1
40
16
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2022 Special Edition 3 - Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2022 Special Edition 3 - Oncology List
URL Address
<a href="http://doi.org/10.1002/pbc.29533" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1002/pbc.29533</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
"Some things are even worse than telling a child he is going to die": Pediatric oncology healthcare professionals perspectives on communicating with children about cancer and end of life
Publisher
An entity responsible for making the resource available
Pediatric Blood and Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Creator
An entity primarily responsible for making the resource
Laronne A; Granek L; Wiener L; Feder-Bubis P; Golan H
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pbc.29533" target="_blank" rel="noreferrer noopener">10.1002/pbc.29533</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
2022 Special Edition 3 - Oncology List
Child
Communication
Death
Delivery of Health Care
Feder-Bubis P
Golan H
Granek L
Health Personnel/px [psychology]
Humans
Laronne A
Male
Medical Oncology
Medical Oncology/ed [education]
Neoplasms
Neoplasms/px [psychology]
Neoplasms/th [therapy]
Pediatric Blood and Cancer
Wiener L
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2020 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2020 List
URL Address
<a href="http://doi.org/10.1002/pbc.28409" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/pbc.28409</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The COVID-19 pandemic: A rapid global response for children with cancer from SIOP, COG, SIOP-E, SIOP-PODC, IPSO, PROS, CCI, and St Jude Global
Publisher
An entity responsible for making the resource available
Pediatric Blood and Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
Humans; Child; pediatrics; childhood cancer; Pediatrics; Disease Management; Medical Oncology; Consensus; Societies; Medical; retinoblastoma; acute lymphoblastic leukemia; COVID-19; SARS-CoV-2; Betacoronavirus; Pandemics; Pneumonia; Burkitt lymphoma; Coronavirus Infections/*epidemiology; Neoplasms/complications/diagnosis/*therapy; Viral/*epidemiology; Hodgkin lymphoma; low-grade glioma; nephroblastoma; WHO Global Initiative on Childhood Cancer; Wilms tumor
Creator
An entity primarily responsible for making the resource
Sullivan M; Bouffet E; Rodriguez-Galindo C; Luna-Fineman S; Khan M S; Kearns P; Hawkins D S; Challinor J; Morrissey L; Fuchs J; Marcus K; Balduzzi A; Basset-Salom L; Caniza M; Baker J N; Kebudi R; Hessissen L; Sullivan R; Pritchard-Jones K
Description
An account of the resource
The COVID-19 pandemic is one of the most serious global challenges to delivering affordable and equitable treatment to children with cancer we have witnessed in the last few decades. This Special Report aims to summarize general principles for continuing multidisciplinary care during the SARS-CoV-2 (COVID-19) pandemic. With contributions from the leadership of the International Society for Pediatric Oncology (SIOP), Children's Oncology Group (COG), St Jude Global program, and Childhood Cancer International, we have sought to provide a framework for healthcare teams caring for children with cancer during the pandemic. We anticipate the burden will fall particularly heavily on children, their families, and cancer services in low- and middle-income countries. Therefore, we have brought together the relevant clinical leads from SIOP Europe, COG, and SIOP-PODC (Pediatric Oncology in Developing Countries) to focus on the six most curable cancers that are part of the WHO Global Initiative in Childhood Cancer. We provide some practical advice for adapting diagnostic and treatment protocols for children with cancer during the pandemic, the measures taken to contain it (e.g., extreme social distancing), and how to prepare for the anticipated recovery period.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pbc.28409" target="_blank" rel="noreferrer noopener">10.1002/pbc.28409</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Acute Lymphoblastic Leukemia
Baker J N
Balduzzi A
Basset-Salom L
Betacoronavirus
Bouffet E
Burkitt lymphoma
Caniza M
Challinor J
Child
Childhood Cancer
Consensus
Coronavirus Infections/*epidemiology
COVID-19
Disease Management
Fuchs J
Hawkins D S
Hessissen L
Hodgkin lymphoma
Humans
Kearns P
Kebudi R
Khan M S
low-grade glioma
Luna-Fineman S
Marcus K
Medical
Medical Oncology
Morrissey L
Neoplasms/complications/diagnosis/*therapy
nephroblastoma
Oncology 2020 List
Pandemics
Pediatric Blood and Cancer
Pediatrics
Pneumonia
Pritchard-Jones K
retinoblastoma
Rodriguez-Galindo C
SARS-CoV-2
Societies
Sullivan M
Sullivan R
Viral/*epidemiology
WHO Global Initiative on Childhood Cancer
Wilms tumor
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2018 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/10.1016/j.pec.2017.03.028" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1016/j.pec.2017.03.028</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
'Just gripping my heart and squeezing': Naming and explaining the emotional experience of receiving bad news in the paediatric oncology setting
Publisher
An entity responsible for making the resource available
Patient education and counseling
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Physician-Patient Relations; Medical Oncology; Male; Communication; Child; Humans; Adult; Pediatrics; Female; Parents/px [Psychology]; Emotions; Truth Disclosure
Creator
An entity primarily responsible for making the resource
Nelson M; Kelly D; McAndrew R; Smith P
Description
An account of the resource
OBJECTIVE: To explore recipients' perspectives on the range and origins of their emotional experiences during their 'bad news' consultations., METHODS: Participants were four bereaved families of children who had changed from active treatment to palliative care in paediatric oncology. Data was collected using emotional touchpoint storytelling. The names (descriptors) given to the emotional experiences were linguistically classified. Explanations of their perceived origins were examined using applied thematic analysis., RESULTS: 26 descriptors were given, relating to bodily sensations, affective states, evaluations and cognitive conditions. Three themes were identified in the origins of these experiences - 'becoming aware', 'the changes' and 'being in this situation'. Parents described strong emotional displays during the consultation including physical collapse. These related to the internal process of 'becoming aware'. Three descriptors were given as originating from the clinicians and their delivery of the news - 'supported', 'included', 'trusting'., CONCLUSIONS: Recipients perceive their emotional experiences as mainly originating from the news itself, and perceived consequences of it, rather than its delivery. Strong emotional reactions during the interaction are not necessarily an indicator of ineffectual delivery., PRACTICE IMPLICATIONS: Findings offer a thematic framing that may support and deepen practitioners understanding of recipients' emotional reactions during bad news consultations.Crown Copyright � 2017. Published by Elsevier B.V. All rights reserved.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/%2010.1016/j.pec.2017.03.028" target="_blank" rel="noreferrer noopener">10.1016/j.pec.2017.03.028</a>
2017
Adult
Child
Communication
Emotions
Female
Humans
Kelly D
Male
McAndrew R
Medical Oncology
Nelson M
Oncology 2018 List
Parents/px [psychology]
Patient Education and Counseling
Pediatrics
Physician-patient Relations
Smith P
Truth Disclosure
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2018 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/10.1111/ecc.12651" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1111/ecc.12651</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Missing life stories. The narratives of palliative patients, parents and physicians in paediatric oncology
Publisher
An entity responsible for making the resource available
European Journal of Cancer Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Neoplasms/psychology; Medical Oncology; Middle Aged; Male; Disease Progression; dying; Child; Humans; Adult; Qualitative Research; Pediatrics; Adolescent; Parents; palliative care; Female; Attitude to Death; Attitude to Health; Narration; Switzerland; narrative; Leukemia/psychology; paediatric oncology; stories; lived experience; Oncologists; Bone Neoplasms/psychology; Sarcoma/psychology; Soft Tissue Neoplasms/psychology
Creator
An entity primarily responsible for making the resource
De CE; Elger BS; Wangmo T
Description
An account of the resource
Illness narratives have become very popular. The stories of children, however, are rarely ever studied. This paper aims to provide insight into how children, parents and physicians make sense of progressive childhood cancer. It also explores how this meaning-giving process interacts with cultural dominant stories on cancer and dying. The presented data come from 16 open-ended face-to-face interviews with palliative paediatric patients, their parents and physicians. The interviews were carried out in eight paediatric oncology centres in Switzerland. Data analysis followed Arthur Frank's dialogical narrative analysis. Quest narratives were relatively rare compared to both chaos and restitution stories. All participants welcomed chaos stories as a liminal haven between quest and restitution. The possibility that the child could die was either ignored or briefly contemplated, but then immediately pushed away. Except for one patient, children never directly addressed the topic of death. The way in which death was presented raises important questions about how the social discourse on dying is framed in terms of choice, autonomy and individuality. This discourse not only determines the way in which children and adults relate to the minor's death, it also constitutes an obstacle to children's participation in decision-making.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/%2010.1111/ecc.12651" target="_blank" rel="noreferrer noopener">10.1111/ecc.12651</a>
2017
Adolescent
Adult
Attitude To Death
Attitude To Health
Bone Neoplasms/psychology
Child
De CE
Disease Progression
Dying
Elger BS
European Journal Of Cancer Care
Female
Humans
Leukemia/psychology
lived experience
Male
Medical Oncology
Middle Aged
Narration
Narrative
Neoplasms/psychology
oncologists
Oncology 2018 List
Paediatric oncology
Palliative Care
Parents
Pediatrics
Qualitative Research
Sarcoma/psychology
Soft Tissue Neoplasms/psychology
Stories
Switzerland
Wangmo T
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pbc.24673" target="_blank" rel="noreferrer">http://doi.org/10.1002/pbc.24673</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pediatric oncology providers' perceptions of barriers and facilitators to early integration of pediatric palliative care
Publisher
An entity responsible for making the resource available
Pediatric Blood & Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Female; Humans; Male; Palliative Care; Neoplasms; Pediatrics; Adult; Aged; Middle Aged; Health Personnel; Focus Groups; Medical Oncology; Practice; Palliative Care; Attitudes; Health Knowledge
Creator
An entity primarily responsible for making the resource
Dalberg T; Jacob-Files E; Carney PA; Meyrowitz J; Fromme EK; Thomas G
Description
An account of the resource
BACKGROUND: Pediatric patients experience significant symptoms during cancer treatment. Symptom management is frequently inadequate. We studied perceptions of pediatric oncology care providers regarding early integration of palliative care (PC) for pediatric patients to identify barriers and facilitators that might assist in understanding how care could be improved. PROCEDURES: Pediatric oncology providers were recruited to participate in four focus groups. A proposal for early integration of a pediatric palliative care team (PPCT) was presented and followed by a facilitated discussion. Data were analytically categorized into themes by three independent coders using constant comparative analysis and crystallization techniques. A consensus approach was used to identify final themes. RESULTS: Barriers to the proposed care model of early integration of a PPCT included provider role, conflicting philosophy, patient readiness, and emotional influence and were more prevalent in the physician participants compared to nurse practitioner, nursing, and social work participants. Facilitators included patient eligibility, improved patient care, education, and evidence-based medicine. Though all participants were invested in providing optimal patient care, physician participants believed the current standard of care model is meeting the needs of patients and family, while the nurse practitioner, nursing, and social work participants working on the same healthcare team believed the proposed care model would improve the overall care of children diagnosed with cancer. CONCLUSIONS: Differing perceptions among healthcare providers regarding the care of children with cancer suggest that team functioning could be improved. Avenues for pilot testing early integration of PC could provide useful information for a next study.
2013-11
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pbc.24673" target="_blank" rel="noreferrer">10.1002/pbc.24673</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Adult
Aged
Attitudes
Backlog
Carney PA
Dalberg T
Female
Focus Groups
Fromme EK
Health Knowledge
Health Personnel
Humans
Jacob-Files E
Journal Article
Male
Medical Oncology
Meyrowitz J
Middle Aged
Neoplasms
Palliative Care
Pediatric Blood & Cancer
Pediatrics
Practice
Thomas G
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2008.0251" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2008.0251</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Training in difficult conversations: a national survey of pediatric hematology-oncology and pediatric critical care physicians
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Female; Humans; Male; Pediatrics; Health Care Surveys; Education; Communication; Physicians; Truth Disclosure; Medical Oncology; Critical Care; Fellowships and Scholarships; Hematology; Teaching; Medical
Creator
An entity primarily responsible for making the resource
Kersun L; Gyi L; Morrison WE
Description
An account of the resource
BACKGROUND: In pediatric oncology and critical care, physicians give difficult news, including discussions regarding palliative care and comfort measures, but there are minimal data regarding fellowship program preparation for this task. PURPOSE: We surveyed graduates of pediatric hematology/oncology and critical care fellowships regarding communication training to describe teaching methods, assess which were helpful, and determine whether comfort level is related to training experiences. METHODS: A 12-question Web survey was sent to physicians completing fellowship in the previous 5 years. RESULTS: Of 345 fellows identified, 171 (50%) responded. Prior training included observing senior physicians (100%), being observed (78%), reading (56%), lectures (46%), role-play (20%), workshops (16%), simulation (13%), and videos (13%). Observing senior physicians was thought most helpful. More years since training (p
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2008.0251" target="_blank" rel="noreferrer">10.1089/jpm.2008.0251</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Backlog
Communication
Critical Care
Education
Fellowships And Scholarships
Female
Gyi L
Health Care Surveys
Hematology
Humans
Journal Article
Journal of Palliative Medicine
Kersun L
Male
Medical
Medical Oncology
Morrison WE
Pediatrics
Physicians
Teaching
Truth Disclosure
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1471-2288-9-15" target="_blank" rel="noreferrer">http://doi.org/10.1186/1471-2288-9-15</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Online focus groups as a tool to collect data in hard-to-include populations: examples from paediatric oncology
Publisher
An entity responsible for making the resource available
Bmc Medical Research Methodology
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; Pediatrics; Focus Groups; Medical Oncology; Online Systems; Population
Creator
An entity primarily responsible for making the resource
Tates K; Zwaanswijk M; Otten R; van Dulmen S; Hoogerbrugge PM; Kamps WA; Bensing JM
Description
An account of the resource
BACKGROUND: The purpose of this article is to describe and evaluate the methodology of online focus group discussions within the setting of paediatric oncology. METHODS: Qualitative study consisting of separate moderated asynchronous online discussion groups with 7 paediatric cancer patients (aged 8-17), 11 parents, and 18 survivors of childhood cancer (aged 8-17 at diagnosis). RESULTS: All three participant groups could be actively engaged over a one-week period. Respondents highly valued the flexibility and convenience of logging in at their own time and place to join the discussion. Adolescent patients and survivors emphasized that the anonymity experienced made them feel comfortable to express their views in detail. The findings indicate a strong preference for online group discussions across all participant groups. CONCLUSION: The findings show that online focus group methodology is a feasible tool for collecting qualitative data within the setting of paediatric oncology, and may offer new opportunities to collect data in other hard-to-include populations. The evaluations seem to indicate that the online group discussions have given participants an opportunity to articulate their experiences and views in a way they might not have done in a traditional group discussion.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1471-2288-9-15" target="_blank" rel="noreferrer">10.1186/1471-2288-9-15</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Backlog
Bensing JM
Bmc Medical Research Methodology
Focus Groups
Hoogerbrugge PM
Humans
Journal Article
Kamps WA
Medical Oncology
Online Systems
Otten R
Pediatrics
Population
Tates K
van Dulmen S
Zwaanswijk M
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1200/jco.2009.24.6397" target="_blank" rel="noreferrer">http://doi.org/10.1200/jco.2009.24.6397</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Paradoxes in advance care planning: the complex relationship of oncology patients, their physicians, and advance medical directives.
Publisher
An entity responsible for making the resource available
Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Female; Humans; Male; Young Adult; Palliative Care; Terminal Care; Family; Adult; Interviews as Topic; Aged; Middle Aged; Physicians; Medical Oncology; 80 and over; advance care planning; DNAR; Advance Directives; Physician-Patient Relations; Patient Preference; Neoplasms/px [Psychology]
Creator
An entity primarily responsible for making the resource
Dow LA; Matsuyama RK; Ramakrishnan V; Kuhn L; Lamont EB; Lyckholm L; Smith TJ
Description
An account of the resource
PURPOSE: Many seriously ill patients with cancer do not discuss prognosis or advance directives (ADs), which may lead to inappropriate and/or unwanted aggressive care at the end of life. Ten years ago, patients with cancer said they would not like to discuss ADs with their oncologist but would be willing to discuss them with an admitting physician. We assessed whether this point of view still held., PATIENTS AND METHODS: Semi-structured interviews were conducted with 75 consecutively admitted patients with cancer in the cancer inpatient service., RESULTS: Of those enrolled, 41% (31 of 75) had an AD. Nearly all (87%, 65 of 75) thought it acceptable to discuss ADs with the admitting physician with whom they had no prior relationship, and 95% (62 of 65) thought that discussing AD issues was very or somewhat important. Only 7% (5 of 75) had discussed ADs with their oncologist, and only 23% (16 of 70) would like to discuss ADs with their oncologist. When specifically asked which physician they would choose, 48% (36 of 75) of patients would prefer their oncologist, and 35% (26 of 75) would prefer their primary care physician., CONCLUSION: Fewer than half of seriously ill patients with cancer admitted to an oncology service have an AD. Only 23% (16 of 70) would like to discuss their ADs with their oncologist but nearly all supported a policy of discussing ADs with their admitting physician. However, fully 48% (36 of 75) actually preferred to discuss advance directives with their oncologist if AD discussion was necessary. We must educate patients on why communicating their ADs is beneficial and train primary care physicians, house staff, hospitalists, and oncologists to initiate these difficult discussions.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/jco.2009.24.6397" target="_blank" rel="noreferrer">10.1200/jco.2009.24.6397</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
80 And Over
Adult
Advance Care Planning
Advance Directives
Aged
Backlog
DNAR
Dow LA
Family
Female
Humans
Interviews As Topic
Journal Article
Journal Of Clinical Oncology
Kuhn L
Lamont EB
Lyckholm L
Male
Matsuyama RK
Medical Oncology
Middle Aged
Neoplasms/px [psychology]
Palliative Care
Patient Preference
Physician-patient Relations
Physicians
Ramakrishnan V
Smith TJ
Terminal Care
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s00520-005-0815-6" target="_blank" rel="noreferrer">http://doi.org/10.1007/s00520-005-0815-6</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Experience in the use of the palliative care outcome scale.
Publisher
An entity responsible for making the resource available
Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Female; Humans; Male; Great Britain; Adult; Questionnaires; Aged; Middle Aged; Pilot Projects; Cancer Care Facilities; Medical Oncology; quality of life; 80 and over; DNAR; Palliative Care/px [Psychology]; Patient Satisfaction; Treatment Outcome
Creator
An entity primarily responsible for making the resource
Stevens A-M; Gwilliam B; A'hern R; Broadley K; Hardy J
Description
An account of the resource
GOALS OF WORK: The objective of the study is to assess the Palliative Care Outcome Scale (POS) as a potential audit tool within a specialist cancer centre. It also aims to answer the following questions: does the tool identify problem areas and demonstrate changes in quality of life over time? How well do staff and patient ratings correlate?, PATIENTS AND METHODS: The POS questionnaire was piloted at a specialist cancer centre. Thirty consecutive patients admitted to the palliative care wards and ward staff completed questionnaires on admission and twice weekly until discharge or death. A further questionnaire assessed staff attitudes., RESULTS: There was a significant improvement in overall patient POS score at 1 week (days 5-9). Four "symptoms" or issues were scored as being important for our patients: pain, other symptoms, anxiety and patient's perception of family anxiety. These all significantly improved within the first week. At the initial assessment, staff underestimated patients' pain and overestimated problems relating to information giving and patients' ability to share their feelings. There was no significant difference between staff and patient scores after 1 week. The other six areas covered by the tool were less important; this may reflect the patient population seen at our centre. Use of the tool identified areas for staff training and effectively demonstrated improvement in patient care., CONCLUSION: The POS is an outcome measure tool designed to assess physical, psychological, practical and existential aspects of quality of life. It may be useful in identifying problems in individual patients and directing care to address these needs.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s00520-005-0815-6" target="_blank" rel="noreferrer">10.1007/s00520-005-0815-6</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
80 And Over
A'hern R
Adult
Aged
Backlog
Broadley K
Cancer Care Facilities
DNAR
Female
Great Britain
Gwilliam B
Hardy J
Humans
Journal Article
Male
Medical Oncology
Middle Aged
Palliative Care/px [psychology]
Patient Satisfaction
Pilot Projects
Quality Of Life
Questionnaires
Stevens A-M
Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer
Treatment Outcome
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.bor.0000146608.03927.16" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.bor.0000146608.03927.16</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Advances that are changing the diagnosis and treatment of malignant bone tumors
Publisher
An entity responsible for making the resource available
Current Opinion In Rheumatology
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Medical Oncology; Antineoplastic Agents; Bone Neoplasms/diagnosis/etiology/secondary/therapy; Carcinoma/diagnosis/etiology/secondary/therapy; Orthopedics; Prostheses and Implants; Sarcoma/diagnosis/etiology/secondary/therapy
Creator
An entity primarily responsible for making the resource
Casas-Ganem J; Healey JH
Description
An account of the resource
PURPOSE OF REVIEW: Several neoplastic conditions may affect bone. These include primary bone tumors as well as metastatic disease from distant primary sites. Often, these entities produce symptoms that may be difficult to distinguish from those of various rheumatologic entities. The purpose of this review is to discuss recent developments in orthopedic oncology, with special attention given to advances that are changing the diagnosis and treatment of bone sarcomas and carcinomas metastatic to bone. RECENT FINDINGS: Much effort in the field of musculoskeletal oncology has been dedicated to the elucidation of the molecular mechanisms underlying bone sarcomas, especially in the case of osteogenic sarcoma and Ewing family tumor. Telomere maintenance mechanisms are emerging as potential targets for anticancer therapy. The most exciting advances have been in the development of novel treatments for cancers affecting bone. The anticancer effects of bisphosphonates, cyclooxygenase-2 inhibitors, and statins may expand their indications to the treatment of primary bone tumors. Finally, new expandable implants have been developed for the treatment of bone tumors in growing children. These devices may help solve some of the problems encountered with reconstruction of the growing skeleton. SUMMARY: Recent discoveries in the molecular mechanisms of bone sarcomas may help to elucidate the pathogenesis of these rare diseases. This, combined with the recent findings of the anticancer effects of bisphosphonates, cyclooxygenase-2 inhibitors, and statins, may lead to the development of novel treatments for sarcomas of bone and of carcinomas metastatic to bone.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.bor.0000146608.03927.16" target="_blank" rel="noreferrer">10.1097/01.bor.0000146608.03927.16</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Antineoplastic Agents
Backlog
Bone Neoplasms/diagnosis/etiology/secondary/therapy
Carcinoma/diagnosis/etiology/secondary/therapy
Casas-Ganem J
Current Opinion In Rheumatology
Healey JH
Humans
Journal Article
Medical Oncology
Orthopedics
Prostheses and Implants
Sarcoma/diagnosis/etiology/secondary/therapy
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1300/j457v01n04_04" target="_blank" rel="noreferrer">http://doi.org/10.1300/j457v01n04_04</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pediatric palliative and end-of-life care: the role of social work in pediatric oncology
Publisher
An entity responsible for making the resource available
Journal of Social Work in End-of-Life & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Pediatrics; Professional Role; Interdisciplinary Communication; Communication; Medical Oncology; Palliative Care/organization & administration; Family/psychology; Pain/drug therapy; Terminal Care/organization & administration; Patient Care Team/organization & administration; Social Work/organization & administration
Creator
An entity primarily responsible for making the resource
Jones BL
Description
An account of the resource
Pediatric oncology social workers are often engaged in the psychosocial care of dying children and their families. Despite their participation on the interdisciplinary team, the role for social work in pediatric palliative and end-of-life care has not been clearly defined. This survey of 131 pediatric oncology social workers identified current and best social work practices for care of children and their families at the end of life. Implications for practice, education, and research are discussed.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1300/j457v01n04_04" target="_blank" rel="noreferrer">10.1300/j457v01n04_04</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Backlog
Communication
Family/psychology
Humans
Interdisciplinary Communication
Jones BL
Journal Article
Journal of Social Work in End-of-Life & Palliative Care
Medical Oncology
Pain/drug Therapy
Palliative Care/organization & Administration
Patient Care Team/organization & administration
Pediatrics
Professional Role
Social Work/organization & administration
Terminal Care/organization & Administration
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.6004/jnccn.2006.0069" target="_blank" rel="noreferrer">http://doi.org/10.6004/jnccn.2006.0069</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Integrating POLST into palliative care guidelines: a paradigm shift in advance care planning in oncology.
Publisher
An entity responsible for making the resource available
Journal Of The National Comprehensive Cancer Network
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Humans; decision making; advance care planning; DNAR; Palliative Care; Medical Oncology; Advance Directives; Neoplasms/px [Psychology]; Neoplasms/th [Therapy]; Physician's Practice Patterns/og [Organization & Administration]; Life Support Care/st [Standards]
Creator
An entity primarily responsible for making the resource
Bomba Patricia A; Vermilyea D
Description
An account of the resource
Because predicting and outlining guidance for all possible scenarios is difficult, advance directives are rarely sufficiently precise to dictate patient preferences in specific situations as a disease progresses. Nonetheless, advance care planning is an essential process that should begin at the time of diagnosis, if not already initiated, to ensure that all patient and family rights are preserved. Communicating effectively with the patient and family and having the patient designate a surrogate decision-maker are critical. Attention must be paid to resolving conflicts among patient values and preferences and those of family and the health care team. Patient-centered goals for care and expectations should be elicited at first assessment and reassessed frequently as conditions change. As a disease progresses, advance directives are rarely precise enough to predict all possible scenarios and outline guidance for care. Therefore, for patients with advanced metastatic cancer and a potential life expectancy of less than 1 year, converting patient-centered treatment goals into actionable medical orders while the patient maintains capacity is a more effective way to ensure that patient preferences are honored. Physician Orders for Life-Sustaining Treatment (POLST) and similar medical order forms provide explicit direction about resuscitation status ("code status") if the patient is pulseless and apneic. POLST also includes directions about additional interventions the patient may or may not want. A decade of research in Oregon has proved that the POLST Paradigm Program more accurately conveys end-of-life preferences that are more likely to be followed by medical professionals than traditional advance directives alone.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.6004/jnccn.2006.0069" target="_blank" rel="noreferrer">10.6004/jnccn.2006.0069</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Advance Care Planning
Advance Directives
Backlog
Bomba Patricia A
Decision Making
DNAR
Humans
Journal Article
Journal Of The National Comprehensive Cancer Network
Life Support Care/st [Standards]
Medical Oncology
Neoplasms/px [psychology]
Neoplasms/th [therapy]
Palliative Care
Physician's Practice Patterns/og [Organization & Administration]
Vermilyea D
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s00520-002-0341-8" target="_blank" rel="noreferrer">http://doi.org/10.1007/s00520-002-0341-8</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The impact of a palliative medicine consultation service in medical oncology.
Publisher
An entity responsible for making the resource available
Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Female; Humans; Male; Adult; Prognosis; Eligibility Determination; Prospective Studies; Aged; Middle Aged; Resuscitation Orders; Health Status; adolescent; 80 and over; social support; DNAR; hospice care; Pain/dt [Drug Therapy]; Medical Oncology; Neoplasms/th [Therapy]; Palliative Care/ut [Utilization]; referral and consultation; Pain/et [Etiology]; Palliative Care/og [Organization & Administration]
Creator
An entity primarily responsible for making the resource
Homsi J; Walsh D; Nelson KA; LeGrand SB; Davis M; Khawam E; Nouneh C
Description
An account of the resource
This prospective study of consecutive patients describes the palliative medicine consult service in a tertiary level cancer center and its impact on patient care. All inpatients/outpatients referred to the Palliative Medicine Program in a 4-month period were enrolled. Data were collected at the initial consultation using standardized forms with spaces for: reason for the consultation, referring service, demographics and history, ECOG performance status, symptoms, prognosis and diagnostic tests, treatment, and care plan. In all, 240 patients were seen: 79% were referred for symptom management; 53% were referred from medical oncology; and 50% were women. Median patient age was 67 years (range 18-96). Median performance status was 2 (1-4). Most (84%) of the patients had cancer. The cancer sites were: lung in 26% of cases, colorectal in 8%, and breast in 7%. Inpatients accounted for 53% and outpatients, for 47% of the study population. The median number of symptoms per patient was 13 (2-30). The estimated survival was <2 weeks in 15%, 2-8 weeks in 38%, 2-6 months in 37%, and >6 months in 10%. The patients' goals were: improve symptoms for 84%, return home for 55%, and no further admissions for 5%. The support systems named by patients were: family in 89%, friends in 13%, and the community in 5%. Hospice care was discussed at the consultation with 38% of the patients, would have been inappropriate for 31%, was not discussed with 22%, and had been discussed before with 9%. In response to questions about psychosocial care, a caregiver was identified by 78%, a spokesperson by 75%, and durable power of attorney was referred to by 21%. The DNR status was discussed on consult by 57%, had already been discussed with 30%, and was not discussed with 13%. Plan of care foresaw outpatient follow-up for 40%, inpatient follow-up for 32%, and transfer to palliative medicine for 27%. In 39% of cases the consults were considered late referrals. New medications suggested were opioids for 46% of patients, antiemetics for 28%, a bowel regimen for 24%, steroids for 15%, and others for 51%. (1) Palliative medicine consultation involves common complex medical, psychological, and social problems. (2) Complex symptomatology in this population is confirmed. (3) Multiple interventions were suggested even at the initial consultation. (4) Important issues such as DNR (do not resuscitate) status, support system, treatment goals, and eligibility for hospice care had often not been addressed.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s00520-002-0341-8" target="_blank" rel="noreferrer">10.1007/s00520-002-0341-8</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
80 And Over
Adolescent
Adult
Aged
Backlog
Davis M
DNAR
Eligibility Determination
Female
Health Status
Homsi J
Hospice Care
Humans
Journal Article
Khawam E
LeGrand SB
Male
Medical Oncology
Middle Aged
Nelson KA
Neoplasms/th [therapy]
Nouneh C
Pain/dt [drug Therapy]
Pain/et [Etiology]
Palliative Care/og [Organization & Administration]
Palliative Care/ut [Utilization]
Prognosis
Prospective Studies
Referral And Consultation
Resuscitation Orders
Social Support
Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer
Walsh D
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.5737/1181912x144224227" target="_blank" rel="noreferrer">http://doi.org/10.5737/1181912x144224227</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Mapping the journey of cancer patients through the health care system. Part 2: Methodological approaches and basic findings
Publisher
An entity responsible for making the resource available
Canadian Oncology Nursing Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Female; Humans; Male; Aged; Middle Aged; Survival Analysis; Cancer Care Facilities; Medical Oncology; Quality of Health Care; Proportional Hazards Models; Registries; Non-U.S. Gov't; Research Support; Databases; Delivery of Health Care/organization & administration; Patient Admission/statistics & numerical data; Length of Stay/statistics & numerical data; Health Services Research/methods; Data Collection/methods; Factual/utilization; Manitoba/epidemiology; Medical Record Linkage/methods; Neoplasms/diagnosis/mortality/therapy
Creator
An entity primarily responsible for making the resource
Sloan JA; Scott-Findlay S; Nemecek A; Blood P; Trylinski C; Whittaker H; El Sayed S; Clinch J; Khoo K
Description
An account of the resource
This is the second in a series of articles from a line of research whose intent was to construct a complete history of interactions with the health care system. This paper provides details of the methods developed to collect and collate the scattered information regarding the event history (trajectory) that a cancer patient experiences in traveling through the Manitoba health care system from one year prior to diagnosis through to two years post-diagnosis. Survival data were obtained through 1994. Basic population data obtained from this work are also presented, including survival information through to four years post-diagnosis. Issues regarding standardized data recording and detail level of clinical events in the chart record are discussed. This part of the research demonstrates that diverse data sources in the health care system can be linked with a high degree of accuracy and completeness of data.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.5737/1181912x144224227" target="_blank" rel="noreferrer">10.5737/1181912x144224227</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Aged
Backlog
Blood P
Canadian Oncology Nursing Journal
Cancer Care Facilities
Clinch J
Data Collection/methods
Databases
Delivery of Health Care/organization & administration
El Sayed S
Factual/utilization
Female
Health Services Research/methods
Humans
Journal Article
Khoo K
Length Of Stay/statistics & Numerical Data
Male
Manitoba/epidemiology
Medical Oncology
Medical Record Linkage/methods
Middle Aged
Nemecek A
Neoplasms/diagnosis/mortality/therapy
Non-U.S. Gov't
Patient Admission/statistics & numerical data
Proportional Hazards Models
Quality Of Health Care
Registries
Research Support
Scott-Findlay S
Sloan JA
Survival Analysis
Trylinski C
Whittaker H
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
n/a
URL Address
<a href="http://doi.org/10.1007/s00381-015-2771-x" target="_blank" rel="noreferrer">http://doi.org/10.1007/s00381-015-2771-x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Challenges and opportunities to advance pediatric neuro-oncology care in the developing world
Publisher
An entity responsible for making the resource available
Childs Nervous System
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
Brain Neoplasms/ep [epidemiology];brain Neoplasms/th [therapy];developing Countries;medical Oncology;neurology; Humans
Creator
An entity primarily responsible for making the resource
Chan MH; Boop F; Qaddoumi I
Description
An account of the resource
PURPOSE: As the morbidity and mortality associated with communicable diseases continue to decrease in the developing world, the medical burden of childhood cancer continues to expand. Although international aid and relief groups such as the World Health Organization recognize the importance of childhood cancer, their main emphasis is on the more easily treated malignancies, such as leukemias and lymphomas, and not pediatric brain tumors, which are the second most common malignancy in children and the leading cause of cancer-related deaths in the pediatric population. Addressing the needs of these children is a growing concern of several professional neuro-oncology-related societies. Thus, the goal of this review is to describe the current state of pediatric neuro-oncology care in the developing world, address the current and future needs of the field, and help guide professional societies' efforts to contribute in a more holistic and multidisciplinary manner. METHODS: We reviewed the literature to compare the availability of neuro-oncology care in various regions of the developing world with that in higher income nations, to describe examples of successful initiatives, and to present opportunities to improve care. RESULTS: The current challenges, previous successes, and future opportunities to improve neuro-oncology care are presented. The multidisciplinary nature of neuro-oncology depends on large teams of highly specialized individuals, including neuro-oncologists, neurosurgeons, neurologists, radiologists, radiation oncologists, pathologists, palliative care specialists, oncology nurses, physical therapists, occupational therapists, speech therapists, pediatric intensivists, and social workers, among others. CONCLUSION: Pediatric neuro-oncology is one of the most complex types of medical care to deliver, as it relies on numerous specialists, subspecialists, support staff, and physical resources and infrastructure. However, with increasing collaboration and advancing technologies, developed nations can help substantially improve neuro-oncology care for children in developing nations.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s00381-015-2771-x" target="_blank" rel="noreferrer">10.1007/s00381-015-2771-x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2015
Boop F
Brain Neoplasms/ep [epidemiology]
brain Neoplasms/th [therapy]
Chan MH
Childs Nervous System
Developing Countries
Humans
Medical Oncology
Neurology
Qaddoumi I
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.3322/caac.21347" target="_blank" rel="noreferrer">http://doi.org/10.3322/caac.21347</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps
Publisher
An entity responsible for making the resource available
Ca: A Cancer Journal For Clinicians
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Family; National Academies Of Science; Palliative Care; Quality Of Life; Adult; American Cancer Society/organization & Administration; And Medicine (u.S.) Health And; Child; Education/ Organization & Administration; Engineering; Humans; Medical Oncology; Medicine Division/organization & Administration; Neoplasms/rehabilitation/ Therapy; Psychosocial Support Systems; United States
Creator
An entity primarily responsible for making the resource
Kirch R; Reaman G; Feudtner C; Wiener L; Schwartz LA; Sung L; Wolfe J
Description
An account of the resource
This article highlights key findings from the "Comprehensive Cancer Care for Children and Their Families" March 2015 joint workshop by the Institute of Medicine (IOM) and the American Cancer Society. This initiative convened more than 100 family members, clinician investigators, advocates, and members of the public to discuss emerging evidence and care models and to determine the next steps for optimizing quality-of-life outcomes and well-being for children and families during pediatric cancer treatment, after treatment completion, and across the life spectrum. Participants affirmed the triple aim of pediatric oncology that strives for every child with cancer to be cured; provides high-quality palliative and psychosocial supportive, restorative, and rehabilitative care to children and families throughout the illness course and survivorship; and assures receipt of high-quality end-of-life care for patients with advancing disease. Workshop outcomes emphasized the need for new pediatric cancer drug development and identified critical opportunities to prioritize palliative care and psychosocial support as an integral part of pediatric cancer research and treatment, including the necessity for adequately resourcing these supportive services to minimize suffering and distress, effectively address quality-of-life needs for children and families at all stages of illness, and mitigate the long-term health risks associated with childhood cancer and its treatment. Next steps include dismantling existing silos and enhancing collaboration between clinical investigators, disease-directed specialists, and supportive care services; expanding the use of patient-reported and parent-reported outcomes; effectively integrating palliative and psychosocial care; and clinical communication skills development. CA Cancer J Clin 2016;66:398-407. (c) 2016 American Cancer Society.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3322/caac.21347" target="_blank" rel="noreferrer">10.3322/caac.21347</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adult
American Cancer Society/organization & Administration
And Medicine (u.S.) Health And
Ca: A Cancer Journal For Clinicians
Child
Education/ Organization & Administration
Engineering
Family
Feudtner C
Humans
Kirch R
Medical Oncology
Medicine Division/organization & Administration
National Academies Of Science
Neoplasms/rehabilitation/ Therapy
Oncology 2017 List
Palliative Care
Psychosocial Support Systems
Quality Of Life
Reaman G
Schwartz LA
Sung L
United States
Wiener L
Wolfe J