model for physical health demonstrated that the following factors were positively associated with better maternal physical health: the mother working full-time or part-time outside the home, having some high school education, having private health insurance, the child not having breathing problems in the last 2 years, the child not having home-based structured therapy, and high scores on the Family Resource Scale (indicating adequacy of time resources for basic and family needs). The resultant model for mental health demonstrated that the following factors were positively associated with better maternal mental health: the mother working full-time or part-time outside the home, the child not having a fracture in the last 2 years, lesser reporting of facial stereotypes and involuntary facial movements, being in a well-adjusted marriage, and having low stress scores. CONCLUSIONS: Our study suggests that the most important predictors of maternal physical and emotional health are child behavior, caregiver demands, and family function.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2006-0439" target="_blank" rel="noreferrer">10.1542/peds.2006-0439</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Adult
Backlog
Bone/etiology/nursing
Bower C
Caregivers/psychology
Child
de Klerk N
Disabled Children
Emotions
Employment
Family Health
Family Relations
Female
Fractures
Health Status
Humans
Journal Article
Laurvick CL
Leonard H
Male
Mental Health
Middle Aged
Mother-child Relations
Msall ME
Pediatrics
Preschool
Psychological
Rett Syndrome/complications/nursing
Silburn S
Social Support
Stress
Telemeres
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s00431-003-1179-x" target="_blank" rel="noreferrer">http://doi.org/10.1007/s00431-003-1179-x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Chronic illness, life style and emotional health in adolescence: results of a cross-sectional survey on the health of 15-20-year-olds in Switzerland
Publisher
An entity responsible for making the resource available
European Journal Of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Cross-Sectional Studies; Female; Humans; Male; Health Status; Mental Health; adolescent; Adolescent Transitions; Risk-Taking; Chronic Disease/epidemiology; Life Style; Switzerland/epidemiology
Creator
An entity primarily responsible for making the resource
Miauton L; Narring F; Michaud PA
Description
An account of the resource
The objective was to evaluate the prevalence of chronic conditions (CC) in adolescents in Switzerland; to describe their behaviour (leisure, sexuality, risk taking behaviour) and to compare them to those in adolescents who do not have CC in order to evaluate the impact of those conditions on their well-being. The data were obtained from the Swiss Multicentre Adolescent Survey on Health, targeting a sample of 9268 in-school adolescents aged 15 to 20 years, who answered a self-administered questionnaire. Some 11.4% of girls and 9.6% of boys declared themselves carriers of a CC. Of girls suffering from a CC, 25% (versus 13% of non carriers; P=0.007) and 38% of boys (versus 25%; P=0.002) proclaimed not to wear a seatbelt whilst driving. Of CC girls, 6.3% (versus 2.7%; P=0.000) reported within the last 12 months to have driven whilst drunk. Of the girls, 43% (versus 36%; P=0.004) and 47% (versus 39%; P=0.001) were cigarette smokers. Over 32% of boys (versus 27%; P=0.02) reported having ever used cannabis and 17% of girls (versus 13%; P=0.013) and 43% of boys (versus 36%; P=0.002) admitted drinking alcohol. The burden of their illness had important psychological consequences: 7.7% of girls (versus 3.4%; P=0.000) and 4.9% of boys (versus 2.0%; P=0.000) had attempted suicide during the previous 12 months. CONCLUSION: experimental behaviours are not rarer in adolescents with a chronic condition and might be explained by a need to test their limits both in terms of consumption and behaviour. Prevention and specific attention from the health caring team is necessary.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s00431-003-1179-x" target="_blank" rel="noreferrer">10.1007/s00431-003-1179-x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Adolescent
Adolescent Transitions
Backlog
Chronic Disease/epidemiology
Cross-sectional Studies
European Journal of Pediatrics
Female
Health Status
Humans
Journal Article
Life Style
Male
Mental Health
Miauton L
Michaud PA
Narring F
Risk-Taking
Switzerland/epidemiology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1023/B:JOTS.0000038481.17167.0d" target="_blank" rel="noreferrer">http://doi.org/10.1023/B:JOTS.0000038481.17167.0d</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Changes in mothers' basic beliefs following a child's bone marrow transplantation: the role of prior trauma and negative life events
Publisher
An entity responsible for making the resource available
Journal Of Traumatic Stress
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Female; Hospitalization; Humans; Male; Adult; Attitude to Health; Mother-Child Relations; Health Status; Longitudinal Studies; Mental Health; P.H.S.; Research Support; U.S. Gov't; Adaptation; Psychological; Psychological; Stress; Bone Marrow Transplantation/psychology; Wounds and Injuries/psychology
Creator
An entity primarily responsible for making the resource
Rini C; Manne S; DuHamel KN; Austin J; Ostroff J; Boulad F; Parsons SK; Martini R; Williams S; Mee L; Sexson S; Redd WH
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1023/B:JOTS.0000038481.17167.0d" target="_blank" rel="noreferrer">10.1023/B:JOTS.0000038481.17167.0d</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
This longitudinal study examined the relation between life stress and basic beliefs about self-worth and the benevolence and meaningfulness of the world among mothers of children undergoing bone marrow transplantation (BMT). One hundred mothers completed study measures during the child's hospitalization for BMT and 1 year later. Prior trauma and recent negative events were associated with basic beliefs during hospitalization and also with changes in basic beliefs in the subsequent year, with distress mediating some of these relations. Findings also demonstrated relations between basic beliefs and physical and mental functioning. However, each basic belief exhibited different relations with study variables, suggesting the need to investigate them separately.
2004
Adaptation
Adult
Attitude To Health
Austin J
Backlog
Bone Marrow Transplantation/psychology
Boulad F
Child
DuHamel KN
Female
Health Status
Hospitalization
Humans
Journal Article
Journal Of Traumatic Stress
Longitudinal Studies
Male
Manne S
Martini R
Mee L
Mental Health
Mother-child Relations
Ostroff J
P.H.S.
Parsons SK
Psychological
Redd WH
Research Support
Rini C
Sexson S
Stress
U.S. Gov't
Williams S
Wounds and Injuries/psychology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1046/j.1442-2018.2003.00149.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1442-2018.2003.00149.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment adherence of youth and young adults with and without a chronic illness
Publisher
An entity responsible for making the resource available
Nursing & Health Sciences
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Child; Female; Humans; Male; Adolescent Psychology; Adult; Questionnaires; Age Factors; Needs Assessment; Mental Health; Internal-External Control; Predictive Value of Tests; Case-Control Studies; Practice; adolescent; Adaptation; Psychological; Attitudes; Health Knowledge; Adolescent Behavior/psychology; Chronic Disease/psychology; Patient Education; Acute Disease/psychology; Patient Compliance/psychology; Self Care/psychology
Creator
An entity primarily responsible for making the resource
Rosina R; Crisp J; Steinbeck K
Description
An account of the resource
The present study was undertaken to explore the psychosocial functioning of young people with chronic illness, their beliefs about treatment adherence, difficulties with adherence and concerns about living with their illness. A small correlational study was undertaken to compare the psychosocial functioning of young people, with and without chronic illness, aged between 12 and 24 years. Subjects were recruited from a metropolitan teaching hospital. Group 1 included 44 young people with chronic illness; Group 2 included 41 young people without chronic illness. Both groups were divided on the basis of age: younger (12-18 years, n = 24); older (19-24 years, n = 61) and sex (female = 43; male = 42). Subjects completed the Achenbach self-report questionnaire as a measure of psychosocial functioning, and a second questionnaire constructed for this study to explore treatment adherence. Psychosocial functioning scores were found to be similar on the majority of subscales. Young women with chronic illness were, however, found to have significantly higher internalizing scores than young women without chronic illness. A significant negative relationship was found for the chronic illness group between internalizing scores and treatment adherence. The findings highlight potential areas of difficulty in psychosocial functioning of some young people with chronic illness. They also suggest the existence of a subgroup of young people with chronic illness who experience more problems than their peers. More research is needed to generate evidence about this possible subgroup to determine predictors of psychosocial functioning and test the timing and efficacy of psychosocial interventions.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1046/j.1442-2018.2003.00149.x" target="_blank" rel="noreferrer">10.1046/j.1442-2018.2003.00149.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Acute Disease/psychology
Adaptation
Adolescent
Adolescent Behavior/psychology
Adolescent Psychology
Adult
Age Factors
Attitudes
Backlog
Case-Control Studies
Child
Chronic Disease/psychology
Crisp J
Female
Health Knowledge
Humans
Internal-External Control
Journal Article
Male
Mental Health
Needs Assessment
Nursing & Health Sciences
Patient Compliance/psychology
Patient Education
Practice
Predictive Value of Tests
Psychological
Questionnaires
Rosina R
Self Care/psychology
Steinbeck K
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/0269905021000010096" target="_blank" rel="noreferrer">http://doi.org/10.1080/0269905021000010096</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Parental stress and burden following traumatic brain injury amongst children and adolescents.
Publisher
An entity responsible for making the resource available
Brain Injury
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; England; Questionnaires; Follow-Up Studies; Health Status; Longitudinal Studies; Mental Health; Cost of Illness; Analysis of Variance; Health Education; Family Health; Family Characteristics; Stress; adolescent; Preschool; Non-U.S. Gov't; Research Support; Adaptation; Psychological; Comparative Study; Parents/psychology; poverty; Brain Injuries/economics/psychology; Psychological/etiology
Creator
An entity primarily responsible for making the resource
Hawley CA; Ward AB; Magnay AR; Long J
Description
An account of the resource
PRIMARY OBJECTIVES: To assess parental stress following paediatric traumatic brain injury (TBI), and examine the relationship between self-reported problems, parental stress and general health. RESEARCH DESIGN: Parents of 97 children admitted with a TBI (49 mild, 19 moderate, 29 severe) to North Staffordshire National Health Service Trust, and parents of 31 uninjured children were interviewed and assessed. METHODS AND PROCEDURES: Structured interviews were carried out with families, and parents assessed on the Parenting Stress Index (PSI/SF) and General Health Questionnaire (GHQ-12) at recruitment, and repeated 12 months later. MAIN OUTCOMES AND RESULTS: Forty parents (41.2%) of children with TBI exhibited clinically significant stress. Regardless of injury severity, parents of injured children suffered greater stress than control parents as measured by the PSI/SF (p = 0.001). There was a highly significant relationship between number of problems reported and level of parental stress (p = 0.001). Financial burden was related to severity of TBI. At follow-up, one third of parents of children with severe TBI scored > or =18 on the GHQ-12, signifying poor psychological health. CONCLUSIONS: The parents of a child with serious TBI should be screened for abnormal levels of stress. Parental stress and family burden may be alleviated by improved information, follow-up and support.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/0269905021000010096" target="_blank" rel="noreferrer">10.1080/0269905021000010096</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Adaptation
Adolescent
Adult
Analysis of Variance
Backlog
Brain Injuries/economics/psychology
Brain Injury
Child
Comparative Study
Cost Of Illness
England
Family Characteristics
Family Health
Female
Follow-up Studies
Hawley CA
Health Education
Health Status
Humans
Journal Article
Long J
Longitudinal Studies
Magnay AR
Male
Mental Health
Non-U.S. Gov't
Parents/psychology
Poverty
Preschool
Psychological
Psychological/etiology
Questionnaires
Research Support
Stress
Ward AB
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/geront/29.2.159" target="_blank" rel="noreferrer">http://doi.org/10.1093/geront/29.2.159</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Husbands and wives as caregivers: antecedents of depression and burden
Publisher
An entity responsible for making the resource available
The Gerontologist
Date
A point or period of time associated with an event in the lifecycle of the resource
1989
Subject
The topic of the resource
Humans; Mental Health; Sex Factors; Depression; Regression Analysis; P.H.S.; Research Support; U.S. Gov't; Interviews; Alzheimer Disease/psychology; Marriage; Home Nursing/psychology
Creator
An entity primarily responsible for making the resource
Pruchno RA; Resch NL
Description
An account of the resource
Contrasting predictors of depression among 101 men and 214 women providing care to spouses suffering from Alzheimer's Disease indicated that the sole predictor for husbands was ill health, whereas for wives less emotional investment was also predictive. While there were no significant predictors for burden among husbands, for wives, burden was associated with poorer health, less emotional investment, greater spouse impairment, and provision of more assistance with tasks.
1989
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/geront/29.2.159" target="_blank" rel="noreferrer">10.1093/geront/29.2.159</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1989
Alzheimer Disease/psychology
Backlog
Depression
Home Nursing/psychology
Humans
Interviews
Journal Article
Marriage
Mental Health
P.H.S.
Pruchno RA
Regression Analysis
Resch NL
Research Support
Sex Factors
The Gerontologist
U.S. Gov't
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1037/0278-6133.9.3.266" target="_blank" rel="noreferrer">http://doi.org/10.1037/0278-6133.9.3.266</a>
<a href="http://search.ebscohost.com/login.aspx?direct=true&db=pdh&AN=1990-25815-001&site=ehost-live&scope=site" target="_blank" rel="noreferrer">http://search.ebscohost.com/login.aspx?direct=true&db=pdh&AN=1990-25815-001&site=ehost-live&scope=site</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Quality of social support and associated social and psychological functioning in women with rheumatoid arthritis
Publisher
An entity responsible for making the resource available
Health Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
1990
Subject
The topic of the resource
social support; Mental Health; Social Support and Chronic Pain; Adjustment; Rheumatoid Arthritis; 21–65 yr old females with rheumatoid arthritis; quality of social support; social & psychological functioning; Social Interaction
Creator
An entity primarily responsible for making the resource
Goodenow C; Reisine ST; Grady KE
Description
An account of the resource
Investigated the relationship between health status, social integration, qualitative aspects of social support, and social and psychological functioning in 194 women (aged 21–65 yrs) with rheumatoid arthritis. Ss completed a telephone interview that included measures of these variables. Even after controlling for the influences of current physical limitations and social integration, qualitative dimensions of social support as measured by the Quality of Social Support Scale, a scale developed for this study, explained a significant proportion of the variance in home and family functioning and in depression. This demonstrates the importance of social support to both social and psychological functioning with a chronic, painful, and disabling disease. (PsycINFO Database Record (c) 2013 APA, all rights reserved)
1990
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1037/0278-6133.9.3.266" target="_blank" rel="noreferrer">10.1037/0278-6133.9.3.266</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1990
21–65 yr old females with rheumatoid arthritis
Adjustment
Backlog
Goodenow C
Grady KE
Health Psychology
Journal Article
Mental Health
quality of social support
Reisine ST
Rheumatoid Arthritis
social & psychological functioning
Social Interaction
Social Support
Social Support and Chronic Pain
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/jama.1997.03550100049038" target="_blank" rel="noreferrer">http://doi.org/10.1001/jama.1997.03550100049038</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Protecting adolescents from harm. Findings from the National Longitudinal Study on Adolescent Health
Publisher
An entity responsible for making the resource available
Jama
Date
A point or period of time associated with an event in the lifecycle of the resource
1997
Subject
The topic of the resource
Cross-Sectional Studies; Female; Humans; Male; Pregnancy; Longitudinal Studies; Mental Health; Multivariate Analysis; Adolescent Behavior; Regression Analysis; Health Behavior; adolescent; Adolescent Transitions; Risk-Taking; Health Surveys; Pregnancy in Adolescence; Sexuality; Substance-Related Disorders/epidemiology; United States/epidemiology; Violence/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Resnick MD; Bearman PS; Blum RW; Bauman KE; Harris KM; Jones J; Tabor J; Beuhring T; Sieving RE; Shew M; Ireland M; Bearinger LH; Udry JR
Description
An account of the resource
CONTEXT: The main threats to adolescents' health are the risk behaviors they choose. How their social context shapes their behaviors is poorly understood. OBJECTIVE: To identify risk and protective factors at the family, school, and individual levels as they relate to 4 domains of adolescent health and morbidity: emotional health, violence, substance use, and sexuality. DESIGN: Cross-sectional analysis of interview data from the National Longitudinal Study of Adolescent Health. PARTICIPANTS: A total of 12118 adolescents in grades 7 through 12 drawn from an initial national school survey of 90118 adolescents from 80 high schools plus their feeder middle schools. SETTING: The interview was completed in the subject's home. MAIN OUTCOME MEASURES: Eight areas were assessed: emotional distress; suicidal thoughts and behaviors; violence; use of 3 substances (cigarettes, alcohol, marijuana); and 2 types of sexual behaviors (age of sexual debut and pregnancy history). Independent variables included measures of family context, school context, and individual characteristics. RESULTS: Parent-family connectedness and perceived school connectedness were protective against every health risk behavior measure except history of pregnancy. Conversely, ease of access to guns at home was associated with suicidality (grades 9-12: P
1997
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/jama.1997.03550100049038" target="_blank" rel="noreferrer">10.1001/jama.1997.03550100049038</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1997
Adolescent
Adolescent Behavior
Adolescent Transitions
Backlog
Bauman KE
Bearinger LH
Bearman PS
Beuhring T
Blum RW
Cross-sectional Studies
Female
Harris KM
Health Behavior
Health Surveys
Humans
Ireland M
JAMA
Jones J
Journal Article
Longitudinal Studies
Male
Mental Health
Multivariate Analysis
Pregnancy
Pregnancy in Adolescence
Regression Analysis
Resnick MD
Risk-Taking
Sexuality
Shew M
Sieving RE
Substance-Related Disorders/epidemiology
Tabor J
Udry JR
United States/epidemiology
Violence/statistics & numerical data
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1006/jado.2000.0393" target="_blank" rel="noreferrer">http://doi.org/10.1006/jado.2000.0393</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Subjective health complaints in adolescence--reliability and validity of survey methods
Publisher
An entity responsible for making the resource available
Journal Of Adolescence
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Female; Humans; Male; Adolescent Psychology; Interviews as Topic; Mental Health; Reproducibility of Results; Psychometrics; Health Status Indicators; Chi-Square Distribution; adolescent; Norway/epidemiology
Creator
An entity primarily responsible for making the resource
Haugland S; Wold B
Description
An account of the resource
This paper studies test-retest reliability and validity of one measure of adolescent health complaints. The test-retest included an eight-item symptom checklist developed for the survey of Health Behaviour in School-aged Children (n=344). Qualitative analysis showed adequate validity for most items. For the total sample, all items were found to have adequate intraclass correlation coefficients (ICC) in the range 0.61-0.75. There were inter-item differences and girls generally received the higher values. Most changes were within one category. Adolescents' understanding of 16 complaints was studied by interviews with 38 adolescents. A few items showed ambiguity in interviews despite adequate test-retest stability.
2001
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1006/jado.2000.0393" target="_blank" rel="noreferrer">10.1006/jado.2000.0393</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Adolescent
Adolescent Psychology
Backlog
Chi-Square Distribution
Female
Haugland S
Health Status Indicators
Humans
Interviews As Topic
Journal Article
Journal Of Adolescence
Male
Mental Health
Norway/epidemiology
Psychometrics
Reproducibility of Results
Wold B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/1054-139x(93)90118-9" target="_blank" rel="noreferrer">http://doi.org/10.1016/1054-139x(93)90118-9</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Frequent school-based clinic utilization: a comparative profile of problems and service needs
Publisher
An entity responsible for making the resource available
The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1993
Subject
The topic of the resource
Female; Humans; Male; Health Services Needs and Demand; Socioeconomic Factors; Health Services Research; Mental Health; Sex Factors; Continental Population Groups; adolescent; Risk-Taking; School Health Services/utilization; Educational Status; Ambulatory Care Facilities/utilization; Students/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Wolk LI; Kaplan DW
Description
An account of the resource
The purpose of this study is to compare frequent users of school-based clinic services with students who have an average rate of utilization. SAMPLE: Of the 1413 students enrolled in a Denver school-based clinic (DSBC) during the 1989-1990 school year, frequent clinic users (n = 73) were defined as those who visited the clinic 15 times or more (range, 15-72 visits per year). Average users (n = 82) were defined as students who visited the clinic three times during the year (the mean and median number of visits per student enrolled). Average users were compared. RESULTS: The average utilizers were found to be representative of the entire student population based on age, race, gender, and grade. The frequent users had more females (71%) and a lower grade point average (GPA) (2.11) than the average users (52% female, 2.54 GPA; p
1993
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/1054-139x(93)90118-9" target="_blank" rel="noreferrer">10.1016/1054-139x(93)90118-9</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1993
Adolescent
Ambulatory Care Facilities/utilization
Backlog
Continental Population Groups
Educational Status
Female
Health Services Needs And Demand
Health Services Research
Humans
Journal Article
Kaplan DW
Male
Mental Health
Risk-Taking
School Health Services/utilization
Sex Factors
Socioeconomic Factors
Students/statistics & numerical data
The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine
Wolk LI
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/geront/31.2.217" target="_blank" rel="noreferrer">http://doi.org/10.1093/geront/31.2.217</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Stressors and well-being among caregivers to older adults with dementia: the in-home versus nursing home experience
Publisher
An entity responsible for making the resource available
The Gerontologist
Date
A point or period of time associated with an event in the lifecycle of the resource
1991
Subject
The topic of the resource
Female; Humans; Male; Aged; Middle Aged; Mental Health; Multivariate Analysis; Analysis of Variance; Homes for the Aged; Nursing Homes; Stress; Non-U.S. Gov't; Research Support; Comparative Study; Psychological/etiology; Home Nursing/psychology; Alzheimer Disease/nursing
Creator
An entity primarily responsible for making the resource
Stephens MA; Kinney JM; Ogrocki PK
Description
An account of the resource
We examined differences in stressors and well-being for caregivers who care for a relative with dementia at home and those who had placed their relative in a nursing home. The groups did not differ in depression or somatic complaints, but nursing home caregivers had fewer social and interpersonal disruptions. Controlling for caregiving problems, nursing home caregivers reported more stressors due to ADL (activities of daily living) assistance, their relatives' behavioral and cognitive functioning, and lack of caregiving support from family and friends.
1991
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/geront/31.2.217" target="_blank" rel="noreferrer">10.1093/geront/31.2.217</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1991
Aged
Alzheimer Disease/nursing
Analysis of Variance
Backlog
Comparative Study
Female
Home Nursing/psychology
Homes for the Aged
Humans
Journal Article
Kinney JM
Male
Mental Health
Middle Aged
Multivariate Analysis
Non-U.S. Gov't
Nursing Homes
Ogrocki PK
Psychological/etiology
Research Support
Stephens MA
Stress
The Gerontologist
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/026921639701100102" target="_blank" rel="noreferrer">http://doi.org/10.1177/026921639701100102</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-centre Canadian study demonstrating the importance of the existential domain
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1997
Subject
The topic of the resource
Humans; Palliative Care; Questionnaires; Longitudinal Studies; Mental Health; Sensitivity and Specificity; Reproducibility of Results; quality of life; Neoplasms/psychology; Mental Status Schedule; Multicenter Studies as Topic
Creator
An entity primarily responsible for making the resource
Cohen SR; Mount BM; Bruera E; Provost M; Rowe J; Tong K
Description
An account of the resource
This study was carried out in eight palliative care services in four Canadian cities. A revised version of The McGill Quality of Life Questionnaire (MQOL) is compared to a single-item scale measuring overall quality of life (SIS), and the self-administered version of the Spitzer Quality of Life Index (SA-QLI), to obtain evidence of validity. MQOL total score predicts SIS better than does SA-QLI, although much of the variance remains to be explained. The results of principal components analysis of data using this revised version of MQOL are similar to those from previous MQOL studies with different patient populations. The MQOL subscales, constructed on the basis of principal components analysis, demonstrate acceptable internal consistency reliability. The MQOL measures reflecting physical well-being and existential well-being are important for predicting SIS.
1997
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/026921639701100102" target="_blank" rel="noreferrer">10.1177/026921639701100102</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1997
Backlog
Bruera E
Cohen SR
Humans
Journal Article
Longitudinal Studies
Mental Health
Mental Status Schedule
Mount BM
Multicenter Studies as Topic
Neoplasms/psychology
Palliative Care
Palliative Medicine
Provost M
Quality Of Life
Questionnaires
Reproducibility of Results
Rowe J
Sensitivity and Specificity
Tong K
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11531912" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11531912</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Prevalence and morbidity associated with non-malignant, life-threatening conditions in childhood
Publisher
An entity responsible for making the resource available
Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Child; Cross-Sectional Studies; infant; Family; Adult; Prevalence; Parent-Child Relations; Mental Health; adolescent; Preschool; Non-U.S. Gov't; infant; Newborn; Human; Support; Great Britain/epidemiology; Child Welfare/statistics & numerical data; Chronic Disease/epidemiology/psychology; Disabled Children/psychology/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Lenton S; Stallard P; Lewis M; Mastroyannopoulou K
Description
An account of the resource
OBJECTIVE: To determine the prevalence of non-malignant life-threatening illness in childhood and associated morbidity in the affected child and their family members. DESIGN: Cross-sectional survey. SETTING: Bath Clinical Area (total population 411,800). SUBJECTS: Children aged 0-19 years. RESULTS: One hundred and twenty-three children were identified, giving a prevalence of 1.2/1000 children. Morbidity assessed in 93 children showed 60% in pain or discomfort, 35% unable to walk and 25% with severe cognitive impairment. Mental health problems were found in 54% of mothers and 30% of fathers, and significant emotional and behavioural problems in 24% of healthy siblings. CONCLUSIONS: Non-malignant life-threatening illness is more prevalent than reported in previous studies. Considerable morbidity is experienced by the child and their family. An individual and family approach is required. Key messages (1) The prevalence of non-malignant life-threatening illness is four times greater than previous estimates. (2) This group of conditions have significant implications for all family members. (3) Early comprehensive assessment and access to effective interventions may pre-empt later problems.
2001
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Adolescent
Adult
Backlog
Child
Child Welfare/statistics & numerical data
Child: Care, Health and Development
Chronic Disease/epidemiology/psychology
Cross-sectional Studies
Disabled Children/psychology/statistics & numerical data
Family
Great Britain/epidemiology
Human
Infant
Journal Article
Lenton S
Lewis M
Mastroyannopoulou K
Mental Health
Newborn
Non-U.S. Gov't
Parent-child Relations
Preschool
Prevalence
Stallard P
Support
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
n/a
URL Address
<a href="http://doi.org/10.1016/j.childyouth.2017.04.021" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.childyouth.2017.04.021</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Revealing the impact of loss: Exploring mental health through the use of drawing/writing with HIV positive adolescents in Johannesburg
Publisher
An entity responsible for making the resource available
Children And Youth Services Review
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Foster Care; Health Care Services; Health & Mental Health Services (3370); Mental Health
Creator
An entity primarily responsible for making the resource
Woollett N; Brahmbhatt H; Dodd K; Booth M; Berman H; Cluver L
Description
An account of the resource
The article presents a study with aim, Revealing the Impact of Loss: Exploring Mental Health Through the Use of Drawing/Writing With HIV Positive Adolescents in Johannesburg. This study examined the use of drawings completed by perinatally infected adolescents accessing public health care in Johannesburg. These drawings were facilitated by counsellors, known to the adolescents in the clinic, as a means of engaging in the experience of loss. This qualitative study used data from a larger quantitative study assessing mental health (depression, anxiety, post-traumatic stress disorder (PTSD) and suicidality) using standardised scales (n= 343; 96% response rate). Adolescents between 13 and 19 years volunteered to participate in a 90 minute questionnaire administered on tablet computers, known to improve reporting of stigmatised behaviors and interspersed with drawing tasks. The research counsellors routinely provided direct services to the adolescents as counsellors, were trained in paediatric HIV and advanced counselling, and participated in the research, engaging in principles of ethical research with minors. The objective of this study was to use a drawing task with perinatally infected HIV positive adolescents who were bereaved to identify the impact of loss on their current mental health. Bereavement is pervasive in this population, often unidentified or unresolved, and there are scant ways identified to manage loss in the public health system. This study reveals that loss can be engaged with through drawing and written accounts facilitated by lay counsellors to uncover areas of emotional difficulty in patients that require attention. In addition, drawings and written accounts may provide vital and obvious clues in identifying those at risk for mental health problems in adolescent patients. (PsycINFO Database Record (c) 2017 APA, all rights reserved)
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.childyouth.2017.04.021" target="_blank" rel="noreferrer">10.1016/j.childyouth.2017.04.021</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Berman H
Booth M
Brahmbhatt H
Children And Youth Services Review
Cluver L
Dodd K
Foster Care
Health & Mental Health Services (3370)
Health Care Services
Mental Health
Woollett N
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2017 List
URL Address
<a href="http://doi.org/10.1016/j.ejpn.2009.09.011" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.ejpn.2009.09.011</a>
Notes
<p>Read, Joy<br />Kinali, Maria<br />Muntoni, Francesco<br />Garralda, M Elena<br />S1090-3798(09)00181-0</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Psychosocial adjustment in siblings of young people with Duchenne muscular dystrophy
Publisher
An entity responsible for making the resource available
European Journal Of Paediatric Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Adaptation Psychological; Muscular Dystrophy Duchenne/px [psychology]; Siblings/px [psychology]; Adolescent; Child; Female; Humans; Male; Mental Health; Psychiatric Status Rating Scales; Psychology; Surveys And Questionnaires
Creator
An entity primarily responsible for making the resource
Read J; Kinali M; Muntoni F; Garralda ME
Description
An account of the resource
Duchenne muscular dystrophy (DMD) is a progressive, impairing, life-limiting disorder of childhood. Little is known about how siblings adapt to this. The aim of this study is to document psychosocial adjustment in siblings of patients with DMD. Healthy siblings (11-18 years old) of young people with DMD attending a specialist paediatric centre and their parent/main carer took part. Parents, siblings and teachers completed a battery of questionnaires: (i) to assess psychiatric risk the Strengths and Difficulties Questionnaire (SDQ), General Health Questionnaire (GHQ), Hospital Anxiety and Depression Scale (HADS); (ii) to measure general wellbeing: SF-36; (iii) to document DMD illness disability: Functional Disability Inventory (FDI); (iv) to assess family function and life stresses for the unaffected sibling: Family Assessment Device (FAD), Family Burden Interview Schedule and Life Events Checklist. Forty six/77 eligible siblings (24 females/22 males); (mean age 14 years (SD 2.3)) took part. Although their mean psychological functioning and wellbeing questionnaire scores were comparable to normative data, there was a trend for more siblings scoring at high-risk for psychological (mainly emotional) problems. Weak/moderate associations with psychological symptoms in siblings varied according to informant and included the following factors: closeness in age to the affected sibling; older sibling age; extent of wheelchair use, burden of illness on family interactions, and siblings reporting high impact of illness on their lives. Psychological symptoms were also associated with less sibling involvement in patient care, with broader psychosocial and family disadvantage and with life stresses. Siblings have an increased risk for emotional problems, which appears influenced by specific illness factors.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.ejpn.2009.09.011" target="_blank" rel="noreferrer">10.1016/j.ejpn.2009.09.011</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2010
Adaptation Psychological
Adolescent
Child
December 2017 List
European Journal of Paediatric Neurology
Female
Garralda ME
Humans
Kinali M
Male
Mental Health
Muntoni F
Muscular Dystrophy Duchenne/px [psychology]
Psychiatric Status Rating Scales
Psychology
Read J
Siblings/px [psychology]
Surveys And Questionnaires
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Life Transitions Of Adolescents And Young Adults With Life-limiting Conditions
Publisher
An entity responsible for making the resource available
International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adaptation Psychological; Adolescent; Adolescent Development; Adult; Brain Neoplasms; Child; Cystic Fibrosis; Disease Progression; Emotions; Family; Health Status; Humans; Mental Health; Muscular Dystrophy Duchenne; Neurodegenerative Diseases; Terminally Ill; Young Adult
Adolescents; Young Adults; Life-limiting Conditions; Life Transitions
Creator
An entity primarily responsible for making the resource
Johnston; Jindal-Snape; Pringle J
Description
An account of the resource
Aims:
A systematic review was conducted to appraise and classify evidence related to the life transitions of adolescents and young adults with life-limiting conditions.
Methods:
The databases searched were MEDLINE, CINAHL, PsycINFO, CancerLit, and AMED. Methodological quality was assessed using an established tool and the final articles included in the study were rated as moderate to high quality. Articles were then assessed based on the insight that they provided into life transitions for adolescents and young adults.
Results:
Eighteen studies were included in the final review, with two major life transitions identified as pertinent: ‘illness transition’ and ‘developmental transition’. These concurrent transitions were found to be relevant to adolescents and young adults with life-limiting conditions, generating complex needs. Sub-themes within the transitions were also identified. Furthermore, the illness transition was found to also impact significant others, namely family members, having physical, mental and emotional health implications and requiring them to make adaptations.
Conclusions:
Future research is needed to focus on adolescent and young adult perspectives to bring further insight into these key transitions, since such perspectives are currently underrepresented. Attention to the impact of the illness on the whole family would be useful to expand findings from this review.
Identifier
An unambiguous reference to the resource within a given context
DOI: http://dx.doi.org/10.12968/ijpn.2016.22.12.608
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adaptation Psychological
Adolescent
Adolescent Development
Adolescents
Adult
Brain Neoplasms
Child
Cystic Fibrosis
December 2016 List
Disease Progression
Emotions
Family
Health Status
Humans
International Journal of Palliative Nursing
Jindal-Snape
Johnston
Life Transitions
Life-limiting Conditions
Mental Health
Muscular Dystrophy Duchenne
Neurodegenerative Diseases
Pringle J
Terminally Ill
Young Adult
Young Adults