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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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August 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August List 2023
URL Address
<a href="http://doi.org/10.4067/S1726-569X2023000100039" target="_blank" rel="noreferrer noopener"> http://doi.org/10.4067/S1726-569X2023000100039</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Pediatric palliative medicine in Brazil: an ethical reflection of medical practice
Publisher
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Acta Bioethica
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
child; Palliative Care; pediatrics; article; human; ethics; palliative therapy; Brazil; prognosis; uncertainty; software; physician; medical ethics; morality; medical practice; pediatric patient
Creator
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Rocha AA; Freitas L; Cesconetto J; Reboucas LC; Salomao VB; Nunes RML
Description
An account of the resource
The ethical barriers involved in the practice of pediatric palliative medicine remain high and challenging. In terms of medical ethics, attention should be paid to culture, religion and family values, in order to promote adequate care for caregivers, even in case of loss of a patient, promoting a bereavement process with less suffering. The data were qualitatively analyzed by IRAMUTEQ software, with a high degree of significance of essay responses on ethics related to palliative care in pediatrics. Discussions about prognosis, goals of care, and treatment options can be very difficult, as legally supported palliative care alternatives may diverge from the wishes of the family. We conclude that divergences exist between the application of palliative medicine and ethics regarding acceptance and end-of-life management of pediatric patients. Ethical challenges are constantly complex situations in which palliative physicians must relate legal concepts, knowledge and family values, which often conflict. The quality of palliative care depends initially on the ability of specialized professionals to identify and explain the ethical issues that generate conflict or uncertainty, in addition to raising discussions with the family about the medical, moral and legal issues surrounding the difficult situation.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.4067/S1726-569X2023000100039" target="_blank" rel="noreferrer noopener">10.4067/S1726-569X2023000100039</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Acta Bioethica
Article
August List 2047
Brazil
Cesconetto J
Child
Ethics
Freitas L
Human
Medical Ethics
Medical Practice
Morality
Nunes RML
Palliative Care
Palliative Therapy
pediatric patient
Pediatrics
Physician
Prognosis
Reboucas LC
Rocha AA
Salomao VB
Software
Uncertainty
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2018 List
URL Address
<a href="http://doi.org/10.1186/s12887-018-1040-z" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12887-018-1040-z</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Decision-making at the limit of viability: Differing perceptions and opinions between neonatal physicians and nurses
Publisher
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BMC Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
infant mortality; medical decision making; nurse attitude; physician attitude; adult; article; assisted ventilation; controlled study; enteric feeding; female; hospital policy; human; legal aspect; male; medical practice; neonatal intensive care unit; neonatal nurse; neonatologist; patient participation; prematurity; questionnaire; religion; Switzerland; terminal care; work experience
Creator
An entity primarily responsible for making the resource
Bucher HU; Klein SD; Hendriks MJ; Baumann-Holzle R; Berger TM; Streuli JC; Fauchere JC; Philipp M; Roland N; Renate I; Mathias N; Liliane S; Brigitte S; Kai R; Riccardo P; Matthias R; Magali C; Ulrike S; Gudrun J; Ruth D; Jean-Claude F; Barbara D
Description
An account of the resource
Background: In the last 20 years, the chances for intact survival for extremely preterm infants have increased in high income countries. Decisions about withholding or withdrawing intensive care remain a major challenge in infants born at the limits of viability. Shared decision-making regarding these fragile infants between health care professionals and parents has become the preferred model today. However, there is an ongoing ethical debate on how decisions regarding life-sustaining treatment should be reached and who should have the final word when health care professionals and parents do not agree. We designed a survey among neonatologists and neonatal nurses to analyze practices, difficulties and parental involvement in end-of-life decisions for extremely preterm infants. Methods: All 552 physicians and nurses with at least 12 months work experience in level III neonatal intensive care units (NICU) in Switzerland were invited to participate in an online survey with 50 questions. Differences between neonatologists and NICU nurses and between language regions were explored. Results: Ninety six of 121 (79%) physicians and 302 of 431(70%) nurses completed the online questionnaire. The following difficulties with end-of-life decision-making were reported more frequently by nurses than physicians: insufficient time for decision-making, legal constraints and lack of consistent unit policies. Nurses also mentioned a lack of solidarity in our society and shortage of services for disabled more often than physicians. In the context of limiting intensive care in selected circumstances, nurses considered withholding tube feedings and respiratory support less acceptable than physicians. Nurses were more reluctant to give parents full authority to decide on the course of action for their infant. In contrast to professional category (nurse or physician), language region, professional experience and religion had little influence if any on the answers given. Conclusions: Physicians and nurses differ in many aspects of how and by whom end-of-life decisions should be made in extremely preterm infants. The divergencies between nurses and physicians may be due to differences in ethics education, varying focus in patient care and direct exposure to the patients. Acknowledging these differences is important to avoid potential conflicts within the neonatal team but also with parents in the process of end-of-life decision-making in preterm infants born at the limits of viability.Copyright © 2018 The Author(s).
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/s12887-018-1040-z" target="_blank" rel="noreferrer noopener">10.1186/s12887-018-1040-z</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here.
2018
Adult
Article
assisted ventilation
Barbara D
Baumann-Hölzle R
Berger TM
Bmc Pediatrics
Brigitte S
Bucher HU
Controlled Study
enteric feeding
Fauchère JC
Female
Gudrun J
Hendriks MJ
hospital policy
Human
Infant Mortality
Jean-Claude F
Kai R
Klein SD
Legal Aspect
Liliane S
Magali C
Male
Mathias N
Matthias R
Medical Decision Making
Medical Practice
Neonatal Intensive Care Unit
Neonatal Nurse
Neonatologist
nurse attitude
October 2018 List
Patient Participation
Philipp M
Physician Attitude
Prematurity
Questionnaire
Religion
Renate I
Riccardo P
Roland N
Ruth D
September 2018 List
Streuli JC
Switzerland
Terminal Care
Ulrike S
work experience
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative Care After Neonatal Intensive Care: Contributions Of Leonetti Law And Remaining Challenges
Publisher
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Archives De Pediatrie
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Newborn Intensive Care; Palliative Therapy; Patient Right; Terminal Care; Artificial Feeding; Brain Damage; Climate; Clinical Practice; Clinical Study; Decision Making; Drug Withdrawal; Dying; Emotion; Ethics; Health Promotion; Human; Human Dignity; Hydration; Life Sustaining Treatment; Medical Decision Making; Medical Ethics; Medical Practice; Neonatology; Newborn; Palliative Therapy; Perinatal Care; Perinatal Nursing; Quality Of Life; Short Survey; Survival; Terminal Care; Treatment Withdrawal
Creator
An entity primarily responsible for making the resource
Kuhn P; Dillenseger L; Cojean N; Escande B; Zores C; Astruc D
Identifier
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10.1016/j.arcped.2016.11.012
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
April 2017 List
Archives de Pediatrie
Artificial Feeding
Astruc D
Brain Damage
Climate
Clinical Practice
Clinical Study
Cojean N
Decision Making
Dillenseger L
Drug Withdrawal
Dying
Emotion
Escande B
Ethics
Health Promotion
Human
Human Dignity
Hydration
Kuhn P
Life Sustaining Treatment
Medical Decision Making
Medical Ethics
Medical Practice
Neonatology
Newborn
Newborn Intensive Care
Palliative Therapy
Patient Right
Perinatal Care
Perinatal Nursing
Quality Of Life
Short Survey
Survival
Terminal Care
Treatment Withdrawal
Zores C